Living Transplant: Patient Stories | Organ Donation | Medical Experts

Living Transplant: Patient Stories | Organ Donation | Medical Experts is a podcast that takes you behind the scenes at the transplant program at Toronto General Hospital with the goal to educate, inspire and fuel your passion about transplant, with your host, Candice Coghlan, an Education & Outreach Coordinator at the Centre for Living Organ Donation at the UHN Ajmera Transplant Centre and a kidney transplant recipient.

  1. 6D AGO

    You Don’t Look Sick: Fadia on Invisible Illness, Advocacy, Redefining Life on Dialysis, and the Transplant Journey

    In this powerful episode of Living Transplant, Fadia shares her deeply personal journey through kidney disease, receiving a living donor transplant from her sister, and now navigating a return to dialysis. With honesty and vulnerability, she reflects on the evolution of her mindset—from a “go, go, go” approach to one rooted in acceptance, rest, and self-compassion. Fadia opens up about the realities of invisible illness, balancing motherhood and a demanding career in education, and the emotional complexity of asking for and receiving help. She also speaks to the power of community through the ACB Organ Health Committee, and how advocacy, culturally safe care, and representation are critical in improving outcomes for Black patients. This episode is a reminder that transplant is not a cure, but part of a lifelong journey. Fadia’s story encourages listeners to slow down, speak up, and redefine what strength truly looks like. Key TopicsLiving donor kidney transplant and sibling donationReturning to dialysis after transplantRedefining “balance” and embracing restInvisible illness and “you don’t look sick”Motherhood, career, and chronic illnessThe importance of support systems and asking for helpPatient advocacy and being the expert of your own bodyNavigating the healthcare system and medical mistrustCultural safety and equity in organ donation and transplantationThe impact of community: ACB Organ Health Committee Links Learn more about living organ donation: www.livingorgandonation.ca Living Kidney & Liver Donation at UHN: UHN Ajmera Transplant Centre Information Sessions for potential donors: givelifeuhn.eventbrite.ca  Becoming a living donor: https://www.uhn.ca/Transplant/Pages/become_living_donor.aspx ACB Organ Health Committee & Green Table Talk: https://www.youtube.com/@acborganhealth   Black Health Alliance: https://blackhealthalliance.ca Kidney Foundation of Canada – Living Donation https://kidney.ca/Get-Involved/Be-a-Living-Donor Trillium Gift of Life Network – Organ Donation in Ontario https://www.giftoflife.on.ca Each episode, we share patient stories about organ donation from transplant recipients and living donors, along with insights and education from leading medical experts. Whether you’re a patient, a caregiver, a donor, or simply curious about the world of organ transplantation, you’ll hear expert advice and inspiring journeys of hope, resilience, and second chances. About our Host Candice Coghlan is the Education & Outreach Coordinator at the Centre for Living Organ Donation at the UHN Ajmera Transplant Centre. She is also a board member for the National Kidney Foundation and a kidney transplant recipient. After she was diagnosed with kidney failure in her early 20s, she was on dialysis until receiving a transplant from her mother. Have questions? Comments? Ideas for an episode? Please reach out to the Centre for Living Organ Donation at livingorgandonation@uhn.ca. Thanks for spending your time with us. The views and opinions expressed in this episode do not necessarily reflect the official policy or position of Toronto General or University Health Network.

