The David Kaufer Podcast: The Lighter Side of the Spectrum

David Kaufer
  • 5.0 (6)
  • 心理健康
  • 一周一更

Welcome to “The Lighter Side of the Spectrum,” a podcast where we explore how to find joy, connection, and growth while navigating the challenges of parenting kids and teens on the autism spectrum. Hosted by David Kaufer, father of a 19-year-old non-speaking autistic son, this podcast offers a fresh, uplifting perspective on life with autism—focusing on the moments of triumph as well as the obstacles.David’s son was unable to communicate reliably until he was almost 17, when they discovered and began using the spelling methodology that profoundly changed his life. His inspiring journey from silence to communication serves as a beacon of hope for anyone needing encouragement in the autism community.In addition to sharing his personal experiences, David tackles broader issues, such as building inclusion into healthcare practices to ensure those on the spectrum receive compassionate, competent care. Whether you’re a parent, caregiver, or professional, join us for light-hearted discussions...

  1. 2天前

    COPAA's Denise Marshall on Disability Rights

    David engages with Denise Marshall, Executive Director of the Council of Parent Attorneys and Advocates (COPAA), to discuss the essential work of protecting and advancing the rights of students with disabilities. Denise shares her journey from working on behavior support at the Kennedy Krieger Institute to her leadership role at COPAA, which champions equal educational opportunities for all students. The conversation explores the challenges of advocating for disability rights in the current political climate, the importance of inclusion, the need for bipartisan support, and the critical role of organizations like COPAA in providing advocacy and support for families. The episode also delves into the controversies surrounding communication methods for non-speaking students and the systemic bias they face. Finally, Denise emphasizes the importance of continued activism and collective voice in securing and defending the rights and dignity of students with disabilities.   Visit https://www.copaa.org/   Topics 01:07 Guest Introduction: Denise Marshall 02:02 Denise's Journey in Disability Rights Advocacy 07:53 The Mission and Impact of COPA 11:51 Challenges and Advocacy in Special Education 18:41 Concerns About Eroding Protections 31:03 Debating the Evidence Base for Spelling Communication 31:32 Advocacy Efforts and Challenges with ASHA 32:24 The Importance of Communication Rights 34:40 State Legislation and Communication Rights 38:23 Collaboration and Advocacy Strategies 40:10 Fact or Fiction: Disability Rights and Partisanship 42:02 Tip of the Week: Advocacy and Communication 46:01 COPAA's Agenda and Future Goals 51:54 Concluding Thoughts on Advocacy and Inclusion

    55 分钟

  2. 11月7日

    Celebrating Love and Connection: Libby Ingram

    David welcomes Libby Ingram, a dedicated parent and speech therapist profoundly impacted by her experience raising her non-speaking autistic son, John Paul. The podcast delves into the journey of parenting and advocating for children on the autism spectrum, exploring the challenges and breakthroughs associated with innovative communication methods like spelling. Libby shares her personal story, the foundational moments of understanding full-body apraxia, and the unexpected connections and community building that resulted from her relentless advocacy. The episode also highlights the importance of unconditional love, empathy, and the tight-knit community formed through events like Presume Comp Fest, fostering growth and support for non-speakers and their families.   Topics 00:36 Meet Today's Guest: Libby Ingram 02:01 Libby's Journey with Her Son John Paul 05:18 The Telepathy Tapes and John Paul's Abilities 10:08 Challenges and Triumphs in Communication 13:57 The Role of Speech Therapy and Spelling 26:37 The Controversy Around Spelling and ABA 34:38 Discovering Spelling and Its Impact 39:31 Overcoming Educational Barriers 41:56 The Struggles and Triumphs of Spelling 46:00 The Importance of Communication 50:28 Balancing Family Dynamics 56:58 Presume Comp Fest: A Community Gathering 01:12:35 Reflections on Love and Loss 01:15:40 Closing Thoughts and Gratitude

