Chronically Illing Out

Welcome to Ch-Illing Out with Nick Paro, Beth Cruz, Soso, and Steph Wilson where we take time to focus on living with chronic illnesses. This is a community where chronic conditions are seen, heard, and valued. sickofthis.substack.com

  1. 13h ago

    Chronically Illing Out | E43 - Letting Go Of the Self Judgement

    Ch-Illing Out in Review Today’s conversation opens where the guilt actually lives: not just in the flare itself but in the apology to the self that follows it. Soso returns after two months away, mid-flare, and asks Nick the question the show keeps circling — how do you accept a limit when the person you’re disappointing is your kid? Our answer: reframing it. Nick names the 80-hour weeks he once called success and now calls a failure to listen to his own body, and Stephanie sharpens it into the episode’s best line: this is “needing an individual solution to a systemic problem.” Beth, waiting since February on a disability claim and heading to two assessment appointments, arrives at the same place from the other side — “I would rather have nothing than to struggle to keep everything.” That reframing is what makes the back half of our discussion cohere rather than veer — because when the conversation turns to an Omaha school district issuing shock gloves to safety officers, and to Arkansas’s Eli’s Law mandating audio recorders in locker rooms, the panel is still talking about the same thing: institutions that answer human need with control. Nick’s counter is a budget argument as much as a moral one — counselors, school psychologists, smaller classes. “It’s people, not surveillance.” Which means the self-judgment and the shock glove share a root: a society that treats a body’s limits as a problem to be disciplined. Disclaimer: Chronically Illing Out is a podcast and weekly roundtable discussion that provides a safe space for real chronic illness and mental health conversations—by people with lived experience. We are not trained professionals—and we do not claim to be—rather, we discuss our stories and current events to build community and solidarity. Know that you are not alone—and if you are in crisis, call/text 988. Actions You Can Take Get your Sick of this Shit merch! * Check out the Sick of this Shop! Join the efforts to unmask law enforcement and de-flock the States: * deflock.me Service members can get un-biased information on legal vs illegal orders: * Orders Project * Reach out on Signal: @TheOrdersProject.76 Learn empathy forward, human centered, experiment based Leadership & Growth Courses for Higher Ed & Non-Profit Professionals: * B. Cognition Labs Nick’s Notes I’m Nick Paro, and I’m sick of the shit going on. So, I’m using poetry, podcasting, and lives to discuss the intersections of chronic illness and mental wellbeing, masculinity, veteran’s issues, politics, and so much more. I am only able to have these conversations, bring visibility to my communities, and fill the void through your support — this is a publication where engagement is encouraged, creativity is a cornerstone, and transparency is key — please consider becoming a paid subscriber today and grow the community! Join the uncensored media at the 1A Collective Support as a paid subscriber however you can — to help get you started, here are a few discounted options for you * Forever at 50% off * Forever at 60% off For support, contact us at: info@sickofthisshitpublications.com Thank you Nieta Greene, Wendy Parker, Ms.Yuse, Dar 🇨🇦, KarenC-Book Collector📚⚖️🗽🗳️🧿♒️, and many others for tuning into my live video with Beth Cruz and Soso's World! Join me for my next live video in the app. This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit sickofthis.substack.com/subscribe