    38 min
  2. APR 2

    Behind Every Transplant: Inside Toronto General's Outpatient Transplant Pharmacy

    What happens after transplant—when the surgery is over and real life begins? In this episode of Living Transplant, we’re joined by Eugenia Chan, a pharmacist from the Transplant Outpatient Pharmacy (TOP) at UHN, to explore the critical (and often unseen) role pharmacy teams play in a patient’s lifelong transplant journey. Unlike a typical pharmacy, TOP is fully integrated into the transplant program—supporting over 5,000 patients each year from the moment they leave the hospital and throughout their lives. From medication management to financial navigation, this team is a constant, trusted connection for patients. Together, we unpack how this specialized care improves outcomes, reduces complications, and helps patients feel less alone in what can be an overwhelming experience. In This Episode, We Cover: Why transplant pharmacy is differentHow TOP provides continuous, specialized care that goes far beyond dispensing medications.Medication adherence made easierThe impact of blister packaging, delivery across Ontario, and proactive dose management in helping patients stay on track, catching complications earlyHow frequent check-ins and strong patient relationships help pharmacists identify side effects and concerns before they become serious.Navigating medication fearsHonest conversations about side effects, what to expect, and how care teams adjust treatment to fit each patient’s needs.What transplant patients need to know about over-the-counter medications, supplements, and everyday risks.Breaking down financial barriersHow medication reimbursement specialists help patients access coverage, reduce out-of-pocket costs, and navigate complex insurance systems.The future of transplant pharmacyInnovations like blister pack automation, refill reminders, and text-based systems designed to make care even more accessible. Links and Resources Learn more about the UHN Transplant Outpatient Pharmacy (TOP): https://www.uhn.ca/Transplant/TOP Learn more about living organ donation: www.livingorgandonation.ca Living Kidney & Liver Donation at UHN: UHN Ajmera Transplant Centre Information Sessions for potential donors: givelifeuhn.eventbrite.ca  Becoming a living donor: https://www.uhn.ca/Transplant/Pages/become_living_donor.aspx Kidney Foundation of Canada – Living Donation https://kidney.ca/Get-Involved/Be-a-Living-Donor Trillium Gift of Life Network – Organ Donation in Ontario https://www.giftoflife.on.ca Each episode, we share patient stories about organ donation from transplant recipients and living donors, along with insights and education from leading medical experts. Whether you’re a patient, a caregiver, a donor, or simply curious about the world of organ transplantation, you’ll hear expert advice and inspiring journeys of hope, resilience, and second chances. About our Host Candice Coghlan is the Education & Outreach Coordinator at the Centre for Living Organ Donation at the UHN Ajmera Transplant Centre. She is also a board member for the National Kidney Foundation and a kidney transplant recipient. After she was diagnosed with kidney failure in her early 20s, she was on dialysis until receiving a transplant from her mother. Have questions? Comments? Ideas for an episode? Please reach out to the Centre for Living Organ Donation at livingorgandonation@uhn.ca. Thanks for spending your time with us. The views and opinions expressed in this episode do not necessarily reflect the official policy or position of Toronto General or University Health Network.

    38 min
  3. MAR 19

    A Second Chance for Love: Emma’s Determination to Donate a Kidney at 79 | Patient Stories, Organ Donation and Medical Experts

    Emma didn’t see herself as brave — she simply saw a problem and knew she could help. At 79 years old, Emma became a living kidney donor for her husband after he began dialysis. But the path to donation wasn’t straightforward. After initially being turned away during her first evaluation due to concerns about blood sugar levels, Emma refused to give up. She advocated for herself, gathered medical evidence from her family doctor, and wrote a heartfelt letter asking for a second chance to be assessed. That persistence led her to the Toronto General Hospital Living Donor Program, where she was ultimately approved to donate. In this episode, Emma shares the deeply personal journey of advocating for herself, navigating the evaluation process, and donating a kidney to the person she has spent her life with. She reflects on why she never felt fear about the surgery, how dialysis affected their lives together, and why she believes more people should consider living donation — regardless of age. Now recovering just weeks after surgery, Emma is already looking ahead to what matters most: more time together, traveling again, and enjoying the life they’ve built side by side. Her message is simple but powerful: if you are healthy and willing to help, one kidney can change someone’s life. Links and Resources Learn more about living organ donation: www.livingorgandonation.ca Living Kidney & Liver Donation at UHN: UHN Ajmera Transplant Centre Information Sessions for potential donors: givelifeuhn.eventbrite.ca  Becoming a living donor: https://www.uhn.ca/Transplant/Pages/become_living_donor.aspx Kidney Foundation of Canada – Living Donation https://kidney.ca/Get-Involved/Be-a-Living-Donor Trillium Gift of Life Network – Organ Donation in Ontario https://www.giftoflife.on.ca Each episode, we share patient stories about organ donation from transplant recipients and living donors, along with insights and education from leading medical experts. Whether you’re a patient, a caregiver, a donor, or simply curious about the world of organ transplantation, you’ll hear expert advice and inspiring journeys of hope, resilience, and second chances. About our Host Candice Coghlan is the Education & Outreach Coordinator at the Centre for Living Organ Donation at the UHN Ajmera Transplant Centre. She is also a board member for the National Kidney Foundation and a kidney transplant recipient. After she was diagnosed with kidney failure in her early 20s, she was on dialysis until receiving a transplant from her mother. Have questions? Comments? Ideas for an episode? Please reach out to the Centre for Living Organ Donation at livingorgandonation@uhn.ca. Thanks for spending your time with us. The views and opinions expressed in this episode do not necessarily reflect the official policy or position of Toronto General or University Health Network.

