Journeys through pulmonary fibrosis

Boehringer Ingelheim International GmbH
  • 4,8 (4)
  • Y học
  • Hai tuần một lần

Being diagnosed with a rare disease can often leave people with more questions than answers. This is especially true for those living with the rare lung condition, Pulmonary Fibrosis. In an effort to build and give a voice to this courageous community, we bring you ‘Journeys through Pulmonary Fibrosis’ – a podcast series aimed at bringing together the inspirational people living with this condition, their carers, and the researchers and doctors working tirelessly to support them. Join us as we travel through their journeys, we hear heart-warming stories of determination, resilience and the importance of using these experiences to truly live life to the full.

  1. When Scleroderma Affects the Lungs: Why it’s Important to Act Early.

    29 thg 6

    When Scleroderma Affects the Lungs: Why it’s Important to Act Early.

    In this episode of ‘Journeys Through Pulmonary Fibrosis’, host Ilaria Galetti is joined by Ruth Ajayi, who is living with systemic sclerosis, and a rheumatologist Dr Cosimo Bruni, to explore the impact of this rare autoimmune condition on lung health. Together, they discuss the often complex and emotional path to diagnosis, the challenge of navigating care across multiple medical specialties, and the realities of adapting to life with a chronic disease. Through both personal and clinical perspectives, the conversation highlights the importance of early detection in managing progressive lung scarring, and how a strong partnership between patients and healthcare professionals can help individuals navigate change and find a new sense of normal.

    40 phút
  2. How Collaboration Can Address Unmet Needs

    01/08/2024

    How Collaboration Can Address Unmet Needs

    This episode of the ‘Journeys Through Pulmonary Fibrosis’ podcast was filmed at the 2024 American Thoracic Society (ATS) conference. Our inspiring guests have joined together to discuss the unmet needs within pulmonary fibrosis and highlight the importance of collaboration within healthcare, and at a community level. This insightful discussion focuses on how to improve care pathways and quality of life for those affected by interstitial lung diseases.

    21 phút
  3. The unquestioned support of patient organizations

    30/04/2024

    The unquestioned support of patient organizations

    In this episode of the ‘Journeys Through Pulmonary Fibrosis’ podcast, our host Steve Jones sits down with two guests from the USA and Norway to discuss the importance of connecting with people who live with pulmonary fibrosis at different stages of their journey. They also discuss the many different ways in which patient organizations provide support, globally and locally. Hear more from our guests on how patient organizations will continue to fight for all those impacted by this condition.

    29 phút
  4. How to strive in life again

    29/04/2024

    How to strive in life again

    In this episode of the ‘Journeys Through Pulmonary Fibrosis’ podcast, our guests share how family, friends and support groups are invaluable to their journey, often providing that much needed support and hope for those living with pulmonary fibrosis and their loved ones. Hear more about the ongoing efforts of individuals and organizations working to ultimately improve the outcomes for people living with pulmonary fibrosis.

    38 phút
  5. Reality of living with RA-ILD

    14/07/2023

    Reality of living with RA-ILD

    In this special episode Liz tells us about her experience of living with RA-ILD, which is short for rheumatoid arthritis-associated interstitial lung disease. We explore the profound impact of this life-changing diagnosis on Liz and her loved ones as well as the need for increased awareness of the condition. Throughout Liz provides advice and strategies for maintaining a positive outlook despite the challenges RA-ILD presents.

    22 phút
  6. Innovating today for patients of tomorrow

    16/05/2023

    Innovating today for patients of tomorrow

    In this episode, we explore how innovating today could have a positive impact on those diagnosed with pulmonary fibrosis. We are joined by extraordinary guests, including researchers, healthcare providers, innovators, and a patient impacted by this rare disease. Keeping patients’ lived experiences front and center can help lead to new ideas and progress, all while inspiring us to remain hopeful for the future.

    15 phút
  7. Relationships

    03/01/2023

    Relationships

    In the fifth and final episode of season 3, we learn about the impact that pulmonary fibrosis can have on relationships with family and friends, and even on the more intimate aspects of partner relationships. Our contributors also take time to emphasize the value that they derive from healthy and supportive relationships when living with this challenging condition.

    20 phút
  8. Shared decision making

    30/11/2022

    Shared decision making

    In our fourth episode, we examine the importance of shared decision making, which helps empower patients to make choices about their disease management in collaboration with their medical teams. We hear from people who are living with pulmonary fibrosis, a wife and care partner and from medical specialists, each underlining the value of shared decision making and providing some examples of this best practice in action.

    21 phút
Xem tất cả (29)

Trailer

Xếp Hạng & Nhận Xét

4,8
/5
4 Xếp hạng

Giới Thiệu

Being diagnosed with a rare disease can often leave people with more questions than answers. This is especially true for those living with the rare lung condition, Pulmonary Fibrosis. In an effort to build and give a voice to this courageous community, we bring you ‘Journeys through Pulmonary Fibrosis’ – a podcast series aimed at bringing together the inspirational people living with this condition, their carers, and the researchers and doctors working tirelessly to support them. Join us as we travel through their journeys, we hear heart-warming stories of determination, resilience and the importance of using these experiences to truly live life to the full.

Thông Tin

  • Nhà sáng tạo
    Boehringer Ingelheim International GmbH
  • Năm hoạt động
    2020 - 2026
  • Tập
    29
  • Xếp hạng
    Sạch
  • Bản quyền
    Copyright © 2024, Boehringer Ingelheim International GmbH. All rights reserved.
  • Trang web chương trình
    Journeys through pulmonary fibrosis

Có Thể Bạn Cũng Thích