TSC Talks!

Jill Woodworth
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  • 一周一更

TSC TALKS 2.0. Inspired by the condition Tuberous Sclerosis Complex. Providing digital audio & video content and products designed to educate, illuminate, support and advocate "off the grid" alternative and holistic options for marginalized populations. Providing a forum for communication, collaboration, resources and opportunity. Drawing from lived and learned experience All with the goal of coming together to affect change, bridge gaps and empower as we come together to better understand each other's predicament and validate the need for access, affordability that often keep those with chronic, life threatening conditions from exploring options. Options that CAN open the doors of perception to understanding our exceptional variability as human beings and the “one size fits all” aspects of traditional medicine that are not conducive to bio-psycho-social health, stability and longevity. Come join us as we dig deep into issues and concepts that need to be given some thought and discussion in order to truly “walk a mile” in another’s shoes! Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.

  1. TSC Talks 3.0 (not) Research ~ In the Stone Chamber

    1天前

    TSC Talks 3.0 (not) Research ~ In the Stone Chamber

    Taking a break from the harsh closed loops and hunkering down in dis stone chamber to give a little freestyle riff for this episode from the stone chamber no links  except go watch the video. the audio just won't cut it on this one https://youtu.be/bEIqg2lcDU0 Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.

    3 分钟
  2. TSC Talks 3.0 Research~Episode 10

    4月29日

    TSC Talks 3.0 Research~Episode 10

    I bust through the third wall or whatevs in Episode 10 of TSC Talks 3.0 Research. Dropped the whiteboard til the end. Summed up the 9 episodes and added a bit on the end about CPTSD, TAND and the fact that the entire family system is drawn into the grid as data churnin' emotin' node. Used the Google AI to investigate the theories I had on amplification of TSC by multiple factors for purpose and product and it proved true based on the research plus lived experience thus far. Source Links for Further Research I. Rare Disease Advocacy and Funding (Conflicts of Interest) [TSC Alliance: Corporate Policies](https://www.tscalliance.org/about-tsc/corporate-policies/) [TSC Alliance: COVID-19 Vaccine Position Statement](https://www.tscalliance.org/wp-content/uploads/2021/08/TSC-Alliance-COVID-19-Vaccine-Position-Statement-Update-August-2021-FINAL.pdf) [TSC Alliance: Phenotypic Variability Research](https://www.tscalliance.org/tsc-matters/phenotypic-variability-in-tuberous-sclerosis-complex-tsc/) [TSC Alliance: 2024 Talking Points](https://www.tscalliance.org/wp-content/uploads/2024/01/2024-Talking-Points-Final.pdf) [NORD: Mission and Values](https://rarediseases.org/about-us/mission-values/) [NORD: Research Grant Programs](https://rarediseases.org/advancing-research/research-grant-programs/)  [EURORDIS: Our Funding](https://www.eurordis.org/who-we-are/our-funding/) [Mass General: Herscot $50 Million Gift](https://giving.massgeneral.org/stories/herscots-make-50-million-gift-to-mass-general) [NEJM: Industry Support for Patient Advocacy](https://www.nejm.org/doi/full/10.1056/NEJMsr1610625) II. Gene Therapy (CRISPR), Risks, and Regulation  [FDA: Cellular & Gene Therapy Products](https://www.fda.gov/vaccines-blood-biologics/cellular-gene-therapy-products) [CRISPR-Cas9 Off-Target Effects (Synthego)](https://www.synthego.com/blog/crispr-off-target-editing/) [CRISPR: Genome Engineering Advantages and Limitations (Taconic)](https://www.taconic.com/resources/crispr-genome-engineering-advantages-limitations) [FDA: Regulatory