The Real Lives of TBI Wives

Erika Brouillette

Real Lives of TBI Wives is a heartfelt and empowering podcast that gives voice to the untold stories of women who are navigating life as caregivers to husbands with traumatic brain injuries. Hosted by Erika, a wife, mother, and advocate, this podcast offers a candid look at the highs and lows of caregiving, self-care, and balancing the complexities of family life. Each episode features real-life experiences, tips, and encouragement for those walking this difficult path. Whether you’re a fellow TBI wife or someone looking to better understand this journey, Real Lives of TBI Wives is a safe space for support, connection, and healing. Join Erika and other TBI wives as they share their stories, struggles, and triumphs, offering a glimmer of hope for all who listen.

  1. 1d ago

    He Can Still Look at Me, It’s Just Not the Same | Ep. 62

    Ep. 62 | Shelby can look at Erika, is eyes work and he does look at her. But it is not the same Before October 11th, 2020, he had a way of looking at her that she can only describe as a gaze. A real one. Where eye contact wasn’t just eyes meeting — it was presence meeting presence. Where she knew, without words, that she was completely seen by the person who chose her. That changed with the brain injury and for six years Erika carried the absence of it without ever having a name for what she was carrying. During a coaching practice her coach leaned in and didn’t look away. He held her in his gaze while she processed her grief, through the tears, through the silence, through the falling apart. Her group stayed with her and Erika looked away. Being seen that completely, after six years of being the one who holds everyone else’s gaze, felt like too much. What flooded in was grief and shame arriving at the exact same moment. Grief for something she had been missing for six years without fully knowing it. Shame for wanting it. Shame that it was coming from someone who was not her husband. In this episode Erika names the thing most TBI wives carry in silence — the longing for the presence of the person they married, the guilt that comes with admitting that longing exists, and the shame that tells them to look away every time someone offers them what they have been starving for. This is about one of the most human needs a woman has to be seen, to be held in someone’s gaze and to have another person look at her and not look away when things get hard. And it is about the slow, imperfect, necessary work of learning to turn that gaze on yourself. Join Reclaim to continue the conversation

  2. Oct 20

    Learning To Fall In Love With The After | Ep. 61

    Ep. 61 | October 11th came and went this year. Erika didn’t light a candle or journal or carve out space to feel the weight of the day. Instead she packed three suitcases, got her two younger boys and Shelby on a plane, and flew to Florida. She kept herself busy on purpose. And something she had been holding for six years finally let go. This episode is Erika’s most honest account yet of what six years inside a TBI marriage has actually looked like. The early years of surviving, doing all of the things while drowning in a way she couldn’t yet speak about. Getting sober on January 1st, 2022, and what happened when she couldn’t numb anymore. The childhood wounds and the belief that her worth lived in her usefulness that the injury excavated and brought to the surface. The hardest work she has ever done, learning to love herself and what that healing unlocked in how she loves her children and her husband. There was a  quiet release of the version of Shelby she had been reaching for, the destination she had been measuring their progress against for six years and the marriage she had been desperately trying to find her way back to. She is not giving up on his healing. She will never stop advocating, never stop fighting for every resource and therapy and tool that might help. What she is letting go of is the grip of the expectation and the exhaustion it has been costing both of them. There is guilt in that release. There is real and honest sadness. Her boys help care for their dad instead of playing football with him in the pool. They are growing up in a different kind of family than the one they all planned for. That grief deserves to be honored and Erika names it without rushing through it. Six years in she is learning, slowly and imperfectly to fall in love with after.

