16 episodes

Spotlight Lipedema focuses on bringing together people, mostly but not exclusively women, living with lipedema and lipo-lymphedema. We will share stories, what has helped and what has aggravated our lipedema. Spotlight Lipedema will also feature some lipedema and lymphedema experts from the community to help us learn more about current management techniques and what is happening with lipedema research.

Spotlight Lipedema Lori Pellnitz

    • Health & Fitness
    • 4.7 • 19 Ratings

Spotlight Lipedema focuses on bringing together people, mostly but not exclusively women, living with lipedema and lipo-lymphedema. We will share stories, what has helped and what has aggravated our lipedema. Spotlight Lipedema will also feature some lipedema and lymphedema experts from the community to help us learn more about current management techniques and what is happening with lipedema research.

    Episode 15 - CurvyGirlBeth - Pt. 2 with Beth Rylaarsdam

    Episode 15 - CurvyGirlBeth - Pt. 2 with Beth Rylaarsdam

    It's finally out! Episode 15 of the Spotlight Lipedema is out - featuring Part 2 of my interview with Beth Rylaarsdam. This was a great conversation about how CurvyGirlBeth made her debut and so much more. We talk about how lipedema ladies tend to hide from picture or hide themselves and their legs in pictures and why Beth thinks that needs to change. How do we share knowledge of lipedema when we encounter people that appear to have it too.

    • 1 hr
    Episode 14 - Talking Lipedema with Beth Rylaarsdam (CurvyGirlBeth)- Part 1

    Episode 14 - Talking Lipedema with Beth Rylaarsdam (CurvyGirlBeth)- Part 1

    It's finally out! Episode 14 of the Spotlight Lipedema is out - featuring Beth Rylersdaam - Curvy Girl Beth. It was a great conversation - so good that we just kept chatting. So here's Part 1 of our conversation all about Beth's Lipedema discovery and what she's done to manage it. Stay tuned for Pt. 2 where Beth talks about how she became Curvy Girl Beth.

    • 40 min
    The Lipedema Foundation - Focusing on Lipedema Research with Dr. Guy Eakin - Episode 13

    The Lipedema Foundation - Focusing on Lipedema Research with Dr. Guy Eakin - Episode 13

    This episode is a bit different from the previous shows. I had the chance to speak with Dr. Guy Eakin, the Chief Science Officer of The Lipedema Foundation. Dr. Eakin provides some background on the Foundation and the work they are doing to provide funding for lipedema research.

    • 57 min
    Peace and Self-Care - A Chat with Nita Clewis - Episode 12

    Peace and Self-Care - A Chat with Nita Clewis - Episode 12

    In the midst of the Covid crazy, I had the chance to speak with Nita Clewis. We spoke about finding peace with our diagnosis and our challenges, while at the same time, continuing to meet those challenges through self-care. How do we stay focused on self-care in a crazy world - especially as we try to get things back to something that resembles normal.

    • 54 min
    Spotlight Lipedema Returns - Episode 11

    Spotlight Lipedema Returns - Episode 11

    The Spotlight Lipedema Podcast is back for a quick episode to catch up with what's been going on and to let you know that we're still here - Getting ready for Lipedema Awareness Month in June.

    • 18 min
    Lipedema, Lymphatics and Eating Keto with Dr. Leslyn Keith - Episode 10

    Lipedema, Lymphatics and Eating Keto with Dr. Leslyn Keith - Episode 10

    I got the chance to speak with Dr. Leslyn Keith, Occupational Therapist, Klose Instructor, and Lipedema Researcher about the lymphatic system, it's importance for people with lipedema, and how eating ketogenically may help with the challenges.

    • 1 hr 1 min

Customer Reviews

4.7 out of 5
19 Ratings

19 Ratings

Sueohara ,

I am so happy you’re doing this!

Getting ready to post a link to your podcast on a new page on legslikemine.com to share the word about your your awesome works!!! Thanks!!! Susan

akardel ,

Honest, helpful and informative

I am new to a diagnosis of lipedema, so I am a sponge for all the information i can get. Thanks for being there to share. This podcast is a good place to learn more.

Mushka10 ,

Educational and Interesting

I’m enjoying the podcasts and learning more about my condition and how to help myself. With so few doctors informed on this disorder I have to do my own research, treatments and advocating. I enjoy hearing the stories of others, even if we are varied types or stages, because there are some commonalities and new tips I can explore. My initial diagnosis was frightening but this podcasts helps me know I’m not alone and provides me hope. Thank you for this safe space.