Distinctions for Cell and Gene Therapies (LinkedIn)](https://www.linkedin.com/pulse/fda-vs-ema-key-regulatory-distinctions-cell-gene-therapies-ywzye) [Informed Consent and Clinical Trials (PMC)](https://pmc.ncbi.nlm.nih.gov/articles/PMC2659702/) [Immune Evasion in Engineered CRISPR Enzymes (Broad Institute)](https://www.broadinstitute.org/news/scientists-engineer-crispr-enzymes-evade-immune-system) [The Ethics of Gene Editing (Innovative Genomics)](https://innovativegenomics.org/crisprpedia/crispr-ethics/) III. Vaccines, Toxins, and Environmental Amplification  [TSC Drug Market & Prevalence (OpenPR)](https://www.openpr.com/news/3536609/tuberous-sclerosis-complex-drug-market-2034-epidemiology) [Vaccines and the Rise in Pediatric Cancer (The Vaccine Reaction)](https://thevaccinereaction.org/2018/05/is-there-a-link-between-vaccines-and-the-rise-in-pediatric-cancer/)  [Study of Vaccinated and Unvaccinated Children (Weston A. Price)](https://www.westonaprice.org/health-topics/vaccinations/chronic-disease-a-study-of-vaccinated-and-unvaccinated-children/#gsc.tab=0) [Role of Environmental Toxins in Epigenetic Dysregulation (PLM Institute)](https://plminstitute.org/plmi-blog/the-role-of-environmental-toxins-in-epigenetic-dysregulation/) [Childhood Vaccination Schedule Explosion (Twitter - NVICLoeDown)](https://twitter.com/NVICLoeDown/status/1687176816774033408) [COVID-19 Vaccine Added to Childhood Schedule (Children's Health Defense)](https://childrenshealthdefense.org/defender/childhood-covid-vaccine-schedule/) [The Role of Environmental Exposures in Genetic Disease (PMC)](https://pmc.ncbi.nlm.nih.gov/articles/PMC4021822/) IV. Alternative and Holistic Approaches [Ketogenic Diet Inhibits the mTOR Pathway (AESnet)](https://aesnet.org/abstractslisting/the-ketogenic-diet-inhibits-the-mammalian-target-of-rapamycin-\(mtor\)-pathway) [Ketogenic Diet for Epilepsy in TSC (PMC)](https://pmc.ncbi.nlm.nih.gov/articles/PMC5540690/) [Curcumin Inhibits mTOR Activity (ScienceDirect)](https://www.sciencedirect.com/science/article/abs/pii/S0944711318304860) [Natural Treatment for TSC (Inspire Forum)](https://www.inspire.com/groups/tuberous-sclerosis-complex/discussion/natural-treatment-for-tsc/) [Natural Products and Patenting (PMC)](https://pmc.ncbi.nlm.nih.gov/articles/PMC8521639/) [Anti-Inflammatory Living (Holistic Health Code)](https://www.holistichealthcode.com/articles/unlocking-metabolic-health) contact Jill: pjlacy6@gmail.com Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.

    36 分钟
  3. TSC Talks 3.0 Research~Episode 9

    4月22日

    TSC Talks 3.0 Research~Episode 9

    In this episode, I get into mitigation strategies related to the increasing reliance on tech with the arrival of 6G particularly for those living with a chronic and or rare disease that is on multiple medications and dependent on the grid. What would be considered alternative or holistic therapies such as grounding, sound therapy, ketogenic diet and exercise have all been proven to help support the full field in finding homeostasis even with a condition such as TSC and can improve overall health and quality of life as a support beyond meds and other more drastic regimens. I also talk about the similarities between CPTSD and TAND (TSC Associated Neuropsychiatric Disorder) and the importance of understanding the "energetics" of a rare disease when advocating for one's self and/or loved ones. The system will add additional labels and complicate understanding. I hope to explore further the CPTSD connection as I feel it as AS relevant as the limited focus of TAND. Full list of links: https://docs.google.com/document/d/e/2PACX-1vQv_yBMqtFvxQmhm31TXozv20_nEGxCTwjUCclYrEK2yE9NGR6rQqc1GyMsA76lUNtNrZda-FF_Z2IM/pub Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.

