TSC Talks!

Jill Woodworth
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TSC TALKS 2.0. Inspired by the condition Tuberous Sclerosis Complex. Providing digital audio & video content and products designed to educate, illuminate, support and advocate "off the grid" alternative and holistic options for marginalized populations. Providing a forum for communication, collaboration, resources and opportunity. Drawing from lived and learned experience All with the goal of coming together to affect change, bridge gaps and empower as we come together to better understand each other's predicament and validate the need for access, affordability that often keep those with chronic, life threatening conditions from exploring options. Options that CAN open the doors of perception to understanding our exceptional variability as human beings and the “one size fits all” aspects of traditional medicine that are not conducive to bio-psycho-social health, stability and longevity. Come join us as we dig deep into issues and concepts that need to be given some thought and discussion in order to truly “walk a mile” in another’s shoes! Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.

  1. TSC Talks 3.0 Research~Episode 9

    قبل يومين

    TSC Talks 3.0 Research~Episode 9

    In this episode, I get into mitigation strategies related to the increasing reliance on tech with the arrival of 6G particularly for those living with a chronic and or rare disease that is on multiple medications and dependent on the grid. What would be considered alternative or holistic therapies such as grounding, sound therapy, ketogenic diet and exercise have all been proven to help support the full field in finding homeostasis even with a condition such as TSC and can improve overall health and quality of life as a support beyond meds and other more drastic regimens. I also talk about the similarities between CPTSD and TAND (TSC Associated Neuropsychiatric Disorder) and the importance of understanding the "energetics" of a rare disease when advocating for one's self and/or loved ones. The system will add additional labels and complicate understanding. I hope to explore further the CPTSD connection as I feel it as AS relevant as the limited focus of TAND. Full list of links: https://docs.google.com/document/d/e/2PACX-1vQv_yBMqtFvxQmhm31TXozv20_nEGxCTwjUCclYrEK2yE9NGR6rQqc1GyMsA76lUNtNrZda-FF_Z2IM/pub Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.

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  2. TSC Talks 3.0 Research~Episode 8

    ١٥ أبريل

    TSC Talks 3.0 Research~Episode 8

    Episode 8 of TSC Talks 3.0 Research... continuing on with the extensive history of the rare disease Tuberous Sclerosis Complex, the set up for data harvesting and gene editing and the inevitability of enhanced grid adhesion. Woohoo! Next episode I'm gonna go into mitigation and the upswing of the sitch.  Links: mindandbodyexercises.com https://medium.com https://maescenter.com rockarch.org tikvahhealthandwellness.com nih.gov nih.gov nutritiondiagnostics.com.au nih.gov psychologytoday.com nih.gov mcgill.ca chop.edu https://historyofvaccines.org nih.gov jpeds.com https://time.com nih.gov nih.gov nih.gov 2minutemedicine.com nih.gov nih.gov sciencedirect.com nih.gov cdc.gov nih.gov https://richd.org nih.gov wikipedia.org empr.com https://historyofvaccines.org https://drgreenmom.com mayoclinic.org kaiserpermanente.org nih.gov kff.org forbes.com itu.int ciocoverage.com https://studyfinds.org Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.

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  3. TSC Talks 3.0 Research~Episode 7

    ٨ أبريل

    TSC Talks 3.0 Research~Episode 7

    The history of Tuberous Sclerosis Complex. they're juicing it. Some queries related to the complexity of epigenetic variables and the overlords decision to focus on genetics only for the sake of "simplicity"... Just my opinion? I welcome all listeners and critical thinkers. 📚 Primary Research & Databases PubMed Central (Full-Text Archive): https://pmc.ncbi.nlm.nih.gov PubMed (Citations & Abstracts): https://pubmed.ncbi.nlm.nih.gov ScienceDirect: sciencedirect.com Wiley Online Library: https://onlinelibrary.wiley.com Springer Link: https://link.springer.com ResearchGate: researchgate.net Academia.edu: academia.edu 🏥 Health Organizations & Agencies NIH / National Library of Medicine: https://www.ncbi.nlm.nih.gov NINDS (Neurological Disorders): https://www.ninds.nih.gov MedlinePlus: https://medlineplus.gov HRSA (Health Resources): hrsa.gov Texas Children’s Hospital: texaschildrens.org TSC Alliance: tscalliance.org Epilepsy Foundation: epilepsy.com 🔬 Specialized Medical Journals The Lancet: thelancet.com Pediatric Neurology: pedneur.com Neurotherapeutics: neurotherapeuticsjournal.org Frontiers in Science: frontiersin.org eLife Sciences: https://elifesciences.org AMA Journal of Ethics: ama-assn.org AAP Publications: aap.org ACR Journals: https://acrjournals.onlinelibrary.wiley.com ACR Abstracts: https://acrabstracts.org 2 Minute Medicine: https://www.2minutemedicine.com 📰 News, Legal & Historical Context TIME Magazine: https://time.com Medical Xpress: https://medicalxpress.com History of Vaccines: https://historyofvaccines.org Texas Vaccine Lawyers: texasvaccinelawyers.com Digital Commons (Rockefeller): rockefeller.edu HealthCentral: healthcentral.com Changing Aging: https://changingaging.org Medium: https://medium.com Meridian Health Clinic: https://meridianhealthclinic.com Wikipedia: wikipedia.org WikiDoc: wikidoc.org contact Jill ~ pjlacy6@gmail.com Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.

