Hope and Help For Fatigue & Chronic Illness

This podcast and all the wonderful doctors who have been interviewed have been a game changer for my sense of hope. The validation, the perspectives/framing, the work being done—all patient focused—are transformative. I appreciate the knowledge that the host brings to the table. I just wish she would interrupt less and allow the experts to talk more.

As somebody with ME for 26 years, I find this podcast a waste of an important conversation idea. I don’t need the host to constantly tell me how brilliant her guests are. Her ideas on diet sound dated. Every person healing these days is typically doing keto or carnivore. I keep trying new episodes hoping there’s real new info but it’s never the case. A beginner’s guide to basics is worth doing for new people to the illness - like how to find and deal with the medical system and if it’s even worth the traditional system which it probably isn’t. But most shows should be dealing with real solutions instead of medical jargon that’s too confusing for the scrambled and tired brains of anybody with this illness

1. The host shouldn’t interrupt as much. I have ME/CFS; I’m already exhausted. I don’t need a podcast host’s frenetic interruptions to make me feel even more exhausted. It’s gotten to where I can’t listen to this podcast during my really bad relapses. 2. The conversation needs to stay on topic. The latest episode about the interplay between the immune system and the nervous system hardly contains any info about the stated topic.

Thank you for providing this vital information for those of us with (often multiple) complex diseases that sadly most physicians are clueless about. My unrealistic wish is that this podcast be required listening for the whole medical profession, the vast majority of whom are dismissive to patients they don't know how to diagnose or treat. I recently had the good fortune of becoming a patient of Dr. Rey at INIM. You are all doing excellent work there. Thank you, and bravo!