Ask The Expert Presents Hemophilia on Balance

BloodStream Media
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Ask The Expert from BloodStream Media is a podcast series features hematologists and other healthcare experts answering listener-submitted questions about hemophilia, von willebrand disease, and other inherited bleeding disorders. Learn more at BloodStreamMedia.com. The content contained within Ask The Expert is for informational purposes only. Please consult your health care provider before making any decisions about treatment.

  1. Future Flow – Research & What's Next in Hemostasis

    NOV 24

    Future Flow – Research & What's Next in Hemostasis

    In this episode of Ask the Expert, Amy B. dives into the future flow of hemostasis research, exploring the cutting-edge therapies shaping bleeding disorder care. Join Drs. Patrick Ellsworth, Janice Staber, and Ben Samelson-Jones as they break down rebalancing agents, RNA therapies, and patient-driven discoveries that are guiding smarter, more precise treatment. From understanding the coagulation cascade to creating new pathways for clotting, we explore what's next in research and how these innovations are transforming lives. Presenting Sponsor: Presented by Sanofi   Show Notes:   Mark's Story Join Mark as he shares about his experience living with hemophilia, including the impact it had on building and maintaining relationships throughout grade school, college, dating, and raising his family. Mark also highlights how shared decision making with his healthcare providers, and strong family and caregiver support in those decisions, can make all the difference when it comes to managing the daily challenges of hemophilia.   Click here to watch his story: https://www.youtube.com/watch?v=tQ8oeM0zL24&list=PLmqBxf22n4lPMpAfLe4yv8haC6Ejcp1XL&index=8   #MyHemophiliaTruth. Real stories. Powered by Sanofi. It's time to consider the whole experience when it comes to managing hemophilia and change the conversation. Explore the full story at www.myhemophiliatruth.com   Ask the Expert is produced by Believe Limited, and is found only on the BloodStream Media Podcast Network.  Did you know BloodStreamMedia.com is your one-stop shop for all podcasts for the bleeding disorders and rare disease community?    → BloodStreamMedia.com → BloodStream Media on Facebook  → BloodStream Media on Instagram  → BloodStream Media on LinkedIn

    20 min
  2. The Rare Factor – Deficiencies & Re-Balancing Strategies

    OCT 27

    The Rare Factor – Deficiencies & Re-Balancing Strategies

    Join host Amy Board as we continue to dive into the evolving world of bleeding disorder treatments. This episode of Ask the Expert explores how emerging therapies—like rebalancing and non-factor agents—are tested, monitored, and kept safe. With insights from Drs. Mark Redding, Janice Stabler, and Tammy Singleton, we break down the complexities of dosing, breakthrough bleeds, and surgical planning, showing why safety checks and open communication with your care team are more critical than ever. Learn how these therapies fine-tune the clotting system without replacing missing factors and why staying informed is key to confident, safe care. Ask the Expert is produced by Believe Limited, and is found only on the BloodStream Media Podcast Network. Presented by Sanofi #MyHemophiliaTruth. Real stories. Powered by Sanofi. It's time to consider the whole experience when it comes to managing hemophilia and change the conversation. Explore the full story at www.myhemophiliatruth.com The Bigger Picture in Hemophilia B:  Hemophilia A and hemophilia B are different bleeding disorders with unique pathologies and clinical features.1 Due to the distinct behavior of factor IX, multiple PK parameters should be considered when assessing bleed prevention. Learn how a broader view of PK may influence evaluation of treatment and management for patients with hemophilia B.2,3 Learn more at thebiggerpictureinhemb.com   Did you know BloodStreamMedia.com is your one-stop shop for all podcasts for the bleeding disorders and rare disease community?  → BloodStreamMedia.com → BloodStream Media on Facebook  → BloodStream Media on Instagram  → BloodStream Media on LinkedIn

