34 episodes

A podcast series brought to you by the International Spinal Cord Society (ISCoS). With each episode, we will speak with experts from all over the world to discuss various aspects of spinal cord injury including etiology, prevention and care, providing valuable insights regarding the most up to date information for those providing care for the spinal cord injured. Collaboration is the key and at the heart of what ISCoS does. The podcast series will be an extension of ISCoS, philosophy to make “Life after a spinal cord injury happy, meaningful and worth living..”

SCI Care: What Really Matters International Spinal Cord Society (ISCoS)

    • Health & Fitness

A podcast series brought to you by the International Spinal Cord Society (ISCoS). With each episode, we will speak with experts from all over the world to discuss various aspects of spinal cord injury including etiology, prevention and care, providing valuable insights regarding the most up to date information for those providing care for the spinal cord injured. Collaboration is the key and at the heart of what ISCoS does. The podcast series will be an extension of ISCoS, philosophy to make “Life after a spinal cord injury happy, meaningful and worth living..”

    S3 Ep 2: Neurogenic Bladder Management: Factors for Success

    S3 Ep 2: Neurogenic Bladder Management: Factors for Success

    Welcome to the second episode of series 3 – SCI Care: What really matters. 

    Susie Charlifue introduces this episode with Tracey Tattam, a Nurse Educator at the Spinal Injuries Unit Queensland, Australia; Veronika Geng, Head of the Advisory Centre for Nutrition and Digestion for Spinal Cord Injured People in Lobbachand, Germany and Rachel Skews a Urology Nurse Practitioner, North Bristol NHS Trust as they share their wealth of knowledge on Neurogenic Bladder Management. 
    In this episode, our panel discuss the importance of education for people with spinal cord injury, their family members, and importantly, the clinicians who manage their bladder needs. We learn about the various types of neurogenic bladder, the various management options available to people.  The importance of having a bladder management schedule that fits best with the person's life and lifestyle approaches to complication prevention and several tips for successful bladder management and hygiene. The importance of maintaining a fluid balance was emphasized. And it'll be varying depending on the bladder emptying technique.

    Some people may need more fluids, some less, but monitoring is essential. We've also gained some information regarding bladder cancer in this very unique population. And we know that this warrants attention. All panellists agree on the critical importance of patient choice throughout the process of choosing bladder management programs, working as a team with the person who has the spinal cord injury is the approach that clinicians must embrace.

    Ultimately,  it is that person's independence, quality of life and ability to engage in activities that are the goals. 
    Contact us directly with any questions or comments at admin@iscos.org.uk. You can also join the conversation on social media @ISCoSMeetings and @WellspectHC. And we hope to see many of you in person at the ISCoS 61st Annual Scientific Meeting this September in Vancouver.
    If you enjoyed this podcast, please rate, review and subscribe with the podcast provider of your choice. This show is brought to you by ISCoS - you can follow us on Twitter @iscosmeetings, produced and directed by Heather Pownall of Heather's Media Hub @heathershub
    *The opinions of our host and guests are their own.

