Let's Talk About The POTS life

The POTS Life

POTS, or Postural Orthostatic Tachycardia Syndrome, is a form of dysautonomia disorder. The hallmark of POTS is a rapid heart rate that occurs upon standing, leading to symptoms like dizziness, lightheadedness, and fatigue. Learn about the POTS life program developed by Physical Therapist Kelsey Botti, who is thriving with POTS. Hear about Kelsey's story, her patients, and her team. (The information provided in this podcast are for educational purposes only and does not substitute for professional medical advice

  1. 1D AGO

    Is The POTS Life Program Safe for CFS, EDS & Severe Fatigue?

    In this Q&A episode of Let’s Talk About The POTS Life, we’re answering one of the biggest questions we get: Is The POTS Life Program safe if I have chronic fatigue syndrome, fibromyalgia, EDS, or severe fatigue? We talk through what happens if you’re mostly bedbound, how we modify when symptoms flare, and why starting “low and slow” isn’t just a phrase — it’s the foundation. We also cover: How we customize progressions for different fatigue levelsWhether electrolytes have a “right number” (and why the answer isn’t simple)Why EDS-safe, joint-friendly strength training actually mattersHow appropriate weight-bearing supports long-term stability and pain managementIf you’ve been wondering whether you’re “too sick” or “too complex” to start, this episode is for you. Connect with Us: ⁠⁠⁠⁠⁠Our Website⁠⁠⁠⁠⁠ Facebook: The POTS Life Instagram: @thepotslife_ Tik Tok: thepotslife

    14 min

  2. 5D AGO

    Living with POTS: What It’s Like for a Spouse | Dysautonomia & Chronic Illness Support

    What is it really like to love someone living with POTS and dysautonomia? In this episode of Let’s Talk About The POTS Life, my husband Cale shares what it was like watching me navigate years of undiagnosed Postural Orthostatic Tachycardia Syndrome (POTS) — the ER visits, the “normal” test results, the adrenaline dumps at night, and the slow decline that didn’t make sense. We talk openly about what dysautonomia and autonomic nervous system dysfunction looked like from his perspective — the tachycardia, tremors, chronic fatigue, insomnia, and living in constant fight-or-flight. From the outside, POTS can look like “just dizziness.” But inside, it affects every part of life — including marriage and family. In this episode, we discuss: Supporting a spouse with POTSUnderstanding invisible illness and dysautonomiaNighttime adrenaline surges and anxietyThe emotional impact of chronic illness on relationshipsHow to validate someone with autonomic dysfunctionPractical advice for partners, caregivers, and family membersIf you are newly diagnosed with POTS, living with dysautonomia, or trying to help your spouse or loved ones understand what this condition really feels like, this conversation will resonate deeply. POTS affects the autonomic nervous system, but it also affects relationships. And understanding changes everything. Connect with Us: ⁠⁠⁠⁠Our Website⁠⁠⁠⁠ Facebook: The POTS Life Instagram: @thepotslife_ Tik Tok: thepotslife

    38 min

  3. FEB 17

    Cate’s POTS Journey: Chiari Surgery, CSF Leaks, EDS & Rebuilding Life

    In this episode of Let’s Talk About The POTS Life, Cate shares her experience navigating POTS alongside Chiari malformation, CSF leaks, EDS, and multiple complex complications. What began as headaches and athletic injuries evolved into years of surgeries, overlapping diagnoses, and periods of profound disability. Cate walks us through how her symptoms were missed early on, how deconditioning worsened her condition, and how finding the right care team changed the trajectory of her health. Today, she lives independently, works full-time, and is training for her second marathon. Her story is a powerful reminder that progress with POTS isn’t linear, but with individualized care, movement, and the right support, meaningful improvement is possible. Connect with Us: ⁠⁠⁠Our Website⁠⁠⁠ Facebook: The POTS Life Instagram: @thepotslife_ Tik Tok: thepotslife

