The Chemical Sensitivity Podcast

The Chemical Sensitivity Podcast

Thank you for listening to The Chemical Sensitivity Podcast! Amplifying research, lived experience, and critical conversations about Multiple Chemical Sensitivity (MCS). Through thoughtful and engaging conversations, the podcast aims to deepen understanding of MCS and inform public responses to the illness. Hosted by journalist and communication studies researcher Aaron Goodman, Ph.D. Generously supported by The Marilyn Brachman Hoffman Foundation. Subscribe for episode takeaways, research insights, and updates on MCS: https://bit.ly/42N3Geh DISCLAIMER: THIS PROJECT DOES NOT PROVIDE MEDICAL ADVICEThe information, including but not limited to, text, graphics, images, and other material from this project are for informational purposes only. None of the material is intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health care provider with any questions you may have regarding a medical condition or treatment and before undertaking a new health care regimen, and never disregard professional medical advice or delay in seeking it because of something you have heard or read from this project.

  1. 1d ago

    What Medicine Needs to Hear About MCS: Dr. Pilar Muñoz-Calero

    For many people with Multiple Chemical Sensitivity (MCS), diagnosis and appropriate healthcare remain out of reach. In this episode, Aaron Goodman speaks with Dr. Pilar Muñoz-Calero, a leading MCS expert and founder of the Alborada Foundation in Spain, who brings both clinical knowledge and lived experience of the illness. Aaron hiked for an hour to her home outside Madrid to record this conversation and bring her insights to clinicians, researchers, and people living with MCS around the world. Topics include: Barriers to diagnosis and healthcareThe impact of disbelief and delayed recognitionThe physiological nature of MCS and the harm caused by mischaracterizing it as psychologicalWhy researchers and clinicians need to learn from people with lived experienceListen and subscribe:  https://www.chemicalsensitivitypodcast.org/1970633/episodes/19933696-what-medicine-needs-to-hear-about-mcs-dr-pilar-munoz-calero Watch and subscribe on YouTube:  The original Spanish version is also available: DISCLAIMER: THIS WEBSITE DOES NOT PROVIDE MEDICAL ADVICE   The information, including but not limited to, text, graphics, images, and other material contained on this website are for informational purposes only. No material on this site is intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health care provider with any questions you may have regarding a medical condition or treatment and before undertaking a new health care regimen, and never disregard professional medical advice or delay in seeking it because of something you have read on this website. No material or information provided by The Chemical Sensitivity Podcast, or its associated website is intended to be a substitute for professional medical advice, diagnosis, or treatment.  Support the show Thank you very much to the Marilyn Brachman Hoffman Foundation generously supporting the podcast! If you find the podcast helpful, please consider becoming a monthly or one-time supporter: https://www.chemicalsensitivitypodcast.org/1970633/supporters/new https://buymeacoffee.com/mcspodcast   Follow the podcast on YouTube!  Captions available in any language.  Please follow the podcast on social media: Facebook Instagram X BlueSky TikTok

    What Medicine Needs to Hear About MCS: Dr. Pilar Muñoz-Calero
  2. 1d ago

    Lo que la medicina necesita escuchar sobre la SQM: Dra. Pilar Muñoz-Calero

    Para muchas personas con Sensibilidad Química Múltiple (SQM), el diagnóstico y una atención sanitaria adecuada siguen estando fuera de su alcance. En este episodio, Aaron Goodman conversa con la Dra. Pilar Muñoz-Calero, una destacada experta en SQM en España que aporta tanto conocimientos clínicos como su propia experiencia de vivir con la enfermedad. Aaron caminó durante una hora para llegar a su casa, a las afueras de Madrid, y grabar esta conversación, compartiendo sus reflexiones con profesionales de la salud, investigadores y personas que viven con SQM en todo el mundo. Los temas incluyen: Las barreras para acceder al diagnóstico y a la atención sanitariaEl impacto de la incredulidad y del reconocimiento tardíoLa naturaleza fisiológica de la SQM y el daño que causa atribuirla erróneamente a causas psicológicasPor qué los investigadores y los profesionales de la salud deben aprender de las personas que viven con la enfermedadEscucha la conversación original en español: Escucha y suscríbete:  Mira la conversación y suscríbete en YouTube:  También está disponible una versión de esta conversación doblada al inglés. AVISO LEGAL: ESTE SITIO WEB NO OFRECE ASESORAMIENTO MÉDICO La información contenida en este sitio web, incluidos, entre otros, textos, gráficos, imágenes y otros materiales, tiene fines exclusivamente informativos. Ningún material de este sitio pretende sustituir el asesoramiento, diagnóstico o tratamiento médico profesional. Consulte siempre a su médico u otro profesional sanitario cualificado si tiene preguntas sobre una afección médica o un tratamiento, y antes de iniciar un nuevo régimen de atención sanitaria. Nunca ignore el asesoramiento médico profesional ni demore la búsqueda de atención médica por algo que haya leído en este sitio web. Ningún material ni información proporcionados por The Chemical Sensitivity Podcast o su sitio web asociado pretenden sustituir el asesoramiento, diagnóstico o tratamiento médico profesional. Support the show Thank you very much to the Marilyn Brachman Hoffman Foundation generously supporting the podcast! If you find the podcast helpful, please consider becoming a monthly or one-time supporter: https://www.chemicalsensitivitypodcast.org/1970633/supporters/new https://buymeacoffee.com/mcspodcast   Follow the podcast on YouTube!  Captions available in any language.  Please follow the podcast on social media: Facebook Instagram X BlueSky TikTok