    23 min
  3. Women and Clotting - What You Need to Know

    SEP 29

    Women and Clotting - What You Need to Know

    In this episode of Ask the Expert, we focus on women with bleeding disorders — a group that has historically been overlooked in research and clinical care. Heavy menstrual bleeding, mild and moderate hemophilia, and von Willebrand disease have often gone underdiagnosed or mischaracterized, leaving many women without the care they need. Amy Board sits down with leading hematology experts to discuss emerging therapies, including replacement and rebalancing agents, the science behind how they work, and why representation in clinical trials matters. We also explore the challenges women face in accessing treatment and the opportunities these new therapies provide for improving care. This episode highlights both the progress being made and the work still ahead to ensure all patients are seen, heard, and treated effectively. Presenting Sponsor: Presented by Sanofi Kevin's Story Join Kevin as he shares about his journey with hemophilia and the hurdles he faced in communicating with friends, family, and healthcare providers about his condition. He highlights how hemophilia affects far more than just physical health — and why honest, open conversations that focus on the full patient experience, not just symptoms, are so essential.   Click here to watch his story: https://www.youtube.com/watch?v=3v1cCTbhClA&list=PLmqBxf22n4lNK82h3QZ-9YlpIjYdzDOer&index=5 Sanofi's Global Hemophilia Survey uncovers significant care gaps and emotional challenges faced by patients and caregivers. Learn how improving health literacy and fostering better patient-provider communication are essential to addressing these inequities. Explore the findings and see how Sanofi is driving health equity for the hemophilia community. Explore the survey findings here: Global Hemophilia Survey Page. Show Notes:   Ask the Expert is produced by Believe Limited, and is found only on the BloodStream Media Podcast Network.   Presented by Sanofi   Subscribe to the Ask the Expert    Did you know BloodStreamMedia.com is your one-stop shop for all podcasts for the bleeding disorders and rare disease community?    → BloodStreamMedia.com → BloodStream Media on Facebook  → BloodStream Media on Instagram  → BloodStream Media on LinkedIn

    18 min
  4. Inhibitors & Rares & Re-Balancing Explained

    AUG 25

    Inhibitors & Rares & Re-Balancing Explained

    This week on Ask The Expert, the script is being flipped for patients with inhibitors and rare factor deficiencies! For years, treatment options were scarce—or even nonexistent. Now, rebalancing agents are changing the game, restoring clotting balance without relying on replacement factors. Amy is joined by Dr. Ben Samuelson Jones, Dr. Tammy Singleton, Dr. Patrick Ellsworth, and Dr. Mark Redding as they take listeners on a journey through how these groundbreaking therapies are bringing new hope to people with hemophilia B, inhibitors, and ultra-rare bleeding disorders. From inhibitors to ultra-rare conditions, this episode dives into the science, stories, and breakthroughs that are reshaping the future of bleeding disorder care. Don't miss it! Presenting Sponsor: Presented by Sanofi Join Shellye as she shares her inspiring journey as a woman living with hemophilia. After years of unanswered questions, her diagnosis highlights the critical role of health literacy in bridging care gaps. Through advocacy, Shellye raises awareness and empowers underserved communities. Watch her story and see how health literacy can break barriers and transform lives. Click here to watch her story: Sanofi – See Hemophilia Through My Eyes: Women & Girls For too long, women and girls who bleed have been dismissed. Left out of the narrative. Ignored by the system. But not anymore. In our new film, "Dismissed," meet Isabelle—a 15-year-old with hemophilia who's using her voice to uplift the unheard. Alongside her are four powerful stories of women challenging what's "normal" and demanding recognition, care, and justice. This is more than a film. It's a movement. 📽️ Watch and share the trailer now. Learn more at http://dismissedfilm.com/ Show Notes:   Ask the Expert is produced by Believe Limited, and is found only on the BloodStream Media Podcast Network.   Presented by Sanofi   Subscribe to the Ask the Expert    Did you know BloodStreamMedia.com is your one-stop shop for all podcasts for the bleeding disorders and rare disease community?    → BloodStreamMedia.com → BloodStream Media on Facebook  → BloodStream Media on Instagram  → BloodStream Media on LinkedIn

