MSMS: The Many Stories of Multiple Sclerosis

Colleen Daniels

We’ve recently updated our podcast cover — same show, new look! Welcome to MSMS: The Many Stories of Multiple Sclerosis Here, you'll hear real stories from real people—Australians and occasionally others from around the world—sharing their experiences of life with Multiple Sclerosis (MS). The podcast began with Colleen's hope to build greater understanding of Hematopoietic Stem Cell Transplant (HSCT), by spotlighting the stories of Australians living with MS who had undergone this intense and often misunderstood procedure. What started as a focus on HSCT has since grown to include a range of conversations relevant to Australians living with MS—honest, heartfelt stories that speak to the reality of this progressive disease. By sharing our experiences, we support one another, reduce the isolation that so often comes with MS, and foster a sense of community—while also raising much-needed awareness. The first series of MSMS centres on HSCT—the decision-making process, the challenges faced, and the individual outcomes that follow. In Episode One, you’ll meet your host Colleen and her husband Kel, as they take you on their extraordinary journey to Moscow, Russia. It was there, just 5 years  married and desperate to stop the rapid progression of her MS, that Colleen underwent HSCT. What followed was an ordeal of unexpected challenges—physical, emotional, and logistical. Through it all, Colleen the patient, and Kel her steadfast champion. Their story has been shared in Australian newspapers, radio and TV—but here, in their own words, Colleen and Kel share even more of their remarkable story, behind the headlines.  ---Disclaimer:This podcast is not intended to replace professional medical advice. The views expressed in this podcast are those of the host or guest(s). No story told, view expressed or opinion voiced, written or otherwise shared in any episode of this podcast is to be taken as medical advice, including when related in an episode as a professional opinion or professional advice given.Always seek the guidance of your doctor or other qualified health professional with any questions regarding your health or medical condition.  Content Warning: Multiple Sclerosis is an unpredictable condition and the conversations and stories in all episodes of this podcast will contain reference to MS symptoms as well as situations experienced before, during or after HSCT - some of which may be disturbing or upsetting for some.   In Australia https://beyondblue.org.au and Lifeline on 13 11 14 or https://www.lifeline.org.au are organisations which provide assistance  - do please look after yourself.

  1. MAR 13

    Motor Neurone Disease - discussion with MND NSW - #Podcasthon episode

    In this special episode we step away from MS in support of another neurological condition - Motor Neurone Disease (MND). As a part of the international #Podcasthon charitable initiative, Colleen has chosen to support MND by raising awareness of that condition, and speaks with Andrew Collins from MND NSW to learn what MND is, and about the services and care needed to support people impacted. To learn more or find out what you can do to help, or to donate please visit the MND NSW website https://www.mndnsw.org.au/   Please consider supporting the work of MND New South Wales (or the national body in your country), and do help raise awareness by sharing this episode. Support the show You can join Colleen and other Australians living with MS in this podcast's Facebook group which was originally created to support those interested in HSCT and now exists to facilitate discussion on all issues relevant to MS. Multiple Sclerosis and HSCT Australia - Facebook group PS: I'd appreciate your donation to help in maintaining this podcast - if you could buy me a coffee or two please (donate $5, it's not real coffee! thank you!) - Colleen Buy Colleen a Coffee - thank you! Disclaimer: This podcast is not intended to replace professional medical advice. The views expressed in episodes of this podcast are those of the host or guest(s) and are not intended to replace professional medical advice. No story told, view expressed or opinion voiced, written or otherwise shared in any episode of this podcast is to be taken as medical advice, including when related in an episode as a professional opinion or professional advice given. Always seek the guidance of your doctor or other qualified health professional with any questions regarding your health or medical condition. Content Warning: Multiple Sclerosis is an unpredictable condition and the conversations and stories in all episodes of this podcast will contain reference to MS symptoms as well as situa...

