Bowel Moments

Alicia Barron and Robin Kingham

Real talk about the realities of IBD...On the rocks! Hosts Robin and Alicia interview people living with Crohn's disease, ulcerative colitis, or indeterminate colitis (collectively knows as Inflammatory Bowel Diseases or IBD) and the medical providers who care for our community. Join us to meet people affected by IBD- we laugh, we cry, we learn new things, we hear inspiring stories, and we share a drink. 

  1. 9 hr ago

    Dr. J. Casey Chapman- How Community Clinics Speed New Crohn's And Colitis Drugs

    Send us Fan Mail If you’ve ever wondered why it can feel so hard to get “the right IBD care” at the right time, this conversation will click into place. We’re joined by Dr. Casey Chapman, Chief Medical Officer at Specialty Alliance, gastroenterologist and IBD specialist, and we start with the moment that pulled him into inflammatory bowel disease care: a packed clinic where Crohn’s disease and ulcerative colitis were running patients’ lives, and where the stigma around advanced therapies was still very real. From there, we get practical about what changes outcomes. Dr. Chapman explains how community gastroenterology practices can run high-quality clinical trials, often with faster activation timelines than academic medical centers. We talk about why that matters during an IBD medication renaissance, what makes newer mechanisms like TL1A so exciting, and how the next wave of therapies aims for better efficacy, better safety, and less frequent dosing. He also breaks down what Iterative Health is, what it is not, and how research teams can offload the back-office work so physicians can stay focused on patients. We spend time on the questions patients actually ask: When should a clinical trial be offered? What happens if I get placebo? What is rescue therapy? If a study drug works, can I stay on it through an open-label extension? We also talk about multidisciplinary care through an IBD medical home model, including dietitians, social work, primary care, and the specific needs of college-aged patients learning to manage a lifelong disease. If you care about shared decision making, smarter monitoring, and how to stop normalizing symptoms, you’ll get a lot out of this one. Subscribe, share this with someone who needs hope and clarity around IBD treatment options, and leave a review so more patients can find the show. Links:  Find Dr. Chapman in Baton RougeInformation about clinical trials offered by GI Alliance/Specialty AllianceInformation on participating in clinical trials- the Crohn's & Colitis Foundation USADr. Charlie Lees substack that has tons of info on IBD clinical trails outcomes and what it means for patientsLet's get social!! Follow us on Instagram! Follow us on Facebook! Follow us on Twitter!

  2. 14 Oct

    Focus GI: How GI Nurse Practitioners Turn Conference Pearls Into Better Patient Care

    Send us Fan Mail We’re recording live from the Focus GI conference in San Antonio, and the conversations get honest fast: what do GI clinicians actually learn that changes patient outcomes, and what myths keep getting in the way? We sit down with nurse practitioners and advanced practice providers who work in gastroenterology and IBD care to unpack the small “clinical pearls” that add up to better, faster decisions, from using evidence-based guidelines to avoiding unnecessary testing and reducing delays in diagnosis. You’ll hear from Gabby Torres and Barbara Krause on why shared decision-making is more than a buzzword, especially when patients show up with fear fueled by social media side effects lists. We talk pelvic floor health, constipation, hemorrhoids, and why nutrition education still feels underused in everyday GI practice. We also dig into stigma: why people wait too long to mention rectal bleeding, and what we wish every patient knew about the providers who are trying to help. Blas Villa and Augustine Conejo share what new GI providers should master early, like the fundamentals of GI bleeding, pancreatitis, and cirrhosis, plus why conferences help translate “fire hose” learning into real clinic confidence. Then Hana Svejdova and Stacey Collins take us into the future of gastroenterology: career development for APPs, why long-term steroids are no longer acceptable as a default IBD strategy, how supplement safety and tools like LiverTox fit into patient education, and how dietitians and gut-brain providers belong on the IBD team.  If you care about inflammatory bowel disease, IBS, nutrition science, and practical GI care that respects real life, hit subscribe, share this with a friend, and leave a rating or review so more people can find the show. Links:  Find Hana's practice in Corpus ChristiFollow Stacey on InstagramLearn more about FOCUS GILet's get social!! Follow us on Instagram! Follow us on Facebook! Follow us on Twitter!