    30 min
  4. MAR 8

    International Women’s Day: Dr. Irene Kim on Motherhood, Mentorship & Transplant Leadership

    In this special International Women’s Day bonus episode of the Living Transplant Podcast, we sit down with Dr. Irene Kim — abdominal transplant surgeon, Director of the Transplant Center at Cedars-Sinai, and the Esther and Mark Schulman Endowed Chair in Transplant Medicine. Beyond her many titles, Dr. Kim is also a mentor, a leader, and a mother. In this thoughtful and deeply human conversation, she reflects on the realities of balancing a demanding surgical career with family life, the mentors who shaped her journey in transplant medicine, and the lessons that come with leadership. Dr. Kim shares why motherhood has been one of the most humbling roles in her life, how strong support systems make success possible, and why mentorship doesn’t have to be gendered. She also opens up about how personal experiences with illness can reshape the way physicians connect with their patients. The episode closes with a powerful reflection inspired by author J.D. Salinger — a reminder that in a world constantly pushing us to do more and be more, sometimes the most meaningful realization is simply knowing when we already have enough. In honour of International Women’s Day, this conversation celebrates the women leading, caring, mentoring, and shaping the future of medicine and our communities. Links and Resources Cedars-Sinai Medical Center: https://www.cedars-sinai.org J.D. Salinger, The Catcher in the Rye: https://www.amazon.com/Catcher-Rye-J-D-Salinger/dp/0316769487 LinkedIn: https://www.linkedin.com/in/irene-kim International Women’s Day: https://www.internationalwomensday.com/ UHN Women: https://www.uhn.ca/corporate/AboutUHN/UHNWomen  Learn more about living organ donation: www.livingorgandonation.ca Living Kidney & Liver Donation at UHN: UHN Ajmera Transplant Centre Information Sessions for potential donors: givelifeuhn.eventbrite.ca   Each episode, we share patient stories about organ donation from transplant recipients and living donors, along with insights and education from leading medical experts. Whether you’re a patient, a caregiver, a donor, or simply curious about the world of organ transplantation, you’ll hear expert advice and inspiring journeys of hope, resilience, and second chances. About our Host Candice Coghlan is the Education & Outreach Coordinator at the Centre for Living Organ Donation at the UHN Ajmera Transplant Centre. She is also a board member for the National Kidney Foundation and a kidney transplant recipient. After she was diagnosed with kidney failure in her early 20s, she was on dialysis until receiving a transplant from her mother. Have questions? Comments? Ideas for an episode? Please reach out to the Centre for Living Organ Donation at livingorgandonation@uhn.ca. Thanks for spending your time with us. The views and opinions expressed in this episode do not necessarily reflect the official policy or position of Toronto General or University Health Network.

    17 min
  5. MAR 5

    Guiding the Gift: Behind the Scenes with a Living Kidney Donor Coordinator

    What really happens when someone decides to become a living kidney donor? In this episode of Living Transplant, Candice sits down with UHN living donor kidney coordinator Melinda Skadorwa to unpack the full donor journey — from the first health questionnaire to surgery day and beyond. Melinda shares how she found her way into transplant nursing, what a typical (and often unpredictable) day looks like, and the most common fears and misconceptions she hears from potential donors. The conversation explores the emotional and logistical realities of donation, including financial barriers, white coat anxiety, and the importance of strong support systems. Listeners will also learn how innovative programs like Kidney Paired Donation and List Exchange are helping more Canadians receive life-saving transplants — even when donors and recipients aren’t compatible. Whether you’re considering donation, supporting someone who is, or simply curious about how living donation works, this episode offers an honest and compassionate look behind the scenes. What You’ll Learn in This Episode: How Melinda’s path led her into transplant careWhat living donor coordinators actually doStep-by-step overview of the living donor evaluation processCommon myths and fears about kidney donationLife after donation: recovery and long-term outlookHow Kidney Paired Donation expands transplant access across CanadaThe unique impact of non-directed (anonymous) donorsBarriers donors may face — including financial and system challengesEmotional supports available for living donorsAdvice for anyone thinking about becoming a donor Links and Resources Learn more about living organ donation: www.livingorgandonation.ca Living Kidney Donation at UHN: UHN Ajmera Transplant Centre Kidney Paired Donation Program: Kidney Paired Donation Program Financial Support for Living Donors: https://www.eventbrite.ca/e/financial-support-for-living-organ-donors-tickets-60824861799?aff=ebdsoporgprofile Information about Becoming a Living Kidney Donor: https://www.eventbrite.ca/e/information-for-potential-living-kidney-donors-tickets-62066475499?aff=ebdsoporgprofile  Each episode, we share patient stories about organ donation from transplant recipients and living donors, along with insights and education from leading medical experts. Whether you’re a patient, a caregiver, a donor, or simply curious about the world of organ transplantation, you’ll hear expert advice and inspiring journeys of hope, resilience, and second chances. About our Host Candice Coghlan is the Education & Outreach Coordinator at the Centre for Living Organ Donation at the UHN Ajmera Transplant Centre. She is also a board member for the National Kidney Foundation and a kidney transplant recipient. After she was diagnosed with kidney failure in her early 20s, she was on dialysis until receiving a transplant from her mother. Have questions? Comments? Ideas for an episode? Please reach out to the Centre for Living Organ Donation at livingorgandonation@uhn.ca. Thanks for spending your time with us. The views and opinions expressed in this episode do not necessarily reflect the official policy or position of Toronto General or University Health Network.

