Turtle Talk

Turtle Talk

Grab your favorite drink and settle in with us weekly, as we discuss all the happenings in the PCD world. Our topics will include tips and tricks of living with PCD in your everyday lives, the latest on treatment options and how to fit them into your lifestyle, how to manage your stress and anxiety of having a chronic illness, how to become a better advocate for yourself or your loved one with PCD, and we will even touch on the controversial issues surrounding PCD and PCD Care. “Primary ciliary dyskinesia (PCD) is a genetically heterogeneous, rare lung disease causing chronic oto- sino-pulmonary disease and irreversible lung damage that may progress to respiratory failure.” ~ Diagnosis, Monitoring, and Treatment of Primary Ciliary Dyskinesia: PCD Foundation Consensus Recommendations Based on State of the Art Review

  1. June 6, 2022 Nutritional Tips for PCD

    2022. 06. 06.

    June 6, 2022 Nutritional Tips for PCD

    Season 2, Episode 5; Nutritional Tips for PCD On today’s episode about life with primary ciliary dyskinesia; we will talk about the importance of eating in PCD, food & drink safety especially when traveling with PCD, making foods that are more appealing & easier to eat when breathless, strategies to help you cope with the activity of actually eating, and finally on this week’s editorial we will discuss how hiding medications in your PCD loved one’s food has lasting repercussions for your loved one’s lifetime.

    54분
  2. January 24, 2022 PCD Airway Clearance

    2022. 01. 25.

    January 24, 2022 PCD Airway Clearance

    On today’s episode about life with primary ciliary dyskinesia; we will talk about the importance of airway clearance in PCD, the alarming trends to ditch airway clearance for PCD patients, mixing up airway clearance techniques to aid in better treatment compliance, we will explore another PCD myth, and finally on this week’s editorial we will discuss trend of dismissing adult patients experiencing with PCD based on the mere fact that these patients haven’t yet benefited from recent research.

    55분
  3. January 17, 2022 Chronic Illness in a Post 2020 World

    2022. 01. 17.

    January 17, 2022 Chronic Illness in a Post 2020 World

    On today’s episode about life with primary ciliary dyskinesia; we will talk about the realities of time, exhausted providers, appearance of infection control policies verses the realities, we will explore another PCD myth, and finally on this week’s editorial we will discuss off label usages and the correctness of those practices.

    1시간 1분
  4. January 9, 2022 Navigating New or Worsening Symptoms

    2022. 01. 09.

    January 9, 2022 Navigating New or Worsening Symptoms

    On today’s episode about life with primary ciliary dyskinesia; we will talk about navigating new or worsening symptoms, riding them out at home or heading to the emergency room, we will explore another PCD myth, and finally on this week’s editorial we will discuss PCD exacerbations in a Covid world.

    57분
  5. January 1, 2022 Ringing in 2022

    2022. 01. 01.

    January 1, 2022 Ringing in 2022

    On today’s episode about life with primary ciliary dyskinesia; we will talk about ringing in the New Year, pacing yourself, winter survival tips, we will explore another PCD myth, and finally on this week’s editorial we will discuss new year, new chances, and new changes to life with PCD

    49분

  6. 2021. 12. 24.

    December 24, 2021 Christmas with PCD

    On today’s episode about life with primary ciliary dyskinesia; we will talk about surviving the Christmas holiday, holiday gathering considerations, strategic planning, we will explore another PCD myth, and finally on this week’s editorial we will discuss managing family holiday gatherings.

    53분

  7. 2021. 12. 13.

    December 13, 2021 Intimacy with PCD

    On today’s episode join our host Reneé as she talks about life with primary ciliary dyskinesia; she will talk about sexual health, intimacy with PCD, intimacy without sex, she will explore another PCD myth, and finally on this week’s editorial she will discuss inclusiveness.

    55분

  8. 2021. 12. 07.

    December 6, 2021 Social Support Groups

    On today’s episode join our host Reneé as she talks about life with primary ciliary dyskinesia; she will talk about social media support groups, group etiquette , sharing experiences over giving directions, she will explore another PCD myth, and finally on this week’s editorial she will discuss protecting other members’ privacy.

    1시간 1분
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Grab your favorite drink and settle in with us weekly, as we discuss all the happenings in the PCD world. Our topics will include tips and tricks of living with PCD in your everyday lives, the latest on treatment options and how to fit them into your lifestyle, how to manage your stress and anxiety of having a chronic illness, how to become a better advocate for yourself or your loved one with PCD, and we will even touch on the controversial issues surrounding PCD and PCD Care. “Primary ciliary dyskinesia (PCD) is a genetically heterogeneous, rare lung disease causing chronic oto- sino-pulmonary disease and irreversible lung damage that may progress to respiratory failure.” ~ Diagnosis, Monitoring, and Treatment of Primary Ciliary Dyskinesia: PCD Foundation Consensus Recommendations Based on State of the Art Review

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    Turtle Talk
  • 방송 연도
    2021년 - 2022년
  • 에피소드
    27
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