127 episodes

Crohn's disease and ulcerative colitis (collectively known as inflammatory bowel disease) are about more than inflamed bowels: they affect the whole person. About IBD focuses on health and lifestyle issues important to people living with Crohn's or colitis. IBD patients, doctors, therapists, and care partners give their tips and advice on topics including diet, nutrition, treatments, mental health, family dynamics, and sexuality as it relates to living with IBD.

About IBD Amber J Tresca

    • Health & Fitness
    • 5.0 • 24 Ratings

Crohn's disease and ulcerative colitis (collectively known as inflammatory bowel disease) are about more than inflamed bowels: they affect the whole person. About IBD focuses on health and lifestyle issues important to people living with Crohn's or colitis. IBD patients, doctors, therapists, and care partners give their tips and advice on topics including diet, nutrition, treatments, mental health, family dynamics, and sexuality as it relates to living with IBD.

    IBD and Biomarkers: What You Need to Know With Andres Hurtado-Lorenzo, PhD

    IBD and Biomarkers: What You Need to Know With Andres Hurtado-Lorenzo, PhD

    What if we knew which patients would have severe Crohn’s disease or ulcerative colitis? And which wouldn’t? How about if we could tell which drug would work best in which patient? Knowing these things would change how inflammatory bowel disease (IBD) is diagnosed and treated. Plus, more importantly: it would improve lives. Dr Andres Hurtado-Lorenzo, Vice President of Translational research and IBD Ventures at the Crohn's and Colitis Foundation explains biomarkers and how they may play into the future of how IBD is diagnosed, managed, and treated.
    Resources:
    Crohn’s & Colitis Foundation:https://www.crohnscolitisfoundation.org/ IBD Plexus:https://www.crohnscolitisfoundation.org/research/current-research-initiatives/ibd-plexus/about RISK Study:https://www.crohnscolitisfoundation.org/research/current-research-initiatives/pediatric-risk-stratification IBD Ventures:https://www.crohnscolitisfoundation.org/research/grants-fellowships/entrepreneurial-investing/portfolio Olink: https://www.olink.com Foundation for the National Institutes of Health: https://www.fnih.org Genedata: https://www.com Glycominds: https://www.glycominds.com/blood-tests-1 PredictImmune:https://www.predictimmune.com/ Research:
    Honig G, Heller C, Hurtado-Lorenzo A. Defining the Path Forward for Biomarkers to Address Unmet Needs in Inflammatory Bowel Diseases. Inflamm Bowel Dis. 2020;26(10):1451-1462. doi:10.1093/ibd/izaa210. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7500521/pdf/izaa210.pdf Honig G, Larkin PB, Heller C, Hurtado-Lorenzo A. Research-Based Product Innovation to Address Critical Unmet Needs of Patients with Inflammatory Bowel Diseases. Inflamm Bowel Dis. 2021;27(Suppl 2):S1-S16. doi:10.1093/ibd/izab230. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8922161/pdf/izab230.pdf Kugathasan S, Denson LA, Walters TD, et al. Prediction of complicated disease course for children newly diagnosed with Crohn's disease: a multicentre inception cohort study. Lancet. 2017;389(10080):1710-1718. doi:10.1016/S0140-6736(17)30317-3. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5719489/pdf/nihms923305.pdf Biasci D, Lee JC, Noor NM, et al. A blood-based prognostic biomarker in IBD. Gut. 2019;68(8):1386-1395. doi:10.1136/gutjnl-2019-318343. https://www.predictimmune.com/wp-content/uploads/2020/09/Biasci-et-al-A-blood-based-prognostic-biomarker-in-IBD-Gut-2019.pdf de Bruyn M, Ringold R, Martens E, et al. The Ulcerative Colitis Response Index for Detection of Mucosal Healing in Patients Treated With Anti-tumour Necrosis Factor. J Crohns Colitis. 2020;14(2):176-184. doi:10.1093/ecco-jcc/jjz125. https://doi.org/10.1093/ecco-jcc/jjz125 Find Amber J Tresca at:
    AboutIBD.com: http://aboutibd.com/ Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Facebook: https://www.facebook.com/aboutIBD Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/ Credits:
    Mix and sound design is by Mac Cooney: https://www.facebook.com/michaelandrewcooney Theme music, IBD Dance Party, is from ©Cooney Studio: https://michaelandrewcooney.bandcamp.com/track/ibd-dance-party-single

    • 29 min
    About IBD Podcast Episode 120 - Don’t Google Your Symptoms With CJ Papuro

    About IBD Podcast Episode 120 - Don’t Google Your Symptoms With CJ Papuro

    There aren’t as many men who are vocal in the inflammatory bowel disease (IBD) space as there are women. Crohn’s disease and ulcerative colitis affect men as often as they do women, but fewer men seem comfortable being public about their disease.
     
