191 episodes

A podcast for people with Axial Spondyloarthritis. I am Jayson Sacco, a 34 year plus Axial Spondyloarthritis survivor. With this show, I want to bring the AS community together and talk with doctors, organizations, and individuals all dealing with AS.

The Axial Spondyloarthritis Podcast Jayson Sacco

    • Health & Fitness
    • 4.8 • 48 Ratings

A podcast for people with Axial Spondyloarthritis. I am Jayson Sacco, a 34 year plus Axial Spondyloarthritis survivor. With this show, I want to bring the AS community together and talk with doctors, organizations, and individuals all dealing with AS.

    Does Axial Spondyloarthritis Cause Headaches?

    Does Axial Spondyloarthritis Cause Headaches?

    In this episode I discuss an article from myspondylitisteam.com that discusses headaches and AS. As always, this is designed to help you plan the conversations you may need to have with your doctor(s). Here is a link to the article .
    Here are the links to the YouTube channels for:
    Yoga for AS
    Alex Levine, Fitness Alex's Full Workout Video
    Here is the link to Michael Mallinson's episode: Episode 51
    Here is the link to Dr. Napier's interview where she discusses research she is doing: Episode 187
    All the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items.
    Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/
    Here are some links to Amazon showing some of the items I discussed.
    Ankylosing Spondylitis and Axial Spondyloarthritis The Facts Series by Dr. Khan
    Uberlube - https://amzn.to/3i604N2
    Here is the Bean Bag neck warmer https://amzn.to/3uN6mcg
    Biofreeze - https://amzn.to/33gygBS
    Cane - https://amzn.to/3uN9fts
    Heating Pad - https://amzn.to/3Bjd5vz
    Weighted Blanket - https://amzn.to/36RCdi7
    Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScA
    All My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx

    • 6 min
    What Might Cause Spondylitis?

    What Might Cause Spondylitis?

    In this episode I discuss an article from myspondylitisteam.com that discusses some things that may be causes of spondylitis. As always, this is designed to help you plan the conversations you may need to have with your doctor(s). Here is a link to the article .
    Here are the links to the YouTube channels for:
    Yoga for AS
    Alex Levine, Fitness Alex's Full Workout Video
    Here is the link to Michael Mallinson's episode: Episode 51
    Here is the link to Dr. Napier's interview where she discusses research she is doing: Episode 187
    All the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items.
    Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/
    Here are some links to Amazon showing some of the items I discussed.
    Ankylosing Spondylitis and Axial Spondyloarthritis The Facts Series by Dr. Khan
    Uberlube - https://amzn.to/3i604N2
    Here is the Bean Bag neck warmer https://amzn.to/3uN6mcg
    Biofreeze - https://amzn.to/33gygBS
    Cane - https://amzn.to/3uN9fts
    Heating Pad - https://amzn.to/3Bjd5vz
    Weighted Blanket - https://amzn.to/36RCdi7
    Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScA
    All My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx

    • 9 min
    Experiencing Biologic Side Affects?

    Experiencing Biologic Side Affects?

    In this episode I discuss an article from myspondylitisteam.com that discusses some things to monitor if you start a biologic. As always, this is designed to help you plan the conversations you may need to have with your doctor(s). Here is a link to the article .
    Here are the links to the YouTube channels for:
    Yoga for AS
    Alex Levine, Fitness Alex's Full Workout Video
    All the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items.
    Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/
    Here are some links to Amazon showing some of the items I discussed.
    Ankylosing Spondylitis and Axial Spondyloarthritis The Facts Series by Dr. Khan
    Uberlube - https://amzn.to/3i604N2
    Here is the Bean Bag neck warmer https://amzn.to/3uN6mcg
    Biofreeze - https://amzn.to/33gygBS
    Cane - https://amzn.to/3uN9fts
    Heating Pad - https://amzn.to/3Bjd5vz
    Weighted Blanket - https://amzn.to/36RCdi7
    Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScA
    All My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx

