Sage Words

Sage Justice

Infusing empathy and wisdom into universal challenges. sagejustice.substack.com

Episodes

  1. 2D AGO

    She’s Risking Her Life for Her Dreams

    This profoundly personal article was written by Sage Justice with permission by Gracie Justice . If you’ve ever fought to make your dreams come true, this piece is for you. May is Ehlers-Danlos Syndrome Awareness Month. Please read and share this article with anyone you know who has ever had a dream or suffers from chronic illness or pain and refuses to give up or give in to defeat. Thank you for your kindness, compassion and support. It’s greatly appreciated. While I encourage you to enjoy the photos and click on the links below, I have also recorded this piece for your listening convenience if you prefer not to read. Sage Words is a reader-supported publication. To receive new compelling posts and support my vulnerable work, please consider becoming a paid subscriber. Your financial contributions go directly to supporting the courageous and talented artist, Gracie Justice. IMMUNOCOMPROMISED The immunocompromised can’t afford to take a single exposure to the public for granted. Every crowd from the bus to the bank, from the mall to the market, to the elevator, canteen, plane, or train, is a threat in which she has to weigh its worth against her own. While her mates are going out to the pubs or movies on weeknights, or concerts and festivals on the weekends and holidays, she spends nearly every nonworking hour in recovery from the exhaustive nature of day-to-day living with health challenges. In addition to the safety precautions she embraces to protect her health when engaging with the public, it’s also her natural inclination to communicate on deeper levels beyond surface conversations. She prefers connecting one-on-one to socializing in large groups. Her peers gather together in community for meals and creative experiences, whilst she’s eating in the garden alone or working in a room where she can keep a window or door open for air flow (a safety measure against illness). Not only does she have to navigate the unseen germs but so too the misunderstood opinions of others as to why she spends so much time away from them. While many people are kind, compassionate, and supportive; others take her absence as a personal rejection of them instead of the embrace for survival it is for her. They have no idea that she is risking her life for her dreams. She cannot afford to risk it for their approval too. Whilst they are gathered as a group socializing in crowded spaces, unmasked and speaking too close to faces, she is shielding herself from the errant unprotected cough, the contagious sneeze, and the infected surface. If she leaves a door open for airflow, it makes the environment safer for her, but at times, more uncomfortable for others if it’s too hot, too cold, or too windy or rainy outside. She’s constantly between the rock of taking care of her health needs and the hard place of not being an inconvenience to others in doing so. The most thoughtful person in the room can be judged as being inconsiderate in an attempt to simply consider their needs in addition to everyone else’s. Learning to live with being misunderstood is an occupational hazard of those with chronic illness. Discreet Disclosure She reveals her medical conditions on a need to know basis because sharing doesn’t always mean other people will be caring. “Bessel Van Der Kolkata, M.D. makes a powerful point in his book, “The Body Keeps Score,” when he writes, “Talking about painful events doesn’t necessarily establish community — often quite the contrary. Families and organizations may reject members who air the dirty laundry; friends and family can lose patience with people who get stuck in their grief or hurt. This is one reason why trauma victims often withdraw and why their stories become rote narratives, edited into a form least likely to provoke rejection. It’s an enormous challenge to find safe places to express the pain of trauma.” Compassion fatigue is very real in our society, especially with the heightened drama of the fast-paced news cycle. Everyone is seems is overwhelmed and stressed out. As Paul Fussell wrote, “No one is very interested in the bad news [you] have to report.” Adding to this is the cultural and medical stigma that if you talk too much about your pain, you must be doing so just to get attention, or that you are neurotic or that your illness is your only identity and therefore all you can talk about. But as Karen Duffy, author of the books “Model Patient and Living with Chronic Pain Without Turning into One” so eloquently coined, “Concealing an illness is like keeping a beach ball under water.” What’s the Risk? The common cold that slows their roll for four days, can turn into a dangerous case of RSV and knock her down for four weeks. When they get the flu, they only need a day or two of rest; and they can push through it and still work while symptomatic. When she gets the flu, it can turn