The QuadCast

The QuadCast

My name is John McAleavey, and on August 19, 1992 I suffered a Central Cord Syndrome injury to my cervical spine at the C-3/4 level following a fall down my basement steps. I was told early on that no two SCI’s are the same, and while that may be true, many of the struggles we're left with are. So let's talk about them. The QuadCast Podcast is mainly aimed at the disabled community, but is really for ANYONE looking to be inspired. You'll hear from fellow SCI'ers, to highlight their personal stories of struggle and triumph, doctors, therapists, and others who work on behalf of our community to share any new developments or breakthroughs in the fight. I hope that by talking/sharing/commiserating/LAUGHING, we will fully understand that no one is alone in this. Think of the QuadCast as a 30 to 45 minute session of OT/PT for the soul!

  1. S7 E8 - Rise Through Resilience With Jen and Matt Hellstern

    5d ago

    S7 E8 - Rise Through Resilience With Jen and Matt Hellstern

    Matt and Jen Hellstern are my guests this week on the QP. Find out how a seemingly innocuous fender bender one day on the way to work changed their entire family's life forever! They share their personal experiences of navigating a new normal following Matt's SCI. From the confusion of how it all came to be, to hours and hours of PT and OT, his participation in numerous clinical trials, and more. You will hear what an amazingly resilient family unit they are, and how along their journey, they founded the Rise Through Resilience Foundation. RTRF exists to expand access to high-quality rehabilitation, equipment, education, and clinical support for individuals living with spinal cord injuries and other neurological illnesses or injuries. Through partnerships with evidence-based care such as Adaptletics, they aim to ensure that more people receive the kind of care that changed their lives—and that more families experience the hope and progress they were lucky enough to find. Takeaways Importance of family supportAdvocacy for spinal cord injury awareness and research Family support is crucial in the recovery journey.The Rise Through Resilience Foundation aims to bridge the gap in access to recovery resources.Recovery is a journey without a fixed timeline, and small improvements are worth celebrating. Chapters 00:00 Introduction and Background06:07 Spinal Cord Injury14:29 Support and Advocacy20:25 Advocacy and Awareness26:02 Support and Family Involvement31:24 Resilience and Recovery44:10 Looking to the Future

    47 min
  2. S7 E7 - "Between Who I Am and What They Said I Was", Featuring Cristina Cortez

    Jun 8

    S7 E7 - "Between Who I Am and What They Said I Was", Featuring Cristina Cortez

    Cristina Cortez Author, Poet, Independent Researcher, Advocate & Speaker  Cristina Cortez is a first-generation Latin-American BIPOC author, poet, memoirist, disability advocate, public humanities educator, and interdisciplinary scholar whose work explores the intersections of disability, identity, memory, mythology, travel, literature, and cultural inheritance through poetry, memoir, hybrid nonfiction, and public scholarship. She holds a Master of Fine Arts (MFA) in Creative Writing & Poetics from the University of Washington Bothell and a Bachelor of Arts in English, Creative Writing & Literature and History from Hofstra University, where she graduated with Highest Honors with Distinction. Cortez is the author of Poems from the Road: A Travelog Renga in Haiku, Haibun, and Senryū (2025), a multilingual literary project influenced by Japanese linked-verse traditions, literary journaling, and travel writing; the bilingual poetry collections As I Am / Soy como soy (2023) and Yo Soy, Yo Vivo (2022); and Tawantinsuyu: Poems of the Time of the Inca(2020). Her creative and advocacy work centers disability not as tragedy or limitation, but as culture, embodiment, lived experience, and human identity. Through her writing, public speaking, and interdisciplinary work, she bridges literary art, disability justice, education, accessibility, and cultural memory. Her essays, poetry, and advocacy writing have appeared in literary journals, anthologies, disability publications, and public humanities platforms, including I Come From the World Literary Journal, La Guagua Poetry Anthology, the United Spinal Association blog, New Mobility Magazine, and the Central American arts and culture magazine Tres Mil. As a speaker and advocate, Cortez has participated in literary events, conferences, podcasts, cultural programs, and disability leadership initiatives focused on accessibility, education, writing, representation, and public advocacy. She completed the Leadership Education in Neurodevelopmental and Related Disabilities (LEND) fellowship program at Boston Children’s Hospital Institute for Community Inclusion as a self-advocate fellow. Her leadership and advocacy affiliations include the Massachusetts Developmental Disabilities Council, the United Spinal Association Tech Access Group, Mass Families for Change, LifeCourse Nexus, and other disability and public leadership initiatives. In 2025, Cortez received a grant award from the Massachusetts Cultural Council in recognition of her literary and interdisciplinary creative work. Multilingual in English, Spanish, and Italian, Cristina Cortez continues to develop a distinctive literary and public voice situated at the intersection of memoir, disability justice, interdisciplinary humanities, and cultural experience. For more information, visit www.cristinacortezauthor.com  or follow @cristinacortezwrites. Takeaways Cerebral palsy and its impactFamily support and influenceMental navigation and challenges in schoolWriting, advocacy, and 'Poems from the Road' Disability experience and storytellingImpact of technology on communication Chapters 00:00 Introduction and Spinal Cord Injury05:58 Childhood and Family Support11:53 Navigating School and Challenges21:03 Impact of Social Interactions27:03 Writing, Advocacy, and Interdisciplinary Research32:01 Authoring 'Poems from the Road'58:18 The First Thing to Do If Able-Bodied