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  4. TSC Talks 3.0 Research~Episode 6

    ١ أبريل

    TSC Talks 3.0 Research~Episode 6

    In Episode 6 of TSC Talks Research 3.0, I finish up the discussion of CRISPR and TSC and the trajectory, I get into cannabis and the way they've deglimmered exploration of consciousness for those with rare diseases on hefty meds and how this relates to the cultivated biosphere that limits the full potential of the divine human. So many the templates for data and experimentation to build the current Healthcare 4.0 system and Precision Medicine. While many will be helped, there will be a dependence on the grid system. YouTube Video: https://youtu.be/OqLKIZ7Q54s?si=8svWmKHp4ekiFOnR Links: https://www.liebertpub.com/doi/10.1089/crispr.2024.0079  https://pubmed.ncbi.nlm.nih.gov/39654514/  https://pediatricsnationwide.org/2024/01/11/innovative-gene-therapy-approach-for-treating-patients-with-tuberous-sclerosis-type-2/ https://pmc.ncbi.nlm.nih.gov/articles/PMC7793581/  https://innovativegenomics.org/news/crispr-clinical-trials-2026/ https://frontlinegenomics.com/sickle-cell-disease-a-2024-update/ epidiolexhcp.com  nih.gov  sciencedaily.com  https://www.researchgate.net/publication/348347376_Gene_therapy_for_tuberous_sclerosis_complex_type_2_in_a_mouse_model_by_delivery_of_AAV9_encoding_a_condensed_form_of_tuberin globalgenes.org neurologylive.com berkeley.edu ccf.org Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.

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  5. TSC Talks 3.0 Research~Episode 5

    ٢٥ مارس

    TSC Talks 3.0 Research~Episode 5

    In this episode I share information on the risks and side effects of CRISPR for individuals with TSC and in general as well as go into how those affected with TSC are "test bunnies" for much of this new technology, and my theories with documentation of why this is happening. I also go over some of the "no touch" technologies being rolled out and tested on those with diseases such as TSC where the nature of the genetics, a "monogenic" disorder, makes it a more suitable population to experiment on to gain information than other more common disorders, such as Alzheimer's, which involve 100s of genetic factors.  TSC population is kept in that "test bunny" role without ever addressing the external factors that make the disease more difficult to manage in the first place. LINKS: pmc.ncbi.nlm.nih.gov pubmed.ncbi.nlm.nih.gov https://pmc.ncbi.nlm.nih.gov/articles/PMC7672342/ https://cdmrp.health.mil/tscrp/default http://tuberous-sclerosis.org/research/tsa-funded-research/ https://www.mdpi.com/2075-1729/15/3/368 https://www.tscalliance.org/wp-content/uploads/2023/02/Training-Packet-Documents.pdf https://pmc.ncbi.nlm.nih.gov/articles/PMC3010088/ https://pmc.ncbi.nlm.nih.gov/articles/PMC4527140/ https://pubmed.ncbi.nlm.nih.gov/19028034/ https://pmc.ncbi.nlm.nih.gov/articles/PMC6851053/ https://www.youtube.com/watch?v=hXRRq-dFuYg https://www.youtube.com/watch?v=Hu2TvhhdEHY https://www.youtube.com/watch?v=BFuXttZspaY https://pmc.ncbi.nlm.nih.gov/articles/PMC5727703/ https://globalgenes.org/raredaily/transforming-tsc-epilepsy-with-a-precision-therapy/ https://pediatricsnationwide.org/2024/01/11/innovative-gene-therapy-approach-for-treating-patients-with-tuberous-sclerosis-type-2/ https://pmc.ncbi.nlm.nih.gov/articles/PMC3164024/ https://pmc.ncbi.nlm.nih.gov/articles/PMC11944049/ https://www.biorxiv.org/content/10.1101/2024.02.22.581652v1.full-text https://pmc.ncbi.nlm.nih.gov/articles/PMC6408922/ https://www.mdpi.com/2076-3417/14/3/1132 https://pmc.ncbi.nlm.nih.gov/articles/PMC3744999/ https://www.researchgate.net/publication/24217930_Magnetically_Responsive_Nanoparticles_for_Drug_Delivery_Applications_Using_Low_Magnetic_Field_Strengths https://pmc.ncbi.nlm.nih.gov/articles/PMC2933363/ https://pmc.ncbi.nlm.nih.gov/articles/PMC7998448/ https://pmc.ncbi.nlm.nih.gov/articles/PMC9230665/ Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.