    • 7 min
    Things I Wish I Was Told When Getting Diagnosed

    Things I Wish I Was Told When Getting Diagnosed

    In this episode I discuss an article from axialspondyloarthritis.net that discusses some things the auther wishes she was told when diagnosed. As always, this is designed to help you plan the conversations you may need to have with your doctor(s). She brings up some fantastic things to consider. Here is a link to the article by Sarah Lee.
    Here are the links to the YouTube channels for:
    Yoga for AS
    Alex Levine, Fitness Alex's Full Workout Video
    All the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items.
    Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/
    Here are some links to Amazon showing some of the items I discussed.
    Ankylosing Spondylitis and Axial Spondyloarthritis The Facts Series by Dr. Khan
    Uberlube - https://amzn.to/3i604N2
    Here is the Bean Bag neck warmer https://amzn.to/3uN6mcg
    Biofreeze - https://amzn.to/33gygBS
    Cane - https://amzn.to/3uN9fts
    Heating Pad - https://amzn.to/3Bjd5vz
    Weighted Blanket - https://amzn.to/36RCdi7
    Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScA
    All My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx

    • 11 min
    Are Tattoos Safe?

    Are Tattoos Safe?

    In this episode I discuss an article from Myspondylitisteam.com that discusses some things to consider about getting a tattoo. As always, this is designed to help you plan the conversations you may need to have with your doctor(s). Here is a link to the article.
    Here are the links to the YouTube channels for:
    Yoga for AS
    Alex Levine, Fitness Alex's Full Workout Video
    All the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items.
    Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/
    Here are some links to Amazon showing some of the items I discussed.
    Ankylosing Spondylitis and Axial Spondyloarthritis The Facts Series by Dr. Khan
    Uberlube - https://amzn.to/3i604N2
    Here is the Bean Bag neck warmer https://amzn.to/3uN6mcg
    Biofreeze - https://amzn.to/33gygBS
    Cane - https://amzn.to/3uN9fts
    Heating Pad - https://amzn.to/3Bjd5vz
    Weighted Blanket - https://amzn.to/36RCdi7
    Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScA
    All My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx

    • 9 min
    Interview With Dr Ruth Napier - Rare Disease Expert and Immunologist

    Interview With Dr Ruth Napier - Rare Disease Expert and Immunologist

    In this episode I interview Dr Ruth Napier, a rare disease and Immunologist who is studying Axial Spondyloarthritis. We discusses the research Dr Napier is doing regarding genetics and AS. As always, this is designed to help you increase your knowledge of AS. Here is a link to the discussing the research on mice and Card9.
    Here is a link to Dr. Napier's lab page.
    To make a donation to Dr. Napier's Lab and fund her research, click here.
    Here are the links to the YouTube channels for:
    Yoga for AS
    Alex Levine, Fitness Alex's Full Workout Video
    All the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items.
    Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/
    Here are some links to Amazon showing some of the items I discussed.
    Ankylosing Spondylitis and Axial Spondyloarthritis The Facts Series by Dr. Khan
    Uberlube - https://amzn.to/3i604N2
    Here is the Bean Bag neck warmer https://amzn.to/3uN6mcg
    Biofreeze - https://amzn.to/33gygBS
    Cane - https://amzn.to/3uN9fts
    Heating Pad - https://amzn.to/3Bjd5vz
    Weighted Blanket - https://amzn.to/36RCdi7
    Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScA
    All My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx

    • 32 min

Customer Reviews

4.8 out of 5
48 Ratings

48 Ratings

nessable24 ,

Not diagnosed - But pretty sure I will be

I have listened to several podcasts covering autoimmune and yours by far has been the most helpful! Thank you for explaining so many small things that no one else covers.

Christy from New Jersey ,

Thank you. I’m not alone.

I’m 44 and got diagnosed late in 2016. Blab-27 positive. I’ve been listening to these podcasts all night, because I’m in severe joint and back pain. I’m on inflectra every 6 weeks. Keep up the good work I’m learning so much. I think I’m going to invest in a tens unit.

holly SAHM g ,

Thank you for hope

I have been listening to this podcast ever since I was diagnosed in January 2022. I have been feeling so down about not being able to take care of my two children under two. You mentioned in the podcast today that your children won’t know what they are missing out on and won’t resent you for it. I can’t tell you how much I needed to hear that. I have been in pain their whole lives and limited to what I can do. Thankfully they will not know me any other way and will love me for what I can do. Thanks for giving me this much needed perspective!

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