100 episodes

Talking Head Pain is a podcast that confronts head pain, head on. 

Brought to you by the Global Healthy Living Foundation and hosted by migraine advocate Joe Coe, this show explores how people living with migraine, cluster headache and other types of intense pain find ways to better manage their disease. 

To receive headache/migraine related resources, giveaways, and latest episode releases, text the word "Headache" to 1-845-285-1563 to sign up.

Or visit GHLF.org for more information. 

Talking Head Pain Global Healthy Living Foundation

    • Health & Fitness
    • 4.8 • 48 Ratings

Talking Head Pain is a podcast that confronts head pain, head on. 

Brought to you by the Global Healthy Living Foundation and hosted by migraine advocate Joe Coe, this show explores how people living with migraine, cluster headache and other types of intense pain find ways to better manage their disease. 

To receive headache/migraine related resources, giveaways, and latest episode releases, text the word "Headache" to 1-845-285-1563 to sign up.

Or visit GHLF.org for more information. 

    LGBTQ Magic in the Mundane: Community Care for Migraine

    LGBTQ Magic in the Mundane: Community Care for Migraine

    In this episode of Talking Head Pain, Sarah is joined by Christa, a death doula and community care facilitator navigating the complex intersections of chronic illness and queer identity for Black, Indigenous and People of Color (BIPOC) individuals. Together, they explore Christa's journey through the debilitating impacts of migraine and endometriosis, highlighting the profound role of community care and self-advocacy in managing chronic conditions. This conversation sheds light on the resilience required to live authentically while coping with chronic pain, offering insights and solidarity to those on similar paths.
    Among the highlights in this episode:
    01:16: Christa highlights the significance of Pride Month and discusses the pain associated with queer history, emphasizing that existence as queer people of color with disabilities is an act of resistance
    03:01: Christa describes how migraine attacks have been a longstanding issue since high school, often overlooked due to other health challenges, and particularly exacerbated by hormonal changes
    06:14: Christa talks about the professional challenges posed by migraine, affecting their ability to work on screens and requiring time off, which impacted her past employment
    07:01: Sarah and Christa discuss the complexities of managing multiple chronic illnesses, including the crucial timing of medication to handle migraine symptoms effectively
    08:36: Christa explains how transitioning to self-employment has allowed them to manage their health better, accommodating their migraines and other chronic conditions more effectively
    10:22: Christa reflects on the cultural and familial challenges of addressing chronic conditions within immigrant families, highlighting the gap between generational approaches to health and wellness
    13:46: Christa discusses the evolution of their support systems and the challenges of initiating conversations about needs and support with loved ones, especially during significant life transitions
    18:07: Christa discusses the importance of creating care plans, especially within the context of chronic illness and disability
    22:20: Christa emphasizes the importance of workplace accommodations for chronic illnesses and advocates for better understanding and support from employers
    27:36: Christa shares personal strategies for dealing with bad days due to chronic conditions, emphasizing the importance of resting and listening to one’s body
    Contact Our Hosts:
    Joe Coe, Director, Chief Value, Growth, and Therapeutic Solutions Officer, Country Manager, Canada at GHLF: jcoe@ghlf.org
    Sarah Shaw, Associate Director, Diversity, Equity and Inclusion at GHLF: sshaw@ghlf.org
    A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF.
    We want to hear what you think. Send your comments, or a video or audio clip of yourself, to podcasts@ghlf.org  
    Catch up on all our episodes on our website or on your favorite podcast channel.
    See omnystudio.com/listener for privacy information.

    • 25 min
    Discussing the Future of Migraine Care: Education and Treatment Insights from Dr. Gottschalk at the American Headache Society's Scientific Meeting

    Discussing the Future of Migraine Care: Education and Treatment Insights from Dr. Gottschalk at the American Headache Society's Scientific Meeting