    36 分钟
  4. TSC Talks 3.0 Research~Episode 8

    4月15日

    TSC Talks 3.0 Research~Episode 8

    Episode 8 of TSC Talks 3.0 Research... continuing on with the extensive history of the rare disease Tuberous Sclerosis Complex, the set up for data harvesting and gene editing and the inevitability of enhanced grid adhesion. Woohoo! Next episode I'm gonna go into mitigation and the upswing of the sitch.  Links: mindandbodyexercises.com https://medium.com https://maescenter.com rockarch.org tikvahhealthandwellness.com nih.gov nih.gov nutritiondiagnostics.com.au nih.gov psychologytoday.com nih.gov mcgill.ca chop.edu https://historyofvaccines.org nih.gov jpeds.com https://time.com nih.gov nih.gov nih.gov 2minutemedicine.com nih.gov nih.gov sciencedirect.com nih.gov cdc.gov nih.gov https://richd.org nih.gov wikipedia.org empr.com https://historyofvaccines.org https://drgreenmom.com mayoclinic.org kaiserpermanente.org nih.gov kff.org forbes.com itu.int ciocoverage.com https://studyfinds.org Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.

    30 分钟
  5. TSC Talks 3.0 Research~Episode 7

    4月8日

    TSC Talks 3.0 Research~Episode 7

    The history of Tuberous Sclerosis Complex. they're juicing it. Some queries related to the complexity of epigenetic variables and the overlords decision to focus on genetics only for the sake of "simplicity"... Just my opinion? I welcome all listeners and critical thinkers. 📚 Primary Research & Databases PubMed Central (Full-Text Archive): https://pmc.ncbi.nlm.nih.gov PubMed (Citations & Abstracts): https://pubmed.ncbi.nlm.nih.gov ScienceDirect: sciencedirect.com Wiley Online Library: https://onlinelibrary.wiley.com Springer Link: https://link.springer.com ResearchGate: researchgate.net Academia.edu: academia.edu 🏥 Health Organizations & Agencies NIH / National Library of Medicine: https://www.ncbi.nlm.nih.gov NINDS (Neurological Disorders): https://www.ninds.nih.gov MedlinePlus: https://medlineplus.gov HRSA (Health Resources): hrsa.gov Texas Children’s Hospital: texaschildrens.org TSC Alliance: tscalliance.org Epilepsy Foundation: epilepsy.com 🔬 Specialized Medical Journals The Lancet: thelancet.com Pediatric Neurology: pedneur.com Neurotherapeutics: neurotherapeuticsjournal.org Frontiers in Science: frontiersin.org eLife Sciences: https://elifesciences.org AMA Journal of Ethics: ama-assn.org AAP Publications: aap.org ACR Journals: https://acrjournals.onlinelibrary.wiley.com ACR Abstracts: https://acrabstracts.org 2 Minute Medicine: https://www.2minutemedicine.com 📰 News, Legal & Historical Context TIME Magazine: https://time.com Medical Xpress: https://medicalxpress.com History of Vaccines: https://historyofvaccines.org Texas Vaccine Lawyers: texasvaccinelawyers.com Digital Commons (Rockefeller): rockefeller.edu HealthCentral: healthcentral.com Changing Aging: https://changingaging.org Medium: https://medium.com Meridian Health Clinic: https://meridianhealthclinic.com Wikipedia: wikipedia.org WikiDoc: wikidoc.org contact Jill ~ pjlacy6@gmail.com Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.