    50 min

  4. FEB 3

    Navigating Medical Challenges: A Conversation with Dr. Poorvi Desai

    In this episode of 'Let's Talk About The POTS Life,' hosts welcome Dr. Poorvi Desai, a hematologist oncologist with a unique perspective on both practicing medicine and being a patient with chronic illnesses. Dr. Desai shares her journey through medical school while managing symptoms of Postural Orthostatic Tachycardia Syndrome (POTS), Ehlers-Danlos Syndrome (EDS), and other related conditions. She delves into her background, her accelerated medical training, and the personal and professional challenges she faced. Dr. Desai also discusses her diagnosis and treatment journey, including her experience with the complex syndrome MALS (Median Arcuate Ligament Syndrome), the emotional and physical toll of her conditions, and the importance of advocating for oneself in the medical system. The episode emphasizes the importance of lifestyle changes, emotional support, and reducing stress to manage chronic conditions effectively.00:00 Introduction and Guest Welcome 01:13 Dr. Desai's Medical Journey 02:44 Living with POTS and EDS 04:46 Challenges in Medical Training 07:03 Diagnosis and Misdiagnosis 10:59 Physical Therapy and Coping Strategies 21:02 Impact of COVID-19 and Career Struggles 27:49 Struggling with Saying No and Emotional Stress 29:00 Facing Emotional Abuse and Therapy 29:27 Cultural Expectations and Self-Care 30:50 Learning Boundaries and Self-Advocacy 31:44 Positive Reinforcement in Physical Therapy 32:58 Navigating Medical Training and Hierarchies 34:15 Seeking Diagnosis and Community Support 35:35 Understanding and Diagnosing MALS 42:30 Surgical Interventions and Recovery 52:38 Advice for the Newly Diagnosed 55:42 Concluding Thoughts and Future Plans Connect with Us: ⁠⁠Our Website⁠⁠ Facebook: The POTS Life Instagram: @thepotslife_ Tik Tok: thepotslife

    57 min

  5. JAN 21

    A POTS Life Graduate: Arielle's Inspiring Journey

    In this episode of 'Let's Talk About the POTS Life,' Arielle shares her compelling journey with Postural Orthostatic Tachycardia Syndrome (POTS). Diagnosed at 12, Arielle recounts her initial symptoms, the challenges of finding the right medical support, and the invaluable role her parents played in her recovery. She discusses her experiences with various treatments, medications, and the importance of staying motivated. Arielle's story emphasizes the significance of a robust support system and sheds light on her growth, both physically and emotionally, as she navigates college life and looks towards the future. 00:00 Introduction to the POTS Life Podcast 01:14 Arielle's Early Diagnosis Journey 03:29 Challenges and Support from Family 06:21 High School Struggles and Finding Dr. Abdullah 07:14 Navigating High School with POTS 11:01 Transition to College and Beyond 18:14 Recognizing Improvement in Health 18:58 Balancing Activities and Health 19:50 Medication Management 23:14 Transitioning to Physical Activities 25:11 Living with POTS: Challenges and Progress 29:44 Advice for the Newly Diagnosed 32:42 Support Systems and Final Thoughts Connect with Us: ⁠Our Website⁠ Facebook: The POTS Life Instagram: @thepotslife_ Tik Tok: thepotslife