  3. 30 Sept

    VEO-IBD Breakthroughs with Dr. Scott B. Snapper

    Send us Fan Mail Crohn’s disease and ulcerative colitis already feel complicated, but when IBD shows up in a baby or a preschooler, the rules can change fast. We’re joined by Dr. Scott B. Snapper, a leader in pediatric and adult IBD research from Boston Children's Hospital, to unpack very early onset IBD (VEO-IBD) and why some of these cases are driven by single-gene immune disorders rather than the “usual” mix of risks we talk about in inflammatory bowel disease. We get into how Dr. Snapper's work with immune deficiency and mouse models helped reveal clear cause-and-effect pathways, and why that matters for real treatment choices. If a child has IL-10 receptor deficiency, standard IBD medications like anti-TNF therapy may not work, and bone marrow transplant can be curative. We also talk about what happens when transplant isn’t possible right away, including the promise of targeted options like IL-1 blockade, and why certain immune defects respond to very specific therapies. Along the way, we zoom out to the big goal in IBD care: fewer rounds of trial and error, more precision medicine guided by biomarkers from blood, stool, and biopsies. We also dig into whole exome sequencing, insurance realities, and the ethics of genetic information, including the very real fear of future discrimination. Finally, Scott shares how the VEO-IBD Consortium grew into a global resource for clinicians and families through veoibd.org, and why he’s genuinely optimistic about the future of IBD therapy, including better tools for pain and gut-brain symptoms. Subscribe for more real talk about IBD, share this with someone who needs hope, and please leave a rating and review so more patients and caregivers can find the show. VEO-IBD ConsortiumDr. Snapper won the Sherman Prize last yearVEO-IBD Information from Boston Children's HospitalVEO-IBD Information from the Crohn's & Colitis Foundation- USALet's get social!! Follow us on Instagram! Follow us on Facebook! Follow us on Twitter!

  4. 16 Sept

    No Guts All Glory with Andrea and Dusty Sibley

    Send us Fan Mail Watching your partner lose their health in real time changes everything and it can happen faster than most people realize. We’re joined by Andrea and Dusty Sibley, who take us from the confusion of early symptoms and ER misdiagnoses to a full colectomy, ostomy life, and the J-pouch surgery path that finally got Dusty back to living the life he wants. Along the way, we talk about the weird moments that stick with you, like being told you “look like you’re dying” when you’re actually healing, or having to use a motorized grocery cart in your 40s because your body simply can’t do more yet. Andrea shares what doesn’t get asked often enough: what it’s like to be the caregiver. We dig into the vows you don’t think about until you’re living them, the nurse-patient dynamic that can take over a marriage, parenting during long hospital stays, and the quiet trauma that caregivers carry while telling themselves they shouldn’t feel that way. Dusty opens up about one of the scariest parts of his hospitalization: blood transfusions, why they felt terrifying at first, and how they became a turning point when his energy and color finally came back. Their story also explains why they started No Guts All Glory, a nonprofit supporting people with Crohn’s disease, ulcerative colitis, and colon cancer through care packages for the hospital-to-home transition, plus kid-friendly ostomy bears and books that help families talk about what’s happening. If you’re searching for real talk on IBD, ostomy surgery, J-pouch recovery, colonoscopy fears, and invisible illness, this conversation brings both the hard truth and the hope. Subscribe, share, and leave a review, then tell us what part of their journey hit closest to home. Links:  No Guts All Glory websiteNo Guts All Glory: Stories of Strength podcast- SpotifyNo Guts All Glory InstagramLet's get social!! Follow us on Instagram! Follow us on Facebook! Follow us on Twitter!

  5. 2 Sept

    Live from FOCUS GI- A GI Nurse And A Young Patient Show How IBD Can Still Be A Full Life

    Send us Fan Mail An 11-year-old looks a microphone in the face and calmly explains ulcerative colitis, colonoscopies, and anxiety like it’s a skill she’s been training for. Penny joins us live to share what diagnosis felt like in fourth grade, what she’s learned about still living a full life, and why the prep can be harder than the procedure. Her honesty about nausea, fear of vomiting, and the way anxious thoughts snowball will sound painfully familiar to a lot of people with inflammatory bowel disease. We’re also joined by Penny’s mom, Sonia, a registered dietitian with digestive health training and an eating disorder specialty. We talk about food labels, restaurant unknowns, and finding a healthy balance that protects both the gut and the mind. Sonia shares what it’s like to be both a clinician and a parent, how mental health support helps, and what it took to advocate for the right testing and the right IBD specialist. Then, still live from the Focus GI conference, we sit down with Grishelda and Rony Valme. Roni is a GI nurse, a creative on the conference media team, and an IBD patient himself. He tells his diagnosis story, breaks down how urgency reshapes travel, and gives the most practical “where do I go” bathroom advice you’ll hear all week. We also dig into a message every new GI provider needs: believe patients, even when scopes and labs don’t match the symptoms. If you want real-world ulcerative colitis and Crohn’s disease coping strategies, patient-to-provider empathy, and practical IBD travel tips, hit play. Subscribe, leave a review, and share this with someone who needs to feel less alone. Links:  FOCUS GIRony and Grishelda Valme's business!- Valme Photography and DesignSonia's practice- Colibri Nutrition TherapyLet's get social!! Follow us on Instagram! Follow us on Facebook! Follow us on Twitter!