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  6. TSC Talks 3.0 Research~Episode 4

    ١٨ مارس

    TSC Talks 3.0 Research~Episode 4

    TSC Talks 3.0 Research, Episode 4 Here's my ongoing convo with AI delving into the funding behind rare disease research, non profits and how there are vested interests in continuing to bypass the full range of knowledge about what impacts the genome such as environmental (vaccines included) amplifications so they can justify the need for gene therapy via crispr, etchttps://rarediseases.org/about-us/financials-governance/ https://rarediseases.org/collection/nord-financials/ https://rarediseases.org/nord-releases-report-on-the-state-of-rare-disease-diagnosis-care-and-treatment-in-america-over-three-decades/ https://rarediseases.org/nord-state-report-card/ rarediseases.org https://rarediseases.org/wp-content/uploads/2022/10/NORD_2020_Annual-Report_wFinancials.pdf https://rarediseases.org/wp-content/uploads/2022/01/NORD_2020_Annual-Report_FINAL_SpreadView_web.pdf https://rarediseases.org/wp-content/uploads/2022/10/NRD-1198-2019_Annual-Report_FNL_WebSize.pdf https://www.eurordis.org/who-we-are/our-funding/ https://www.eurordis.org/who-we-are/projects-and-partnerships/ https://www.eurordis.org/partnerships/ https://www.eurordis.org/get-involved/join-the-eurordis-round-table-of-companies/ https://www.eurordis.org/publications/eurordis-policy-on-financial-support-by-commercial-companies-2/ https://www.eurordis.org/our-priorities/research/ https://www.eurordis.org/eurordis-supports-member-states-efforts-operating-grants-reintroduction/ https://www.eurordis.org/videos/rare-but-real-talking-rare-diseases-part-1-6/ download2.eurordis.org vzacna-onemocneni.cz https://everylifefoundation.org/rare-hub/rare-hub-partners-current-1-3/ https://everylifefoundation.org/financial-support/ https://everylifefoundation.org/everylifeeveryaction/ https://everylifefoundation.org/sitemap/ https://everylifefoundation.org/wp-content/uploads/2025/08/ELF-AnnualReport-2024-8.5x11-Proof-v6-081225.pdf https://everylifefoundation.org/wp-content/uploads/2022/01/Guide-to-Patient-Involvement-FINAL-COMPLETE-GUIDE-Rev.pdf https://everylifefoundation.org/wp-content/uploads/2016/05/Industry-Brochure-FINAL-May-2016.pdf Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.

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  7. TSC Talks 3.0 Research~Episode 3