    Lo que la medicina necesita escuchar sobre la SQM: Dra. Pilar Muñoz-Calero
  3. Oct 5

    La sensibilité chimique multiple (SCM) en France: Contrer la psychologisation de la maladie — Christine Malfay-Regnier

    Que se passe-t-il lorsque des chercheurs considèrent la sensibilité chimique multiple avant tout comme un trouble psychologique ? Dans cet épisode de The Chemical Sensitivity Podcast, Aaron Goodman s’entretient avec Christine Malfay-Regnier, ophtalmologue à Perpignan, en France. Elle vit avec la sensibilité chimique multiple, ou SQM, et fait partie de SOS MCS. Ils abordent : La psychologisation de la SQM dans la recherche en FranceL’influence possible de cette recherche sur les soins reçusLa stigmatisation, l’isolement et la difficulté à se faire entendreLes aménagements qui ont permis à Christine de continuer à exercerLa place des personnes atteintes de SQM dans la recherche et la formation médicaleChristine explique pourquoi cette approche de la SQM l’inquiète et appelle les médecins et les chercheurs à écouter davantage les personnes concernées. 🎧 Écoutez et abonnez-vous: ▶️ Écoutez sur YouTube et abonnez-vous:   Support the show Thank you very much to the Marilyn Brachman Hoffman Foundation generously supporting the podcast! If you find the podcast helpful, please consider becoming a monthly or one-time supporter: https://www.chemicalsensitivitypodcast.org/1970633/supporters/new https://buymeacoffee.com/mcspodcast   Follow the podcast on YouTube!  Captions available in any language.  Please follow the podcast on social media: Facebook Instagram X BlueSky TikTok

    La sensibilité chimique multiple (SCM) en France: Contrer la psychologisation de la maladie — Christine Malfay-Regnier
  4. Sep 21

    SQM en España: Por qué la accesibilidad no puede esperar - María López Matallana (CONFESQ)

    Para las personas con Sensibilidad Química Múltiple (SQM), los espacios cotidianos pueden volverse inaccesibles: desde la atención sanitaria y los lugares de trabajo hasta los edificios públicos y el transporte. En este episodio, Aaron Goodman conversa con María López Matallana, presidenta de CONFESQ en España, sobre por qué las personas con SQM no pueden seguir esperando reconocimiento, protección y una accesibilidad real. Temas: La realidad cotidiana de vivir con SQM en EspañaBarreras en la atención sanitaria y los espacios públicosExposición a fragancias y productos químicosDerechos de las personas con discapacidad y accesibilidadPor qué es necesario actuar ahora🎧 Escúchalo ahora y suscríbete: https://www.chemicalsensitivitypodcast.org/1970633/episodes/19782886-sqm-en-espana-por-que-la-accesibilidad-no-puede-esperar-maria-lopez-matallana-confesq ▶️ Míralo y suscríbete en YouTube: https://www.youtube.com/watch?v=14d4l9CFQhU&t=2s #SQM #SensibilidadQuímicaMúltiple #SensibilidadQuímica  #Accesibilidad #España Support the show Thank you very much to the Marilyn Brachman Hoffman Foundation generously supporting the podcast! If you find the podcast helpful, please consider becoming a monthly or one-time supporter: https://www.chemicalsensitivitypodcast.org/1970633/supporters/new https://buymeacoffee.com/mcspodcast   Follow the podcast on YouTube!  Captions available in any language.  Please follow the podcast on social media: Facebook Instagram X BlueSky TikTok

    SQM en España: Por qué la accesibilidad no puede esperar - María López Matallana (CONFESQ)
  5. Sep 7