    1 小时 17 分钟

  3. 10月30日

    Exploring the ‘Woo-Woo’ Side with Betsy Hicks Russ

    David is joined by Betsy Hicks Russ—mother, advocate, and founder of Autism Odyssey. They discuss the groundbreaking world of non-speaking autism, focusing on intuition, energy communication, and the 'woo-woo' side of autism interaction. Betsy shares her journey from early autism support to founding Autism Odyssey, highlighting diet as a crucial element in managing autism. Additionally, they delve into the potential of non-local communication and the significant impacts of presuming competence in non-speaking individuals. The conversation also touches on their experiences at the Presume Comp Fest, a unique gathering aiming to create unity within the autism community. Tune in for insights, anecdotes, and practical tips for navigating autism as a lifelong journey.   Topics 01:10 Opening the Door to Intuition and Connection 01:26 Betsy Hicks Russ: A Journey Through Autism Advocacy 03:00 The Evolution of Autism Support 06:31 The Gut-Brain Connection and Picky Eating 11:17 The Birth of Autism Odyssey 13:45 Discovering Spelling as Communication 22:22 Exploring Telepathy and Non-Local Communication 28:35 A Surprising Revelation 29:03 Addressing Skepticism and Manipulation 29:59 The Importance of Community and Sharing Experiences 30:24 Planning and Organizing Events 33:37 The Power of Unity and Love 36:27 The Birth of Presume Comp Fest 47:38 Autism Tip of the Week 49:46 Parent Confessions 54:37 Autism Fact or Fiction 57:16 Final Thoughts and Advice for Parents Topics 01:48 Opening Up About Non-Speaking Children 02:29 Guest Introduction: Betsy Hicks Russ 04:00 Betsy's Journey with Autism 07:20 The Importance of Diet in Autism 12:01 The Creation of Autism Odyssey 14:27 Discovering Spelling Communication 22:40 Exploring Telepathy and Non-Local Communication 28:32 A Surprising Revelation 29:05 Addressing Skepticism and Manipulation 29:59 The Importance of Community and Shared Experiences 32:52 The Birth of Presume Comp Fest 34:41 Unity and the Power of Shared Goals 36:05 The Role of Non-Local Communication 40:40 Planning for the Future 47:05 Autism Tip of the Week 49:12 Parent Confessions 53:52 Autism Fact or Fiction 56:29 Final Thoughts and Advice for Parents Stone's Autism Advocacy Adventure David shares a heartfelt recount of his two-week advocacy journey with his non-speaking son Stone. Starting in Atlanta and ending in New York City, David and Stone met with congressional leaders, gave inspiring presentations to professional groups, and connected with non-speaking families at the Presume Competence Fest. The episode highlights their efforts to promote communication rights for non-speakers and the power of direct advocacy. David is joined by fellow podcaster David Yas to reflect on the memorable moments and the impact of their experiences.   Topics 00:00 Starting the Day of Advocacy 01:02 Welcome to the Lighter Side of the Spectrum 01:43 A Special Journey with Stone 03:38 Traveling with Autism 06:11 TSA Cares and Sunflower Program 09:28 Speaking Engagement in Atlanta 15:06 Presume Competence Fest 15:56 Connecting with the Non-Speaking Community 21:37 Fun in Atlanta 22:14 Advocacy on Capitol Hill 24:10 Reflecting on the Journey to Congress 24:37 Meeting with Congresswoman Schreyer 26:26 Highlighting the Spelling Curriculum 27:22 Engaging with Speech Language Pathologists 28:31 Meeting with Senator Cantwell's Office 29:59 Presentation at Berson PR and Communications 30:45 Stone's Bold Statement 34:01 Visiting the Statue of Liberty 34:20 Navigating New York City 36:55 The 9/11 Memorial Visit 37:21 Managing Emotions and Behaviors 42:35 Future Plans and Goals 44:36 Listener Feedback and Engagement