    13 min
  2. FEB 24

    MSMS Returns

    Why MSMS needed to take a pause - and soon a dive into this year's  Podcasthon, coming next month.  Podcasthon takes us on a path toward helping others who live with neurological disease, listen as Colleen explains. If any episode of this podcast has meant something to you, if a story has helped you feel less alone or better understood, or maybe you learnt something through hearing someone else's MS experience, there are ways that you can help to continue this podcast. If you just share an episode with a friend, somebody you know who might find some value in it as well. That makes a huge difference, please share - to help another or to help raise awareness. Support the show You can join Colleen and other Australians living with MS in this podcast's Facebook group which was originally created to support those interested in HSCT and now exists to facilitate discussion on all issues relevant to MS. Multiple Sclerosis and HSCT Australia - Facebook group PS: I'd appreciate your donation to help in maintaining this podcast - if you could buy me a coffee or two please (donate $5, it's not real coffee! thank you!) - Colleen Buy Colleen a Coffee - thank you! Disclaimer: This podcast is not intended to replace professional medical advice. The views expressed in episodes of this podcast are those of the host or guest(s) and are not intended to replace professional medical advice. No story told, view expressed or opinion voiced, written or otherwise shared in any episode of this podcast is to be taken as medical advice, including when related in an episode as a professional opinion or professional advice given. Always seek the guidance of your doctor or other qualified health professional with any questions regarding your health or medical condition. Content Warning: Multiple Sclerosis is an unpredictable condition and the conversations and stories in all episodes of this podcast will contain reference to MS symptoms as well as situa...

    7 min
  3. JAN 28

    With gratitude, and wishes - reflecting on 2025

    Colleen reflects on a year of MS stories and shares gentle holiday wishes with an invite to future MS storytellers from across Australia to join the conversation. Email msmspodcast at proton.me Support the show You can join Colleen and other Australians living with MS in this podcast's Facebook group which was originally created to support those interested in HSCT and now exists to facilitate discussion on all issues relevant to MS. Multiple Sclerosis and HSCT Australia - Facebook group PS: I'd appreciate your donation to help in maintaining this podcast - if you could buy me a coffee or two please (donate $5, it's not real coffee! thank you!) - Colleen Buy Colleen a Coffee - thank you! Disclaimer: This podcast is not intended to replace professional medical advice. The views expressed in episodes of this podcast are those of the host or guest(s) and are not intended to replace professional medical advice. No story told, view expressed or opinion voiced, written or otherwise shared in any episode of this podcast is to be taken as medical advice, including when related in an episode as a professional opinion or professional advice given. Always seek the guidance of your doctor or other qualified health professional with any questions regarding your health or medical condition. Content Warning: Multiple Sclerosis is an unpredictable condition and the conversations and stories in all episodes of this podcast will contain reference to MS symptoms as well as situa...

    6 min
  4. 09/30/2025

    One Phone Call = Big Decisions

    In this episode Colleen introduces Amy (from Queensland's Sunshine Coast) and their conversation takes a look at MS decision‑making and the courage to choose a path that fits your temperament. Amy also talks with Colleen about her diagnosis, cost shock, her experience of Mavenclad side effects, community wisdom, and the quiet power of taking control. If you’re weighing your choices or how to live with less fear and more clarity, Amy’s story offers practical insight into considerations around risk and recovery. Support the show You can join Colleen and other Australians living with MS in this podcast's Facebook group which was originally created to support those interested in HSCT and now exists to facilitate discussion on all issues relevant to MS. Multiple Sclerosis and HSCT Australia - Facebook group PS: I'd appreciate your donation to help in maintaining this podcast - if you could buy me a coffee or two please (donate $5, it's not real coffee! thank you!) - Colleen Buy Colleen a Coffee - thank you! Disclaimer: This podcast is not intended to replace professional medical advice. The views expressed in episodes of this podcast are those of the host or guest(s) and are not intended to replace professional medical advice. No story told, view expressed or opinion voiced, written or otherwise shared in any episode of this podcast is to be taken as medical advice, including when related in an episode as a professional opinion or professional advice given. Always seek the guidance of your doctor or other qualified health professional with any questions regarding your health or medical condition. Content Warning: Multiple Sclerosis is an unpredictable condition and the conversations and stories in all episodes of this podcast will contain reference to MS symptoms as well as situa...

