SCI Care: What Really Matters International Spinal Cord Society (ISCoS)

This webinar, in partnership with Wellspect, aims to raise awareness of these issues. Originally recorded as a webinar, we decided to release it as a podcast as well. We hope you enjoy listening.

This episode will cover bladder and bowel management during the different stages of a woman's life, overcoming barriers to break the taboo in discussing such issues, the challenges and risks of becoming a mother with a spinal cord injury and the importance of a good bladder and bowel routine will have on your self-confidence all leading to empowerment and a better quality of life. 


To do this, host Ami Kivi, Global Product Manager Urology, Wellspect invites Dr Maria Gyhagen, Associate Professor in Obstetrics and Gynecology at Sahlgrenska University at Gothenburg University and Inge Eriks-Hoogland, head of the outpatient department of the Swiss Paraplegic Centre, to shed light on this pressing women's health issue. Their groundbreaking research and advocacy work reveal the widespread impact of these disorders and pioneer new paths in care and empowerment for affected individuals.


The prevalence of pelvic floor disorders, such as incontinence and genital prolapse, severely impacts quality of life. Dr Gyhagen's research focuses on the functional dynamics of the pelvic floor, especially post-childbirth, emphasising its multifaceted effects, including compromised self-esteem and sexual dysfunction. She stresses the importance of early diagnosis and targeted support, which are often overlooked in healthcare. 


Obstetric Anal Sphincter Injury Calculator https://www.sphinctercalc.com/
UR-CHOICE Pelvic Floor Disorders Risk Calculator: https://riskcalc.org/UR_CHOICE/

Dr Eriks-Hoogland's expertise in spinal cord injuries highlights the unique challenges faced by spinal cord-injured women during pregnancy and childbirth. The podcast highlights heightened risks and the necessity for informed choices and collaborative clinical approaches, ensuring active participation in health decisions. Standardised guidelines in gynaecological care play a vital role in empowering patients and improving care protocols, advocating for a more predictive healthcare approach and addressing societal taboos surrounding pelvic floor disorders through greater awareness and dialogue. 

SCI Care Guidelines https://register.awmf.org/de/leitlinien/detail/179-014
We hope yo
The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies.


If you enjoyed this podcast, please rate, review and subscribe with the podcast provider of your choice.


This show is brought to you by ISCoS - you can follow us on Twitter and LinkedIn


The SCI Care: What really Matters podcast aims to provide valuable insights and the most up-to-date information for those providing care to people with spinal cord injury (SCI) worldwide. The vision of the International Spinal Cord Society (ISCoS) is to "facilitate healthy and inclusive lives for people with spinal cord injury or dysfunction globally".


Partnership and collaboration are key to achieving this vision. Our episodes include expert guests, persons with lived experience and representatives from the industry supporting SCI care.

We invite you to SAVE the DATE.

ISCoS 2024 will take place in Antwerp, Belgium 22 - 25 September 2024


Contact us directly with any questions or comments at admin@iscos.org.uk

This episode follows on from our previous webinar "Exploring Sexual Dysfunction," hosted by Francescapaola Polli, Enterology Product Manager for Wellspect in Italy.
Returning guests Dr Marcalee Alexander and Dr Gianluca Sampogna provide invaluable guidance on overcoming sexual challenges and achieving fulfilling sexual lives after spinal cord injury.


From discussing the role of sex toys in enhancing pleasure to emphasising the importance of bladder and bowel management for sexual activity, Drs Alexander and Sampogna offer practical advice and explore misconceptions surrounding sexual function post-injury.
Listeners will gain insights into various aspects, including the impact of accidents during sexual activity, strategies for adolescents navigating sexuality, and fertility considerations for both men and women with spinal cord injuries.

Resources
Everlasting Love: A series is brought to you by Sustain Our Abilities with funding from the Paralyzed Veterans of American Education and Training Foundation.
https://vimeo.com/everlastinglove
Sexual Sustainability: A guide to having a great sex life with a spinal cord disorder by Dr Marcalee Alexander https://www.amazon.co.uk/Sexual-Sustainability-having-spinal-disorder/dp/B08L4969TV

Italian Edition
https://www.amazon.co.uk/dp/B0976533N9
Hindi Version

The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies.


If you enjoyed this podcast, please rate, review and subscribe with the podcast provider of your choice.


This show is brought to you by ISCoS - you can follow us on Twitter and LinkedIn


The SCI Care: What really Matters podcast aims to provide valuable insights and the most up-to-date information for those providing care to people with spinal cord injury (SCI) worldwide. The vision of the International Spinal Cord Society (ISCoS) is to "facilitate healthy and inclusive lives for people with spinal cord injury or dysfunction globally".


Partnership and collaboration are key to achieving this vision. Our episodes include expert guests, persons with lived experience and representatives from the industry supporting SCI care.

We invite you to SAVE the DATE.