  3. Oct 6

    Keep the Story Going with Mason Mattes and Cynical Fitness | Ep. 60

    Ep. 60 | TBI wives are the last ones on their own list. The appointments, the medications, the kids, the house, the paperwork, all of it comes first. And by the time everything else is handled, the idea of figuring out what workout to do, whether you have time, what equipment you need, and where to even start feels like one decision too many. Mason Mattes built Cynical Fitness for a completely different reason, he was a former gym goer who moved to Omaha, stopped going, and could not find an app that actually kept him motivated to come back. What he accidentally built was exactly what TBI wives need. Fifteen minutes or an hour and a half, at the gym, at home, at a hotel, in the garage, with no equipment or full setup. The app connects to your calendar, reminds you when you have a pocket of time, tells you exactly what to do, adjusts when you run out of time or skip a workout, and swaps out any exercise you do not like or cannot do, without making you start over. It adapts to you.  Erika was one of Mason's first testers, and in this episode the two of them have a conversation about what it looks like to use Cynical Fitness as a TBI wife, including going through the motions on a Peloton for years, choosing the ride that would not yell at her, and what changed when she finally had something that told her what to do and pushed her to do it better. Mason also shares the full story of building the app, a year of late nights, AI tools, no coding background, Apple's approval process, data security, and realizing he should have mapped out every single feature before he started building. If you have been talking yourself out of working out because you do not have the time, the energy, the equipment, or the plan, this episode is going to change that. You can connect with Mason on Facebook and Instagram. And be sure to download the app to get started! As always, join us at Reclaim to 'keep the story going'

    Keep the Story Going with Mason Mattes and Cynical Fitness | Ep. 60
  4. Sep 24

    It Did Not Define Me with Missi Hackman | Ep. 59

    Ep. 59 | Missi was not someone who slowed down. Women's group leader, youth leader, dance team coach, committee member, fulltime employee - on the go from morning until night, not knowing any other way. She flipped an ATV after a family wedding in Texas while protecting her four year old nephew on her lap, neither of them wearing a helmet. A helicopter came and took her to Memorial Hermann in Houston, and the life she had built at full speed came to a complete stop. Only at the hospital for a couple of days, she was told to see a cardiologist for her chest contusion. Nobody told her not to fly. Nobody told her to stay in a dark room. Nobody told her what her brain actually needed to heal and that gap cost her years. In this episode, Missi shares what the long road back looked like. Eight years without driving. A jar of coins she uses to explain how her brain battery works. Vision therapy, occupational therapy, physical therapy, a neuropsychologist she saw for 10 years. A husband who called every single day on his way home to ask what she needed. A co-owned business she never saw coming that gave her back a sense of belonging and purpose. She also shares what happened this past July when her 38 year old son crashed an e-scooter two blocks from home and arrived at the ER with multiple brain bleeds and a skull fracture and how everything Missi had learned the hard way about brain injury advocacy became the thing that got him home in two weeks instead of months. And through all of it, the PIVOT method formed - Pain into perspective, inviting change, valuing connections, owning your chapter, taking meaningful action. A framework Missi built from the wreckage of her own hijacked life and now shares with anyone who needs it. Connect with Missi on LinkedIn or text  720-771-1914

    It Did Not Define Me with Missi Hackman | Ep. 59
  5. Sep 16

    We Just Got To 'Be' At Hope Heals Camp | Ep. 58

    Ep. 58 | When Erika Brouillette pulled up to Hope Heals Camp in Nauvoo, Alabama, she expected to unload the truck herself. That is what she always does. Instead, people swooped in before she could figure out where to start and she just stood there, not quite knowing what to do with herself. That moment at the truck was the first sign that this place was completely different from anything her family had ever experienced. And it only got more different from there. Hope Heals Camp is a weeklong camp for families affected by disability and every room, every space, and every gathering is thoughtfully designed for every body. It is the culture. Nobody explains themselves at Hope Heals Camp. Nobody apologizes for their reality. Nobody manages other people's discomfort with their situation. Disability is not something to hide or minimize or get through, it is something to celebrate. This episode is Erika's shares her families experience that week. The spa day she did not know she needed. Maddyx going from furious about being there to already planning next year. Layne dancing at the silent disco. Wayker wandering off to find his own friends in a space finally safe enough to let him. Shelby's CC Derek, a quiet surgeon who just knew how to care for him well. It is also about the people who gave their time, Alex and Corey Fleeman playing the right song for every single moment, Ginny Owens breathtaking at the piano, Leann Morgan bringing brand new comedy tour material to a room that needed to laugh, and Amy Julia Becker hosting the entire week with real stories, real advocacy, and a continuous stream of me too moments for every disability family in that room. Every CC and volunteer pays to be there, while campers pay nothing, because donors decided that disability families deserve a week where everything is handled and nothing costs them anything.   Hope Heals Camp Amy Julia Becker Ginny Owens Leanne Morgan Alex and Corey Fleeman Reclaim