    • 50 min
    S3 Ep1: Different Techniques and Needs of Catheterisation

    S3 Ep1: Different Techniques and Needs of Catheterisation

    Welcome to the first episode of series 3 – SCI Care: What really matters. Our guest host is Maria Bergsten from Wellspect, who are partnering with ISCoS for this series of podcasts sharing stories, discussions and insights into bladder and bowel management as a critical part of SCI care – improving patients’ quality of life and feeling of dignity. This episode focuses on the different techniques and needs of catheterisation, with a particular focus on women, which is pertinent with the release date of this episode being on International Women’s Day.
    Our guests this episode are Carin Bergfeldt, a Licensed Occupational Therapist and course leader at Aleris Rehab Station in Stockholm, Sweden, and Dr Letitia Graves, Assistant Professor at the University of Texas Medical Branch at Galveston, USA. Carin has over 20 years of experience in the care, rehabilitation and treatment of patients with spinal cord injuries and other neurological injuries/diseases, sharing her knowledge and expertise in spinal cord injuries, transfer technics, pressure ulcers and technical aids with patients, caregivers and clinicians.  Dr. Letitia Graves worked as a nurse on a spinal cord injury unit for several years before transitioning into academia and research. She serves on the Nursing Special Interest Group of ISCoS, part of whose mission is to increase awareness of specialised spinal cord injury, nursing care and to increase education and resources for individuals living with spinal cord injury, their family and caregivers, as well as other clinicians globally. 
    We discuss the importance of independence and integrity for patients and how to promote and increase these, and our guests share their tips and tricks for successful self-catheterization. We also look at the increasing use of suprapubic catheters in patients with bad hand function and the correlation between their use and an increased risk of UTIs. Self-catheterization is challenging for both male and female patients but can be particularly difficult for women, both physically and emotionally. The therapist or clinician plays a vital role in increasing their patients’ confidence and crucially in pushing them to go further in their rehabilitation. Another key part of their role is in working with patients to find and create the right tools and instruments to make their lives easier. As we hear from Carin, this can involve a huge amount of invention, creativity and collaboration with patients, and this is one of the parts of her job she enjoys the most. For both Carin and Letitia the ultimate goal is to give their patients as much independence as possible, depending on their level of injury and circumstances.
    For more advice and useful tips on coping with everyday challenges with a spinal cord injury go to www.spinalistips.se, or contact us directly with any questions or comments at admin@iscos.org.uk. You can also join the conversation on social media @ISCoSMeetings and @WellspectHC. And we hope to see many of you in person at the ISCoS 61st Annual Scientific Meeting this September in Vancouver.
    If you enjoyed this podcast, please rate, review and subscribe with the podcast provider of your choice. This show is brought to you by ISCoS - you can follow us on Twitter @iscosmeetings, produced and directed by Heather Pownall of Heather's Media Hub @heathershub
    *The opinions of our host and guests are their own.

    • 48 min
    S2 Ep 12: The Importance of patient-centred care in neurogenic bladder and bowel management

    S2 Ep 12: The Importance of patient-centred care in neurogenic bladder and bowel management

    Welcome to the 12th episode of series two of ‘SCI Care: What really matters’ and the third collaborative episode between the International Spinal Cord Society (ISCoS) and Wellspect®.
    In this podcast episode, we follow on from the recent webinar on the 'Importance of patient-centred care in neurogenic bladder and bowel management’, continuing the discussion with a particular focus on clinical practice.
    Host Mr Grant Friedrich, Clinical Relations Manager for Wellspect Healthcare, is joined by Dr Ammirati, a medical doctor at the Complex Structure of Neuro-Urology of the Orthopedic Trauma Centre / Unipolar Spinal Unit of the "Città della Salute e della Scienza di Torino", and Veronika Geng, Head of the Advisory Centre for Nutrition and Digestion for Spinal Cord Injured People in Lobbach, Germany. The discussion focusses on the advantages of patient-centred care in neurogenic bladder and bowel management, the importance of adherence to bladder and bowel management, and possible ways to improve adherence to bladder and bowel management. The panellists agree that the practitioner's role in the patient's journey is to guide, educate, and negotiate with the patient, ensuring they are included in all steps along the way as they navigate how to live with a spinal cord injury. By keeping the patient part of their healthcare decision-making process, goals will be realistic and the person’s individual and specific needs will be met.
    The Vision of ISCoS is to "facilitate healthy and inclusive lives for people with spinal cord injury or dysfunction globally". Partnership and collaboration are key in helping us to realise this vision.
    We are delighted that we have been able to partner with Wellspect on an inspiring and informative collection of webinars and podcasts.
    We hope you enjoy listening.
    If you have any questions or suggestions for future episodes or would like information on becoming an ISCoS member, please email admin@iscos.org.co.uk.  The 60th Anniversary Annual Scientific Meeting this September is available on-demand until January 2nd 2022, you can sign in or register here 
    Work has begun for the 61st Annual Scientific Meeting 2022 you can register for updates here. 
    This show is brought to you by ISCoS - you can follow us on Twitter @iscosmeetings, hosted by Prof Ruth Marshall produced and directed by Heather Pownall of Heather's Media Hub @heathershub
    *The opinions of our host and guests are their own.
    --- Send in a voice message: https://anchor.fm/scicare/message

    • 43 min
    S2 Ep 11: In conversation with Prof Daniel Graves Editor-in-Chief for the ISCoS journals

