Hydro Heroes Unite

Taisha Cameron
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Hydro Heroes Unite is a podcast for parents and caregivers of children with hydrocephalus. Hosted by Taisha Cameron, Season One shares stories from families navigating pediatric hydrocephalus and insights from medical professionals. New episodes every other Wednesday.  Created in partnership with the Hydrocephalus Association. 

  1. 2 Sept

    Brotherhood & Bravery: Josh and Jake's Hydrocephalus Story

    Send us Fan Mail Today I share parts of my conversation with twin brothers, Josh and Jake. Josh has hydrocephalus and Jake doesn't. We talk about what can be challenging, what brings them joy and being brave. I also got the opportunity to speak with their mom, Emily, about things she's learned caring for a loved one with hydrocephalus.  Resources connected to today's episode: Hydrocephalus Awareness Month Shunt System Complications of Shunt Systems Shunt Revision Surgery: What to Expect During Surgery and Recovery Shunt Malfunction: Frequently Asked Questions School and Hydrocephalus Newly Diagnosed Hydrocephalus Resource Library RAISE Resilience Program Community Networks (Support Groups) HydrocephalusCONNECT (Peer Support Program) WALK to End Hydrocephalus Learn more about hydrocephalus: https://www.hydroassoc.org Request a Hydro Hero shoutout on the show: https://bit.ly/hydroheroform Follow on Instagram: @taishaycameron, @hydroassoc

  2. 19 Aug

    Navigating IEP and 504 Plans with Education Law Attorney Ashley VanCleef

    Send us Fan Mail Not sure what an IEP or 504 plan is or if your child needs one? Today on Hydro Heroes Unite education law attorney Ashley VanCleef joins me to break down IEP's and 504 plans for adolescents living with hydrocephalus. We talk about what the plans are, how to start the process, and what to be mindful of along the way. Ashley also shares the legal steps to take when things aren’t working and how to help teens begin advocating for themselves during their own IEP meetings.  HA Resource Links: Request a Hydro Hero shoutout on the show (If we're including again) School and Hydrocephalus IEP Strategies and Dealing with the School System Session with Dr. Zabel and Ashley VanCleef Downloadable Teachers’ Guides  Individualized Education Program (IEP): Communication Skills for Parents Learning Disabilities in Children with Hydrocephalus Middle School with Hydrocephalus: Smart Preparation Mastering the High School Transition with Hydrocephalus   COPAA  National Conference on Hydrocephalus, HA CONNECT  Search HA's Hydrocephalus Resource Library Hydrocephalus Resources Learn more about hydrocephalus: https://www.hydroassoc.org Request a Hydro Hero shoutout on the show: https://bit.ly/hydroheroform Follow on Instagram: @taishaycameron, @hydroassoc

