Rarely Normal

Katelyn Nugent and Lindsay Weekes
  • 4.8(21개의 평가)
  • 사회 및 문화
  • 매주 업데이트

An exploration of the profound journey of loss, from the enduring power of love, to the unexpected moments of laughter, and everything in between. Join us for candid conversations, led by a child-loss mom and the incredible community that has supported her since day one. We’ll delve deep into the unique perspective and heartfelt advice of caregivers, friends, family, and the child-loss community. Together, we unlock the raw and complex experience of loss through the shared stories of resilience, love, and the healing strength that emerges.

  1. Episode 62: Kim Bradley | Type 4 Laryngeal Cleft

    2월 3일

    Episode 62: Kim Bradley | Type 4 Laryngeal Cleft

    This week, Kim Bradley shares her journey being a rare disease mom. Her daughter Laelynn (which is means 'flower of hope'), has faced 100's of surgeries and continues to shine a light of love. We discuss everything from Laelynn's day-to-day care, parenting a big family, PCA (patient care assistant) and the need for rare disease parents to rely on their tribe!

    42분
  2. Episode 61: Shawna Wanemacher Camilleri | Microcephaly Capillary Malformation Syndrome

    2025. 11. 17.

    Episode 61: Shawna Wanemacher Camilleri | Microcephaly Capillary Malformation Syndrome

    We're honored to welcome Shawna to the studio this week to talk about her son Keenan and his journey with Microcephaly Capillary Malformation Syndrome. From seizers to surgeries and seeing specialists in two states, their strength is palpable. Now Shawna is paying it forward by creating counseling and support for bereaved parents with Keenan's Caring Konnections and raising money for epilepsy. https://www.caringkonnections.com/ https://www.instagram.com/keenans_caring_konnections/

    53분
  3. Episode 60: Ashley Fisher | Spiritual Guide

    2025. 11. 11.

    Episode 60: Ashley Fisher | Spiritual Guide

    What a pleasure it was this week, to connect with Ashley about her connection to loss. Her ability to apply experiences being a Reiki Master, reading tarot cards, working in hospice, and studying astrology and signs, means she has an incredibly interesting POV on life, dealth, and everything in between. Check her out at ashleypagehealing.com

    1시간 8분
  4. Episode 59: Kate McKenna | Pancreatic Cancer

    2025. 11. 04.

    Episode 59: Kate McKenna | Pancreatic Cancer

    November is Pancreatic Cancer Awareness month. It's considered a rare cancer, since about 3% of all new cancer diagnoses are Pancreatic but it's become a significant public health issue because it is the eighth leading cause of cancer death. We welcome Kate McKenna to the studio to shed light on a cancer that's impacted multiple members of her family. She shared her grief journey, experience supporting her family, and how she's taking care of her own health.

    59분
  5. Episode 58: Amy Butterworth | Child Loss

    2025. 10. 27.

    Episode 58: Amy Butterworth | Child Loss

    We're honored to have Amy Butterworth in the studio this week to talk about her daughter Cindy Sue. It's a emotional ride and we're grateful for Amy's vulnerability and authenticity.

    1시간 6분
  6. Episode 57: Lindsay Weekes | Grief Journey Update

    2025. 10. 20.

    Episode 57: Lindsay Weekes | Grief Journey Update

    This week we reconnected as co-hosts to celebrate and discuss Lindsay's grief coaching certificate. She's 9 years into her grief journey, after the loss of her son Quinlan to an exceedingly rare disease (BRAT1) and we discuss where we in now, look back at the first year of grief, and discuss how this certificate will support in the future of our journey. https://lovequinlan.com/

    46분
  7. Episode 56: April Goodman | Breast Cancer

    2025. 10. 13.

    Episode 56: April Goodman | Breast Cancer

    This week, we are honored to mark Breast Cancer Awareness month by connecting with April Goodman. Now 5 years in remission, her journey was fast and furious and she shared her experience with diagnosis, treatment, and juggling a busy family and job. She's a true warrior with wise advice for anyone facing a similar diagnosis. Breast Cancer Research Foundation: https://give.bcrf.org/ Runway for Recovery: https://runwayforrecovery.org/

    1시간 13분
  8. Episode 55: Tennille Boseman | Pontocerebellar Hypoplasia (PCH)

    2025. 10. 06.

    Episode 55: Tennille Boseman | Pontocerebellar Hypoplasia (PCH)

    The power of positivity and came through in spades this week. We welcomed Tennille this studio this week to connect with her about her son Jett and his rare brain condition Pontocerebellar Hypoplasia (PCH). Her commitment to giving him the best quality of life, paying it forward, and living a life he'd be proud of, we were so inspired by Tennille. - Learn more about PCH here: https://rarediseases.org/rare-diseases/pontocerebellar-hypoplasia/ - She also wrote a book! Check out 'A Blended Diet How-To For Your Tubie' https://a.co/d/hdhN0Ky

    1시간 12분
모두 보기(62개)

평가 및 리뷰

4.8
최고 5점
21개의 평가

소개

An exploration of the profound journey of loss, from the enduring power of love, to the unexpected moments of laughter, and everything in between. Join us for candid conversations, led by a child-loss mom and the incredible community that has supported her since day one. We’ll delve deep into the unique perspective and heartfelt advice of caregivers, friends, family, and the child-loss community. Together, we unlock the raw and complex experience of loss through the shared stories of resilience, love, and the healing strength that emerges.

정보

  • 제작진
    Katelyn Nugent and Lindsay Weekes
  • 방송 연도
    2024년 - 2026년
  • 에피소드
    62
  • 등급
    전체 연령 사용가
  • 저작권
    © Katelyn Nugent and Lindsay Weekes
  • 웹사이트 보기
    Rarely Normal

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