    55 min
  3. S7 E5 - Attitude Is Everything, Featuring Ian Mackay

    May 1

    S7 E5 - Attitude Is Everything, Featuring Ian Mackay

    Ian Mackay is my guest on the latest edition of The QuadCast. He chronicles his journey from growing up in beautiful San Diego county to how he endured his life-changing cycling accident. In spite of his SCI, Ian has truly made his mark on the world. You'll learn how he worked with Apple on their iPhone's voice recognition system, which not only impacted his independence and connection to nature, but opened amazing opportunities for the entire disabled community. He battled years of depression until finding a way to get outside again. Ian began traveling bike paths in his local area of Port Angeles, WA and kept going just a little farther. In 2016 he rode his power wheelchair across the state of Washington from North to South. The 2016 Ride garnered a great deal of media attention, and Ian became a spokesperson, encouraging the mobility challenged to get outside and advocating for outdoor accessibility - complete, connected trails and routes for ALL abilities. Ian's Ride was born, and today his non-profit has many events on their schedule. Takeaways Adaptation to life-changing circumstancesImpact of mobile technology on independence Accessibility technology empowers independenceOutdoor adventures for people with disabilitiesCommunity impact of nonprofit organization Chapters 00:00 Introduction and Childhood05:59 Hobbies and Cycling Accident12:12 Rehabilitation and Mental Health18:00 Mental Struggle and Recovery25:53 Working with Apple on Accessibility Technology32:07 Creating a Nonprofit Organization and Community Impact

    50 min
  4. S7 E3 - "I Don't Get Better To Live Life, I Live Life To Get Better"!

    Mar 21

    S7 E3 - "I Don't Get Better To Live Life, I Live Life To Get Better"!

    The latest episode of the QP features an amazing young man, Owen Weiss. He is a wheelchair athlete, educator, and storyteller, whose life changed after a rare spinal Arteriovenous Malformation (AVM) led to three spinal surgeries. He recovered fully from the first two, but following the third (after walking himself into the operating room), he woke unable to move his legs, and with major loss of sensation from the waist down. Today, Owen is an active wheelchair tennis player, a paraprofessional working with Deaf and Hard of Hearing students, and the creator of his signature speech "You Always Have a Choice", where he shares the mindset and lessons he developed while rebuilding his life after paralysis. Owen's story offers a meaningful foundation for conversations about resilience, adaptation, independence, and personal agency in the face of sudden change. Takeaways Spinal Cord Injury Medical Journey Sensory perception differences in individuals with spinal cord injuries Challenges of transitioning from inpatient care to home life Impact of language deprivation Transition to wheelchair tennis Adaptive sports programs and scholarships Future goals and aspirations Chapters 00:00 Introduction and Mutual Friend 05:09 Inclusivity and Sign Language 11:14 Return of Symptoms and Third Surgery 16:20 Complexity of Spinal Cord Injury 22:25 Hospital Stay and Sensory Experience 29:00 Impact of Age on Rehabilitation Experience 35:49 Perspective Shift and Return to Education 41:26 Discovering the Role of a Paraprofessional 52:11 Adaptive Sports Programs and Scholarships

    1h 2m
5
out of 5
13 Ratings

About

My name is John McAleavey, and on August 19, 1992 I suffered a Central Cord Syndrome injury to my cervical spine at the C-3/4 level following a fall down my basement steps. I was told early on that no two SCI’s are the same, and while that may be true, many of the struggles we're left with are. So let's talk about them. The QuadCast Podcast is mainly aimed at the disabled community, but is really for ANYONE looking to be inspired. You'll hear from fellow SCI'ers, to highlight their personal stories of struggle and triumph, doctors, therapists, and others who work on behalf of our community to share any new developments or breakthroughs in the fight. I hope that by talking/sharing/commiserating/LAUGHING, we will fully understand that no one is alone in this. Think of the QuadCast as a 30 to 45 minute session of OT/PT for the soul!

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