    53 min
  5. 09/14/2025

    When Hope Meets Deception: MS Treatment Scams

    Falling prey to a scam can happen to anyone, but for those living with multiple sclerosis, the risks can hurt more than our bank account. The uncertainty of MS can create vulnerabilities that scammers exploit. It’s important to stay hopeful about advances in treatment — but also to stay informed, so hope isn’t taken advantage of. Note from Colleen: This episode is about helping people with MS avoid falling victim to scams that promise “cures.” While much of what I share in this episode is my perspective, the fact is that scammers do prey on our hopes of overcoming MS and all its symptoms. We do need to remain alert to these dangers. I truly hope this episode helps anyone considering an untested or advertised  treatment. Stay safe. 💛 Support the show You can join Colleen and other Australians living with MS in this podcast's Facebook group which was originally created to support those interested in HSCT and now exists to facilitate discussion on all issues relevant to MS. Multiple Sclerosis and HSCT Australia - Facebook group PS: I'd appreciate your donation to help in maintaining this podcast - if you could buy me a coffee or two please (donate $5, it's not real coffee! thank you!) - Colleen Buy Colleen a Coffee - thank you! Disclaimer: This podcast is not intended to replace professional medical advice. The views expressed in episodes of this podcast are those of the host or guest(s) and are not intended to replace professional medical advice. No story told, view expressed or opinion voiced, written or otherwise shared in any episode of this podcast is to be taken as medical advice, including when related in an episode as a professional opinion or professional advice given. Always seek the guidance of your doctor or other qualified health professional with any questions regarding your health or medical condition. Content Warning: Multiple Sclerosis is an unpredictable condition and the conversations and stories in all episodes of this podcast will contain reference to MS symptoms as well as situa...

    11 min
  6. 09/08/2025

    What is Car-T Therapy?

    In this episode, Colleen shares information on Car-T therapy. If interested in learning more or potentially participating in clinical trials, resources like the Australian New Zealand Clinical Trials Registry (ANZCTR) https:/www.anzctr.org.au provide valuable information about ongoing studies. Eligibility criteria are specific, and participation in any trial is an important decision that should include thorough discussions with your healthcare team. Notes from Colleen: The information I share in this episode comes from sources that are freely available — I’ve put it together in a way that I hope feels clear and helpful, in order to share, start conversations, and support others in the MS community who may be interested. I am not a medical professional. I mention a couple of studies, one that treated three people with progressive MS using CAR-T therapy. While a very small number of participants all three  saw improvements in mobility, hand dexterity, and resolution of oligoclonal bands (a marker of inflammation in the spinal fluid).  The full article is here: three progressive MS patients show improvement Please remember this podcast is for general information only and should never replace advice from your own healthcare team. Thank you, Colleen Support the show You can join Colleen and other Australians living with MS in this podcast's Facebook group which was originally created to support those interested in HSCT and now exists to facilitate discussion on all issues relevant to MS. Multiple Sclerosis and HSCT Australia - Facebook group PS: I'd appreciate your donation to help in maintaining this podcast - if you could buy me a coffee or two please (donate $5, it's not real coffee! thank you!) - Colleen Buy Colleen a Coffee - thank you! Disclaimer: This podcast is not intended to replace professional medical advice. The views expressed in episodes of this podcast are those of the host or guest(s) and are not intended to replace professional medical advice. No story told, view expressed or opinion voiced, written or otherwise shared in any episode of this podcast is to be taken as medical advice, including when related in an episode as a professional opinion or professional advice given. Always seek the guidance of your doctor or other qualified health professional with any questions regarding your health or medical condition. Content Warning: Multiple Sclerosis is an unpredictable condition and the conversations and stories in all episodes of this podcast will contain reference to MS symptoms as well as situa...

    11 min
  7. 07/11/2025

    Caregiver to patient – Teresa returns to share her post-HSCT recovery

    Listen as Teresa shares her post-treatment challenges – beginning with a looming cyclone. Despite her husband's careful preparations for Teresa's  recovery, challenges came one after the other. Even with the setbacks, Teresa's journey from caregiver to patient has come full circle, creating deeper connections and understanding along the way. Teresa's story offers valuable insights for others considering HSCT treatment. If this story has reached out to you, your story could reach out to touch, help or support someone else. Just email Colleen at msmspodcast@proton.me Support the show You can join Colleen and other Australians living with MS in this podcast's Facebook group which was originally created to support those interested in HSCT and now exists to facilitate discussion on all issues relevant to MS. Multiple Sclerosis and HSCT Australia - Facebook group PS: I'd appreciate your donation to help in maintaining this podcast - if you could buy me a coffee or two please (donate $5, it's not real coffee! thank you!) - Colleen Buy Colleen a Coffee - thank you! Disclaimer: This podcast is not intended to replace professional medical advice. The views expressed in episodes of this podcast are those of the host or guest(s) and are not intended to replace professional medical advice. No story told, view expressed or opinion voiced, written or otherwise shared in any episode of this podcast is to be taken as medical advice, including when related in an episode as a professional opinion or professional advice given. Always seek the guidance of your doctor or other qualified health professional with any questions regarding your health or medical condition. Content Warning: Multiple Sclerosis is an unpredictable condition and the conversations and stories in all episodes of this podcast will contain reference to MS symptoms as well as situa...