    Chronically Illing Out | E43 - Letting Go Of the Self Judgement
  2. 5d ago

    Chronically Illing Out | E42 - Starting the Week Off Strong

    Actions You Can Take * Say No to Crip Crow! Get your Sick of this Shit merch! * Check out the Sick of this Shop! Join the efforts to unmask law enforcement and de-flock the States: * deflock.me Service members can get un-biased information on legal vs illegal orders: * Orders Project * Reach out on Signal: @TheOrdersProject.76 Learn empathy forward, human centered, experiment based Leadership & Growth Courses for Higher Ed & Non-Profit Professionals: * B. Cognition Labs Nick’s Notes I’m Nick Paro, and I’m sick of the shit going on. So, I’m using poetry, podcasting, and lives to discuss the intersections of chronic illness and mental wellbeing, masculinity, veteran’s issues, politics, and so much more. I am only able to have these conversations, bring visibility to my communities, and fill the void through your support — this is a publication where engagement is encouraged, creativity is a cornerstone, and transparency is key — please consider becoming a paid subscriber today and grow the community! Join the uncensored media at the 1A Collective Support as a paid subscriber however you can — to help get you started, here are a few discounted options for you * Forever at 50% off * Forever at 60% off For support, contact us at: info@sickofthisshitpublications.com Thank you Environmental Coffeehouse, Noble Blend, julie elder, Laura Tompkins, Dana Britt, and many others for tuning into my live video with Beth Cruz and Soso's World! Join me for my next live video in the app. This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit sickofthis.substack.com/subscribe

    Chronically Illing Out | E42 - Starting the Week Off Strong
  3. Jul 27

    Chronically Illing Out | E41 - Starting the Week Mindfully

    Say No To Crip Crow “America has not fully fulfilled its commitment to guaranteeing equality for all since its founding nearly 250 years ago… Disability Community for Democracy will urge Congress to enact legislation that codifies the Olmstead decision, ensuring that states cannot compel the re-institutionalization of individuals with disabilities.” — Nieta Greene, CEO, from Disability Community for Democracy’s official statement on the Olmstead memo Take action today — and join the joint efforts of and for Democracy, Inc. — to codify, into law, the rights outlined in the 1999 Olmstead Decision. Use your voice — in which ever ways you can — to call, email, and fax your federal legislators using the support of our pre-written scripts and templates at: * BroadBanner’s Say No To Crip Crow action campaign: https://broadbanner.com/crip-crow/ Actions You Can Take Get your Sick of this Shit merch! * Check out the Sick of this Shop! Join the efforts to unmask law enforcement and de-flock the States: * deflock.me Service members can get un-biased information on legal vs illegal orders: * Orders Project * Reach out on Signal: @TheOrdersProject.76 Learn empathy forward, human centered, experiment based Leadership & Growth Courses for Higher Ed & Non-Profit Professionals: * B. Cognition Labs Nick’s Notes I’m Nick Paro, and I’m sick of the shit going on. So, I’m using poetry, podcasting, and lives to discuss the intersections of chronic illness and mental wellbeing, masculinity, veteran’s issues, politics, and so much more. I am only able to have these conversations, bring visibility to my communities, and fill the void through your support — this is a publication where engagement is encouraged, creativity is a cornerstone, and transparency is key — please consider becoming a paid subscriber today and grow the community! Join the uncensored media at the 1A Collective Support as a paid subscriber however you can — to help get you started, here are a few discounted options for you * Forever at 50% off * Forever at 60% off For support, contact us at: info@sickofthisshitpublications.com Thank you Jason P. Odell 📷, Jason Gael, Courtney M 🇨🇦🏳️‍🌈, Ms.Yuse, Patricia Wren, and many others for tuning into my live video with Beth Cruz! Join me for my next live video in the app. This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit sickofthis.substack.com/subscribe