    34 分钟
  6. TSC Talks 3.0 Research~Episode 6

    4月1日

    TSC Talks 3.0 Research~Episode 6

    In Episode 6 of TSC Talks Research 3.0, I finish up the discussion of CRISPR and TSC and the trajectory, I get into cannabis and the way they've deglimmered exploration of consciousness for those with rare diseases on hefty meds and how this relates to the cultivated biosphere that limits the full potential of the divine human. So many the templates for data and experimentation to build the current Healthcare 4.0 system and Precision Medicine. While many will be helped, there will be a dependence on the grid system. YouTube Video: https://youtu.be/OqLKIZ7Q54s?si=8svWmKHp4ekiFOnR Links: https://www.liebertpub.com/doi/10.1089/crispr.2024.0079  https://pubmed.ncbi.nlm.nih.gov/39654514/  https://pediatricsnationwide.org/2024/01/11/innovative-gene-therapy-approach-for-treating-patients-with-tuberous-sclerosis-type-2/ https://pmc.ncbi.nlm.nih.gov/articles/PMC7793581/  https://innovativegenomics.org/news/crispr-clinical-trials-2026/ https://frontlinegenomics.com/sickle-cell-disease-a-2024-update/ epidiolexhcp.com  nih.gov  sciencedaily.com  https://www.researchgate.net/publication/348347376_Gene_therapy_for_tuberous_sclerosis_complex_type_2_in_a_mouse_model_by_delivery_of_AAV9_encoding_a_condensed_form_of_tuberin globalgenes.org neurologylive.com berkeley.edu ccf.org Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.

    32 分钟
  7. TSC Talks 3.0 Research~Episode 5

    3月25日

    TSC Talks 3.0 Research~Episode 5

    In this episode I share information on the risks and side effects of CRISPR for individuals with TSC and in general as well as go into how those affected with TSC are "test bunnies" for much of this new technology, and my theories with documentation of why this is happening. I also go over some of the "no touch" technologies being rolled out and tested on those with diseases such as TSC where the nature of the genetics, a "monogenic" disorder, makes it a more suitable population to experiment on to gain information than other more common disorders, such as Alzheimer's, which involve 100s of genetic factors.  TSC population is kept in that "test bunny" role without ever addressing the external factors that make the disease more difficult to manage in the first place. LINKS: pmc.ncbi.nlm.nih.gov pubmed.ncbi.nlm.nih.gov https://pmc.ncbi.nlm.nih.gov/articles/PMC7672342/ https://cdmrp.health.mil/tscrp/default http://tuberous-sclerosis.org/research/tsa-funded-research/ https://www.mdpi.com/2075-1729/15/3/368 https://www.tscalliance.org/wp-content/uploads/2023/02/Training-Packet-Documents.pdf https://pmc.ncbi.nlm.nih.gov/articles/PMC3010088/ https://pmc.ncbi.nlm.nih.gov/articles/PMC4527140/ https://pubmed.ncbi.nlm.nih.gov/19028034/ https://pmc.ncbi.nlm.nih.gov/articles/PMC6851053/ https://www.youtube.com/watch?v=hXRRq-dFuYg https://www.youtube.com/watch?v=Hu2TvhhdEHY https://www.youtube.com/watch?v=BFuXttZspaY https://pmc.ncbi.nlm.nih.gov/articles/PMC5727703/ https://globalgenes.org/raredaily/transforming-tsc-epilepsy-with-a-precision-therapy/ https://pediatricsnationwide.org/2024/01/11/innovative-gene-therapy-approach-for-treating-patients-with-tuberous-sclerosis-type-2/ https://pmc.ncbi.nlm.nih.gov/articles/PMC3164024/ https://pmc.ncbi.nlm.nih.gov/articles/PMC11944049/ https://www.biorxiv.org/content/10.1101/2024.02.22.581652v1.full-text https://pmc.ncbi.nlm.nih.gov/articles/PMC6408922/ https://www.mdpi.com/2076-3417/14/3/1132 https://pmc.ncbi.nlm.nih.gov/articles/PMC3744999/ https://www.researchgate.net/publication/24217930_Magnetically_Responsive_Nanoparticles_for_Drug_Delivery_Applications_Using_Low_Magnetic_Field_Strengths https://pmc.ncbi.nlm.nih.gov/articles/PMC2933363/ https://pmc.ncbi.nlm.nih.gov/articles/PMC7998448/ https://pmc.ncbi.nlm.nih.gov/articles/PMC9230665/ Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.

