Remember Me

Remember Me Podcast
  • 5.0 (96)
  • DIARIOS PERSONALES
  • CADA SEMANA

The Remember Me Podcast is a heartfelt and informative series dedicated to supporting families, caregivers, and individuals affected by Frontotemporal Dementia (FTD). Hosted by Maria Kent Beers and Rachael Martinez, both of whom have personal experiences with FTD caregiving, the podcast aims to provide connection, understanding, and advocacy for those navigating the challenges of this rare and often misunderstood disease. Visit our website www.remembermeftd.com Join us on Patreon at www.patreon.com/remembermecommunity Follow us on Instagram @remembermepodcast.

  1. HACE 2 DÍAS · CONTENIDO EXTRA

    World FTD Awareness Week Special | FTD Research Updates with Dr. Darby of Vanderbilt

    Surprise! Coming to you a few weeks before our Season 11 launch with a BONUS episode to celebrate World FTD Awareness Week. We chatted with Dr. Ryan Darby, director of the Frontotemporal Dementia Clinic in the Department of Neurology at Vanderbilt University Medical Center. He gave us on updates in FTD research - how to get involved & how our advocacy moves research forward. A VERY special thank you to today's sponsor ⁠⁠⁠⁠AVIADOBIO⁠⁠⁠⁠ for making this episode possible! Want more Remember Me? Join us on Patreon⁠⁠⁠⁠⁠⁠ You get exclusive content and it's a great way to support the show! ⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠ ---------- If you're curious about anything RM, we'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram, and visit ⁠⁠⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠, all the latest updates! ------ Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.

    43 min

  2. 1 JUL

    Tommy

    In our Season 10 finale, Alyssa describes the FTD journey with her father, Tommy - starting from her perspective at 11 years-old. She weaves us through her memories of her father's strange behavior - and the long road to finding answers. This story covers so much about family dynamics - but also what a healing journey can look like. And the unbelievable things that happen in life that we just can't explain. Thank you, Alyssa for sharing your story with us. You are an incredible woman. Keep fighting. ---------- A VERY SPECIAL THANK YOU TO TODAY'S SPONSORS: ⁠⁠PROGRANULIN INFORMATION NAVIGATOR⁠⁠ & ⁠⁠AVIADOBIO⁠⁠⁠⁠⁠. Mentioned in this episode: Season 9, Episode 15: Grief & Genetic Testing which you can listen to ⁠⁠here⁠⁠. Gonna miss us on the break? Support our podcast and join us on ⁠⁠⁠⁠⁠Patreon⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ - You get exclusive content + a space to share and connect with others. ⁠⁠⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠⁠⁠ If you're curious about anything RM, we'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram, and visit ⁠⁠⁠⁠⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, all the latest updates! ------ Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.

    1 h y 32 min

  3. 24 JUN

    Family Dynamics 101 with Dr. Adam, Professor of Interpersonal & Family Communication

    Dr. Adam a professor of Interpersonal & Family Communication (and host of one of Maria's favorite podcasts The Sister Wives Professor) is here for what may be our favorite expert chat of all time. An open + honest conversation about life, family + grief. We talk a lot about family estrangement, family roles, what it means for someone to "be the glue" and so much more. Thank you, Thank you, Thank you to Adam for all of his love and attention to our community + thank you for coming on to share your insight with us. You can learn more about Dr. Adam's Patreon he mentioned in today's episode here: https://www.patreon.com/thesisterwivesprofessor ---------- A VERY SPECIAL THANK YOU TO TODAY'S SPONSORS: ⁠PROGRANULIN INFORMATION NAVIGATOR⁠ & ⁠AVIADOBIO⁠⁠⁠⁠. Mentioned in this episode: Season 9, Episode 15: Grief & Genetic Testing which you can listen to ⁠here⁠. Support our podcast and join us on ⁠⁠⁠⁠Patreon⁠⁠⁠⁠⁠⁠⁠⁠⁠ - You get exclusive content + a space to share and connect with others. ⁠⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠⁠ If you're curious about anything RM, we'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram, and visit ⁠⁠⁠⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, all the latest updates! ------ Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.

    1 h y 4 min

  4. 17 JUN

    Pat

    Today's episode features Lauren - who tells the story of her mother Pat's journey with Alzheimer's - PPA and lung cancer. Lauren describes noticing her mother's speech becoming jumbled in August 2022, which led to a challenging path to diagnosis involving family dynamics between her, her two sisters, and their father. Lauren so astutely recounts how navigating the family dynamics helped her recognize their family patterns - and ultimately helped her realize her own strength in showing up for difficult situations. This is such an incredibly raw, deep and meaningful conversation and we are so thankful to Lauren for opening up to us. We just know this conversation will help so many. Share it with someone you think needs to hear it. ---------- A VERY SPECIAL THANK YOU TO TODAY'S SPONSORS: PROGRANULIN INFORMATION NAVIGATOR & AVIADOBIO⁠⁠⁠. Mentioned in this episode: Season 9, Episode 15: Grief & Genetic Testing which you can listen to here. Support our podcast and join us on ⁠⁠⁠Patreon⁠⁠⁠⁠⁠⁠⁠⁠ - You get exclusive content + a space to share and connect with others. ⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠ If you're curious about anything RM, we'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram, and visit ⁠⁠⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠, all the latest updates! ------ Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.