    That’s why Carlos “CJ" Cabrera, who also goes by CJ Papuro, entered the IBD community after his diagnosis of Crohn’s. He gives an overview of how difficult it was to be diagnosed as a US veteran using the Veterans Health Administration, his struggles with finding his way with nutrition, the ways in which IBD has affected him as a man, and his advice for other men.
     
    Concepts discussed on this episode include:
    Athletic Greens — AG1: https://athleticgreens.com/ibdpod Fragmented Care and IBD: Outcomes in U.S. Veterans: https://ihpi.umich.edu/news/fragmented-care-and-ibd-outcomes-us-veterans The Incidence and Prevalence of Inflammatory Bowel Disease Among U.S. Veterans: A National Cohort Study: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3972034/ Maltodextrin, Modern Stressor of the Intestinal Environment: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6409436/ How IBD Affects Fertility in Men: https://www.verywellhealth.com/how-ibd-affects-fertility-in-men-4125878 How to Recognize and Diagnose Crohn’s Disease in Men: https://www.verywellhealth.com/crohns-symptoms-male-5215367 Arthritis and Inflammatory Bowel Disease: https://www.verywellhealth.com/arthritis-and-inflammatory-bowel-disease-1941772 Should You Exercise If You Have IBD?: https://www.verywellhealth.com/exercising-with-ibd-4582068 Find CJ Papuro at:
    Instagram: https://www.instagram.com/papuro
    Instagram: https://www.instagram.com/papurosmokes
    Instagram: https://www.instagram.com/chill.ghost
    YouTube: https://www.youtube.com/c/Papuro
     
    Find Amber J Tresca at
    AboutIBD.com: http://aboutibd.com/
    Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703
    Facebook: https://www.facebook.com/aboutIBD
    Twitter: https://twitter.com/aboutIBD
    Pinterest: https://www.pinterest.com/aboutibd/
    Instagram: https://www.instagram.com/about_IBD/
     
    Credits: Mix and sound design is by Mac Cooney: https://www.facebook.com/michaelandrewcooney
    Theme music, IBD Dance Party, is from Cooney Studio: https://michaelandrewcooney.bandcamp.com/track/ibd-dance-party-single
     
    Episode transcript and more information at: https:/bit.ly/AIBD120
     
     

    • 32 min
    The Restroom Access Act

    The Restroom Access Act

    Have you ever been out in public and needed a toilet — but there wasn’t one available?
    This has happened to everyone who lives with an inflammatory bowel disease (IBD, Crohn’s disease or ulcerative colitis), which is why so many of us have “bathroom accident” stories. Needing to use the bathroom is a basic human need, but it’s treated like an afterthought. That’s where the Restroom Access Act comes into play: a law passed in several states that allows people to request access to a toilet when they live with certain conditions.
    There is no such law currently in California. That’s hopefully going to change thanks to the efforts of Ashlyn Saltzburg and Kelly Silk. Ashlyn is a teenager living with IBD and Kelly is her mom. Their effort to get a law passed in California is nothing short of heroic. Learn about how they got started on this journey to have the Restroom Access Act passed in California, and how you can help.
    More information and a transcript: https://bit.ly/AIBD119
    Concepts discussed on this episode:
    Athletic Greens AG1: https://athleticgreens.com/ibdpod How the Restroom Access Act Helps Those With IBD: https://www.verywellhealth.com/the-restroom-access-act-1942432 California Assembly Bill 1632: https://legiscan.com/CA/bill/AB1632/2021 Akilah Weber, Assmblymember, District 79: https://a79.asmdc.org/2021-2022-legislation Shervin Rabizadeh, MD, MBA: https://bio.cedars-sinai.org/rabizadehsx/index.html Find Amber J Tresca at:
    AboutIBD.com: http://aboutibd.com/ Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Facebook: https://www.facebook.com/aboutIBD Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/ Credits:
    Mix and sound design is by Mac Cooney: https://www.facebook.com/michaelandrewcooney Theme music, IBD Dance Party, is from ©Cooney Studio: https://michaelandrewcooney.bandcamp.com/track/ibd-dance-party-single

    • 30 min
    Cannabis and IBD

    Cannabis and IBD

    There are significant unmet needs for IBD patients that include pain control, sleep disturbances, anxiety, and depression. Some patients turn to medical cannabis for these symptoms. But is that a good idea, does it work, and what should patients and their doctors know about medical cannabis? To answer these questions and more, Amber talks to cannabis and IBD expert Dr Jami Kinnucan, who is a Senior Associate Consultant in the Section of Gastroenterology and Hepatology at the Mayo Clinic in Jacksonville, Florida.
    Get lots more information and a transcript at https://bit.ly/AIBD118
    Find Jami A. Kinnucan, MD at:
    Mayo Clinic: https://www.mayoclinic.org/biographies/kinnucan-jami-a-m-d/bio-20527092 Twitter: https://twitter.com/ibdgijami Facebook: https://www.facebook.com/ibdgijami Find Amber J Tresca at:
    AboutIBD.com: http://aboutibd.com Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Facebook: https://www.facebook.com/aboutIBD Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/ Credits:
    Mix and sound design is by Mac Cooney: https://www.facebook.com/michaelandrewcooney Theme music, IBD Dance Party, is from Cooney Studio: https://michaelandrewcooney.bandcamp.com/track/ibd-dance-party-single  