into life threatening sepsis and a hospital stay. The average person has an allergic reaction, and it inconveniences them. She has an allergic reaction, and it flattens her. “A ship is safe in harbor, but that’s not what ships were made for.” She has a dream and the talent and skill set worth investing in; but to do so, she takes great risks that most people will never understand. What Causes This? She didn’t inherit just one genetic disorder: Vascular Ehlers-Danlos Syndrome (vEDS), a heart and connective tissue disorder, but so too the comorbidities associated with it, like Mast Cell Activation Syndrome (MCAS), Postural Orthostatic Tachycardia Syndrome (POTS), Raynaud’s Syndrome, and Gastroparesis to name the current stars on the marquee of chronic offenses, with a special guest appearance by a bleeding disorder that requires treatments that are not always easy to find or afford. POTS (Postural Orthostatic Tachycardia Syndrome) Throughout the day, POTS, a multi-system disorder of the autonomic nervous system, grabs her heart, makes it race, and squeezes it into tachycardia. This can come from something as seemingly benign as an electrolyte imbalance brought on by a room that’s too hot. POTS can knock her to the ground if she stands too long, pooling her blood into her feet and making her faint and foggy in the brain. RAYNAUDS (Raynaud’s Syndrome) Raynaud’s Syndrome turns her fingers two different colors from reduced blood flow as a result of small arterial spasms. Some fingers become white, then blue, and can feel freezing and others are red and hot; leaving her hands and feet blotchy and clammy, dripping with sweat and sometimes numb. Every food choice, ideally takes into consideration the balance of blood sugar, electrolytes, potassium, and magnesium intake, whilst monitoring histamines and managing gut microbiome and ferritin levels. No choice is made lightly without great consequence. GASTROPARESIS Gastroparesis not only can cause paralyses to the stomach muscles, preventing them from digesting food, but so too spasms preventing the stomach from receiving food. Living with Gastroparesis requires a hypervigilance, not just around what and when she eats, but so too how she exercises. As a child, she was playing with a friend in a home gym, swinging from a rope with the others, just having fun being a kid and using her stomach muscles like the rest of the girls. However, when they got off the rope, the other girl’s muscles relaxed whereas hers continued to contract involuntarily for over 24 hours. These spasms can cause relentless vomiting that can throw off electrolytes so quickly that it can lead to death. Her maternal great-grandmother had gastroparesis spasms that led to hours of uncontrollable vomiting and an electrolyte and potassium imbalance that caused her to flatline. She died for three minutes on the table in an emergency room as a result. She was brought back to life with a defibrillator and chest compressions. Her paternal grandmother died of complications related to gastroparesis that prevented her from the ability to take in and keep down nourishment. MCAS (Mast Cell Activation Syndrome) MCAS is when white blood cells designed for immunity begin to malfunction and release an excessive amount of chemical mediators. This can lead to severe recurrent reactions to allergies including life threatening anaphylaxis (an inability to breathe). This is in part how she was diagnosed. She stopped breathing after a single bite of egg when she was just a year old. Every being needs to eat. Imagine if this basic utility of living were something you had to navigate with a magnifying glass day in and day out just to survive. Since she was just a toddler she has had to carry Benadryl, EpiPens, and a fast acting asthma spray inhaler on her person wherever she goes. When you have MCAS it can feel as if you’re allergic to the world. A food that was safe yesterday is no longer safe today. Nothing feels safe enough to eat when everything can cause an allergic reaction. The food and environmental allergies brought on by MCAS are endlessly exhausting. It’s a miracle that she is able to manage it all and that she does so with an incomparable joy and love of life. Her friends spend their evenings at parties while her evenings are spent in peaceful sound baths (to help regulate her nervous system), medicinal foot soaks and cool showers to wash off allergens. Living with MCAS is load after load of laundry in special fragrance-free soaps that sanitize without removing the helpful bacteria we need. Her sleep is not her own. It’s shared with interruptions that can take hours to tame. The allergies of the day from food that was labeled safe, snow flurries of pollen in the springtime breeze, and unexpected reactions from materials she uses to craft the world she lives in, wake her in fits of coughs and sneezes that keep tissue boxes in business. When not even two hours of sleep per night can be guaranteed to face a full day of work or school, it’s no wonder her evening