    S2 Ep 11: In conversation with Prof Daniel Graves Editor-in-Chief for the ISCoS journals

    In this episode of SCI Care: What really matters, Prof Ruth Marshall is joined by Prof Daniel (Dan) Graves, Editor-in-Chief of Spinal Cord and Spinal Cord Series and Cases. 
    In this conversation, both Ruth and Dan share their thoughts on the recent 60th Anniversary Annual Scientific Meeting what they enjoyed from the social media updates and interactions to the talking posters, to the rich scientific programme and the inspiring and thought-provoking Guttmann Lecture given by Prof Charles Tator. They both agree that they very much hope to see each other in 2022 at the 61st Anniversary Annual Scientific Meeting which will be held in person in Vancouver with online access. 
    So what has the new Editor-in-Chief being doing since he took the post in January 2020? What top tips does he have for early career researchers getting published and becoming a reviewer? What are the future plans for both Spinal Cord and Spinal Cord Series and Cases? And how does he find the time? Tune in to find out. 
    Thank you for listening.
    If you have any questions or suggestions for future episodes or would like information on becoming an ISCoS member, please email admin@iscos.org.co.uk. 
    This show is brought to you by ISCoS - you can follow us on Twitter @iscosmeetings, hosted by Prof Ruth Marshall produced and directed by Heather Pownall of Heather's Media Hub @heathershub
    *The opinions of our host and guests are their own.
    --- Send in a voice message: https://anchor.fm/scicare/message

    • 42 min
    S2 Ep 10: An Interview with Dr Carlotte Kiekens, COVID 19 then and now in SCI Care

    S2 Ep 10: An Interview with Dr Carlotte Kiekens, COVID 19 then and now in SCI Care

    In our tenth episode of this series of SCI Care: What really matters, Prof Ruth Marshall is joined by her dear friend and colleague Dr Carlotte Kiekens. 
    Dr Kiekens was one of our first ever guests on the podcast in series one as part of a panel discussing COVID-19: Current knowledge and best practices when we were just a few months into the pandemic. Now almost 18 months on Dr Kiekens is invited back onto the show to discuss what it was like when COVID-19 first hit in Italy in early 2020, what this meant and how it has changed the service that they now provide, what will continue into the future as well as the difference the vaccination is having.
    Thank you for listening.
    If you have any questions or suggestions for future episodes or would like information on becoming an ISCoS member, please email admin@iscos.org.co.uk. If you would like to register for the 60th Anniversary Annual Scientific Meeting this September, click here
    This show is brought to you by ISCoS - you can follow us on Twitter @iscosmeetings, hosted by Prof Ruth Marshall produced and directed by Heather Pownall of Heather's Media Hub @heathershub
    *The opinions of our host and guests are their own.
    --- Send in a voice message: https://anchor.fm/scicare/message

    • 42 min
    S2 Ep 9: In conversation with Prof Charles Tator

    S2 Ep 9: In conversation with Prof Charles Tator

    Welcome to the ninth episode of series two of SCI Care: What Really Matters.
    "The thrill of finding something new has never left me. I'm still looking to make people walk again." Prof Tator 
    In this episode, Prof Ruth Marshall interviews Prof Charles Tator on what led him to neurosurgery, neurotrauma and SCI treatment. What came first treatment or research? They also discuss encouraging young researchers, mentorships, dual careers, working to prevent and friendships with the patient. 
    You can also see Prof Tator at this years ISCoS ASM as he gives the Guttman lecture where he will speak on the thrills he had experienced as a Spinal Cord Injury Researcher, including when he met Prof Guttman in person. 
    Thank you for listening.
    If you have any questions or suggestions for future episodes or would like information on becoming an ISCoS member, please email admin@iscos.org.co.uk. If you would like to register for the 60th Anniversary Annual Scientific Meeting this September, click here
    This show is brought to you by ISCoS - you can follow us on Twitter @iscosmeetings, hosted by Prof Ruth Marshall produced and directed by Heather Pownall of Heather's Media Hub @heathershub
    *The opinions of our host and guests are their own.
    --- Send in a voice message: https://anchor.fm/scicare/message

    • 49 min

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