The Collective Mind: A CurePSP Podcast
The Collective Mind Podcast will feature the latest from care partners, advocates, physicians, scientists, researchers and staff members on the fight against rare diseases, from the people bringing us closer to a cure. We aim to educate and share the experiences of CurePSP community members, amplifying your voices and spreading awareness to make living with these diseases a little more manageable.
Episodes
Enjoyed this episode very much
Sep 4
I lost my husband to PSP three months ago and can relate to Robert Weide’s experiences. I appreciate his willingness to share and speak openly about his feelings and how he and his wife coped with the challenges that PSP brings. Many of those who face PSP as care givers do not have access to the resources he had. Many have to work, do not have the financial means to hire help for four days a week, and may have to deal with unresponsive providers or those who have never heard of PSP. It would be beneficial for those in the throes of caregiving to hear from a “normal “ person who may not be as articulate, but nevertheless may be more empathetic.
About
Information
- CreatorCurePSP
- Years Active2K
- Episodes2
- RatingClean
- Show Website