    33 min
  2. 07/08/2025

    On The Spectrum of Healing

    Photo Image: A person stands on shadowed sand facing a mysterious pool of light between the edge of darkness where they are and the lingering sunset filled with hopeful clouds of pink, and yellow streaks across a cobalt sky with indigo edges. Photo by Sage Justice Still You Shine | Sage Justice I won’t say, “Get well soon” for soon is not soon enough in this moment of timeless suspension where I know a well of health still bubbles within you for without it you would not still be here ————— I won’t say, “I hope you feel better” for hope is faith unseen and I see in you all that is perfect, whole and complete. there is no “better” moment than the presence of now knowing you are thought of cared for and so very loved ————— Therefore, I say, “Hello dear one how are you on the spectrum of healing today where are you pointing your view to hold your focus Has fear and hurt clouded your vision or do you remember all that you are and capable of being?” ————— It doesn’t matter where you stand on the spectrum of healing today for I will stand with you wherever you are in silence or in song ————— I will not dismiss your discomfort or minimize your pain nor the light within you that still glows. I see your shine and I hold it’s hand and walk with it at night under the moon by the raging waves of Mother Nature that knock us down and carry us home. ————— I choose to be a witness, not a judge, nor a jury, on this spectrum of healing, while offering inspiration and joy as our companions. Presenting art, music, laughter, and good food, as we Wonder and sing with Stevie, Songs in the Key of Life. ————— In a world where “change is the only constant in life” and “love is all there is” please allow me to remind you of the miracle of you— your magnificence your glory, your beauty, and your inherent health. Even in the face of hardship still you shine. © Sage Justice, July 7, 2025. After I witnessed an unknown poet have her work usurped, I was given the legal advice to place the following © date and statement on all my work: This concept/theory/poem is original to Sage Justice. If you use it, please give credit and link to original work. Thank you. www.SageWords.org I wrote this for one of my dear friend’s mother, who is going through cancer. I edited it with the thoughts of those who suffer from a chronic illness; are healing from trauma; PTSD; an acute injury; for my friends who don’t follow their dreams or pursue their passions for fear of failure; for all those who long deeply to be seen and to know their struggles haven’t been forgotten but who also grow weary of being asked about their progress managing their pain and are given platitudes in place of true compassion, empathy and understanding. May these words meet the hearts of those in need of healing. Photo Image: In a vintage style, Polaroid picture that looks a little worn, over-exposed but authentically sincere, Sage Justice stands on a pier with the ocean behind her at sunset. She is reaching out her hand to someone in need. She’s wearing a red hoodie, black pants, and a loving smile as her wind blown hair falls near her left shoulder. Sage Justice is an award-winning poet, author, critically acclaimed performing artist, and intensely sincere, bold humanitarian activist. Sage Words is a reader-supported publication. To receive thought-provoking inspiration please consider becoming a free or paid subscriber. Poets rely largely on benefactors, and grants to pay the bills. Your support is invaluable. Thank you. If you appreciate this publication, Sage Words, but are unable to afford a subscription, please consider choosing the “Buy Me a Coffee” button when you can. Every little bit helps. Thanks! Buy Sage a Coffee Read the book FREEDOM ⭐️⭐️⭐️⭐️⭐️ Subscribe to Sage on Youtube Get full access to Sage Words at sagejustice.substack.com/subscribe