    18 min
  5. Quick Recap! Your Clotting Cheat Sheet

    JUL 28

    Quick Recap! Your Clotting Cheat Sheet

    Rev your engines and put the pedal to the metal on a wild ride through the clotting cascade! Amy Board and a pit crew of medical experts take you on an uproarious recap journey through the first six episodes, using engines, dominoes, and treasure maps to drive their points home. But hold onto your helmets—there's fresh and exciting science just around the corner. It's a thrill ride through bleeding disorder mysteries—whether you're an old pro or new on the scene, this recap episode is the perfect pit stop before the high-speed chase into new discoveries.  Presenting Sponsor: Presented by Sanofi Join Shellye as she shares her inspiring journey as a woman living with hemophilia. After years of unanswered questions, her diagnosis highlights the critical role of health literacy in bridging care gaps. Through advocacy, Shellye raises awareness and empowers underserved communities. Watch her story and see how health literacy can break barriers and transform lives. Click here to watch her story: Sanofi – See Hemophilia Through My Eyes: Women & Girls For too long, women and girls who bleed have been dismissed. Left out of the narrative. Ignored by the system. But not anymore. In our new film, "Dismissed," meet Isabelle—a 15-year-old with hemophilia who's using her voice to uplift the unheard. Alongside her are four powerful stories of women challenging what's "normal" and demanding recognition, care, and justice. This is more than a film. It's a movement. 📽️ Watch and share the trailer now. Learn more at http://dismissedfilm.com/ Show Notes: Ask the Expert is produced by Believe Limited, and is found only on the BloodStream Media Podcast Network. Presented by Sanofi  Did you know BloodStreamMedia.com is your one-stop shop for all podcasts for the bleeding disorders and rare disease community?    → BloodStreamMedia.com → BloodStream Media on Facebook  → BloodStream Media on Instagram  → BloodStream Media on LinkedIn

    21 min

  6. JUN 30

    Fixing the Scales - How Re-Balancing Agents Work

    In this episode of Ask the Experts, host Amy Board breaks down one of the most exciting developments in bleeding disorders treatment — rebalancing agents. Think of your body's clotting system like a seesaw: when everything's working right, it's balanced. But in bleeding disorders, the scale tips. Instead of adding what's missing (like clotting factors), rebalancing agents work by removing what's getting in the way — helping to restore that balance in a totally new way. Amy is joined by Dr. Ben Samuelson Jones, Dr. Patrick Ellsworth, and Dr. Tami Singleton for a deep dive into how these therapies work, how they were inspired by what's already happening naturally in the body, and what makes them so promising. From TFPI antibodies to small interfering RNA treatments like Fitusiran, these cutting-edge approaches could transform care for many. The experts also discuss the crucial role of patient participation in ongoing studies and why your voice matters in shaping the future of treatment. It's a hopeful, eye-opening conversation about how innovation is changing the game for bleeding disorders — and what comes next. Presenting Sponsor: Presented by Sanofi   For too long, women and girls who bleed have been dismissed. Left out of the narrative. Ignored by the system. But not anymore.   In our new film, "Dismissed," meet Isabelle—a 15-year-old with hemophilia who's using her voice to uplift the unheard. Alongside her are four powerful stories of women challenging what's "normal" and demanding recognition, care, and justice.   This is more than a film. It's a movement. 📽️ Watch and share the trailer now. Learn more at http://dismissedfilm.com/    Sanofi's Global Hemophilia Survey uncovers significant care gaps and emotional challenges faced by patients and caregivers. Learn how improving health literacy and fostering better patient-provider communication are essential to addressing these inequities. Explore the findings and see how Sanofi is driving health equity for the hemophilia community. Explore the survey findings here: Global Hemophilia Survey Page.   Show Notes:   Ask the Expert is produced by Believe Limited, and is found only on the BloodStream Media Podcast Network.   Presented by Sanofi   Subscribe to the Ask the Expert    Did you know BloodStreamMedia.com is your one-stop shop for all podcasts for the bleeding disorders and rare disease community?    → BloodStreamMedia.com → BloodStream Media on Facebook  → BloodStream Media on Instagram  → BloodStream Media on LinkedIn