    37 min
  6. FEB 19

    One Liver for Life: Pediatric Liver Transplants | Patient Stories, Organ Donation and Medical Experts

    In this episode of the Living Transplant Podcast, host Candice Coghlan speaks with Dr. Blayne Sayed, transplant and hepatobiliary surgeon at SickKids and UHN, about the complexity and emotional depth of pediatric liver transplantation. Dr. Sayed shares what makes children’s liver surgery uniquely challenging, how families navigate the transplant journey, and why long-term relationships between care teams and families matter so deeply. They explore the powerful role of living liver donation, advances in transplant science and immune research, and emerging technologies like organ perfusion that may improve outcomes and expand the donor pool. Dr. Sayed also discusses the future of transplant care — including reducing immunosuppression, protecting organs from injury, and building stronger transition supports for children growing into adult care. Did you know that when a child needs a liver donor, both donor evaluation and surgery take place at UHN — a powerful reflection of our strong partnership in pediatric living donor transplantation. Key Takeaways Pediatric liver transplantation involves highly complex, technically demanding surgery on very small patients.Families often face a long and emotionally intense journey from diagnosis to transplant.Living liver donation is a critical lifeline for children and helps reduce wait times and risk.Strong collaboration between SickKids and UHN supports seamless donor evaluation and surgery.Long-term relationships between transplant teams and families are central to pediatric care.Research into liver injury and immune response may help reduce rejection and improve long-term outcomes.New organ perfusion technologies could allow organs to be treated and optimized before transplant.Some liver transplant recipients may eventually be able to safely minimize or stop immunosuppression.Better transition programs are needed to support teens moving from pediatric to adult transplant care.Innovation in transplant science is accelerating and holds real promise for children. Connect with the Podcast or Learn more about Organ Donation Click here for more information about living organ donation. Click here to learn more about liver transplantation Click here to hear stories about living organ donors and recipients Click here to learn more about Sick Kids liver transplant program Centre for Living Organ Donation on Instagram Ajmera Transplant Centre on Instagram Each episode, we share patient stories about organ donation from transplant recipients and living donors, along with insights and education from leading medical experts. Whether you’re a patient, a caregiver, a donor, or simply curious about the world of organ transplantation, you’ll hear expert advice and inspiring journeys of hope, resilience, and second chances. About our Host Candice Coghlan is the Education & Outreach Coordinator at the Centre for Living Organ Donation at the UHN Ajmera Transplant Centre. She is also a board member for the National Kidney Foundation and a kidney transplant recipient. After she was diagnosed with kidney failure in her early 20s, she was on dialysis until receiving a transplant from her mother. Have questions? Comments? Ideas for an episode? Please reach out to the Centre for Living Organ Donation at livingorgandonation@uhn.ca. Thanks for spending your time with us. The views and opinions expressed in this episode do not necessarily reflect the official policy or position of Toronto General or University Health Network.

    47 min
  7. FEB 5

    A Toddler Transplant: How Daddy's Liver Saved Camilla's Life | Patient Stories, Organ Donation and Medical Experts