    33 min

  6. JAN 6

    Mental Health and Chronic Illness: Insights from Ashley Schuetz, CRNP

    In this episode of 'Let's Talk about the POTS Life,' the hosts welcome Ashley Schuetz, a dual-certified Family and Psychiatric Mental Health Nurse Practitioner. Ashley shares her journey from cosmetology to the medical field and her extensive experience working in the Pittsburgh Public Schools. The discussion dives into the intersections of mental health and chronic illness, particularly POTS, emphasizing the importance of validating symptoms, the struggles of navigating multiple diagnoses, and the crucial role of community and support. The conversation also highlights the increase in diagnoses of ADHD, OCD, and anxiety, especially post-COVID, and provides advice for parents on advocating for their children's health. Tune in for valuable insights on managing chronic illnesses and mental health holistically. 00:00 Introduction to the POTS Life Podcast 00:23 Meet Our Guest: Ashley Schuetz, CRNP 00:59 Ashley's Journey into Nursing 02:55 Mental Health and COVID-19 04:45 Challenges in Diagnosing Chronic Illnesses 06:53 Supporting Children with Chronic Illnesses 08:09 The Importance of Validation and Advocacy 10:54 Navigating the Medical System 16:39 The Role of Community and Support 19:30 Post-COVID Mental Health Trends 21:41 Understanding OCD and ADHD Symptoms 22:21 The Importance of Treating Symptoms, Not Diagnoses 22:44 The Impact of Mental Health on Daily Life 23:36 The Role of Therapy and Medication 25:24 Breaking the Stigma Around Mental Health 26:30 The Necessity of Mental Health Professionals 28:07 The Benefits of Comprehensive Care 31:08 Specialized Care for Students 33:47 Raising Awareness About POTS 35:19 Final Thoughts and Contact Information Connect with Ashley: Ashley Schuetz, CRNP | Fine Tune Psychiatry Psychiatric Care for Children, Teens & Adults | Fine Tune Psychiatry Connect with Us: Our Website Facebook: The POTS Life Instagram: @thepotslife_ Tik Tok: thepotslife

    39 min

  7. JAN 1

    Understanding the Tilt Table Test for POTS Diagnosis

    In this episode of 'Let's Talk About the POTS Life,' the hosts delve into the frequently asked questions surrounding the Tilt Table Test, a crucial diagnostic procedure for POTS (Postural Orthostatic Tachycardia Syndrome). They explain what the test involves, who typically orders it, and its importance in diagnosing POTS. The discussion also covers personal experiences with the test, how to prepare for it, and tips for managing the aftereffects. Listeners are advised on how to navigate the healthcare system to get a proper diagnosis and the importance of finding the right medical team for ongoing support. 00:00 Introduction to the POTS Life Podcast 00:34 Understanding the Tilt Table Test 01:01 Preparing for the Tilt Table Test 05:23 Experiencing the Tilt Table Test 10:57 Post-Test Reactions and Advice 15:09 Alternative Diagnosis Methods 18:44 Living with POTS: Next Steps 21:56 Conclusion and Support Connect with us! ⁠The POTS Life⁠ Facebook: The POTS Life Instagram: @thepotslife_ Tik Tok: thepotslife

    23 min

  8. 12/24/2025

    Surviving Holiday Stress with POTS: Tips and Tricks

    Welcome to a special holiday edition of 'Let's Talk About the POTS Life.' In this episode, we share essential tips and tricks to navigate the holiday season while managing Postural Orthostatic Tachycardia Syndrome (POTS). We discuss the importance of maintaining routines, prioritizing exercise, staying hydrated, and eating consistent small meals. Additionally, we emphasize the significance of self-care and flexibility during this festive yet chaotic time. Join us for practical advice to keep your POTS symptoms at bay and learn about our supportive POTS Life Program to start the new year strong. 00:00 Welcome to the POTS Life Holiday Edition 00:35 Managing Holiday Stress with POTS 01:08 Maintaining Routines and Exercise 02:21 Importance of Hydration and Nutrition 05:07 Grace and Flexibility During the Holidays 05:41 Join the POTS Life Program in the New Year 06:45 Conclusion and Holiday Wishes Connect with us! The POTS Life Facebook: The POTS Life Instagram: @thepotslife_ Tik Tok: thepotslife

    8 min
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About

POTS, or Postural Orthostatic Tachycardia Syndrome, is a form of dysautonomia disorder. The hallmark of POTS is a rapid heart rate that occurs upon standing, leading to symptoms like dizziness, lightheadedness, and fatigue. Learn about the POTS life program developed by Physical Therapist Kelsey Botti, who is thriving with POTS. Hear about Kelsey's story, her patients, and her team. (The information provided in this podcast are for educational purposes only and does not substitute for professional medical advice

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