  4. Jul 21

    Chronically Illing Out | E40 - Disability Pride with Daniel Carvajal

    Say No To Crip Crow “America has not fully fulfilled its commitment to guaranteeing equality for all since its founding nearly 250 years ago… Disability Community for Democracy will urge Congress to enact legislation that codifies the Olmstead decision, ensuring that states cannot compel the re-institutionalization of individuals with disabilities.” — Nieta Greene, CEO, from Disability Community for Democracy’s official statement on the Olmstead memo Take action today — and join the joint efforts of and for Democracy, Inc. — to codify, into law, the rights outlined in the 1999 Olmstead Decision. Use your voice — in which ever ways you can — to call, email, and fax your federal legislators using the support of our pre-written scripts and templates at: * BroadBanner’s Say No To Crip Crow action campaign: https://broadbanner.com/crip-crow/ Actions You Can Take * Say NO to Crip Crow by contacting your Representative and Senators to help codify the 1999 Olmstead decision into the Americans with Disabilities Act. Join the efforts to unmask law enforcement and de-flock the States: * deflock.me Service members can get un-biased information on legal vs illegal orders: * Orders Project * Reach out on Signal: @TheOrdersProject.76 Learn empathy forward, human centered, experiment based Leadership & Growth Courses for Higher Ed & Non-Profit Professionals: * B. Cognition Labs Get your Sick of this Shit merch! * Check out the Sick of this Shop! Nick’s Notes I’m Nick Paro, and I’m sick of the shit going on. So, I’m using poetry, podcasting, and lives to discuss the intersections of chronic illness and mental wellbeing, masculinity, veteran’s issues, politics, and so much more. I am only able to have these conversations, bring visibility to my communities, and fill the void through your support — this is a publication where engagement is encouraged, creativity is a cornerstone, and transparency is key — please consider becoming a paid subscriber today and grow the community! Join the uncensored media at the 1A Collective Support as a paid subscriber however you can — to help get you started, here are a few discounted options for you * Forever at 50% off * Forever at 60% off For support, contact us at: info@sickofthisshitpublications.com Thank you Jess Odell, Noble Blend, Bre Phillips, Dana Britt, Rose, and many others for tuning into my live video with Daniel Carvajal and Beth Cruz! Join me for my next live video in the app. This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit sickofthis.substack.com/subscribe

  5. Jul 13

    Chronically Illing Out | E39 - Monday Meanderings

    Ch-Illing In Review Today was a meandering Monday where we didn’t really have a focus going in — and we came out of it having a blast. We celebrate the amazing artistry of Cris Palomino with Lady Liberty showing off her Disability Pride. * Check out the new Disability Pride T-Shirt and Disability Pride Tote Bag at the Sick of this Shop. We follow that up with a great time showing off all sorts of Beth Cruz’s painted rocks. Which leads us into an unexpected conversation with the audience for ideas on creative spaces. Actions You Can Take * Say NO to Crip Crow by contacting your Representative and Senators to help codify the 1999 Olmstead decision into the Americans with Disabilities Act. Join the efforts to unmask law enforcement and de-flock the States: * deflock.me Service members can get un-biased information on legal vs illegal orders: * Orders Project * Reach out on Signal: @TheOrdersProject.76 Learn empathy forward, human centered, experiment based Leadership & Growth Courses for Higher Ed & Non-Profit Professionals: * B. Cognition Labs Get your Sick of this Shit merch! * Check out the Sick of this Shop! Nick’s Notes I’m Nick Paro, and I’m sick of the shit going on. So, I’m using poetry, podcasting, and lives to discuss the intersections of chronic illness and mental wellbeing, masculinity, veteran’s issues, politics, and so much more. I am only able to have these conversations, bring visibility to my communities, and fill the void through your support — this is a publication where engagement is encouraged, creativity is a cornerstone, and transparency is key — please consider becoming a paid subscriber today and grow the community! Join the uncensored media at the 1A Collective Support as a paid subscriber however you can — to help get you started, here are a few discounted options for you * Forever at 50% off * Forever at 60% off For support, contact us at: info@sickofthisshitpublications.com Thank you Nieta Greene, Soso's World, Amelia Hall, Jason Gael, Noble Blend, Cris Palomino, and many others for tuning into my live video with Stephanie G Wilson, PhD and Beth Cruz! Join me for my next live video in the app. This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit sickofthis.substack.com/subscribe

  6. Jul 6

    Chronically Illing Out | E38 - Disability Inclusion, Accessibility, and Living With Our Disabilities