  6. 19 Aug

    FOCUS GI In Action

    Send us Fan Mail A Saturday training that changes how you practice on Monday is rare, and that’s exactly what FOCUS GI is designed to do. We recorded live from the event with Dr. Anish Patel, the nonprofit founder behind FOCUS GI, plus Dr. Richa Shukla (course director) and Dr. Kevin Pak (hepatologist) to talk about what happens when medical education is built for real clinic decisions, not ego or noise. We get into why the program started in Central Texas, how it grew from a small local idea into a hybrid event serving GI fellows and advanced practice providers across states and even countries, and what “clinically oriented” really means in practice. You’ll hear how the team chooses speakers, updates topics, and protects hands-on learning, especially for first-year GI fellows facing a steep learning curve and nonstop consult questions. We also unpack how the APP and fellow track serves different needs while strengthening the same GI care team. Then we go deeper into the human side of IBD care: hope and trust. Dr. Patel explains why “hope” is the point of provider education, while “trust” is the skill that makes treatment partnerships work, especially when patients have normalized symptoms for years. We also tackle misinformation head-on, including the growing role of social media influencers in shaping IBD myths. Along the way, Dr. Pak shares why accurate FibroScan interpretation matters and how misreads can send patients down the wrong clinical pathway, and Dr. Shukla reflects on patient education around medication risks and how to talk about scary side-effect lists with real numbers and context. Subscribe for more live conversations from FOCUS GI, and if this helped you, please share it with a colleague or friend and leave a review so more patients and providers can find it. Links:  FOCUS GI websiteDr. Richa ShuklaFOCUS GI's Facebook pageLet's get social!! Follow us on Instagram! Follow us on Facebook! Follow us on Twitter!

  7. 5 Aug

    Crohn’s Diagnosis After Years Of “Normal” Tests- Dr. Matthew J. Simpson

    Send us Fan Mail A colonoscopy that comes back normal can feel like relief, until your body keeps proving something is wrong. We sit down with Dr. Matthew J. Simpson, a family medicine physician in North Carolina, to unpack how he lived with Crohn’s disease symptoms for years without a clear diagnosis, and why a perianal fistula finally forced the medical system to see the full picture. If you’ve ever been told your labs look fine while you’re dealing with bleeding, urgency, fatigue, or weight loss, you’ll hear your reality reflected back with empathy and precision.  We talk about what it’s like to chase answers while living outside a major medical hub: limited local gastroenterology options, slow referral pipelines, insurance approvals, and fragmented care between GI, colorectal surgery, and imaging. Matthew walks us through the flex sig, MRI findings, and the moment he realized he needed an IBD specialty clinic and an academic medical center approach. His story is a clear reminder that “not unreasonable” care can still be the wrong pace when your health is sliding.  Then we get practical. Matthew explains perianal fistulas in plain language, what a fistulotomy does (and does not do), and why healing often requires treating the underlying Crohn’s inflammation. We also dig into shared decision making for Crohn’s medications, including how he weighed biologic options, risk communication, and the added complexity of carrying a BRCA2 gene mutation. Along the way, we challenge overreliance on single tests like fecal calprotectin and zoom out to the bigger point: algorithms are helpful, but they are not your lived experience.  If this conversation helps you feel less alone, please subscribe, share it with someone navigating IBD, and leave a review so more people can find the show. Links:  What is anorectal manometry?- Cleveland ClinicFistulotomy- Cleveland ClinicLet's get social!! Follow us on Instagram! Follow us on Facebook! Follow us on Twitter!

  8. 22 Jul

    Old Fashioneds with Deadly Cherries and a Plan To Improve IBD Patient Care with Dr. Corey Siegel

    Send us Fan Mail The fastest way to improve IBD outcomes is not always a new drug. Sometimes it’s a better system and a team that can actually reach you before you end up in crisis. We’re joined by Dr. Corey Siegel, a renowned gastroenterologist and IBD specialist at Dartmouth Hitchcock Medical Center, to unpack what “high-quality inflammatory bowel disease care” looks like when you measure it, stress-test it, and rebuild it around real patient needs. We talk through IBD Qorus, the Crohn’s and Colitis Foundation quality improvement program that defines key standards for Crohn’s disease and ulcerative colitis care and then tracks whether clinics meet them. That leads to a practical, patient-first goal: keeping people out of the emergency department by creating urgent clinic access, proactively supporting high-risk patients, and using better visit workflows that start with the patient’s top concern. These aren’t flashy changes, but they reduce prednisone use, unnecessary CT scans, opioid exposure, and the emotional toll of feeling unheard. Then we zoom out to rural healthcare and specialty access. Dr. Siegel explains RADIUS, a telemedicine “hub-and-spoke” model where community practices connect patients early to a full multidisciplinary IBD team, including behavioral health, nutrition, pharmacy support, and nursing coordination. We also get real about treat-to-target, why symptoms can mislead, and how insurance barriers like prior authorization and step therapy can delay the right biologic or advanced therapy for months. If you want smarter, more human IBD care and concrete ideas you can advocate for, hit play now. After you listen, subscribe, share with a friend, and leave a review so more patients can find these conversations. Links:  Dr. Siegel's podcast- Digesting: The Latest in IBD- apple podcastsSpotify optionInformation on IBD Qorus- Crohn's & Colitis Foundation Information about the BRIDGe GroupLet's get social!! Follow us on Instagram! Follow us on Facebook! Follow us on Twitter!

About

Real talk about the realities of IBD...On the rocks! Hosts Robin and Alicia interview people living with Crohn's disease, ulcerative colitis, or indeterminate colitis (collectively knows as Inflammatory Bowel Diseases or IBD) and the medical providers who care for our community. Join us to meet people affected by IBD- we laugh, we cry, we learn new things, we hear inspiring stories, and we share a drink. 

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