The BloodFlow

Hemophilia Federation of America
  • 5.0 (2)
  • NON-PROFIT

Living with a bleeding disorder is challenging, but you don’t have to do it alone. Join us as we provide a continuous flow of conversation about all things bleeding disorders. For more information contact our Advocacy & Outreach Team at advocacy@hemophiliafed.org or check out the Hemophilia Federation of America website at hemophiliafed.org.

  1. 12/23/2022

    State v. Federal Advocacy: Where to Begin?

    Tackle policy in all 50 states or head to Washington, D.C. to walk the halls of Congress? In this episode, Lindsay Cox, former senior manager of Advocacy and Outreach at the Hemophilia Federation of America, speaks with Jennifer Muthig, the Senior Director for Advocacy & Policy at the National Multiple Sclerosis Society. Learn all about the difference between advocacy and policy-making on the state v. federal level and the accessibility of virtual advocacy as a result of the pandemic. For more information contact HFA at advocacy@hemophiliafed.org or check out the Hemophilia Federation of America's website at hemophiliafed.org.

    23 min

  2. 12/22/2022

    Finding Strength through Diversity: The Importance of Representation in Advocacy

    Wondering if your voice has impact? In this episode, Adrian Palau-Tejada, Senior Manager for Health Disparities & Engagement at the Hemophilia Federation of America, speaks with Tyshawn Constantine, the Associate Director at the Hemophilia Association of New York. Join us as we discuss Tyshawn's evolution through advocacy work, drawing inspiration from the diversity of the New York and bleeding disorders communities and empowering others to advocate for themselves. For more information, contact Lindsay Cox, Senior Manager for Advocacy & Outreach, at advocacy@hemophiliafed.org or check out the Hemophilia Federation of America's website at hemophiliafed.org.

    25 min

  3. 09/18/2022

    Advocacy Alliances: A Conversation with Will Hubbert of NPF

    All with a little help from our friends! In this episode, Miriam Goldstein, HFA’s Interim Vice President for Public Affairs, speaks with Will Hubbert, the National Psoriasis Foundation's Grassroots and Advocacy Manager, about the importance of coalitions, alliance building, and developing confidence and enthusiasm amongst grassroots advocates. For more information contact Lindsay Cox, Senior Manager for Advocacy & Outreach at advocacy@hemophiliafed.org or check out the Hemophilia Federation of America's website at hemophiliafed.org.

    42 min
  4. Copay Accumulator Adjuster Programs (CAAPs): Why All Copays Should Always Count

    02/03/2022

    Copay Accumulator Adjuster Programs (CAAPs): Why All Copays Should Always Count

    Heard about copay accumulator adjuster programs (CAAPs), but are unsure what they are? Look no further! In this episode, Lindsay Cox, HFA’s Senior Manager for Advocacy & Outreach, speaks with Bob Graham, the New York State Bleeding Disorders Coalition's Public Policy Director, and Mark Hobraczk, HFA’s Senior Manager for Policy & Advocacy, about what copay accumulator adjuster programs are, what HFA and the NYSBDC are doing to combat this issue, and how listeners can take action to ensure that all copays count. For more information contact Lindsay Cox, Senior Manager for Advocacy & Outreach at advocacy@hemophiliafed.org or check out the Hemophilia Federation of America's website at hemophiliafed.org.

    39 min
  5. Step Therapy and its Community Impacts: Why Failing First is Not an Option

    11/18/2021

    Step Therapy and its Community Impacts: Why Failing First is Not an Option

    Did you know that other chronic disorders face the issue of step therapy as well? In this episode, Lindsay Cox, HFA’s Senior Manager for Advocacy & Outreach, speaks with Hannah Lynch, Associate Director of Federal Government Relations and Health Policy for the National Psoriasis Foundation, about how step therapy impacts our communities, what HFA and NPF are doing to combat step therapy, and how listeners can take action on this issue. For more information contact Lindsay Cox, Senior Manager for Advocacy & Outreach at advocacy@hemophiliafed.org or check out the Hemophilia Federation of America website at hemophiliafed.org.

    29 min
  6. Open Enrollment: Considering Health Care Coverage Options for 2022

    11/17/2021

    Open Enrollment: Considering Health Care Coverage Options for 2022

    Tis the season for open enrollment! In this episode, Miriam Goldstein, HFA’s Director of Policy & Principal Legal Counsel, and Mark Hobraczk, HFA’s Senior Manager, Policy & Advocacy, speak with Eric Iglewski, Social Worker and Vice President of Clinical Services at the Mary M. Gooley Hemophilia Center in Rochester, NY, about what you need to know when considering health care coverage options for 2022. For more information contact Lindsay Cox, Senior Manager for Advocacy & Outreach at advocacy@hemophiliafed.org or check out the Hemophilia Federation of America website at hemophiliafed.org.

    45 min

  7. 08/13/2021

    Adulting with a Bleeding Disorder: College

    So you're headed to college and you have a bleeding disorder. Need some advice? In this episode, former HFA Policy and Government Education Summer Intern, Will Hubert, chats with Matt Delaney and Chantel Winslow about their experiences navigating college with a bleeding disorder.  For more information contact Kimberly Ramseur, Senior Manager for Policy & Advocacy at advocacy@hemophiliafed.org or check out the Hemophilia Federation of America website at hemophiliafed.org.

    55 min

  8. 04/20/2021

    Adulting with a Bleeding Disorder: Employment

    What is life like when you have a bleeding disorder and are seeking employment opportunities? In this episode, former HFA Policy and Government Education Summer Intern, Will Hubert, chats with Hector Moreno about his path to becoming an educator and living with a hemophilia.  For more information contact Kimberly Ramseur, Senior Manager for Policy & Advocacy at advocacy@hemophiliafed.org or check out the Hemophilia Federation of America website at hemophiliafed.org.

    55 min
See All (14)

Trailer

Ratings & Reviews

5
out of 5
2 Ratings

About

Living with a bleeding disorder is challenging, but you don’t have to do it alone. Join us as we provide a continuous flow of conversation about all things bleeding disorders. For more information contact our Advocacy & Outreach Team at advocacy@hemophiliafed.org or check out the Hemophilia Federation of America website at hemophiliafed.org.

Information

  • Creator
    Hemophilia Federation of America
  • Years Active
    2020 - 2022
  • Episodes
    14
  • Rating
    Clean
  • Copyright
    © Hemophilia Federation of America
  • Show Website
    The BloodFlow