Everything You Know About Disability Is Wrong

Easterseals
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Everything You Know About Disability Is Wrong

Everything You Know About Disability is Wrong is a podcast for the disability community by the disability community, hosted by two disabled women. But if you’re not disabled, listen in to learn about real issues, celebrations, and conversations disabled people are having in their communities. Powered by Easterseals.

  1. The Power of Gaming: Richard Jacobs on Community, Competition, and Personal Empowerment

    1 DAY AGO

    The Power of Gaming: Richard Jacobs on Community, Competition, and Personal Empowerment

    Richard Jacobs is a dedicated gamer and member of the esports team QuadGods. He discusses his journey of resilience, the pivotal role gaming plays in his life, and the misconceptions he faces as a disabled individual. Richard shares about the power of community and how his streaming “family” has allowed him to harness his competitive spirit and embrace his emotions.  Key Moments 13:32 - Inspiration and belonging. 21:57 - Supports family through streaming. 31:24 - Prefers controller over keyboard/mouse. 43:23 - Handles losses calmly; focuses on perseverance. 59:44 - Builds deep community connection. Connect with Richard JacobsInstagram: https://www.instagram.com/breadwinner1007/ Website: https://quadgods.com/the-players

    1h 3m
  2. The Advocacy Power of Humor: Steven Verdile and The Squeaky Wheel

    12/20/2024

    The Advocacy Power of Humor: Steven Verdile and The Squeaky Wheel

    Humor can educate and challenge, but it must highlight issues without mocking the disability community. In this episode, we explore how satire can play into advocacy and ask, “What exactly makes good satire?”.  Steven Verdile, Founder of Squeaky Wheel Media, shares his insights on the critical intersection of disability and content creation. Steven discusses the significance of focusing on specific issues, particularly those impacting the disabled community, and the protective measures taken to ensure writers' safety.  Key Moments 06:27 Humor exposes accessibility challenges. 08:41 Accessible platforms empower disabled writers. 23:11 Disability experiences and representation vary. 38:13 Humor addresses disability policy. 49:07 Steven’s school experience. Connect with Steven VerdileLinkedIn: https://www.linkedin.com/in/steven-verdile  Website: https://thesqueakywheel.org/  Squeaky Wheel Instagram: https://www.instagram.com/thesqkywheel/?hl=en

    56 min
  3. Annie Segarra on Medical Gaslighting and EDS: Her Fight for Change

    12/12/2024

    Annie Segarra on Medical Gaslighting and EDS: Her Fight for Change

    Navigating a medical system that dismisses your pain ignites a fire to advocate for others who are overlooked. Annie Segarra is an activist and content creator dedicated to disability rights, body positivity, and social justice. Annie opens up about her deeply personal experience living with Ehlers-Danlos Syndrome (EDS), discussing the emotional and physical toll of navigating a medical system that often dismisses or misdiagnoses those with chronic illnesses. She shares her frustrations with being gaslit by medical professionals and the resilience it has taken to continue advocating for herself. Key Moments 2:54Accessibility in spaces 18:27 Living with EDS 31:28 Experiencing medical gaslighting 52:45 Advocating for inclusive training and support Connect with  Annie SegarraLinkedIn:https://www.linkedin.com/in/anniesegarra  Website:https://invisibleproject.org/annie-segarra/

    1h 5m
  4. Just Between Us: All I Want is Real Portrayals in Film

    12/09/2024

    Just Between Us: All I Want is Real Portrayals in Film

    Your co-hosts Lily Newton and Erin Hawley return with a candid "Just Between Us" segment on this episode of Everything You Know. They discuss the importance of authentic storytelling in media, using recent casting choices in "Wicked" and Disney adaptations as a jumping-off point. The hosts explore why representation isn’t enough without real inclusion and the need for self-accommodation to destigmatize accessibility. Lily and Erin also reflect on highlights from the past year, sharing their "All I Want" asks for better support. Key Moments 00:00 Authentic casting matters 03:44 Frustration with film clichés 11:38 Tart cherry juice helps sleep 14:20 Joining Easterseals' campaign 17:14 Destigmatize accessibility Connect with Lily Newton LinkedIn: https://www.linkedin.com/in/lily-newton-3b0b5b229 Website: https://www.easterseals.com/ Connect with Erin Hawley LinkedIn: https://www.linkedin.com/in/erinhawley2 Website: https://www.easterseals.com/

