48 episodes

Humans are storytelling beings, and here at Atypical Truth, we love sharing stories from people with disabilities and their caregivers. Atypical Truth amplifies the stories of those within the community of rare diseases, disabilities, and medically complex conditions. Not only will you hear from our peers in this community, but you will also hear stories from family, friends, caregivers, and professionals who advocate with us. Each season features a new guest co-host who shares with us a glimpse into their lives, joined by people and professionals within their tribe. Support this podcast: https://podcasters.spotify.com/pod/show/atypicaltruth/support

Atypical Truth Erica Stearns

    • Society & Culture
    • 5.0 • 57 Ratings

Humans are storytelling beings, and here at Atypical Truth, we love sharing stories from people with disabilities and their caregivers. Atypical Truth amplifies the stories of those within the community of rare diseases, disabilities, and medically complex conditions. Not only will you hear from our peers in this community, but you will also hear stories from family, friends, caregivers, and professionals who advocate with us. Each season features a new guest co-host who shares with us a glimpse into their lives, joined by people and professionals within their tribe. Support this podcast: https://podcasters.spotify.com/pod/show/atypicaltruth/support

    Mission Accomplished

    Mission Accomplished

    Kristyn Newbern shares her final thoughts, thanks, and hopes for her season's impact on others.

    Kristyn delivers an epic mic-drop in this final episode of Season Two. As you might expect, Kristyn departs this season with absolutely stunning grace as she eloquently details her hesitations and motivations for publicly sharing her story.  

    Join us at the Cardinal Glennon Children's Foundation Sun Run next Sunday, October 16th. There is still plenty of time to sign up to join Luke's SkyWalkers Team!

    Transcription and Merch can be found at www.atypicaltruth.org

    Into and Outro Music by Amiina

    Episode Cover Art by Eric McJilton




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    Support this podcast: https://podcasters.spotify.com/pod/show/atypicaltruth/support

    • 17 min
    Heart Dad - Love for Our Family is What Carries Us Through

    Heart Dad - Love for Our Family is What Carries Us Through

    Kevin Newbern details his experience as a rare disease & heart dad — an intimate look into life, love, and disability parenting.

    Kristyn is joined by her loving husband and proud father of Luke and Ozzie, Mr. Kevin Newbern. It is incredibly rare to see or hear the father’s perspective on life as a rare disease parent. Kevin shares his story, thoughts, and feelings on life as a Heart Dad. As they explain throughout this episode, becoming a parent to a child with a life-threatening health condition transforms you, and that transformation isn’t always easy. It is full of fear, sadness, discomfort, and uncertainty - all rooted in the profound love for your child. It's that same love that helps us to persevere on.

    Transcription and Merch can be found at www.atypicaltruth.org

    Into and Outro Music by Amiina

    Episode Cover Art by Eric McJilton

     


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    Support this podcast: https://podcasters.spotify.com/pod/show/atypicaltruth/support

    • 1 hr 2 min
    Storytelling - The Power of Sharing and Listening to the Stories of Others

    Storytelling - The Power of Sharing and Listening to the Stories of Others

    Kristyn Newbern shares her perspective on the adventure of being a season-long podcast guest-host on Atypical Truth.

    Transcription and Merch can be found at www.atypicaltruth.org

    Into and Outro Music by Amiina

    Episode Cover Art by Eric McJilton

     




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    Support this podcast: https://podcasters.spotify.com/pod/show/atypicaltruth/support

    • 26 min
    Grandparents: Infinite Love for Our Children and Endless Support to Us Parents

    Grandparents: Infinite Love for Our Children and Endless Support to Us Parents

    Rare Disease Grandparent, Dr. Donna Cartwright, details what it is like to watch your child enter the world of disability parenting.

    This episode focuses on the support and perspective of grandparents. Dr. Donna Carthwright shares the love and pride she feels for her daughter and the family that Kristyn and Kevin have fought hard to build. Prepare to fall in love with this mother/daughter duo.

    Transcription and Merch can be found at www.atypicaltruth.org

    Into and Outro Music by Amiina

    Episode Cover Art by Eric McJilton

     


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    Support this podcast: https://podcasters.spotify.com/pod/show/atypicaltruth/support

    • 46 min
    Lasting Impact: Honoring Those Who Have Made a Profound Difference In Our Lives

    Lasting Impact: Honoring Those Who Have Made a Profound Difference In Our Lives

    Kristyn Newbern provides a storied dedication to those special people who exist beyond the microphone.

    Transcription and Merch can be found at www.atypicaltruth.org

    Into and Outro Music by Amiina

    Episode Cover Art by Eric McJilton


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    Support this podcast: https://podcasters.spotify.com/pod/show/atypicaltruth/support

    • 24 min
    The Best of Friends, Growing Together Through Thick and Thin

    The Best of Friends, Growing Together Through Thick and Thin

    Inclusive parenting, insightful advice for friends of parents facing a different parenting journey, and a heartfelt thanks to the friends who never stop showing up.

    Kristyn Newbern is joined by two close friends, Alice and Lauren, who share what it was like to support their friends through a difficult prognosis. They discuss how this experience has shaped their approach to inclusive parenting and the challenges they anticipate facing as their children continue to grow up together. They also provide some insightful advice to other friends and family members who may find themselves trying to show support from the sidelines. And finally, Kristyn shares a heartfelt letter to her friends, which I think will resonate with many parents of children with rare diseases and disabilities.

    Transcription and Merch can be found at www.atypicaltruth.org

    Into and Outro Music by Amiina

    Episode Cover Art by Eric McJilton

     

     


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    Support this podcast: https://podcasters.spotify.com/pod/show/atypicaltruth/support

    • 49 min

Customer Reviews

5.0 out of 5
57 Ratings

57 Ratings

@bridgetalaine87 ,

a voice everyone should hear

Erica’s perspective, knowledge and wit opens the door for those of us outside of the disabled community to better support and advocate with our disabled and care-giving friends. Her voice is a balm.

V BinOsfur ,

Comforting and education

Erica has such a soothing voice, and a beautiful soul! Thank you for sharing your experiences and bringing Input on your world and many others! It brings me comfort hearing about milestones and adventures! Can’t wait to hear more :)!

Sandypc ,

A Must Hear

My favorite podcast! Whether you’re a fellow medical parent, disabled person, caregiver or medical provider, someone who cares about creating a better and more compassionate world, or someone who wants to better understand the diversity of human experience, this podcast is for you. Besides being a joy to simply listen to, Erica Jolene doesn’t shy away from the hard conversations and atypical truths. These honest conversations make for a podcast that truly builds community and provides resources for listeners. I can’t get enough!

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