The Incubator: Beyond The Beeps

The Incubator
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Hosted by Leah Jayanetti from parent support organization ICU Baby, Beyond the Beeps pulls back the curtain on the NICU experience, helping parents navigate this new world, understand their baby's journey, and learn about healthcare approaches and medical decision making. Through storytelling and education, we foster hope and empower parents to actively engage with their healthcare team, ultimately improving understanding and communication between families and medical staff.

  1. VOR 1 TAG

    #022 - What Happens When Nobody Tells You What to Expect in the NICU?

    Victoria Varela-Hefty, director of programs at ICU Baby and mother of James, a 28-weeker born in 2024, shares her NICU journey with honesty and grace. From a high-risk pregnancy complicated by Sjögren's syndrome and preeclampsia to an emergency classical C-section, inadequate postoperative pain management, and a cardiac complication that kept her hospitalized for eight days — Victoria reflects on what it felt like to navigate her own medical crisis while her son was down the hall in the NICU. She speaks powerfully about what was missing: not heroic interventions, but simple things — someone acknowledging her feelings, preparing her for what was coming, and reminding her that asking for help was allowed. She also shares how James is thriving today, and what she would want every NICU family to know about the power of pausing. Support the show As always, feel free to send us questions, comments, or suggestions to our email: nicupodcast@gmail.com. You can also contact the show through Instagram or Twitter, @nicupodcast. Or contact Ben and Daphna directly via their Twitter profiles: @drnicu and @doctordaphnamd. The papers discussed in today's episode are listed and timestamped on the webpage linked below. Enjoy!

    1 Std. 25 Min.

  2. 1. MÄRZ

    #021 - Fighting for Sight: ROP Awareness Week Special

    In this special double episode of Beyond the Beeps, we're marking ROP Awareness Week with a full look at Retinopathy of Prematurity — from the medical side to the deeply human side. First, Dr. Faizah Bhatti walks us through what ROP is, its causes, risk factors, stages, and treatment options, while emphasizing why parental advocacy and regular follow-ups are so critical for premature infants. Then, Leah MG Jayanetti sits down with Tyronza Williams, who shares her emotional journey through the NICU with her daughter Alicia, born at just 23 weeks. Tyronza opens up about Alicia's ROP diagnosis, the treatments she underwent, and what it truly means to advocate for your child when everything feels uncertain. Together, these conversations capture both the science and the resilience behind one of the most common challenges facing premature babies. Support the show As always, feel free to send us questions, comments, or suggestions to our email: nicupodcast@gmail.com. You can also contact the show through Instagram or Twitter, @nicupodcast. Or contact Ben and Daphna directly via their Twitter profiles: @drnicu and @doctordaphnamd. The papers discussed in today's episode are listed and timestamped on the webpage linked below. Enjoy!

    1 Std. 29 Min.

  3. 31.12.2025

    #020 - Belonging in the NICU during the Holidays

    In this episode of Beyond the Beeps, Leah MG Jayanetti discusses the unique challenges faced by families in the NICU during the holiday season. Joined by Alena Costume, a two-time NICU mother, they explore the emotional rollercoaster of having a baby in the NICU, the importance of community support, and strategies for coping with stress. Alena shares her personal experiences, highlighting the significance of parental presence and the impact of healthcare staff on the NICU journey. The conversation emphasizes resilience, hope, and the need for better support systems for NICU families. In this conversation, Leah MG Jayanetti and Alena discuss the profound experiences of families in the NICU, emphasizing the importance of nourishment, community support, and the unexpected connections that can arise during challenging times. They share personal stories about creating the Touching Tiny Hands organization, the emotional toll of having a child in the NICU, and the significance of hope and belonging in the journey of parenthood, especially during the COVID-19 pandemic. Support the show As always, feel free to send us questions, comments, or suggestions to our email: nicupodcast@gmail.com. You can also contact the show through Instagram or Twitter, @nicupodcast. Or contact Ben and Daphna directly via their Twitter profiles: @drnicu and @doctordaphnamd. The papers discussed in today's episode are listed and timestamped on the webpage linked below. Enjoy!

    1 Std. 25 Min.

  4. 27.11.2025

    #019 - Keira’s journey from the NICU to the NICU Parent Network

    In this episode, Leah Jayanetti speaks with Keira Sorrells, founder of the NICU Parent Network, about her personal journey through the NICU experience with her triplets and the advocacy work she has undertaken to support NICU families. They discuss the importance of family-centered care, the NICU Babies Bill of Rights, and the emotional challenges faced by parents in the NICU. Kira shares her insights on healing through storytelling and the need for self-care among NICU leaders, emphasizing that hope is an expression of love, regardless of the outcomes. Support the show As always, feel free to send us questions, comments, or suggestions to our email: nicupodcast@gmail.com. You can also contact the show through Instagram or Twitter, @nicupodcast. Or contact Ben and Daphna directly via their Twitter profiles: @drnicu and @doctordaphnamd. The papers discussed in today's episode are listed and timestamped on the webpage linked below. Enjoy!

