Schizophrenia: Three Moms in the Trenches

Randye Kaye

Schizophrenia in the Family. How do we cope? How can we help? We each have adult sons with schizophrenia and have written acclaimed books about it. We say it like it is, to help families, practitioners and those with SMI (serious mental illness) feel less alone...and learn. Randye Kaye, Mindy Greiling, Miriam Feldman...and guests.

  1. ECT and Schizophrenia: Can it Help? (Ep. 127)

    NOV 19

    ECT and Schizophrenia: Can it Help? (Ep. 127)

    Send a Text to the Moms - please include your contact info if you want a response. thanks! Today on Schizophrenia: 3 Moms in the Trenches, we’re joined by Dr. Steve Olson—psychiatrist, longtime advocate for clozapine, and a clinician experienced in using Electroconvulsive Therapy when it can truly help. ECT is often misunderstood, especially in the context of schizophrenia, so today we’re digging into what it is, when it works, and what families should know. Dr. Olson helps us separate myth from reality and explore whether ECT has a place in treatment for our loved ones. Questions for Dr. Olson Understanding ECT For families who only know ECT from movies, how do you explain what it actually is today? What symptoms or situations in schizophrenia make you consider ECT as an option? Effectiveness & Use Cases  3. How effective can ECT be for schizophrenia, and what outcomes have you seen in practice?  4. Are there particular subtypes or symptom profiles where ECT is most helpful—or least helpful?  5. How quickly do patients typically respond, compared to medication changes? Clozapine Context  6. You’ve been a strong advocate for clozapine. In what scenarios would you consider ECT in addition to clozapine? 7. For someone who hasn’t responded fully even to clozapine, how do you decide whether ECT could help? Safety, Stigma, and Practicalities  8. What are the most common fears or misconceptions families have about ECT, and how do you address them? Want to know more? Join our facebook page Our websites: Randye Kaye Mindy Greiling Miriam (Mimi) Feldman

    42 min
  2. Lives Reimagined: Changing the Course of Psychotic Illness     (Ep. 125)

    SEP 11

    Lives Reimagined: Changing the Course of Psychotic Illness (Ep. 125)

    Send a Text to the Moms - please include your contact info if you want a response. thanks! Lives Reimagined: Changing the Course of Psychotic Illness   (Ep. 125)Guests: authors of the new book (same name) -  Katharine Dougherty PhD, and Lisa Mann, PhD , and Dr. Rocco Marotta-a psychiatrist known for his successful treatment of "hopeless" cases-and practiced with remarkable success by the team he led at The Lodge program at Silver Hill Hospital in New Canaan, Connecticut. Written for families struggling to navigate the world of neuropsychiatric illness and useful for providers looking for a different approach to the treatment of neuropsychiatric disorders The book can be found at the following sites by putting in the title and authors:   amazon.com, barnesandnoble.com, sdppublishingsolutions.com The Center for the Treatment and Study of Neuropsychiatric Disorders:  silverhillhospital.org/TheCenter   Why relabel SMI NBD (neuropsychiatric brain disease )? THEMES: Hope and persistence are criticalNo two cases are exactly the sameMedication and adherence and sobriety are important to sustained stabilityIt takes a team and long-term relationships to sustain stabilityCommunication among team members is criticalTaking small risks and succeeding leads to other risksRigid ideology has no place when you are untangling complexity and nuanceThe diagnosis of NBD is often tied to a sense of shame and failure for patients and familiesThere are many important layers to the recovery journeyConstant reevaluation is important and this includes the importance of patient feedback Poetry from Zachary Sutphin "White pink blue"  White pink blue The pills look like candy  But taste like defeat.   They taste like mother’s advice.   Correct, we grow too see I take them Because otherwise,  I might start believing.. believing in things that can't be believed in minds unlike mine  They tell me it’s illness.   But what if it’s clarity?   What if losing grip  Was divine sanity Still, I take them..... For the full poem, see our "Schizophrenia 3 Moms" Facebook page Thanks for liking and sharing the podcast!  Mindy and her book: https://mindygreiling.com/ Randye and her book: https://randyekaye.com/ Miriam and her book: https://www.miriam-feldman.com/ Want to know more? Join our facebook page Our websites: Randye Kaye Mindy Greiling Miriam (Mimi) Feldman

    1 hr
  3. Living With and Loving a Partner With a Serious Mental Illness (Ep. 124)

    AUG 20

    Living With and Loving a Partner With a Serious Mental Illness (Ep. 124)

    Send a Text to the Moms - please include your contact info if you want a response. thanks! When the loved one with SMI is your peer, your partner, there are some challenges that differ from parenting someone with serious mental illness. Support, Education and new mindsets  can help. Guests: Jeff Zuckerman, author of Unglued: A Bipolar Love Story - https://www.jeffzuckerman.com/  and Annie Jaeger, wellness coach and NAMI  Family Support Group facilitator - https://www.anniejaeger.com/ Link to support group: https://heypeers.com/meetings/44205/details Scroll down for Lisa Wexler show links We ask: 1. What do you see as the differences between being married to someone with a serious mental illness compared to the parent of someone with a mental illness. 2. How have your children been affected by your spouse's mental illness, and how do you navigate your role as both spouse and partner in that regard? 3. How do you set boundaries (a whole podcast in itself, no doubt) for yourself without guilt or shame? (Which can be a discussion about self-care.) 4. Since you co-facilitate one of the few support groups for partners of those with a mental illness, tell us about the benefits of support groups. Lisa Wexler Links  https://www.instagram.com/lisawexler.radio/ https://www.lisawexler.com/ https://podcasts.apple.com/us/podcast/is-trumps-plan-to-help-the-mentally-ill-good/id1063388065?i=1000721737436 https://podcasts.apple.com/us/podcast/a-new-drug-could-revolutionize-treating-mental-health/id1063388065?i=1000718001577 Also LISA on the LAW segments Thanks for liking and sharing the podcast!  Mindy and her book: https://mindygreiling.com/ Randye and her book: https://randyekaye.com/ Miriam and her book: https://www.miriam-feldman.com/   Want to know more? Join our facebook page Our websites: Randye Kaye Mindy Greiling Miriam (Mimi) Feldman

