100 episodes

BloodStream is an entertaining and informational podcast for the bleeding disorders community. Each week, hemophilia patient Patrick James Lynch and former non-profit director Amy Board are joined by advocacy leaders, medical experts, and other guests to discuss the latest news, scientific advancements, policy initiatives, and so much more. Subscribe wherever you listen, or search BloodStream Podcast on YouTube to catch every episode there. Produced by Believe Limited. Presenting sponsor: Takeda.

BloodStrea‪m‬ BloodStream Media

    • Mental Health
    • 5.0 • 31 Ratings

BloodStream is an entertaining and informational podcast for the bleeding disorders community. Each week, hemophilia patient Patrick James Lynch and former non-profit director Amy Board are joined by advocacy leaders, medical experts, and other guests to discuss the latest news, scientific advancements, policy initiatives, and so much more. Subscribe wherever you listen, or search BloodStream Podcast on YouTube to catch every episode there. Produced by Believe Limited. Presenting sponsor: Takeda.

    Doug Kerr from Generation Bio on Investigative Non-Viral Gene Therapy and More!

    Doug Kerr from Generation Bio on Investigative Non-Viral Gene Therapy and More!

    We introduce Doug Kerr to the community! Doug is the chief medical officer at Generation Bio, the company investigating non-viral gene therapy. Listen in to learn more about this fascinating science AND Jessica Richmond, co-host of FLOW, will join us to share a preview of her conversation with Dr. Paula James, hematologist, and founder of Let’s Talk Period during the March FLOW episode. A great listen!
     
    Program Notes: 
    Check out Generation Bio: https://generationbio.com/ 
    Subscribe/listen to FLOW, straight talk about extreme periods: https://www.bloodstreammedia.com/shows/flow 
    Let’s Talk Period: https://letstalkperiod.ca/ 
    Follow Amy on Instagram
    Follow Jessica on Instagram

    • 32 min
    A Moment for Isolation - With Joshua Sterling Bragg and Debbie De La Riva

    A Moment for Isolation - With Joshua Sterling Bragg and Debbie De La Riva

    During Bleeding Disorders Awareness Month, Thursdays are all about Mental Health. Join BloodStream producer and Creative Director at Believe Limited Joshua Sterling Bragg as he takes a moment for isolation. And it wouldn’t really be a mental health moment without our dear friend Debbie De La Riva to guide us through. Happy Thursday. 
     
    Mental Health Resources: 
    Workbooks: https://www.newharbinger.com/ 
    Debbie’s Website: MentalHealthMatterstoo.com 
    NHF’s Steps for Living: https://stepsforliving.hemophilia.org/
    HFA’s Learning Central: https://www.hemophiliafed.org/the-institute/ 
    Let’s Talk - Mental Health: https://letstalkmh.com/resources 
     
    Learn more about how you can get involved during Bleeding Disorder Awareness Month with NHF: https://www.hemophilia.org/give/join-us/bleeding-disorders-awareness-month
    Show your pride for Bleeding Disorders Awareness Month with these resources from HFA: https://www.hemophiliafed.org/for-patient-families/meetings-events/bleeding-disorders-awareness-month/ 

    • 21 min
    All About vWD

    All About vWD

    von Willebrand’s disease is the most common bleeding disorder, but did you know it still remains mostly a mystery? Listen in with Patrick as he provides a great overview on vWD, the tricky diagnosis process, the science behind it, and treatment options for those affected. Bleeding Disorders Awareness Month celebrates our fellow vWD bleeders too! Check it out to learn more!
     
    Program Notes:
    All About VWD from NHF: https://www.hemophilia.org/bleeding-disorders-a-z/types/von-willebrand-disease 
    CDC on vWD: https://www.cdc.gov/ncbddd/vwd/ 
    Newly released vWD Guidelines: https://www.hematology.org/education/clinicians/guidelines-and-quality-care/clinical-practice-guidelines/von-willebrand-disease 
     
    Learn more about how you can get involved during Bleeding Disorder Awareness Month with NHF: https://www.hemophilia.org/give/join-us/bleeding-disorders-awareness-month
    Show your pride for Bleeding Disorders Awareness Month with these resources from HFA: https://www.hemophiliafed.org/for-patient-families/meetings-events/bleeding-disorders-awareness-month/ 

    • 9 min
    So, what is hemophilia?

    So, what is hemophilia?

    Do you want to know the basics of hemophilia, or do you have a friend or family member that could use an overview? Bloodstream has you covered! Join us for this special episode, in celebration of Bleeding Disorders Awareness Month, as Patrick gives us the basics on Hemophilia A and B, treatment history, and HTC’s. 
     
    Program Notes:
    Brush up on your Hemophilia Skills with NHF: https://www.hemophilia.org/bleeding-disorders-a-z 
    CDC on Hemophilia: https://www.cdc.gov/ncbddd/hemophilia/
     
    Learn more about how you can get involved during Bleeding Disorder Awareness Month with NHF: https://www.hemophilia.org/give/join-us/bleeding-disorders-awareness-month
    Show your pride for Bleeding Disorders Awareness Month with these resources from HFA: https://www.hemophiliafed.org/for-patient-families/meetings-events/bleeding-disorders-awareness-month/ 

    • 9 min
    What is Bleeding Disorder Awareness Month?

    What is Bleeding Disorder Awareness Month?

    To celebrate Bleeding Disorders Awareness Month, BloodStream is releasing daily episodes full of stories, history, and the people that make our community special. Start here with our first special episode as Patrick gives us the history behind Bleeding Disorders Awareness Month and the advocacy work it took, over decades, to become a reality. 
     
    Program Notes:
    Learn more about how you can get involved during Bleeding Disorder Awareness Month with NHF: https://www.hemophilia.org/give/join-us/bleeding-disorders-awareness-month
    Show your pride for Bleeding Disorders Awareness Month with these resources from HFA: https://www.hemophiliafed.org/for-patient-families/meetings-events/bleeding-disorders-awareness-month/ 

    • 5 min
    A Fitusiran Clinical Trial Update and Nikole Scappe Co-Wrote A Book!

    A Fitusiran Clinical Trial Update and Nikole Scappe Co-Wrote A Book!

    We Show Our Stripes for Rare Disease Day by welcoming NHF Education Specialist, Teen Impact Awards Host, and all-around wonderful advocate, Nikole Scappe to discuss her new book for rare bleeding disorders, Super Seven! Also, Amy shares a press release from NHF, WFH, and EHC on the recent Fitusiran clinical trial updates. A can’t miss episode of BloodStream!
     
    Program Notes: 
    Register for the Super Seven Launch Party: https://www.hemophilia.org/events/nhf-book-launch-party 
    Fitusiran Press Release: https://www.hemophilia.org/news/sanofi-revises-fitusiran-dosing-regimen-to-mitigate-risk-of-vascular-thrombosis 
    Show Your Stripes For Rare Disease Day with NORD: https://rarediseases.org/rare-disease-day/ 

    • 24 min

Customer Reviews

5.0 out of 5
31 Ratings

31 Ratings

Anthony "The Puma" ,

Great Listen!

Excellent podcast, super informative, and bursting with personality!

Wahnaaaay ,

What this community needed!

So smart, informative and enjoyable!

MK959 ,

Informative

An excellent way to keep up with national news related to the bleeding disorders community. Super engaging and informative: not too long either!

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