    57 分钟

  4. 10月29日

    Stone's Autism Advocacy Adventure

    David shares a heartfelt recount of his two-week advocacy journey with his non-speaking son Stone. Starting in Atlanta and ending in New York City, David and Stone met with congressional leaders, gave inspiring presentations to professional groups, and connected with non-speaking families at the Presume Competence Fest. The episode highlights their efforts to promote communication rights for non-speakers and the power of direct advocacy. David is joined by fellow podcaster David Yas to reflect on the memorable moments and the impact of their experiences.   Topics 00:00 Starting the Day of Advocacy 01:02 Welcome to the Lighter Side of the Spectrum 01:43 A Special Journey with Stone 03:38 Traveling with Autism 06:11 TSA Cares and Sunflower Program 09:28 Speaking Engagement in Atlanta 15:06 Presume Competence Fest 15:56 Connecting with the Non-Speaking Community 21:37 Fun in Atlanta 22:14 Advocacy on Capitol Hill 24:10 Reflecting on the Journey to Congress 24:37 Meeting with Congresswoman Schreyer 26:26 Highlighting the Spelling Curriculum 27:22 Engaging with Speech Language Pathologists 28:31 Meeting with Senator Cantwell's Office 29:59 Presentation at Berson PR and Communications 30:45 Stone's Bold Statement 34:01 Visiting the Statue of Liberty 34:20 Navigating New York City 36:55 The 9/11 Memorial Visit 37:21 Managing Emotions and Behaviors 42:35 Future Plans and Goals 44:36 Listener Feedback and Engagement

    48 分钟

  5. 9月26日

    Misconceptions & Breakthroughs with Randy Brandhagen

    David interviews guest Randy Brandhagen, who shares his family's experience raising three children, including a son diagnosed with autism. The conversation addresses the desperate search for answers, the influences of figures like Andrew Wakefield, and the role of critical thinking in navigating misinformation. Randy also recounts the life-changing moment his son Kade began communicating through the Spelling to Communicate method, profoundly impacting their family's journey. The episode wraps up with reflections on the uniqueness of non-speaking individuals and the detrimental impact of anti-vaccine rhetoric.   Topics 00:43 Discussing Autism Diagnosis 02:00 Randy's Family Background 03:08 Kade's Early Development and Diagnosis 06:41 Exploring Autism Treatments and Theories 19:03 Questioning Established Beliefs 22:51 Kade's Communication and Advocacy 28:23 Challenges and Misconceptions about Vaccines 30:34 Filling the Information Gap 30:48 The Influence of RFK Jr. 31:19 Understanding and Empathy 32:13 The Darker Side of the Spectrum 32:41 A Shift in Perspective 34:06 The Impact of Wakefield and Asha 35:55 Kade's Journey with Spelling 37:47 Breakthroughs and Challenges 40:41 The Role of Sensory Issues 47:38 Misinformation and Opportunism 50:37 The Complexity of Autism 58:04 The Importance of Nuance 01:01:42 Concluding Thoughts

    1 小时 3 分钟

  6. 9月26日

    Japhet Stevens’s New Innovation for Spelling

    David talks with Japhet Stevens, a software developer and father, who created an AI-powered app called Scholarship to help his minimally speaking son, Indigo, with learning and communication through personalized spelling lessons. Japhet discusses the inspiration behind the app, their journey through various spelling methodologies, and how Indigo’s interests and feedback shaped this innovative tool. The episode also touches on the broader implications and potential of AI in education, the importance of giving children agency in their learning, and the ongoing debate around the efficacy of spelling methodologies. The podcast concludes with tips for parents and a glimpse into the future evolution of the Scholarship app.   Topics 00:46 Meet Today's Guest: Japhet Stevens 02:13 Japhet's Journey to Creating Scholarship 03:52 Challenges and Breakthroughs in Spelling Lessons 07:00 Homeschooling and Alternative Education 11:15 Developing the Scholarship App 23:27 Live Demo of the Scholarship App 33:41 Creating Custom Lessons with AI 34:18 Engaging Students with Personalized Content 37:35 Subscription Model and App Features 39:25 Future Vision and Development Plans 41:50 Community Support and Feedback 45:46 Weekly Segment: Tip of the Week 49:53 Debunking Myths: Does Spelling Work? 56:03 Parent Confessions: Vulnerability and Hope 01:03:37 Closing Remarks and Future Plans