    3 min
  3. 04/25/2025

    He Broke My Trust

    Special Thanks to Pamela Schacht for her striking original artwork @Pamschachtstudio (Description for the visually impaired: Canvas with crimson flowers that have fallen from sunkissed stems.) This may be the most important piece I’ve ever shared. It’s my hope that because the material is so relatable (we’ve all been betrayed or had our trust damaged) that it can help a great deal of people. The post is too long for email but you can click “view entire message” to see it all. This piece has been two years in the making. It’s on the long side so I’ve recorded it for you if you prefer to listen versus read. Please click on the triangle icon to hear this story. I respect your time and appreciate your engagement. Thank you so very much for being here with me. Buckle Up, Buttercup Throwing stones from glass houses leaves us all in shards of broken pieces. The idea of repair in conflict resolution is foreign to many people. They may not even know there’s an option that exists between going back to the way things were or cutting someone off completely. This is a show and tell about what repair, boundaries, and forgiveness look like in a relationship marred by damaged trust, taken from an excerpt of the full-length story entitled, “Pratfall from Grace.” Sage Words is a reader-supported publication. “I’m a paid subscriber because Sage Justice is an Inspiration and I want to support her continued work.” - L. E. Mastilock, author. Pratfall from Grace (excerpt) Sass and Daniel have history; they’ve known each other over half their lives. They even lived and worked with each other for a short time, many years ago. Throughout Daniel’s children’s lives, Sass was present for their sport games, artistic performances, birthday parties, illnesses, and other significant moments. In fact, Daniel and his wife asked Sass and her husband to be the legal guardians of their children, should anything ever happen to them. Sass took that role to heart and would have given her life for any one of those kids. When someone trusts you enough to leave their children in your care, you’d think they’d respect you enough to communicate with you openly, when there’s an issue, and not go behind your back. Open communication takes courage and character- the ability to remain in one’s own integrity even when personally uncomfortable. Sometimes, out of convenience to themselves, people move in disrespectful shadows; which is what Daniel did to Sass. When people get too comfortable in relationships (or too uncomfortable) they can take their loved ones for granted and damage trust. When that happens, they must offer repair. Sass confronted Daniel in search of understanding. The Confrontation Sass: Why didn’t you just come to me directly in good faith? The issue wasn’t that big of a deal. You damaged my trust in you. Why did you feel you had to go behind my back and try to get my husband to hide something from me? Daniel: Because I was scarred by a letter you wrote over 30 years ago. Sass was shocked and didn’t know if Daniel was joking or being serious. Sass: Are you kidding? Daniel: No. Sass: I’m sorry, she said, with a stifled laugh, are you seriously blaming your adult behavior in the present on something I did as a kid in the past? You’ve had over 30 years to talk to me about being “scarred,” and this is the first I’m hearing of it. Daniel: I’m just realizing it now. Sass: You’re just realizing now that you are “Scarred” from a letter you read over half your life ago? “Scarred” is a pretty serious word to use. Should I be worried about you? That sounds like a job for a therapist to help you process it. Daniel: I don’t need to process anything. I’m fine. Sass: Obviously, you are not “fine.” You broke my trust by saying one thing to my face and another behind my back the next day. It’s made me doubt your sincerity and question our entire history. All these years I chose to believe your words over your contradictory actions because you seem so sincere when you say things like, “I love you. I care about you. I miss you guys.” Yet, your actions have not demonstrated that. If you feel comfortable creating a secret text group, is there a secret email group too? Have you been lying all these years, pretending to love and care because it was easier than facing the uncomfortable truth that you don’t? I feel especially betrayed that you would try to get my husband to keep a secret from me. Is that the type of marriage you have, where you think it’s OK to keep secrets from your spouse? What the hell, Daniel? How to Repair “We mend our wounds by entering with a repair kit, not a shield and weapon. Accountability is the first step in repair.” Daniel: I’m sorry. Sass: I appreciate that, and I accept your apology; but I don’t trust you at your word anymore, only your actions. An apology alone doesn’t provide me with any reassurance that this won’t happen again. You can’t just say, “I’m sorry.” You need to