Seen, Not Fixed

Spoonly
  • 5,0 (3)
  • Ментальное здоровье
  • Каждые две недели

A fireside-style podcast for people living with chronic illness and the people who want to understand them better. Each episode features an intimate conversation between our host, a lived experience guest, and a trusted expert, blending life with practical, empowering insight. This is a space for validation, honest conversations, and reminders that your illness is part of your story but it doesn’t get to define all of it.

  1. Patient Power: Matthew Zachary on Cancer, Advocacy, and Fixing Healthcare

    -12 ч

    Patient Power: Matthew Zachary on Cancer, Advocacy, and Fixing Healthcare

    At just 21 years old, Matthew Zachary was a concert pianist whose life changed overnight after being diagnosed with brain cancer. Thirty years later, he's become one of the most influential voices in patient advocacy, founding Stupid Cancer, launching one of healthcare's first podcasts, producing award-winning documentaries, and authoring We the Patients.In this episode, Matthew joins host Gigi Robinson to discuss what it really means to live beyond a diagnosis. Together, they explore the power of community, navigating survivorship, balancing advocacy with everyday life, fertility, social media, holistic and traditional medicine, and why patients must move beyond advocacy toward collective civic power.Whether you're living with chronic illness, caring for someone who is, or simply trying to better understand today's healthcare system, this conversation offers practical wisdom, hope, and a powerful reminder that healing doesn't happen alone.

    44 мин.
  2. Healing Beyond Symptoms: Redefining Chronic Illness, Identity & Possibility with Nitika Chopra

    22 июн.

    Healing Beyond Symptoms: Redefining Chronic Illness, Identity & Possibility with Nitika Chopra

    In this deeply personal conversation, host Gigi Robinson sits down with chronic illness advocate and founder of Chronicon, Nitika Chopra, to explore what healing truly means. Together, they discuss grief, identity, nervous system regulation, self-advocacy, community, ambition, and the complex reality of living fully while navigating chronic illness. This episode challenges the idea that healing requires symptom elimination and offers a more nuanced, compassionate vision of what it means to thrive.

    50 мин.
  3. Healing Out Loud: Lyme Disease, Ambition, and the Power of Self-Advocacy

    8 июн.

    Healing Out Loud: Lyme Disease, Ambition, and the Power of Self-Advocacy

    In this candid conversation, host Gigi Robinson sits down with media personality, content creator, and Miss New Hampshire Volunteer 2026, Sophie Sargent, to explore what it means to pursue big dreams while navigating chronic illness. Sophie shares her journey from years of unexplained symptoms to a Lyme disease diagnosis, the realities of balancing health with an ambitious career in media, and the lessons she's learned about self-advocacy, mindset, and sustainable healing. Together, Gigi and Sophie discuss biohacking, social media misinformation, tick-borne illnesses, lifestyle changes, and why hope and community remain essential for anyone living with chronic illness.

    46 мин.
  4. Post-Traumatic Growth and the Courage to Keep Going

    24 мая

    Post-Traumatic Growth and the Courage to Keep Going

    In this deeply reflective conversation, Gigi sits down with psychotherapist and mentor Dr. Victoria Grinman to explore the intersection of chronic illness, post-traumatic growth, spirituality, mentorship, and emotional healing. Together, they unpack what it means to live with uncertainty while still choosing hope, possibility, and self-trust.From navigating chronic pain and medical trauma to understanding the mind-body connection, Dr. Victoria shares how growth is not about becoming “perfect” or pain-free, but about becoming more integrated, compassionate, and connected to yourself. The conversation also dives into energy healing, Tony Robbins’ six human needs framework, mentorship, and how people living with chronic conditions can begin reframing their relationship with fear, uncertainty, and healing.This episode is a powerful reminder that healing is not linear, growth is rarely comfortable, and sometimes the most important thing we can do is keep walking the path.

    33 мин.
  5. No Mud, No Lotus: Choosing Joy Through Chronic Illness with Sally Joy Wolf

    10 мая

    No Mud, No Lotus: Choosing Joy Through Chronic Illness with Sally Joy Wolf

    In this deeply honest and hopeful episode of Seen, Not Fixed, Gigi sits down with metastatic breast cancer advocate Sally Joy Wolf to talk about what it truly means to thrive while living with chronic illness. From navigating a stage 4 cancer diagnosis to redefining identity, purpose, and joy, Sally shares how she transformed unimaginable uncertainty into a life rooted in meaning, advocacy, and connection. Together, they explore the concept of “no mud, no lotus,” the idea that suffering can become the soil for growth, and unpack the difference between toxic positivity and authentic hope. The conversation dives into post-traumatic growth, patient advocacy, the emotional realities of chronic illness, and the power of choosing how we move through hardship. This episode is a reminder that a diagnosis does not define a person, and that even in life’s hardest moments, there is still room for joy, purpose, movement, and deep human connection.

    39 мин.
  6. Seen Beyond the Surface

    26 апр.

    Seen Beyond the Surface

    This conversation explores what it means to truly be “seen” while navigating chronic illness, neurodivergence, and life after a major health diagnosis. Kaitlyn Carroll shares how her experiences with cancer, late-diagnosed autism and ADHD, and burnout reshaped her relationship with work, self-compassion, and support. Together, the hosts unpack invisible effort, the grief that accompanies identity shifts, and the importance of language like “capacity” and “resourcing.” The episode centers on a powerful truth: being supported and understood can transform how we move through even the hardest realities.

    35 мин.
  7. The Healing Power of Community in Chronic Illness

    12 апр.

    The Healing Power of Community in Chronic Illness

    This episode explores the profound role community plays in the chronic illness experience, especially for those navigating invisible conditions. Jill shares how platforms like Inspire create safe, moderated spaces where people feel validated, understood, and less alone. Through personal stories and patient experiences, the conversation highlights how being seen, rather than “fixed,” can transform mental and physical outcomes, empower self-advocacy, and turn patients into advocates. At its core, the episode is a reminder that healing often begins with connection, not solutions.

    34 мин.
  8. The New Normal: Energy, Pacing, and Life with Limited Spoons

    22 мар.

    The New Normal: Energy, Pacing, and Life with Limited Spoons

    This episode explores the psychological and emotional realities of living with chronic illness through a conversation between Nicole and Dr. Rachel, a behavioral medicine psychologist. They unpack the deep connection between thoughts, emotions, and behaviors, highlighting how unhelpful thinking patterns like “should” statements, catastrophizing, and rigid thinking can keep people feeling stuck. The conversation emphasizes practical mindset shifts, including focusing on what’s within your control, taking small and sustainable steps, and building awareness of your mind-body connection. They also address the importance of self-advocacy in healthcare, grieving the loss of a former identity, and finding a balanced, realistic form of optimism that honors both difficulty and possibility. Ultimately, the episode offers grounded tools to help listeners feel more in control, supported, and compassionate toward themselves.

    48 мин.
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A fireside-style podcast for people living with chronic illness and the people who want to understand them better. Each episode features an intimate conversation between our host, a lived experience guest, and a trusted expert, blending life with practical, empowering insight. This is a space for validation, honest conversations, and reminders that your illness is part of your story but it doesn’t get to define all of it.

Информация

  • Автор
    Spoonly
  • Годы выхода
    2 тыс.
  • Выпуски
    14
  • Ограничения
    С ненормативной лексикой
  • Авторские права
    © Spoonly
  • Сайт подкаста
    Seen, Not Fixed

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