    23 min
  7. Hemostasis and Current Treatments

    MAY 27

    Hemostasis and Current Treatments

    In this episode, Amy trades medical jargon for construction metaphors as she takes us on a journey through hemostasis, the body's natural way of stopping a bleed. But what happens when the repair crew is understaffed—or missing entirely? That's where factor replacement therapy comes in. Amy and our experts explain how it works, why timing matters, and how it helps people with bleeding disorders live safer, fuller lives. Whether you're new to the community or a longtime listener, you'll walk away with a better understanding of how the body works—and why treatment makes such a big difference.   Presenting Sponsor: Presented by Sanofi   #MyHemophiliaTruth. Real stories. Powered by Sanofi. It's time to consider the whole experience when it comes to managing hemophilia and change the conversation. Explore the full story at www.myhemophiliatruth.com The Bigger Picture in Hemophilia B:  Hemophilia A and hemophilia B are different bleeding disorders with unique pathologies and clinical features.1 Due to the distinct behavior of factor IX, multiple PK parameters should be considered when assessing bleed prevention. Learn how a broader view of PK may influence evaluation of treatment and management for patients with hemophilia B.2,3 Learn more at thebiggerpictureinhemb.com  1. Castaman G, Matino D. Haematologica. 2019;104(9):1702-1709. 2. Dolan G, Benson G, Duffy A, et al. Blood Rev. 2018;32(1):52-60.  3. Mann DM, Stafford KA, Poon M-C, Matino D, Stafford DW. Haemophilia. 2021;27(3):332-339. Show Notes: Ask the Expert is produced by Believe Limited, and is found only on the BloodStream Media Podcast Network.   Presented by Sanofi   Subscribe to the Ask the Expert    Did you know BloodStreamMedia.com is your one-stop shop for all podcasts for the bleeding disorders and rare disease community?    → BloodStreamMedia.com → BloodStream Media on Facebook  → BloodStream Media on Instagram  → BloodStream Media on LinkedIn

    16 min
  8. Pump the Brakes! – How Anti-Coagulation Works

    APR 28

    Pump the Brakes! – How Anti-Coagulation Works

    On this exciting episode of Ask the Expert, join Amy as we delve into the fascinating world of blood clotting and anticoagulant therapy. We'll explore the clotting process with fun and relatable party analogies, featuring expert insights from Dr. Ben and Dr. Patrick. Discover how vital components like Protein C, Protein S, antithrombin, and TFPI work together to maintain the body's delicate clotting balance, and learn about the latest advancements in hemophilia treatment in this engaging and educational deep dive! Presenting Sponsor: Presented by Sanofi #MyHemophiliaTruth. Real stories. Powered by Sanofi. It's time to consider the whole experience when it comes to managing hemophilia and change the conversation. Explore the full story at www.myhemophiliatruth.com Mark's Story Join Mark as he shares about his experience living with hemophilia, including the impact it had on building and maintaining relationships throughout grade school, college, dating, and raising his family. Mark also highlights how shared decision making with his healthcare providers, and strong family and caregiver support in those decisions, can make all the difference when it comes to managing the daily challenges of hemophilia. Click here to watch his story: https://www.youtube.com/watch?v=tQ8oeM0zL24&list=PLmqBxf22n4lPMpAfLe4yv8haC6Ejcp1XL&index=8   Show Notes: Ask the Expert is produced by Believe Limited, and is found only on the BloodStream Media Podcast Network. Presented by Sanofi  Did you know BloodStreamMedia.com is your one-stop shop for all podcasts for the bleeding disorders and rare disease community?  → BloodStreamMedia.com → BloodStream Media on Facebook  → BloodStream Media on Instagram  → BloodStream Media on LinkedIn

    16 min
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Ratings & Reviews

4.9
out of 5
14 Ratings

About

Ask The Expert from BloodStream Media is a podcast series features hematologists and other healthcare experts answering listener-submitted questions about hemophilia, von willebrand disease, and other inherited bleeding disorders. Learn more at BloodStreamMedia.com. The content contained within Ask The Expert is for informational purposes only. Please consult your health care provider before making any decisions about treatment.

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