    ١٤ مارس

    TSC Talks 3.0 Research~Episode 3

    Episode 3 of TSC Talks 3.0 Research I drill down with the AI on the reality of what is happening in the rare disease expanse. The full expanse it's not explored we are jumping right into gene editing, like using whiteout, it isn't quite the same. It's a closed loop system. That is for sure. links: https://www.ninds.nih.gov/health-information/disorders/tuberous-sclerosis-complex# https://pmc.ncbi.nlm.nih.gov/articles/PMC7672342/ https://www.ncbi.nlm.nih.gov/books/NBK1220/# https://patienteducation.asgct.org/understanding-cell-gene-therapy/ethical-issues-germline-gene-editing# https://pmc.ncbi.nlm.nih.gov/articles/PMC12103018/# https://pubmed.ncbi.nlm.nih.gov/6873497/# https://pmc.ncbi.nlm.nih.gov/articles/PMC6277505/# https://www.researchgate.net/publication/326455213_Incidence_of_tuberous_sclerosis_and_age_at_first_diagnosis_new_data_and_emerging_trends_from_a_national_prospective_surveillance_study https://pmc.ncbi.nlm.nih.gov/articles/PMC11944049/# https://www.slu.edu/law/health/blog/2024/vence-bonham-dss.php# https://tuberoussclerosiscenter.wustl.edu/about-tsc/causes/# https://www.ncbi.nlm.nih.gov/books/NBK535878/# https://pmc.ncbi.nlm.nih.gov/articles/PMC5524257/# https://pmc.ncbi.nlm.nih.gov/articles/PMC5100696/# https://link.springer.com/article/10.1007/s11569-025-00479-8# https://www.ncbi.nlm.nih.gov/books/NBK535877/# https://pmc.ncbi.nlm.nih.gov/articles/PMC11306935/# https://pmc.ncbi.nlm.nih.gov/articles/PMC10338708/ https://www.thehastingscenter.org/genetic-therapies-for-rare-diseases-developing-ethical-regulatory-policies/# https://med.nyu.edu/departments-institutes/population-health/divisions-sections-centers/medical-ethics/education/high-school-bioethics-project/learning-scenarios/jesse-gelsinger-case https://www.cliffsnotes.com/cliffs-questions/5224266# https://www.bstquarterly.com/article/using-synthetic-biology-to-create-therapeutic-solutions/# https://www.sciencedirect.com/science/article/pii/S1359644621001574 https://www.sciencedirect.com/science/article/abs/pii/S1359644621001574# #raredisease #TuberousSclerosisComplex #GeneEditing Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.

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  8. TSC Talks 3.0 Research, Episode 2

    ٣ مارس

    TSC Talks 3.0 Research, Episode 2

    ​Episode 2 of ongoing research on Tuberous Sclerosis Complex based on the query~Is CRISPR CAS9 being researched to help/cure tuberous sclerosis?" An exchange with Google AI mode in reference to the above query with the intention of making it clear the trajectory for those with rare diseases in terms of overriding our biological organic template and moving towards a more synthetic version. I picked up where I left off with Episode 1 and talk through Epigenetic "Switches", Gut-Brain Axis and Neuroinflammation, Why Researchers Are Skipping These Links, Potential Reasons for the Research Focus, Funding and Corporate Partnerships, Neuroinflammation Research, The "TAND" Project (TSC-Associated Neuropsychiatric Disorders), The PREVENT Trial, Basic Science and "Somatic Mosaicism", The "Funding Gap" regarding Conflicts of Interest, The Logic of the "Omission", Lived Experience vs. "Proven" Science,Why It Feels "Diabolical" & Finding the "Clean" Data https://www.mdpi.com/1422-0067/22/14/7273 https://pmc.ncbi.nlm.nih.gov/articles/PMC11275973/ https://www.ncbi.nlm.nih.gov/books/NBK206940/ https://www.nature.com/articles/s41398-024-02752-y https://clinicaltrials.gov/study/NCT01289912 https://pmc.ncbi.nlm.nih.gov/articles/PMC9253752/ https://www.intechopen.com/chapters/82669 https://pmc.ncbi.nlm.nih.gov/articles/PMC6748183/ https://pmc.ncbi.nlm.nih.gov/articles/PMC6278824/ https://www.nature.com/articles/s41439-022-00181-1 https://pmc.ncbi.nlm.nih.gov/articles/PMC3035853/ https://pmc.ncbi.nlm.nih.gov/articles/PMC5804531/ https://pubmed.ncbi.nlm.nih.gov/40558831/ https://docs.google.com/document/d/1ncDHvfDHkzVd1-H4Xgulz-mhSZxhwhydK6jWln90L5E/ (contact pjlacy6@gmail.com for access) Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.

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TSC TALKS 2.0. Inspired by the condition Tuberous Sclerosis Complex. Providing digital audio & video content and products designed to educate, illuminate, support and advocate "off the grid" alternative and holistic options for marginalized populations. Providing a forum for communication, collaboration, resources and opportunity. Drawing from lived and learned experience All with the goal of coming together to affect change, bridge gaps and empower as we come together to better understand each other's predicament and validate the need for access, affordability that often keep those with chronic, life threatening conditions from exploring options. Options that CAN open the doors of perception to understanding our exceptional variability as human beings and the “one size fits all” aspects of traditional medicine that are not conducive to bio-psycho-social health, stability and longevity. Come join us as we dig deep into issues and concepts that need to be given some thought and discussion in order to truly “walk a mile” in another’s shoes! Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.

المعلومات

  • صناع العمل
    Jill Woodworth
  • سنوات النشاط
    ٢٠١٨ - ٢٠٢٦
  • الحلقات
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  • التقييم
    فاضح
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    © Copyright Jill Woodworth
  • موقع البرنامج على الويب
    TSC Talks!