offer repair. Daniel: What do you mean by repair? Sass: Repair is not the performative gesture of saying, “I’m sorry.” Repair is a change in behavior to fix what’s been broken, because “History unacknowledged is repeated.” Repair is what taking accountability for your behavior looks like. For example, if you hit someone’s car (intentionally or unintentionally), you’d take accountability by admitting what you did and paying for the repairs. When you hurt someone emotionally through lies, betrayal, or other harm (intentionally or unintentionally), you do the same. Repair is taking ownership for your own unresolved issues, judgements, and resentments that were used to justify disrespectful and hurtful behaviors. In this case, it might look like you saying, “I’m sorry I blamed my present disrespectful behavior toward you on something that happened over 30 years ago. If I had it to do over again, I would have worked through my past issues so that they were not coloring my present choices. I would have come to you directly instead of going behind your back. I would not have welcomed you to your face and then shut you out when you weren’t looking. I definitely would not have asked your husband to keep a secret from you.” If an apology gets to the point that it needs repair, you might want to send some apology flowers as well, just sayin’. Broken trust is a fault line where no one feels safe living. Even if the people involved no longer want to live there, the “you broke it, you fix it” rule still applies. Your inability to simply pick up the phone and talk to me directly and everything that followed after that has lead to trust so damaged that it’s broken apart an entire unit of people- no one in my household trusts you anymore. Without repair, this only gets worse. The longer you wait the more irreparable the damage becomes. Repair is not the act of mending a relationship that’s ended; it’s the act of mending the behavior that ended the relationship to avoid it from happening again with that person or another. What we fail to fix with the people we are at odds with now, we will likely repeat with the people we love the most in the future, like our children, in-laws, grandchildren, or partners. That’s because wherever we go, there we are, blaming others for our behavior instead of taking responsibility for our actions. As long as someone feels justified in blaming external circumstances for their behavior, they will continue to do so. Repair is the necessary action between an apology and the final stage of conflict resolution: choosing to reconcile a new “normal” or choosing to walk away. Repair creates moist ground where new seeds of healing can take place organically or a dry place to build a stone garden. Daniel: “I feel repair is not possible.” Full Stop! Sass was shocked and deeply saddened. In refusing to offer repair, Daniel was in effect putting the nail in the coffin of a 35-year-old relationship, not just with Sass, but with her husband and child as well. They all spent the next two years grieving a loss that didn’t have to be and learning how to navigate a new normal. Sass could have asked why Daniel felt that repair was not possible, but to her, that would have been an act of disrespect to them both. She would have been disrespecting herself, because a “why?” at this point would feel like a plead, and no one should have to beg someone else for basic human decency. It would have been disrespectful to Daniel because, as every woman understands, “no” is a complete sentence. If someone is not willing to offer repair, it’s best to allow them to have the last word, because that’s all they will have after you walk away. When People Can’t be Accountable Daniel saw “repair” as synonymous with going back to the past. He had never been introduced to the concept of repair because up until now, few had held him accountable for his actions. Daniel had been taught in his childhood that to admit to being wrong (as in, “made a mistake”) was equal to being wrong (as in “being a bad person”), and as someone who identified as being a “stand-up guy” he struggled to find the language to take ownership for his behavior without blaming outside sources for his choices. As a result, he did not know how to take accountability. At some point, Daniel said to a third party, “Why does Sass want to repair things if she hates me so much?” To which the third party said, Sass never mentioned the word “hate.” As an outsider, do you see what’s happening here? This is a common reaction when someone is called to take accountability for their behavior: One person speaks about how hurt they were by someone else’s behavior and all the other person hears is that they are hated. This is why we have wars in the world, because too few people truly know how to actively listen, hear, mirror and communicate

    37 min

Ratings & Reviews

5
out of 5
4 Ratings

About

Infusing empathy and wisdom into universal challenges. sagejustice.substack.com