    1 Std. 12 Min.

  5. 24.11.2025

    #018 - A Memoir of Hope: A Conversation with Jennifer Bernardo

    In this episode of Beyond the Beeps, Leah interviews Jennifer Bernardo, a passionate advocate and author of 'Week 26', who shares her journey through the NICU with her twins, Luke and Layla. Jennifer discusses the challenges of having premature babies, the healing power of writing, and the importance of community support. She emphasizes the role of presence in NICU care, the significance of involving siblings, and her advocacy efforts to raise awareness about the NICU experience. The conversation highlights the resilience of NICU parents and the hope that guides them through difficult times. Support the show As always, feel free to send us questions, comments, or suggestions to our email: nicupodcast@gmail.com. You can also contact the show through Instagram or Twitter, @nicupodcast. Or contact Ben and Daphna directly via their Twitter profiles: @drnicu and @doctordaphnamd. The papers discussed in today's episode are listed and timestamped on the webpage linked below. Enjoy!

    44 Min.

  6. 24.11.2025

    #017 - Christina’s Journey to Discharge Day

    In this heartfelt episode of Beyond the Beeps, Leah and Christina discuss the emotional journey of navigating the NICU as a parent. Christina shares her experiences from the moment she went into preterm labor to the discharge day of her son, Caleb. The conversation highlights the importance of building a support system, advocating for your child, and finding resilience during challenging times. Christina emphasizes the need for information and education in the NICU environment, as well as the significance of self-care for parents. The episode concludes with a message of hope and encouragement for families facing similar journeys. Support the show As always, feel free to send us questions, comments, or suggestions to our email: nicupodcast@gmail.com. You can also contact the show through Instagram or Twitter, @nicupodcast. Or contact Ben and Daphna directly via their Twitter profiles: @drnicu and @doctordaphnamd. The papers discussed in today's episode are listed and timestamped on the webpage linked below. Enjoy!

    39 Min.

  7. 24.11.2025

    #016 - Parenting in the NICU: Lina’s Transformative Experience

    In this week’s episode of Beyond the Beeps, Leah and Lina explore the often-overlooked but critical role of communication in neonatal intensive care. The discussion focuses on how clinicians can bridge the gap between technical expertise and human connection. They reflect on practical strategies for listening actively, explaining medical information clearly, and adjusting communication styles to meet the needs of parents and families in high-stress situations. Drawing on real experiences, they highlight the importance of empathy, collaboration, and presence at the bedside, while also addressing the challenges that arise when communication breaks down. The episode also examines the impact of communication on team dynamics within the NICU, from how providers share updates to how they align on care goals. Lina and Leah underscore that effective communication is not just a soft skill—it’s a core component of safe and compassionate care. This conversation offers concrete takeaways for neonatal professionals seeking to strengthen how they connect with both families and colleagues. Whether you are a bedside nurse, physician, or allied health provider, the insights shared here will resonate with your daily practice. Support the show As always, feel free to send us questions, comments, or suggestions to our email: nicupodcast@gmail.com. You can also contact the show through Instagram or Twitter, @nicupodcast. Or contact Ben and Daphna directly via their Twitter profiles: @drnicu and @doctordaphnamd. The papers discussed in today's episode are listed and timestamped on the webpage linked below. Enjoy!

    1 Std. 1 Min.

  8. 24.11.2025

    #015 - Siblings Are Also In the NICU

    In this episode of Beyond the Beeps, siblings of NICU babies share their personal experiences and insights on navigating life with a sibling in the NICU. They discuss the challenges, emotions, and responsibilities they faced, as well as the lessons learned about patience, awareness, and resilience. The conversation emphasizes the importance of support from parents and healthcare providers, and the need for open communication about the realities of having a sibling in the NICU. The siblings also reflect on their hopes for the future and the unique skills they have developed through their experiences. Support the show As always, feel free to send us questions, comments, or suggestions to our email: nicupodcast@gmail.com. You can also contact the show through Instagram or Twitter, @nicupodcast. Or contact Ben and Daphna directly via their Twitter profiles: @drnicu and @doctordaphnamd. The papers discussed in today's episode are listed and timestamped on the webpage linked below. Enjoy!

    49 Min.
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Hosted by Leah Jayanetti from parent support organization ICU Baby, Beyond the Beeps pulls back the curtain on the NICU experience, helping parents navigate this new world, understand their baby's journey, and learn about healthcare approaches and medical decision making. Through storytelling and education, we foster hope and empower parents to actively engage with their healthcare team, ultimately improving understanding and communication between families and medical staff.

Informationen

  • Kanal
    The Incubator
  • Erstellt von
    The Incubator Podcast & ICU Baby
  • Jahre aktiv
    2025 - 2026
  • Folgen
    22
  • Bewertung
    Anstößig
  • Copyright
    © 2026 The Incubator Podcast & ICU Baby
  • Sendungswebsite
    The Incubator: Beyond The Beeps
  • Anbieter
    ENSO NEONATAL INNOVATION LLC

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