    36 min
  8. 05/20/2025

    Navigating Overseas Stem Cell Treatments : Colleen Shares Her Perspective (a short episode)

    Overseas Stem Cell Treatments for MS  In this episode, I speak from my personal experience of exploring stem cell treatments in the hope of slowing the progression of my MS. I am not medically qualified, so I speak from the perspective of someone who has actively searched for options and tried to make sense of what I found was being claimed. Ultimately I underwent HSCT (Hematopoietic Stem Cell Transplant) in 2017, at that time available in reputable hospitals in Mexico, Singapore, and Russia. Treatments offered overseas today can vary greatly. Some overseas stem cell 'packages' offer other wellness or support therapies eg physiotherapy or acupuncture, alongside the stem cell component. Others combine stem cell injections with added procedures such as vein "unblocking"—I believe that procedure may be CCSVI (chronic cerebrospinal venous insufficiency)—which was trialled in relation to MS around 2013. MS Australia advise on their website that the results of that trial were disappointing:  🔗 MS Australia – Disappointing Results from CCSVI Trial To help those thinking about these treatments, I’ve created a simple infographic with five questions to consider. These questions are a starting point only. There is much to weigh up, and it’s essential to seek advice from qualified medical professionals before making any decision about your health treatments. Many are keen to hear the truth around the various MS stem cell procedures being offered - if you are in Australia and have had a stem cell treatment for MS, and would like to share your story on the podcast please email msmspodcast@proton.me - thank you, Colleen Support the show You can join Colleen and other Australians living with MS in this podcast's Facebook group which was originally created to support those interested in HSCT and now exists to facilitate discussion on all issues relevant to MS. Multiple Sclerosis and HSCT Australia - Facebook group PS: I'd appreciate your donation to help in maintaining this podcast - if you could buy me a coffee or two please (donate $5, it's not real coffee! thank you!) - Colleen Buy Colleen a Coffee - thank you! Disclaimer: This podcast is not intended to replace professional medical advice. The views expressed in episodes of this podcast are those of the host or guest(s) and are not intended to replace professional medical advice. No story told, view expressed or opinion voiced, written or otherwise shared in any episode of this podcast is to be taken as medical advice, including when related in an episode as a professional opinion or professional advice given. Always seek the guidance of your doctor or other qualified health professional with any questions regarding your health or medical condition. Content Warning: Multiple Sclerosis is an unpredictable condition and the conversations and stories in all episodes of this podcast will contain reference to MS symptoms as well as situa...

    5 min

About

We’ve recently updated our podcast cover — same show, new look! Welcome to MSMS: The Many Stories of Multiple Sclerosis Here, you'll hear real stories from real people—Australians and occasionally others from around the world—sharing their experiences of life with Multiple Sclerosis (MS). The podcast began with Colleen's hope to build greater understanding of Hematopoietic Stem Cell Transplant (HSCT), by spotlighting the stories of Australians living with MS who had undergone this intense and often misunderstood procedure. What started as a focus on HSCT has since grown to include a range of conversations relevant to Australians living with MS—honest, heartfelt stories that speak to the reality of this progressive disease. By sharing our experiences, we support one another, reduce the isolation that so often comes with MS, and foster a sense of community—while also raising much-needed awareness. The first series of MSMS centres on HSCT—the decision-making process, the challenges faced, and the individual outcomes that follow. In Episode One, you’ll meet your host Colleen and her husband Kel, as they take you on their extraordinary journey to Moscow, Russia. It was there, just 5 years  married and desperate to stop the rapid progression of her MS, that Colleen underwent HSCT. What followed was an ordeal of unexpected challenges—physical, emotional, and logistical. Through it all, Colleen the patient, and Kel her steadfast champion. Their story has been shared in Australian newspapers, radio and TV—but here, in their own words, Colleen and Kel share even more of their remarkable story, behind the headlines.  ---Disclaimer:This podcast is not intended to replace professional medical advice. The views expressed in this podcast are those of the host or guest(s). No story told, view expressed or opinion voiced, written or otherwise shared in any episode of this podcast is to be taken as medical advice, including when related in an episode as a professional opinion or professional advice given.Always seek the guidance of your doctor or other qualified health professional with any questions regarding your health or medical condition.  Content Warning: Multiple Sclerosis is an unpredictable condition and the conversations and stories in all episodes of this podcast will contain reference to MS symptoms as well as situations experienced before, during or after HSCT - some of which may be disturbing or upsetting for some.   In Australia https://beyondblue.org.au and Lifeline on 13 11 14 or https://www.lifeline.org.au are organisations which provide assistance  - do please look after yourself.

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