  6. Sep 1

    Getting There Is Half The Battle, Travelling To Hope Heals Camp | Ep. 57

    Ep. 57 | If you have ever talked yourself out of a trip because the logistics felt too heavy, too complicated, too much to coordinate on top of everything else you are already carrying this episode is for you. When the Brouillette family was chosen to attend Hope Heals Camp in Nauvoo, Alabama, Erika's first instinct was to drive. Seventeen hours later, Layne getting home from a mission trip to Mexico the day before, and a price difference of nearly a thousand dollars between Birmingham and Atlanta changed that plan fast. Days of preparation, homemade tube feed made from scratch the night before departure, enough catheters and drain bags and supplements and motion sickness patches to cover a week away, a friend of a friend watching the dog, and a family decision to just stay up all night and get it done. Their flight was at five forty-five in the morning. This episode covers everything that happened between that decision and the moment they pulled into camp  the wrong birthdate on Shelby's ticket discovered at TSA, the TSA Cares program Erika had never heard of before this trip, the packed Delta flight with zero leg room and the kind stranger who switched seats, the light rail in Atlanta with a wheelchair and no sleep, and the bright red Dodge Ram the boys insisted on. It also covers the trip home, Mend coffee shop in Atlanta, the World of Coca-Cola, and learning  that traveling with a disability in Atlanta means someone will drive you from the rental car drop-off straight to your terminal door. This is the episode with all the logistics, all the things she is passing on to you so that next time you think about talking yourself out of something you have one less reason to do it.   TSA Cares Sunflower Lanyard Hope Heals Hertz Program Come continue the conversation at Reclaim

  7. Aug 12

    We Are All Created Worthy With Danielle Damrell | Ep. 56

    In October 2024, Danielle Damrell was driving home in her neighborhood when a Ford F350 hit her head-on. Three weeks later, on the drive home from a family vacation in Tennessee, a woman flew through an intersection at 55 miles per hour and T-boned the rental car, throwing it 20 feet off the road. Two accidents, only three weeks apart resulting in a  traumatic brain injury diagnosis four months later. What makes Danielle's story different is that she walks, talks, runs a business, hosts a podcast, and from the outside looks completely fine. And that invisibility, that gap between what people see and what is actually happening inside,  is something TBI wives know deeply. Because they live it every day with their husbands. In this episode, Danielle shares what it looked like to hustle through the symptoms because she had things to do, to watch her income disappear faster than she could hand off clients, to navigate memory loss and visual overstimulation and rage that made no sense, and to slowly surrender a life she had built at full speed. She also shares the unexpected gift that came from stepping into Erika's home to care for Shelby and what showering a man who used to shower twice a day taught her about gratitude, dignity, and what it means to serve from a full cup. Danielle gives us all the reminder through this episode that we all are created worthy!   Be sure to tune into the Created Worthy Podcast to hear all the amazing interviews, sharing many amazing women's life stories   As always join us at Reclaim to continue the conversation!

    We Are All Created Worthy With Danielle Damrell | Ep. 56
4.9
out of 5
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About

Real Lives of TBI Wives is a heartfelt and empowering podcast that gives voice to the untold stories of women who are navigating life as caregivers to husbands with traumatic brain injuries. Hosted by Erika, a wife, mother, and advocate, this podcast offers a candid look at the highs and lows of caregiving, self-care, and balancing the complexities of family life. Each episode features real-life experiences, tips, and encouragement for those walking this difficult path. Whether you’re a fellow TBI wife or someone looking to better understand this journey, Real Lives of TBI Wives is a safe space for support, connection, and healing. Join Erika and other TBI wives as they share their stories, struggles, and triumphs, offering a glimmer of hope for all who listen.

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