  3. 5 Aug

    Mental Health and Hydrocephalus with Pediatric Psychologist Dr. Elizabeth McRae

    Send us Fan Mail Pediatric psychologist Dr. Elizabeth McRae returns to the show after her Season 1 conversation on caregiver resilience and advocacy. Today I'll be sharing parts of our conversation about mental health in adolescents living with hydrocephalus. We explore how anxiety, depression, school stress, and chronic symptoms shape daily life for teens, and how families can support emotional well‑being and self‑advocacy. I'm grateful to have her back to share her knowledge and heart with the community.  Start Here: Mental Health & Emotional Well-Being Emotional Well-Being https://www.hydroassoc.org/emotional-well-being/Understanding Anxiety, Depression, and Mental Health in Hydrocephalus https://www.hydroassoc.org/understanding-anxiety-depression-and-mental-health-in-hydrocephalus/Overcoming Emotional Struggles and Building Resilience https://www.hydroassoc.org/emotional-struggles-and-resilience/Mindfulness for Hydrocephalus: Tools to Manage Stress https://www.hydroassoc.org/mindfulness-for-hydrocephalus/For Teens and Young Adults Resources for Teens and Young Adults https://www.hydroassoc.org/teen-young-adult-hydrocephalus-resources/Helping Teens Navigate Social Dynamics and Build Confidence https://www.hydroassoc.org/teens-navigate-social-dynamics/How to Explain Hydrocephalus to Your Teachers and Friends https://www.hydroassoc.org/explaining-hydrocephalus-to-teachers-friends/Monthly Teen Online Hangout When: 1st Sunday of the month https://www.hydroassoc.org/find-a-community-network/For Parents and Caregivers Self-Care is Not a Luxury, it's a Responsibility: Advocacy & Resilience with Pediatric Psychologist Dr. Elizabeth McRae Resources for Parents https://www.hydroassoc.org/parent-hydrocephalus-resources/Empowering Your Child to Be Their Own Advocate: Navigating Healthcare with Confidence https://www.hydroassoc.org/empowering-your-child/Our Shared Journey: Parent Support Group When: 2nd Monday, Quarterly https://www.hydroassoc.org/find-a-community-network/Daily Life, Balance, and Self-Care Wellness & Self-Care https://www.hydroassoc.org/wellness-self-care/Balancing Life with Hydrocephalus: Key Strategies for Success https://www.hydroassoc.org/balancing-life-with-hydrocephalus/Understanding Symptoms and Related Health Conditions Complications of Shunt Systems https://www.hydroassoc.org/complications-of-shunt-systems/Headaches and Hydrocephalus https://www.hydroassoc.org/headaches-and-hydrocephalus/Precocious Puberty and Hydrocephalus: Helpful Insights https://www.hydroassoc.org/precocious-puberty-and-hydrocephalus/Related Health Conditions https://www.hydroassoc.org/related-health-conditions/Community and Connection Peer Support Program: HydrocephalusCONNECThttps://www.hydroassoc.org/hydrocephalusconnect-peer-support/19th National Conference on Hydrocephalus, HA CONNECT (July 23–25, Indianapolis, IN) https://hydrocephalusconference.org/WALK to End Hydrocephalus https://www.hydroassoc.org/find-a-walk-near-you/Explore All Resources Hydrocephalus Resources https://www.hydroassoc.org/resources/Hydrocephalus Resource Library https://www.hydroassoc.org/hydrocephalus-library/Support Tools for Younger Audiences A Helpful Companion for Learning at Home: Order My Hydro Bear https://www.hydroassoc.org/my-hydro-bear/ Learn more about hydrocephalus: https://www.hydroassoc.org Request a Hydro Hero shoutout on the show: https://bit.ly/hydroheroform Follow on Instagram: @taishaycameron, @hydroassoc

  4. 22 Jul

    School Life, Growing Confidence, and Becoming More Independent: Camille's Hydro Journey

    Send us Fan Mail Today I’ll be sharing parts of my conversation with Camille, a 15-year-old high schooler who loves musical theater, singing and writing and was diagnosed with hydrocephalus when she was ten years old. Camille is our first brave adolescent voice this season speaking out in her own words about her experience living with hydrocephalus.  HA Resources: Request a Hydro Hero shoutout on the show Hydrocephalus in Infants and Children Headaches and Hydrocephalus Headaches and Hydrocephalus: Causes and Types Explained Guide to Managing Chronic Pain, Headaches, and Hydrocephalus Adult Ask the Expert Series: Headaches and Hydrocephalus I Can Relate Video Series: Headaches I Can Relate Video Series: Types of Headaches Shunt Systems What to Expect with Hydrocephalus Shunt Surgery High School and Hydrocephalus Hydrocephalus in High School: Coping with Chronic Pain Health Challenges and School I Can Relate Video Series: After Brain Surgery, Do You Hide or Show Off Your Scars? I Can Relate Video Series: Do You Share Your Scars? Body Image and Scars: Living with Hydrocephalus I Can Relate Video Series: What Subjects do you Find Difficult in School? I Can Relate Video Series: Who do you tell that you have Hydrocephalus? I Can Relate Video Series: Who Do You Share Your Condition With? I Can Relate Video Series: How Do You Tell Your School About Your Condition? How to Explain Hydrocephalus to Your Teachers and Friends I Can Relate Video Series: Do You Feel Your Parents Are Overprotective? I Can Relate Video Series: Are you Getting your Driver’s License? Driving and Hydrocephalus Strategies for Coping with Memory Issues and Forgetfulness Community Networks (Support Groups) Learn more about hydrocephalus: https://www.hydroassoc.org Request a Hydro Hero shoutout on the show: https://bit.ly/hydroheroform Follow on Instagram: @taishaycameron, @hydroassoc