    Ch-Illing In Review Today we welcome on Amelia Hall — creator of Trailblazing with CP and Accessibility Specialist — for a wonderful conversation into Amelia’s story and the role that CP (Cerebral Palsy) has played in her life, how it has helped to shape her views on accessibility and equity, and how she advocates for everyone’s rights. Take a moment to subscribe and follow Amelia Hall’s work — and help build this community where we focus on collaboration over competition. Disclaimer Chronically Illing Out is a podcast and weekly roundtable discussion that provides a safe space for real chronic illness and mental health conversations—by people with lived experience. We are not trained professionals—and we do not claim to be—rather, we discuss our stories and current events to build community and solidarity. Know that you are not alone—and if you are in crisis, call/text 988. Actions You Can Take * Say NO to Crip Crow by contacting your Representative and Senators to help codify the 1999 Olmstead decision into the Americans with Disabilities Act. * Check out the new: Sick of this Shop! * Check out the new network and affiliate calendar: BroadBanner Submit questions, feedback, and artwork for Notes of the Week with Nick and Walter: * Sick of this Shit Community Comment Form Call your public servants on important issues: * 5calls.org Join the efforts to unmask law enforcement and de-flock the States: * deflock.me Service members can get un-biased information on legal vs illegal orders: * Orders Project * Reach out on Signal: @TheOrdersProject.76 Learn empathy forward, human centered, experiment based Leadership & Growth Courses for Higher Ed & Non-Profit Professionals: * B. Cognition Labs Nick’s Notes I’m Nick Paro, and I’m sick of the shit going on. So, I’m using poetry, podcasting, and lives to discuss the intersections of chronic illness and mental wellbeing, masculinity, veteran’s issues, politics, and so much more. I am only able to have these conversations, bring visibility to my communities, and fill the void through your support — this is a publication where engagement is encouraged, creativity is a cornerstone, and transparency is key — please consider becoming a paid subscriber today and grow the community! Join the uncensored media at the 1A Collective Support as a paid subscriber however you can — to help get you started, here are a few discounted options for you * Forever at 50% off * Forever at 60% off For support, contact us at: info@sickofthisshitpublications.com Thank you Nieta Greene, Farmers AGAINST trump., julie elder, Ms.Yuse, Cathy Stein, and many others for tuning into my live video with Stephanie G Wilson, PhD, Beth Cruz, and Amelia Hall! Join me for my next live video in the app. This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit sickofthis.substack.com/subscribe

    Chronically Illing Out | E38 - Disability Inclusion, Accessibility, and Living With Our Disabilities
  7. Jun 29

    Chronically Illing Out | E37 - Disability Rights, Freedoms, and Visibility Are Under Attack with Paige Beauchemin

    ChIlling In Review The day before Juneteenth, the DOJ quietly released a memo reinterpreting the 1999 Olmstead decision — the ruling that keeps disabled people in their communities instead of institutions. It's not a law, and that's the point. This week, NH state rep, psych nurse, and congressional candidate Paige Beauchemin joins Nieta Greene of Disability Community for Democracy, Nick, Beth, and Steph to explain why a memo can be more dangerous than a statute, and why they're calling it "Crip Crow." Our Call To Action Help us Say No to Crip Crow — and perform your daily call to action by calling and emailing your Senators and Representative. * Go to our new webpage to get involved and stay updated with latest resources: https://app.broadbanner.com/crip-crow * Read the DOJ memo: Application of the Rehabilitation Act and Americans with Disabilities Act to State Institutionalization of Patients with Severe Mental Illness or Disabilities Disclaimer Chronically Illing Out is a podcast and weekly roundtable discussion that provides a safe space for real chronic illness and mental health conversations—by people with lived experience. We are not trained professionals—and we do not claim to be—rather, we discuss our stories and current events to build community and solidarity. Know that you are not alone—and if you are in crisis, call/text 988. Actions You Can Take * Check out the new: Sick of this Shop! * Check out the new network and affiliate calendar: BroadBanner Submit questions, feedback, and artwork for Notes of the Week with Nick and Walter: * Sick of this Shit Community Comment Form Call your public servants on important issues: * 5calls.org Join the efforts to unmask law enforcement and de-flock the States: * deflock.me Service members can get un-biased information on legal vs illegal orders: * Orders Project * Reach out on Signal: @TheOrdersProject.76 Learn empathy forward, human centered, experiment based Leadership & Growth Courses for Higher Ed & Non-Profit Professionals: * B. Cognition Labs Nick’s Notes I’m Nick Paro, and I’m sick of the shit going on. So, I’m using poetry, podcasting, and lives to discuss the intersections of chronic illness and mental wellbeing, masculinity, veteran’s issues, politics, and so much more. I am only able to have these conversations, bring visibility to my communities, and fill the void through your support — this is a publication where engagement is encouraged, creativity is a cornerstone, and transparency is key — please consider becoming a paid subscriber today and grow the community! Join the uncensored media at the 1A Collective Support as a paid subscriber however you can — to help get you started, here are a few discounted options for you * Forever at 50% off * Forever at 60% off For support, contact us at: info@sickofthisshitpublications.com Thank you Soso's World, LeftieProf, Dana Britt, Cathy Stein, KC, and many others for tuning into my live video with Stephanie G Wilson, PhD and Beth Cruz! Join me for my next live video in the app. This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit sickofthis.substack.com/subscribe