ISCoS 2024 will take place in Antwerp, Belgium 22 - 25 September 2024


Contact us directly with any questions or comments at admin@iscos.org.uk

In this episode of the podcast, in partnership with Wellspect, host Lisa Beauchemin talks to her colleagues Katherine Fernandez and Dr Lawrence (Larry) Vogel about bladder and bowel management in paediatric spinal cord dysfunction.

They discuss physical health alongside social health and lifestyle factors that need to be considered, especially when working with children and teenagers. Being a teenager is challenging enough without the disruption of incontinence. Ultimately, the team aims to help their patients achieve a high quality of life and strive for independence as early as possible.

Dr Vogel also highlights the importance of anticipatory guidance, letting patients and their families know what will happen as their child ages and develops.

We hope you enjoy this episode of the podcast.
The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies.


If you enjoyed this podcast, please rate, review and subscribe with the podcast provider of your choice.


This show is brought to you by ISCoS - you can follow us on Twitter and LinkedIn


The SCI Care: What really Matters podcast aims to provide valuable insights and the most up-to-date information for those providing care to people with spinal cord injury (SCI) worldwide. The vision of the International Spinal Cord Society (ISCoS) is to "facilitate healthy and inclusive lives for people with spinal cord injury or dysfunction globally".


Partnership and collaboration are key to achieving this vision. Our episodes include expert guests, persons with lived experience and representatives from the industry supporting SCI care.

We invite you to SAVE the DATE.

ISCoS 2024 will take place in Antwerp, Belgium 22 - 25 September 2024


Contact us directly with any questions or comments at admin@iscos.org.uk

In this bonus episode, we talk to an SCI grant recipient, Kamrunnaher Koly, from Bangladesh, about her work as a researcher, the new work-care rehabilitation pathway for spinal cord patients in Bangladesh, and how she found her first experience at the ISCoS conference.
The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies.


If you enjoyed this podcast, please rate, review and subscribe with the podcast provider of your choice.


This show is brought to you by ISCoS - you can follow us on Twitter and LinkedIn


The SCI Care: What really Matters podcast aims to provide valuable insights and the most up-to-date information for those providing care to people with spinal cord injury (SCI) worldwide. The vision of the International Spinal Cord Society (ISCoS) is to "facilitate healthy and inclusive lives for people with spinal cord injury or dysfunction globally".


Partnership and collaboration are key to achieving this vision. Our episodes include expert guests, persons with lived experience and representatives from the industry supporting SCI care.

We invite you to SAVE the DATE.

ISCoS 2024 will take place in Antwerp, Belgium 22 - 25 September 2024


Contact us directly with any questions or comments at admin@iscos.org.uk

In this bonus episode, we sit down for a conversation with Kathy Zebracki, a clinical psychologist from Shriners Children's, Chicago, and Julian Taylor from Toledo's National Paraplegic Hospital in Spain to learn all about the first-ever paediatric spinal cord injury Special Interest Group (SIG) for ISCoS.

Kathy and Julian reveal their ambitions of gathering an international team of experts to focus on this niche medical field, emphasising the need for a multidisciplinary approach.
The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies.


If you enjoyed this podcast, please rate, review and subscribe with the podcast provider of your choice.


This show is brought to you by ISCoS - you can follow us on Twitter and LinkedIn


The SCI Care: What really Matters podcast aims to provide valuable insights and the most up-to-date information for those providing care to people with spinal cord injury (SCI) worldwide. The vision of the International Spinal Cord Society (ISCoS) is to "facilitate healthy and inclusive lives for people with spinal cord injury or dysfunction globally".


Partnership and collaboration are key to achieving this vision. Our episodes include expert guests, persons with lived experience and representatives from the industry supporting SCI care.

We invite you to SAVE the DATE.

ISCoS 2024 will take place in Antwerp, Belgium 22 - 25 September 2024


Contact us directly with any questions or comments at admin@iscos.org.uk

In this bonus episode, we spoke with Bill Barrable, Vanessa Noonan, John Chernesky and Barry Monroe of Praxis as they discuss the 62nd ISCoS scientific meeting and the role of their organisation in setting best practices for managing spinal cord injury and rehabilitation. 

They also discuss the challenges and strategies of involving those with lived experience in planning and participation programs, particularly in regions with prevalent SCI.  

We hope you enjoy listening. 
The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies.


If you enjoyed this podcast, please rate, review and subscribe with the podcast provider of your choice.


This show is brought to you by ISCoS - you can follow us on Twitter and LinkedIn


The SCI Care: What really Matters podcast aims to provide valuable insights and the most up-to-date information for those providing care to people with spinal cord injury (SCI) worldwide. The vision of the International Spinal Cord Society (ISCoS) is to "facilitate healthy and inclusive lives for people with spinal cord injury or dysfunction globally".


Partnership and collaboration are key to achieving this vision. Our episodes include expert guests, persons with lived experience and representatives from the industry supporting SCI care.

We invite you to SAVE the DATE.

ISCoS 2024 will take place in Antwerp, Belgium 22 - 25 September 2024


Contact us directly with any questions or comments at admin@iscos.org.uk