    In this special episode of Talking Head Pain, Joe speaks with Dr. Christopher Gottschalk, Director of Headache Medicine and the Headache Medicine Training Program at Yale University, Connecticut, live from the American Headache Society's scientific meeting. Dr. Gottschalk shares insights from a new study revealing how prolonged use of anti-CGRP drugs can reduce prodromal symptoms and the occurrence of headaches. He discusses the evolving understanding of migraine phases and the broader impacts of treatment on quality of life and cognitive function. Join Joe and Dr. Gottschalk as they discuss these significant advancements in migraine treatment and education.
    Contact Our Hosts:
    Joe Coe, Director, Chief Value, Growth, and Therapeutic Solutions Officer, Country Manager, Canada at GHLF: jcoe@ghlf.org
    Sarah Shaw, Associate Director, Diversity, Equity and Inclusion at GHLF: sshaw@ghlf.org
    A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF.
    We want to hear what you think. Send your comments, or a video or audio clip of yourself, to podcasts@ghlf.org  
    Catch up on all our episodes on our website or on your favorite podcast channel.
    See omnystudio.com/listener for privacy information.

    • 4 min
    Person-Centric Approaches to Migraine: A Discussion with Nurse Practitioner Alicia Duyvejonck at the American Headache Society's Scientific Meeting

    Person-Centric Approaches to Migraine: A Discussion with Nurse Practitioner Alicia Duyvejonck at the American Headache Society's Scientific Meeting

    In this special episode of Talking Head Pain, Joe is live from the American Headache Society's scientific meeting with Alicia Duyvejonck, a nurse practitioner at Genesis Headache Clinic in Davenport, Iowa. Together they discuss a research poster to which they both contributed titled "Person-Centric Communications in Migraine: Delphi-Like Consensus on Best Practice." This study, conducted using the Delphi consensus model, involved headache neurologists, nurse practitioners, psychologists, and advocacy community representatives, focusing on enhancing communication between patients and health care professionals in migraine care. They emphasize the importance of person-centric communication and individualizing treatment, highlighting key recommendations for both providers and patients to improve understanding and reduce migraine stigma.Join Joe and Alicia as they explore how effective communication is essential in managing this heterogeneous condition and fostering shared decision-making.
    Contact Our Hosts:
    Joe Coe, Director, Chief Value, Growth, and Therapeutic Solutions Officer, Country Manager, Canada at GHLF: jcoe@ghlf.org
    Sarah Shaw, Associate Director, Diversity, Equity and Inclusion at GHLF: sshaw@ghlf.org
    A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF.
    We want to hear what you think. Send your comments, or a video or audio clip of yourself, to podcasts@ghlf.org  
    Catch up on all our episodes on our website or on your favorite podcast channel.
    See omnystudio.com/listener for privacy information.

    • 4 min
    American Headache Society Update: AI Advancements and Future Impacts on Migraine Care with Dr. Mario Peres

    American Headache Society Update: AI Advancements and Future Impacts on Migraine Care with Dr. Mario Peres

    In this special episode of Talking Head Pain, Joe is live from the American Headache Society's scientific meeting with Dr. Mario Peres, President-Elect of the International Headache Society. Dr. Peres, hailing from São Paulo, Brazil, discusses the application of artificial intelligence (AI) in migraine diagnosis and management. They discuss how AI tools are being developed to improve diagnostic accuracy, which is crucial for effective treatment. Dr. Peres emphasizes the importance of validating these AI models to ensure they provide reliable and useful outcomes. 
    Join Joe and Dr. Peres as they delve into the future of migraine care, emphasizing technology's role in enhancing patient self-management and care strategies.
    Contact Our Hosts:
    Joe Coe, Director, Chief Value, Growth, and Therapeutic Solutions Officer, Country Manager, Canada at GHLF: jcoe@ghlf.org
    Sarah Shaw, Associate Director, Diversity, Equity and Inclusion at GHLF: sshaw@ghlf.org
    A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF.
    We want to hear what you think. Send your comments, or a video or audio clip of yourself, to podcasts@ghlf.org  
    Catch up on all our episodes on our website or on your favorite podcast channel.
    See omnystudio.com/listener for privacy information.