    26 min
  5. Advocacy and Identity: Madison Tevlin’s Creative Journey

    11/26/2024

    Advocacy and Identity: Madison Tevlin’s Creative Journey

    Advocacy is not just about raising awareness; it’s about creating real change. Madison Tevlin is an actor, Host, Model, and Advocate. She is known for her impactful work in the "Assume That I Can" campaign for World Down Syndrome Day and her role in "Champions" alongside Woody Harrelson. Madison shares her wonderful journey and passion for music and storytelling. Madison talks about her upcoming podcast, "21 Questions," featuring stars like Paris Hilton and Nelly Furtado. Madison opens up about the challenges of breaking stereotypes associated with Down syndrome and emphasizes the importance of community support in her life. Key Moments 00:00 Multi-faceted journey 06:24 Music and family enhance wellness 17:53 Opening up about Down syndrome 22:19 Perfect fit for the roles 27:26 Redefining Stereotypes Through Storytelling 45:25 Education integration fosters community Connect with Madison TevlinInstagram:https://www.instagram.com/madisontevlin/?hl=en  Website: https://www.madisontevlin.com/

    52 min
  6. Pamela Schuller on Mastering the Balance between Vulnerability, Comedy, and Advocacy | Episode 15

    11/12/2024

    Pamela Schuller on Mastering the Balance between Vulnerability, Comedy, and Advocacy | Episode 15

    Humor is a bridge to understanding; it transforms conversations about disability into moments of connection. Pamela Schuller is a passionate disability advocate and stand-up comedian. Pamela shares her journey with Tourette syndrome and how humor has helped her tackle tough conversations about disabilities. Pamela opens up about finding the right balance between vulnerability and oversharing, the challenges of accommodating disabilities in public spaces, and her unexpected shift from stand-up to storytelling. Pamela discusses the impact of her experiences on her mission to create more inclusive environments. Key Moments 08:05 Challenging stereotypes. 14:27 Humor fosters resilience. 17:37 Goals: laughter and inclusivity. 30:53 Accepting emotions reduces judgment. 43:45 Tourette's and performance. Connect with Pamela SchullerLinkedIn: https://www.linkedin.com/in/pamelaschuller  Website: https://pamelacomedy.com/

    1h 3m
  7. Creative Ideas, Personal Brands, and Workplace Inclusion with Rachel Lowenstein | Episode 14

    10/15/2024

    Creative Ideas, Personal Brands, and Workplace Inclusion with Rachel Lowenstein | Episode 14

    “Accessibility isn’t just a feature; it’s a necessity for truly inclusive spaces.” Rachel Lowenstein, Founder and Culture Expert at Rachel Lowenstein Consulting and Divergent Convergent, joins Lily Newton and Erin Hawley on the show. Rachel talks about why neuro-inclusion is a crucial part of workplace accessibility and how her work with Divergent Convergent is making a difference.  Rachel also opens up about her own experiences with finding her true identity, avoiding burnout, and shifting from a corporate job to running her own business. In this episode, Rachel shares her thoughts on creating inclusive work environments, the challenges of traditional corporate settings, and the importance of community support. Key Moments 13:41 Impact of Inclusive Marketing 26:34  Building Authentic Friendships 35:47 Mentor’s Advice: Pay It Forward 47:35 Remote Work and Inclusion Connect with Rachel LowensteinLinkedIn: https://www.linkedin.com/in/rachel-lowenstein-49431a38 Instagram: https://www.instagram.com/rachelissan/?hl=en  Divergent Convergent: https://parsnip-tetra-f2ny.squarespace.com/

    1h 16m
  8. Finding Balance and Owning Your Story with Jennifer Gasner | Episode 13

    10/08/2024

    Finding Balance and Owning Your Story with Jennifer Gasner | Episode 13

    "The journey of self-acceptance is ongoing and deeply personal." Jennifer Gasner, author of *My Unexpected Life: Finding Balance Beyond My Diagnosis*, shares her journey of self-acceptance and understanding of her own identity. She explores the importance of supportive workplaces, the power of tell your own story, and addressing misconceptions about disability. Jennifer also highlights her personal growth in accepting help and fostering inclusivity. Her story is a powerful testament to self-acceptance, resilience, and the push for a more inclusive world, providing guidance for anyone navigating their own journey. Timestamps 0:00 Jennifer Gasner’s Story  10:45 Finding Balance 20:30 Embracing Change 30:00 Breaking Barriers 45:15 Everyday Triumphs 55:00 Redefining Strength 1:05:00 Looking Forward Connect with Jennifer Gasner LinkedIn: https://www.linkedin.com/in/jennifer-gasner-4b1aaa50/  Website:https://jennifergasner.com/  My Unexpected Life by Jennifer Gasner: https://www.amazon.com/My-Unexpected-Life-Finding-Diagnosis/dp/B0CCCPG1ZJ

    1h 7m
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Ratings & Reviews

5
out of 5
10 Ratings

About

Everything You Know About Disability is Wrong is a podcast for the disability community by the disability community, hosted by two disabled women. But if you’re not disabled, listen in to learn about real issues, celebrations, and conversations disabled people are having in their communities. Powered by Easterseals.

Information

  • Creator
    Easterseals
  • Years Active
    2023 - 2025
  • Episodes
    35
  • Rating
    Clean
  • Copyright
    © 2024 Everything You Know About Disability Is Wrong Erin and Lily

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