    Chronically Illing Out | E37 - Disability Rights, Freedoms, and Visibility Are Under Attack with Paige Beauchemin
  8. Jun 22

    Chronically Illing Out | E36 - Building Visibility and Growing Our Communities

    Chronically Illing In Review Today was a hard and necessary conversation—the DOJ is openly coming after our right to visibly exist as a person with disabilities. Take a moment to read through Nieta Greene’s official statement on the DOJ Olmstead Memo and my article from this morning. We must all be loud and actioning on this — we will not be erased. Disclaimer Chronically Illing Out is a podcast and weekly roundtable discussion that provides a safe space for real chronic illness and mental health conversations—by people with lived experience. We are not trained professionals—and we do not claim to be—rather, we discuss our stories and current events to build community and solidarity. Know that you are not alone—and if you are in crisis, call/text 988. Actions You Can Take * Check out the new: Sick of this Shop! * Check out the new network and affiliate calendar: BroadBanner Submit questions, feedback, and artwork for Notes of the Week with Nick and Walter: * Sick of this Shit Community Comment Form Call your public servants on important issues: * 5calls.org Join the efforts to unmask law enforcement and de-flock the States: * deflock.me Service members can get un-biased information on legal vs illegal orders: * Orders Project * Reach out on Signal: @TheOrdersProject.76 Learn empathy forward, human centered, experiment based Leadership & Growth Courses for Higher Ed & Non-Profit Professionals: * B. Cognition Labs Nick’s Notes I’m Nick Paro, and I’m sick of the shit going on. So, I’m using poetry, podcasting, and lives to discuss the intersections of chronic illness and mental wellbeing, masculinity, veteran’s issues, politics, and so much more. I am only able to have these conversations, bring visibility to my communities, and fill the void through your support — this is a publication where engagement is encouraged, creativity is a cornerstone, and transparency is key — please consider becoming a paid subscriber today and grow the community! Join the uncensored media at the 1A Collective Support as a paid subscriber however you can — to help get you started, here are a few discounted options for you * Forever at 50% off * Forever at 60% off For support, contact us at: info@sickofthisshitpublications.com Thank you Noble Blend, Ms.Yuse, Cathy Stein, Jack 🏳️‍⚧️🏳️‍🌈(he/him), Olivia Janis, and many others for tuning into my live video with Stephanie G Wilson, PhD and Beth Cruz! Join me for my next live video in the app. This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit sickofthis.substack.com/subscribe

    Chronically Illing Out | E36 - Building Visibility and Growing Our Communities

About

Welcome to Ch-Illing Out with Nick Paro, Beth Cruz, Soso, and Steph Wilson where we take time to focus on living with chronic illnesses. This is a community where chronic conditions are seen, heard, and valued. sickofthis.substack.com

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