    • 5 min
    American Headache Society Update: A Brief Discussion with Dr. Nada Hindiyeh and Dr. Lauren Natbony

    American Headache Society Update: A Brief Discussion with Dr. Nada Hindiyeh and Dr. Lauren Natbony

    In this special episode of Talking Head Pain, Joe speaks with Dr. Nada Hindiyeh, Director of Headache Medicine at Metrodora Institute and CMO at Haven Headache & Migraine Center, and Dr. Lauren Natbony, Founder and CEO of Integrative Headache Medicine of New York. Recorded live at the American Headache Society’s (AHS) Annual Scientific Meeting in San Diego, CA, they discuss the complex interrelations between migraine, autonomic disorders such as POTS, Ehlers-Danlos Syndrome, and Mast Cell Activation Syndrome (MCAS). They highlight the importance of a holistic approach to treatment and the innovative work being done to create special interest groups within the AHS to address these issues. Join them as they share insights and advances in treating these interconnected conditions.
    Contact Our Hosts:
    Joe Coe, Director, Chief Value, Growth, and Therapeutic Solutions Officer, Country Manager, Canada at GHLF: jcoe@ghlf.org
    Sarah Shaw, Associate Director, Diversity, Equity and Inclusion at GHLF: sshaw@ghlf.org
    A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF.
    We want to hear what you think. Send your comments, or a video or audio clip of yourself, to podcasts@ghlf.org  
    Catch up on all our episodes on our website or on your favorite podcast channel.
    See omnystudio.com/listener for privacy information.

    • 4 min
    Better Late Than Never: Katrina's Long Road to Diagnosis

    Better Late Than Never: Katrina's Long Road to Diagnosis

    In this episode of Talking Head Pain, Sarah welcomes Katrina, a patient advocate navigating multiple conditions including migraine and endometriosis. They discuss Katrina's journey — from years of misdiagnosis to finally finding a doctor who would listen and offer effective migraine treatment options. Katrina and Sarah dive into the overlap of endometriosis and migraine advocacy, highlighting the challenges and breakthroughs along the way. This discussion provides insights into the daily realities of shared decision-making with your health care team, the journey to diagnosis, and the importance of self-advocacy.
    Among the highlights in this episode:
    02:05: Katrina describes the onset and progression of their migraine attacks, providing insights into the symptoms that go beyond a typical headache
    03:58: Katrina shares their journey from misdiagnosis to finally getting a correct diagnosis and effective treatment plan, emphasizing the pivotal role of a neurologist
    04:25: Sarah and Katrina discuss the overlap of endometriosis and migraine, and the challenges of being heard and properly diagnosed
    07:26: Katrina and Sarah discuss the impact of advocacy in navigating health care and the importance of self-advocacy in chronic illness management
    08:53: Katrina reflects on how their advocacy in endometriosis has empowered them in other areas such as migraine
    14:41: Sarah and Katrina discuss the emotional and physical toll of chronic illness and the societal pressures that affect how people manage their health
    19:11: Katrina expresses their approach to health management amidst advocacy fatigue
    20:29: Closing thoughts on the importance of prioritizing personal health and the collective need for better health care understanding and support
    Contact Our Hosts:
    Joe Coe, Director, Chief Value, Growth, and Therapeutic Solutions Officer, Country Manager, Canada at GHLF: jcoe@ghlf.org
    Sarah Shaw, Associate Director, Diversity, Equity and Inclusion at GHLF: sshaw@ghlf.org
    A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF.
    We want to hear what you think. Send your comments, or a video or audio clip of yourself, to podcasts@ghlf.org  
    Catch up on all our episodes on our website or on your favorite podcast channel.
    See omnystudio.com/listener for privacy information.

    • 21 min

Customer Reviews

4.8 out of 5
48 Ratings

48 Ratings

Tom Passante ,

Excellent podcast!

Joe Coe was an excellent moderator in today’s podcast which discussed the use of CGRP Inhibitors as a first line of therapy against migraine headaches! This view stems from a recent position paper which advocates this therapy over trying other medications first, since these other medications were actually developed for other conditions, with sometimes severe side effects. Dr. Andrew Charles was very informative. And Joe was so well spoken, clearly guiding Dr. Charles in outlining the main issues. I highly recommend this podcast! … Tom P.

User2001oabc ,

Smart and Engaging

They say what others don’t and make it worth spending time listening. Whether you have migraines or not this is a great show.

Joey_1217 ,

Informative and Illuminating

I'm a college student who has gotten migraines ever since I was young. The information that Joe provides through these podcasts from himself and from the other credible people in the podcast episodes is marvelous and really encouraging.

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