    57 min
  4. Recovery “In the Middle”: The Challenge of Negative Symptoms (Ep. 122)

    AUG 11

    Recovery “In the Middle”: The Challenge of Negative Symptoms (Ep. 122)

    Send a Text to the Moms - please include your contact info if you want a response. thanks! A “Just Us” episode - inspired by listener input Many listeners have asked us to do an episode about recovery that is “in the middle” - not miraculous, not superstar, but appreciating when “ordinary” is, in itself, a miracle. Along the way we also talk about President Trump’s Executive Order on Homelessness - On July 24, the White House issued an Executive Order, “Ending Crime and Disorder on America’s Streets,” which directs federal agencies to make it easier to involuntarily treat people with serious mental illnesses as part of a bid to address homelessness across the United States. Addressing Homelessness and Mental Illness The group discussed President Trump's executive order on addressing homelessness and mental illness, with Randye, Mindy, and Mimi expressing concerns about the approach. They agreed that while affordable housing is important, it alone is not enough to solve homelessness, and that involuntary treatment must be accompanied by a robust mental health system. Mindy highlighted the need for both conservative and liberal support to create a comprehensive continuum of care, while the group criticized the lack of funding for mental health services under the current administration. They shared personal stories of individuals with mental illness who were unable to access appropriate treatment due to system failures, emphasizing the urgent need for a balanced approach that combines housing, treatment, and support services. Challenges of Schizophrenia Recovery The group discussed the challenges faced by individuals with mental illness, particularly focusing on those who are not in active psychosis but still experience significant negative symptoms. The Moms explained that recovery does not mean complete recovery but rather being in a process of improvement, and highlighted the eight principal negative symptoms of schizophrenia, including apathy, blunted emotions, social withdrawal, and anhedonia. The group explored how negative symptoms affect daily life and recovery for their sons. Challenges of Schizophrenia's Negative Symptoms The group discussed the challenges of managing schizophrenia, particularly focusing on negative symptoms and their impact on daily life.  Mindy shared her experience with her son Jim, who struggles with negative symptoms such as lack of initiative and social withdrawal, leading to isolation and difficulty engaging in activities.   Mimi shared her positive experience at Dr. Laitman's barbecue event with her son, emphasizing the value of community and understanding among families facing similar challenges.  The hosts also mentioned President Trump's executive order on homelessness and encouraged listeners to create local support groups for individuals with mental health issues. Randye described her son's journey with schizophrenia, including periods of improvement followed by setbacks, and highlighted the importance of structure, community, and purpose and treatment in managing the condition. Both women emphasized the difficulty of explaining negative symptoms to others and the need for more support and understanding for individuals with schizophreni Want to know more? Join our facebook page Our websites: Randye Kaye Mindy Greiling Miriam (Mimi) Feldman

    54 min
  5. SMI and AI: Communication Coach in Your Back Pocket? (Ep. 121)

    JUL 9

    SMI and AI: Communication Coach in Your Back Pocket? (Ep. 121)

    Send a Text to the Moms - please include your contact info if you want a response. thanks! Guests: Stephanie Greer (DoroMind), Xavier Amador(LEAP) Ever wish you had a communication coach in your back pocket to guide you through a conversation with your LO (loved One) with SMI (Serious Mental Illness)? DoroMind and the LEAP Institute are working on it - want to try it out? “At Doro Mind and the LEAP Institute, we've been weaving AI into our clinical operations to improve the experience for the families we support, the care teams we employ, and to make what we offer more financially accessible and sustainable. We'd appreciate the opportunity to highlight some of the work we've done at the intersection of SMI and AI - and also highlight some of the new AI work underway with Xavier Amador and the LEAP Institute.” In this episode, hear what happens when Randye and Mindy try out this LEAP approach on current challenging situations- with on-the spot AI coaching. In the Summer of 2025, you can try it yourself!  Dr. Amador, author of I Am Not Sick, I Don’t Need Help, was our guest on episode 27 (one of our most popular).  We had a guest from Doromind on Episode 107, along with Dr. Rob Laitman. Links: https://www.doromind.com/ https://leapinstitute.org/ To use the free 3-day Trial Download the Doro Mind app in the app store on your phoneOpen the Practice tab (this is a tab at the bottom of the screen)Tap ‘start’ to access your free 3-day preview. After you click the start button you will have 3 days to test out the AI coach.Thanks for liking and sharing the podcast!  Mindy and her book: https://mindygreiling.com/ Randye and her book: https://randyekaye.com/ Miriam and her book: https://www.miriam-feldman.com/ Want to know more? Join our facebook page Our websites: Randye Kaye Mindy Greiling Miriam (Mimi) Feldman

    55 min
4.8
out of 5
115 Ratings

About

Schizophrenia in the Family. How do we cope? How can we help? We each have adult sons with schizophrenia and have written acclaimed books about it. We say it like it is, to help families, practitioners and those with SMI (serious mental illness) feel less alone...and learn. Randye Kaye, Mindy Greiling, Miriam Feldman...and guests.

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