    1 小时 1 分钟

  7. 9月11日

    Navigating Advocacy and Entitlement with Shannon Striner

    David explores the nuanced world of advocacy and entitlement with guest Shannon Striner. Shannon, a devoted mother and blogger, shares her journey raising her daughter Sienna, who has Down Syndrome. They discuss the challenges of finding the right educational environment, the importance of advocating without slipping into entitlement, and the powerful impact of inclusion and innovation in creating better outcomes. Shannon's practical tips and poignant reflections offer inspiration and guidance for families navigating similar paths.   More at https://thislifewegot.com/   Topics 00:48 Exploring Advocacy vs. Entitlement 01:22 Meet Shannon Striner: A Fierce Advocate 02:37 Navigating the School System 06:39 Challenges in Private vs. Public Schools 11:35 Fighting for Inclusive Education 23:47 The Thin Line Between Advocacy and Entitlement 32:42 Navigating Financial Assistance for Families 33:05 The Emotional Struggles of Acceptance 33:59 The Importance of Utilizing Available Resources 36:29 Healthcare Costs and Insurance Limitations 38:00 Advocating for Medicaid and State Programs 38:43 Balancing Work and Caregiving 39:50 Learning and Implementing New Communication Strategies 41:31 The Power of Advocacy and Community Support 45:06 Tip of the Week: Daily Communication Logs 48:48 Fact or Fiction: Debunking Myths About Down Syndrome 52:35 Parent Confessions: Resentment and Gratitude 57:45 The Intersection of Politics and Disability Advocacy 01:02:43 Final Thoughts and Encouragement

    1 小时 3 分钟

  8. 9月4日

    Transforming Autism Support: Marcy Nirschel & Allison Pianka

    In this episode David explores a groundbreaking approach to autism therapy led by two remarkable women, Marcy Nirschel (joined by husband Marty) and Allison Pianka. Marcy, a special education teacher and mother of a non-verbal autistic son, and Allison, a corporate strategist and mother of a child with special needs, share their personal journeys and professional expertise in bringing DIR Floortime and spelling-based communication services to the forefront of autism support in Connecticut. Through their organization, myPath, they are building a movement centered on confidence, connection, and care for autistic children and their families.   Learn more at https://www.findmypath.us/   Topics 01:08 Meet Marcy and Her Journey with Michael 02:38 Challenges and Struggles 06:23 Breakthroughs and Discoveries 13:54 Allison's Story and Joining MyPath 17:16 The Power of DIR Therapy

    1 小时 8 分钟
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关于

Welcome to “The Lighter Side of the Spectrum,” a podcast where we explore how to find joy, connection, and growth while navigating the challenges of parenting kids and teens on the autism spectrum. Hosted by David Kaufer, father of a 19-year-old non-speaking autistic son, this podcast offers a fresh, uplifting perspective on life with autism—focusing on the moments of triumph as well as the obstacles.David’s son was unable to communicate reliably until he was almost 17, when they discovered and began using the spelling methodology that profoundly changed his life. His inspiring journey from silence to communication serves as a beacon of hope for anyone needing encouragement in the autism community.In addition to sharing his personal experiences, David tackles broader issues, such as building inclusion into healthcare practices to ensure those on the spectrum receive compassionate, competent care. Whether you’re a parent, caregiver, or professional, join us for light-hearted discussions...

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