  5. 8 Jul

    School, Advocacy, and Supporting Independence: Raising a Teen with Hydrocephalus

    Send us Fan Mail I sit down to talk with LaShonda, a mom of teen daughter Camille who was diagnosed with hydrocephalus at ten years old. We discuss their family's experience receiving the diagnosis, school experiences, advocacy and the challenges of supporting independence in a teenager living with a complex medical condition like hydrocephalus.  National Conference on Hydrocephalus, HA CONNECT  Request a Hydro Hero shoutout on the show Hydrocephalus in Infants and Children Congenital Hydrocephalus: Dandy-Walker syndrome Headaches and Hydrocephalus Shunt Systems School and Hydrocephalus Health Challenges and School Shunt Revision Surgery: What to Expect During Surgery and Recovery Exercise and Hydrocephalus: Stay Safe and Active Staying Active and Hydrocephalus: Consensus Statements on Physical Activities Teachers' Guide How to Explain Hydrocephalus to Your Teachers and Friends Middle School with Hydrocephalus: Smart Preparation Individualized Education Program (IEP): Communication Skills for Parents Helping Teens Navigate Social Dynamics and Build Confidence High School and Hydrocephalus  Complications of a Shunt System Understanding a Shuntogram (Shunt Patency Study) Traveling with Hydrocephalus Search HA's Hydrocephalus Resource Library Hydrocephalus Resources Community Networks (Support Groups) WALK to End Hydrocephalus Peer Support, HydrocephalusCONNECT The Hydrocephalus Association's RAISE Resilience Program Learn more about hydrocephalus: https://www.hydroassoc.org Request a Hydro Hero shoutout on the show: https://bit.ly/hydroheroform Follow on Instagram: @taishaycameron, @hydroassoc

  6. 24 Jun

    Understanding the Adolescent Brain & Hydrocephalus with neuropsychologist Dr. Andy Zabel

    Send us Fan Mail Season 2 is all about the adolescent stage of hydrocephalus. To kick things off, Dr. Andy Zabel shares his insights as a neuropsychologist on brain development during this stage of life. We sat down to discuss executive functioning, when parents should consider a neuropsych evaluation, the impact of relationships and technology, and much more.  For more resources connected to this conversation please see the links below:  Practical Tips and Tools for Dealing with Memory and Executive Function Challenges Neuropsychology 101: Understanding Cognitive Function in Hydrocephalus Hydrocephalus and it’s Impact on Cognitive Development and Education Essential Guide: Developmental Milestones in Hydrocephalus  Grey is the New White? Not in the brain! Signs and Symptoms of a Shunt Complication Types and causes of hydrocephalus  Learning Disabilities in Children with Hydrocephalus Podcast: Helping Children with Hydrocephalus Thrive with Neuropsychologist Dr. Jennifer Queally IEP Strategies and Dealing with the School System Session with Dr. Zabel and Ashley VanCleef School and Hydrocephalus Middle School with Hydrocephalus: Smart Preparation Individualized Education Program (IEP): Communication Skills for Parents Driving and Hydrocephalus Does hydrocephalus have an impact on one’s ability to drive? National Conference on Hydrocephalus, HA CONNECT  Search HA's Hydrocephalus Resource Library Hydrocephalus Resources HA's Medical Advisory Board Learn more about hydrocephalus: https://www.hydroassoc.org Request a Hydro Hero shoutout on the show: https://bit.ly/hydroheroform Follow on Instagram: @taishaycameron, @hydroassoc

