The Dysunderstood Podcast Ella Eastin

Dr. Peter Rowe speaks about his pioneering work in identifying and treating ME/CFS, dysautonomia, and hypermobility in patients, including insights into long COVID, emphasizing his dedication to advancing medical understanding and patient care through research, advocacy, and a holistic approach to complex chronic illnesses.

Want to hear more from Dr. Rowe?

Dysunderstood Conference Q&A with Dr. Rowe

His 170+ publications

Rowe’s Research Runners Organization- created by his patients

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@dysunderstood

@ellaeastin

Support and stay up to date with Dr. Rowe's work: @rowesresearchrunners

TikTok: @dysunderstood

Contact us: hello@dysunderstood.com

As always, thank you to our partners for making this possible. We tirelessly continue to elevate the voices of the dysunderstood.

For a transcript of this episode, click here.

Diana, the first Dysunderstood community author, shares her life-changing journey, starting from a POTS and MECFS diagnosis during her collegiate swimming career, to pursuing her law degree and the ups and downs in between. Diana discusses the importance of relationships, advocating for herself, and balancing everything with her chronic illness.

Want to hear more from Diana ? Find her Dysunderstood blog: "You're Not Alone"

Find us all on Instagram: @dysunderstood

@ellaeastin

@dianahanson4

TikTok: @dysunderstood

Email us: hello@dysunderstood.com

As always, thank you to our partners for making this possible. We tirelessly continue to elevate the voices of the dysunderstood.

For a transcript of this episode, click here.

Daniela, after years of managing undiagnosed illnesses during her teen years, begins her true healing process, embracing a holistic approach and the mind-body-spirit connection. We discuss challenges and triumphs of navigating life, education, and personal growth amidst ongoing chronic illness, highlighting the importance of a supportive community and personal resilience.

Want more background ? Find Daniela's Full Diagnosis and Dysunderstood Story here.

Find us all on Instagram: @dysunderstood

@ellaeastin

@daniela.kerr

TikTok: @dysunderstood

Daniela's Blog: For The Healing Soul

Email us: hello@dysunderstood.com

As always, thank you to our partners for making this possible. We tirelessly continue to elevate the voices of the dysunderstood.

For a transcript of this episode, click here.

Christine Reed- Author, Adventurer, and Athlete with POTS- discusses her journey towards self-acceptance, empowerment through outdoor activities, her experience reaching a POTS (Postural Orthostatic Tachycardia Syndrome) diagnosis, and balancing different aspects of her identity.

To read or listen to Christines's original story she shared with Dysunderstood, visit Keep Moving Forward.

Find us all on Instagram: @dysunderstood

@ellaeastin

@ruggedoutdoorswoman

TikTok: @dysunderstood

As always, thank you to our partners for making this possible. We tirelessly continue to elevate the voices of the dysunderstood.

For a transcript of this episode, click here.

A vulnerable discussion with Taylor about defying limits and creating new dreams in the face of new challenges- living with disability, Ehlers Danlos Syndrome and POTS.

Find us all on Instagram: @dysunderstood

@ellaeastin

@Taylor_winnett

TikTok: @dysunderstood

Thank you to all of our partners for making this possible. We work tirelessly to elevate the voices of the dysunderstood.

For a transcript of this episode, click here.

A heartfelt conversation with Jackie on managing motherhood, Hypermobile Ehlers-Danlos Syndrome, and POTS.

To read or listen to Jackie's original story she shared with Dysunderstood, visit Awareness is the Answer.

Find us all on Instagram:
@dysunderstood

@ellaeastin

@jacqueline_mari_

TikTok:
@dysunderstood

Thank you to all of our partners for making this possible. We tirelessly continue to elevate the voices of the dysunderstood.

For a transcript of this episode, click here.