    In this heartwarming episode of the Living Transplant podcast, we welcome Bianca and Joseph to share the incredible journey of their daughter, Camilla. Initially born healthy, Camilla’s persistent jaundice led to a life-changing diagnosis of biliary atresia at just four weeks old. After a failed Kasai procedure, the family was thrust into survival mode at SickKids Hospital, facing the terrifying reality that their infant daughter needed a liver transplant to survive. Joseph recounts the emotional process of becoming his daughter’s living donor, transforming a time of immense fear into a story of profound sacrifice and paternal love.  The couple opens up about the unique challenge of having two family members in surgery simultaneously and the unforgettable relief of their reunification during recovery. Now nearly three years post-transplant, Camilla is a thriving toddler, hitting every milestone. Bianca discusses how they navigate “mom guilt,” the importance of normalizing Camilla’s transplant scar, and the vital role of the “poop chart” in early diagnosis. Their story is a testament to the resilience of families, the power of advocacy, and the miracle of organ donation. Connect with the Podcast or Learn more about Organ Donation Click here for more information about living organ donation. Click here for more information about living kidney transplantation.  Click here for more information about Polycystic Kidney Disease.  Ajmera Transplant Centre on Instagram Each episode, we share patient stories about organ donation from transplant recipients and living donors, along with insights and education from leading medical experts. Whether you’re a patient, a caregiver, a donor, or simply curious about the world of organ transplantation, you’ll hear expert advice and inspiring journeys of hope, resilience, and second chances. About our Host Candice Coghlan is the Education & Outreach Coordinator at the Centre for Living Organ Donation at the UHN Ajmera Transplant Centre. She is also a board member for the National Kidney Foundation and a kidney transplant recipient. After she was diagnosed with kidney failure in her early 20s, she was on dialysis until receiving a transplant from her mother. Have questions? Comments? Ideas for an episode? Please reach out to the Centre for Living Organ Donation at livingorgandonation@uhn.ca. Thanks for spending your time with us. The views and opinions expressed in this episode do not necessarily reflect the official policy or position of Toronto General or University Health Network.

    54 min
  8. JAN 22

    Reimagining Healthcare: Advocacy, Equity, and Dignity with Kamika Sylvester, RN | Patient Stories, Organ Donation and Medical Experts

    In this powerful episode of The Living Transplant Podcast, host Candice Coghlan is joined by Kamika Sylvester, RN — nurse, patient advocate, nonprofit founder, and tech entrepreneur — for a deeply honest conversation about racism in healthcare, patient advocacy, and reimagining what truly equitable care can look like. Kamika shares her journey as a patient first, navigating a life-altering diagnosis at just 18 years old, and how that experience shaped her path into nursing, advocacy, and systems change. Together, Candice and Kamika unpack why mistrust exists in healthcare for many racialized communities, how bias and burnout impact both patients and providers, and why dignity and listening must be at the centre of care. Listeners will also learn Kamika’s practical ABCDs of Advocacy, a simple but powerful framework to help patients and families navigate complex healthcare systems with confidence: A – Adjust your attitude B – Bring backup C – Have concise conversations D – Keep detailed documentation The conversation also explores: Why representation in healthcare teams matters for patient outcomesHow burnout affects healthcare providers — especially those from racialized communitiesWhat real cultural safety looks like beyond “checkbox” trainingHow healthcare leaders, providers, and allies can use their privilege to create meaningful changeWhat a truly inclusive, reimagined healthcare system could look likeThis episode is essential listening for patients, caregivers, healthcare professionals, and anyone committed to building a more just, compassionate, and equitable healthcare system. Links Centre for Living Organ Donation Ajmera Transplant Centre Code Melanin – Supporting Black, Indigenous, and racialized healthcare professionals and addressing burnout The Black Birth Project – Advancing equity in maternal and birth outcomes Green Table Talk (ACB Organ Health Committee) – Community conversations on organ health and equity Each episode, we share patient stories about organ donation from transplant recipients and living donors, along with insights and education from leading medical experts. Whether you’re a patient, a caregiver, a donor, or simply curious about the world of organ transplantation, you’ll hear expert advice and inspiring journeys of hope, resilience, and second chances. About our Host Candice Coghlan is the Education & Outreach Coordinator at the Centre for Living Organ Donation at the UHN Ajmera Transplant Centre. She is also a board member for the National Kidney Foundation and a kidney transplant recipient. After she was diagnosed with kidney failure in her early 20s, she was on dialysis until receiving a transplant from her mother. Have questions? Comments? Ideas for an episode? Please reach out to the Centre for Living Organ Donation at livingorgandonation@uhn.ca. Thanks for spending your time with us. The views and opinions expressed in this episode do not necessarily reflect the official policy or position of Toronto General or University Health Network.

    53 min
5
out of 5
44 Ratings

About

Living Transplant: Patient Stories | Organ Donation | Medical Experts is a podcast that takes you behind the scenes at the transplant program at Toronto General Hospital with the goal to educate, inspire and fuel your passion about transplant, with your host, Candice Coghlan, an Education & Outreach Coordinator at the Centre for Living Organ Donation at the UHN Ajmera Transplant Centre and a kidney transplant recipient.

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