    29 分钟
  8. TSC Talks 3.0 Research~Episode 4

    3月18日

    TSC Talks 3.0 Research~Episode 4

    TSC Talks 3.0 Research, Episode 4 Here's my ongoing convo with AI delving into the funding behind rare disease research, non profits and how there are vested interests in continuing to bypass the full range of knowledge about what impacts the genome such as environmental (vaccines included) amplifications so they can justify the need for gene therapy via crispr, etchttps://rarediseases.org/about-us/financials-governance/ https://rarediseases.org/collection/nord-financials/ https://rarediseases.org/nord-releases-report-on-the-state-of-rare-disease-diagnosis-care-and-treatment-in-america-over-three-decades/ https://rarediseases.org/nord-state-report-card/ rarediseases.org https://rarediseases.org/wp-content/uploads/2022/10/NORD_2020_Annual-Report_wFinancials.pdf https://rarediseases.org/wp-content/uploads/2022/01/NORD_2020_Annual-Report_FINAL_SpreadView_web.pdf https://rarediseases.org/wp-content/uploads/2022/10/NRD-1198-2019_Annual-Report_FNL_WebSize.pdf https://www.eurordis.org/who-we-are/our-funding/ https://www.eurordis.org/who-we-are/projects-and-partnerships/ https://www.eurordis.org/partnerships/ https://www.eurordis.org/get-involved/join-the-eurordis-round-table-of-companies/ https://www.eurordis.org/publications/eurordis-policy-on-financial-support-by-commercial-companies-2/ https://www.eurordis.org/our-priorities/research/ https://www.eurordis.org/eurordis-supports-member-states-efforts-operating-grants-reintroduction/ https://www.eurordis.org/videos/rare-but-real-talking-rare-diseases-part-1-6/ download2.eurordis.org vzacna-onemocneni.cz https://everylifefoundation.org/rare-hub/rare-hub-partners-current-1-3/ https://everylifefoundation.org/financial-support/ https://everylifefoundation.org/everylifeeveryaction/ https://everylifefoundation.org/sitemap/ https://everylifefoundation.org/wp-content/uploads/2025/08/ELF-AnnualReport-2024-8.5x11-Proof-v6-081225.pdf https://everylifefoundation.org/wp-content/uploads/2022/01/Guide-to-Patient-Involvement-FINAL-COMPLETE-GUIDE-Rev.pdf https://everylifefoundation.org/wp-content/uploads/2016/05/Industry-Brochure-FINAL-May-2016.pdf Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.

    30 分钟
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关于

TSC TALKS 2.0. Inspired by the condition Tuberous Sclerosis Complex. Providing digital audio & video content and products designed to educate, illuminate, support and advocate "off the grid" alternative and holistic options for marginalized populations. Providing a forum for communication, collaboration, resources and opportunity. Drawing from lived and learned experience All with the goal of coming together to affect change, bridge gaps and empower as we come together to better understand each other's predicament and validate the need for access, affordability that often keep those with chronic, life threatening conditions from exploring options. Options that CAN open the doors of perception to understanding our exceptional variability as human beings and the “one size fits all” aspects of traditional medicine that are not conducive to bio-psycho-social health, stability and longevity. Come join us as we dig deep into issues and concepts that need to be given some thought and discussion in order to truly “walk a mile” in another’s shoes! Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.

信息

  • 创作者
    Jill Woodworth
  • 活跃年份
    2018年 - 2026年
  • 单集
    25
  • 分级
    儿童不宜
  • 版权
    © Copyright Jill Woodworth
  • 节目网站
    TSC Talks!