    Beyond Medical Recognition — MCS, Disability, & Human Rights: Paloma Torres López

    Can people with MCS fight discrimination even without full medical recognition? In this episode of The Chemical Sensitivity Podcast, Aaron Goodman speaks with human-rights lawyer Paloma Torres López, co-founder of MEDUSA Human Rights in Madrid, Spain. They discuss: Why people with MCS shouldn’t have to wait for full medical recognitionDisability rights and the social model of disabilityAccessibility and reasonable accommodationDiscrimination at work, in schools, healthcare and public spacesFragrance-free environments as an accessibility measurePaloma explains how environmental barriers can prevent people with MCS from participating equally in society — and why disability and human-rights law may offer another path toward recognition, access and equality. 🎧 Listen and subscribe where you get your podcasts: https://www.chemicalsensitivitypodcast.org/1970633/episodes/19721803-beyond-medical-recognition-mcs-disability-human-rights-paloma-torres-lopez ▶️ Listen and subscribe on YouTube. Transcription available in all languages: https://www.youtube.com/watch?v=CbVdvkyZO_A DISCLAIMER: THIS WEBSITE DOES NOT PROVIDE MEDICAL ADVICE   The information, including but not limited to, text, graphics, images, and other material contained on this website are for informational purposes only. No material on this site is intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health care provider with any questions you may have regarding a medical condition or treatment and before undertaking a new health care regimen, and never disregard professional medical advice or delay in seeking it because of something you have read on this website. No material or information provided by The Chemical Sensitivity Podcast, or its associated website is intended to be a substitute for professional medical advice, diagnosis, or treatment.  Support the show Thank you very much to the Marilyn Brachman Hoffman Foundation generously supporting the podcast! If you find the podcast helpful, please consider becoming a monthly or one-time supporter: https://www.chemicalsensitivitypodcast.org/1970633/supporters/new https://buymeacoffee.com/mcspodcast   Follow the podcast on YouTube!  Captions available in any language.  Please follow the podcast on social media: Facebook Instagram X BlueSky TikTok

    Beyond Medical Recognition — MCS, Disability, & Human Rights: Paloma Torres López
  6. Aug 24

    MCS and Chemical Intolerance — Measuring What Medicine Often Misses - Raymond Palmer, PhD

    How can better measurement of MCS and chemical intolerance help reduce misunderstanding, missed cases, and misdiagnosis? In this episode of The Chemical Sensitivity Podcast, Aaron Goodman speaks with Raymond Palmer, PhD, a biostatistician and research professor at the University of Texas Health Science Center at San Antonio who has studied chemical intolerance for more than a decade. You'll hear: Why better recognition may help address misunderstanding and misdiagnosisHow the QEESI can help identify and measure MCS and chemical intoleranceThe TILT model and the potential role of environmental exposuresResearch into genetics, mast-cell activation, and biomarkersWhy listening to patients and improving recognition matterA conversation about how researchers are working to better measure and understand MCS and chemical intolerance — and why doing so could help change how people with the illness are recognized and treated. Links: The QEESI (Quick Environmental Exposure and Sensitivity Inventory) Raymond Palmer, PhD Support the show Thank you very much to the Marilyn Brachman Hoffman Foundation generously supporting the podcast! If you find the podcast helpful, please consider becoming a monthly or one-time supporter: https://www.chemicalsensitivitypodcast.org/1970633/supporters/new https://buymeacoffee.com/mcspodcast   Follow the podcast on YouTube!  Captions available in any language.  Please follow the podcast on social media: Facebook Instagram X BlueSky TikTok

    MCS and Chemical Intolerance — Measuring What Medicine Often Misses - Raymond Palmer, PhD
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About

Thank you for listening to The Chemical Sensitivity Podcast! Amplifying research, lived experience, and critical conversations about Multiple Chemical Sensitivity (MCS). Through thoughtful and engaging conversations, the podcast aims to deepen understanding of MCS and inform public responses to the illness. Hosted by journalist and communication studies researcher Aaron Goodman, Ph.D. Generously supported by The Marilyn Brachman Hoffman Foundation. Subscribe for episode takeaways, research insights, and updates on MCS: https://bit.ly/42N3Geh DISCLAIMER: THIS PROJECT DOES NOT PROVIDE MEDICAL ADVICEThe information, including but not limited to, text, graphics, images, and other material from this project are for informational purposes only. None of the material is intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health care provider with any questions you may have regarding a medical condition or treatment and before undertaking a new health care regimen, and never disregard professional medical advice or delay in seeking it because of something you have heard or read from this project.

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