    • 48 min
    How Physical Therapy Can Help People With IBD

    How Physical Therapy Can Help People With IBD

    When you think of Crohn’s disease or ulcerative colitis, you might not think of physical therapy. But physical therapy and pelvic floor therapy can be integral to helping with function, pain, and having better bowel movements. To learn more, I connected with Nancy Cullinane, who is a Board-Certified Women’s Health Clinical Specialist at Overlake Hospital and Clinics Outpatient Rehab in Washington State, and Christine Morgan, who is a Board-Certified Sports Clinical Specialist and the Director of Clinical Education at the Florida Southern College School of Physical Therapy. They describe the ways in which a physical therapist can help with some of the issues that crop up with inflammatory bowel disease (IBD) and how you can find a physical therapist to help you.
     
    Concepts discussed on this episode include:
    Athletic Greens — AG1: https://athleticgreens.com/ibdpod
    The Sherman Prize: https://shermanprize.org/
    Academy of Pelvic Health Physical Therapy: https://aptapelvichealth.org
    American Physical Therapy Association: https://www.choosept.com/
    Herman & Wallace Pelvic Rehabilitation Institute: https://hermanwallace.com/
     
    Social Media:
    Nancy Cullinane, PT, MHS, DPT, WCS on LinkedIn: https://www.linkedin.com/in/nancy-cullinane-pt-mhs-dpt-wcs-405866b1/
    FSC School of Physical Therapy on Instagram: https://www.instagram.com/fsc.dpt/
    Overlake Medical Center & Clinics on Facebook: https://www.facebook.com/overlakemedicalcenter
     
    Find Amber J Tresca at:
    AboutIBD.com: http://aboutibd.com/
    Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703
    Facebook: https://www.facebook.com/aboutIBD
    Twitter: https://twitter.com/aboutIBD
    Pinterest: https://www.pinterest.com/aboutibd/
    Instagram: https://www.instagram.com/about_IBD/
     
    Credits:
    Mix and sound design is by Mac Cooney: https://www.facebook.com/michaelandrewcooney
    Theme music, IBD Dance Party, is from Cooney Studio: https://michaelandrewcooney.bandcamp.com/track/ibd-dance-party-single
     
    Episode transcript and more information at: https:/bit.ly/AIBD117

    • 37 min
    How to Be Happy & Healthy With IBD: The Psychosocial Impact of IBD

    How to Be Happy & Healthy With IBD: The Psychosocial Impact of IBD

    There are tools available to address the psychosocial impact of inflammatory bowel disease (IBD). Learn what’s available to you from Dr Jessica Naftaly, a GI behavioral health fellow at the University of Michigan and Amy Bugwadia, higher education coordinator for Generation Patient, Teaching Assistant at Stanford University School of Medicine, ulcerative colitis patient, and key opinion leader in the IBD community.
    Concepts discussed on this episode include:
    The Rome Foundation Gastropsych Directory Psychology Today Find a Therapist Diaphragmatic Breathing [Video] With Megan Riehl, Psy.D. National Council of College Leaders Crohns & Colitis Foundation's Power of Two Program Find Jessica Naftaly, PhD on Twitter.
    Find Amy Bugwadia on Instagram, Facebook, LinkedIn, and at Generation Patient.
    Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram.
    Credits: Mix and sound design is by Mac Cooney. Theme music, "IBD Dance Party," is from ©Cooney Studio.
    Episode transcript and more information at https:/bit.ly/AIBD116

    • 34 min

Customer Reviews

5.0 out of 5
24 Ratings

24 Ratings

zylafone ,

Learn from the Expert

Amber is so well versed in IBD. She is an expert brings such wonderful information and knowledge to every episode. What a supportive community she has created and a wonderful resource for IBD.

Littleluna9 ,

Great information!

It was wonderful to meet you Amber, at Connecticut Children’s Medical Center College Night. Thank you for sharing your experience and insight. I enjoyed the latest episodes here and look forward to listening to many more. Very personal and meaningful 😊

A_spareparts ,

Relatable and informative

Amber always has relevant topics and guests talking about important things for IBD patients. She’s always relatable and makes great content FOR patients not about them.

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