    54 min

  5. 10 JUN

    Terry

    Jackie von Salm, a chemist and Chief Scientific Officer at Psilera, shares her father Terry's journey with FTD. We loved how Jackie was so raw + honest about family dynamics, becoming Terry's POA in her 20s, and how she learned how to be direct + honest in how she felt and what she needed while caregiving. You can learn more about what she's up to at Psilera here. You can also hear us chat all about their Research Summit this year on Patreon - along with an extended version of this episode. Patreon⁠⁠⁠⁠⁠ - join us ⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠ - you get exclusive content and it's a great way to support the show! ---------- Special thank you to today's sponsor ⁠⁠AVIADOBIO⁠⁠. If you're curious about anything RM, we'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠⁠Instagram, and visit ⁠⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠, all the latest updates! ------ Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.

    56 min

  6. 3 JUN

    Family Dynamics & Legal Lessons with Elder Law Attorney Jerry Rothkoff

    This week's episode dives into the legal side of family dynamics with Elder Law Attorney Jerry Rothkoff. We cover all of our burning legal questions - from POA to Guardianship to Medicaid and Medicare. Jerry gives lots of wisdom on how family dynamics play a role in his job and how he navigates it all. We want to thank Jerry for coming on the podcast but also for supporting our community with so much care and compassion. You can learn more about Rothkoff Law Group here. The association Jerry mentions in today's episode is the Life Care Planning Law Firms Association,  https://www.lcplfa.org/ Special thank you to today's sponsor ⁠AVIADOBIO⁠. An extended version of this episode is available now on ⁠⁠⁠Patreon⁠⁠⁠ - join us ⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠ - you get exclusive content and it's a great way to support the show! If you're curious about anything RM, we'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠Instagram, and visit ⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠, all the latest updates! ------ Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.

    50 min

  7. 20 MAY

    Robert

    Our inaugural in-law guest on the podcast, Amber, eloquently discusses her experiences as a mother, wife, and caregiver to her father-in-law, Robert. She covers a range of topics, from navigating Medicaid to ensuring Robert's safety—not only in a physical sense but also on social media. It's clear that she has truly gone above and beyond in her role. We thoroughly enjoyed our conversation with Amber and can't wait to hear your thoughts! --- Special thank you to today's sponsor AVIADOBIO. An extended version of this episode is available now on ⁠⁠Patreon⁠⁠ - join us ⁠⁠www.patreon.com/remembermecommunity⁠⁠ - you get exclusive content and it's a great way to support the show! If you're curious about anything RM, we'd love to connect with you on ⁠⁠⁠⁠⁠⁠Instagram, and visit ⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠⁠⁠, all the latest updates! ------ Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.

    49 min

  8. 13 MAY

    Bill

    Christy found a way to navigate her father's FTD diagnosis with poise -- From fighting for a diagnosis to navigating 4 different Memory Care facilities... Christy seemed to go above and beyond to provide the best loving care for her dad. What was so apparent to us - was how naturally she adapted to his reality - always keeping his personhood at the forefront of her mind. But it was not without so much sacrifice and grief - sharing how deeply the disease impacted her family. But ultimately we saw Christy's story as the most amazing example for her children of devotion and service - and what we do for the people we love. Thank you for sharing your story with us, Christy. You are an amazing daughter + advocate. An extended version of this episode is available now on ⁠Patreon⁠ - join us ⁠www.patreon.com/remembermecommunity⁠ - you get exclusive content and it's a great way to support the show! If you're curious about anything RM, we'd love to connect with you on ⁠⁠⁠⁠⁠Instagram, and visit ⁠⁠our website at⁠⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠⁠, all the latest updates! ------ Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.

    51 min
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The Remember Me Podcast is a heartfelt and informative series dedicated to supporting families, caregivers, and individuals affected by Frontotemporal Dementia (FTD). Hosted by Maria Kent Beers and Rachael Martinez, both of whom have personal experiences with FTD caregiving, the podcast aims to provide connection, understanding, and advocacy for those navigating the challenges of this rare and often misunderstood disease. Visit our website www.remembermeftd.com Join us on Patreon at www.patreon.com/remembermecommunity Follow us on Instagram @remembermepodcast.

Información

  • Creador
    Remember Me Podcast
  • Años de actividad
    2020 - 2025
  • Episodios
    156
  • Clasificación
    Apto
  • Copyright
    © 075898
  • Mostrar sitio web
    Remember Me

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