  7. Season 2 Trailer

    Season 2 Trailer: The Adolescent Stage of Hydrocephalus

    Send us Fan Mail June 24th we kick off season 2 of Hydro Heroes Unite. This season is all about the adolescent stage of hydrocephalus. We'll discuss brain development, mental health, IEP & 504, and living an active life with medical experts and professionals who dedicate their careers to helping kids and families thrive. And the best part, we'll hear from kids and teens living with hydrocephalus about their unique lived experience. Follow the show on your listening app of choice so you never miss an episode.   Learn more about hydrocephalus: https://www.hydroassoc.org Request a Hydro Hero shoutout on the show: https://bit.ly/hydroheroform Follow on Instagram: @taishaycameron, @hydroassoc

  8. 29/10/2025

    Dancing in the Rain: Scott + Angelica’s Story of Hope + Healing

    Send us Fan Mail In this final episode of Season One, I bring it home (literally) and share parts of my conversation with my husband Scott as he opens up about his perspective through Angelica’s hydrocephalus and Dandy-Walker diagnosis. Scott opens up about: The shock of receiving a diagnosis during pregnancyNavigating NICU life, Hurricane Maria and unexpected PICU transfersFinding humor in hard places Advocating as a caregiver and trusting your gut (and your partners)How resilience forms slowly, moment by momentThis episode is funny, heartfelt, and deeply hopeful. Sometimes, the most powerful form of resilience is learning to smile, laugh, and eventually dance in the rain. It's a tribute to caregivers, partners, and every family who has ever weathered a storm together. If this season moved you, please share the episode or leave a review to help more hydro families feel seen and supported. Resources:  Hydrocephalus Association RAISE Resilience Program: https://www.hydroassoc.org/raise-resilience-program/ Caring for the Caregiver: How to Recognize, Prevent, and Manage Burnout: https://www.hydroassoc.org/caring-for-the-caregiver/ Support Groups: https://www.hydroassoc.org/find-a-community-network/ Mindfulness for Hydrocephalus: Tools to Manage Stress: https://www.hydroassoc.org/mindfulness-for-hydrocephalus/ Resource for Parents: https://www.hydroassoc.org/parent-hydrocephalus-resources/ Hydrocephalus CONNECT Peer Support: https://www.hydroassoc.org/hydrocephalusconnect-peer-support/ Congenital Hydrocephalus: https://www.hydroassoc.org/congenital-hydrocephalus/ Easily Explain Hydrocephalus to a Child with Confidence: https://www.hydroassoc.org/how-to-explain-hydrocephalus-to-a-child/ Complications of a shunt system: https://www.hydroassoc.org/complications-of-shunt-systems/ Shunt Malfunction: Frequently Asked Questions: https://www.hydroassoc.org/shunt-malfunctions-frequently-asked-questions/ Your Healthcare Team: https://www.hydroassoc.org/your-healthcare-team-2/ Hydrocephalus Resources: https://www.hydroassoc.org/parent-hydrocephalus-resources/ WALK to End Hydrocephalus: https://www.hydroassoc.org/find-a-walk-near-you/ Learn more about hydrocephalus: https://www.hydroassoc.org Request a Hydro Hero shoutout on the show: https://bit.ly/hydroheroform Follow on Instagram: @taishaycameron, @hydroassoc

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About

Hydro Heroes Unite is a podcast for parents and caregivers of children with hydrocephalus. Hosted by Taisha Cameron, Season One shares stories from families navigating pediatric hydrocephalus and insights from medical professionals. New episodes every other Wednesday.  Created in partnership with the Hydrocephalus Association. 

Information

  • Creator
    Taisha Cameron
  • Years Active
    2025 - 2026
  • Episodes
    16
  • Rating
    Explicit
  • Copyright
    © 2026 Hydro Heroes Unite
  • Show Website
    Hydro Heroes Unite