127 episodes

A podcast bringing awareness to gynecologic cancers, women's health, and patient advocacy.

Down There Aware Down There Aware

    • Health & Fitness
    • 5.0 • 13 Ratings

A podcast bringing awareness to gynecologic cancers, women's health, and patient advocacy.

    Pinktober: Our Perspective

    Pinktober: Our Perspective

    This week, Mary and Alex discuss Pinktober, Breast Cancer, and charitable giving.


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    • 26 min
    REPOST: Interview with Yohanna Hoehler

    REPOST: Interview with Yohanna Hoehler

    Reposting this incredible interview with Yohanna Hoehler in honor of Gynecologic Cancer Awareness Month!



    Yohanna Hoehler (39), is a Vulvar Cancer Survivor and Advocate. She is the founder of the Vulvar Cancer Awareness Forum, a non-profit organization. VCAF focuses on raising awareness and educating on all things Vulvar Cancer and provide support to those who have been diagnosed. Yohanna also actively advocates and lobbies for new Vulvar Cancer research and treatment advancements as most of what we know about this cancer is based on outdated information.



    IG Handle: @vulvarcancerawareness


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    • 31 min
    REPOST: A Mother's Perspective

    REPOST: A Mother's Perspective

    In case you're new here, we wanted to kick off Gynecologic Cancer Awareness Month with a retelling of Mary's perspective following Alex's cancer diagnosis.



    During Gynecologic Cancer Awareness Month (GCAM), visit foundationforwomenscancer.org (link in bio) for information about gynecologic cancer symptoms and treatment, risk and prevention, clinical trials and survivor stories. Gynecologic oncologists are medical doctors with specialized training in treating gynecologic cancers. If cervical, ovarian, uterine/endometrial cancer, vaginal, or vulvar cancer is suspected or diagnosed, seek care from a gynecologic oncologist. 



    The Foundation for Women’s Cancer (FWC) offers free, downloadable educational materials, many of them available in three languages: English, Spanish, and Mandarin Chinese. These guides can help you learn about the five gynecologic cancers and related topics such as postoperative pain management, financial resources for cancer patients, survivorship and more. 



    #GynecologicCancerAwarenessMonth #GCAM #MoveTheMessage and #Move4Her


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    • 21 min
    Patient Advocacy and Closing the Racial Disparity Gap | Interview with Dr. Tania Small

    Patient Advocacy and Closing the Racial Disparity Gap | Interview with Dr. Tania Small

    On this week's episode, Alex speaks with Dr. Tania Small.  Dr. Small is the Global Head of Oncology Medical Affairs and Chair of R&D Diversity, Equity, and Inclusion Council at GSK.  They discuss disparities in diagnosis, treatment, clinical trials, and survival rates of uterine and endometrial cancer among Black, Asian, and Hispanic women.  Dr. Small shares her thoughts on ways physicians and pharmaceutical companies, as well as patients, can make changes to bring about meaningful change. 



    #GynecologicCancerAwarenessMonth #GCAM #MoveTheMessage #WorldGoDay #Move4Her #GynecologicOncology #RacialBias #BlackWomen #advocacy #anchor #podcast #research #spotify #nonprofits



    Stay Connected 

    Email Us: downthereaware@gmail.com

    Instagram:@downthereaware 

    Facebook: Down There Aware 

    Twitter: @downthereaware

    Pinterest: Down There Aware

    TikTok: Down There Aware




    Summary Keywords 

    Gynecologic Cancer Awareness Month, GCAM, Move The Message, World GO Day, Move4Her Gynecologic Oncology, Racial Bias, Black Women, advocacy, anchor, podcast, research, Spotify, nonprofits




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    • 45 min
    REPOST: My Cancer Story

    REPOST: My Cancer Story

    In case you're new here, we wanted to kick off Gynecologic Cancer Awareness Month with a retelling of Alex's cancer story.



    During Gynecologic Cancer Awareness Month (GCAM), visit foundationforwomenscancer.org (link in bio) for information about gynecologic cancer symptoms and treatment, risk and prevention, clinical trials and survivor stories.

    Gynecologic oncologists are medical doctors with specialized training in treating gynecologic cancers. If cervical, ovarian, uterine/endometrial cancer, vaginal, or vulvar cancer is suspected or diagnosed, seek care from a gynecologic oncologist.

    The Foundation for Women’s Cancer (FWC) offers free, downloadable educational materials, many of them available in three languages: English, Spanish, and Mandarin Chinese. These guides can help you learn about the five gynecologic cancers and related topics such as postoperative pain management, financial resources for cancer patients, survivorship and more.

    #GynecologicCancerAwarenessMonth
    #GCAM #MoveTheMessage and #Move4Her


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    • 18 min
    Medical Gaslighting

    Medical Gaslighting

    This week, Mary and Alex watched the 1944 film “Gaslight” to learn about the origin of the commonly-used term of psychology of the same name. They discuss ways in which they have been gaslit by medical professionals, as well as how to recognize medical gaslight and ways to advocate for your health when a doctor tries to downplay your symptoms.



    #Podcast #Spotify #Anchor #research #advocacy #cancer #gaslighting #IIH #CSF #ocularmigraine #lumbarpuncture #shoulderdystocia



    Stay Connected 

    Email Us: downthereaware@gmail.com

    Instagram:@downthereaware 

    Facebook: Down There Aware 

    Twitter: @downthereaware

    Pinterest: Down There Aware

    TikTok: Down There Aware



    Episode Links

    What is gaslighting? Examples and how to respond

    Shoulder Dystocia: Signs, Causes, Prevention & Complications



    Episode Highlights


    Intro [0:13]


    Welcome Back! [1:23]


    Pickleball  [1:57]


    Gaslighting [3:05]


    American 1944 movie [3:40]


    Mary’s personal gaslighting story [5:28]


    Shoulder dystocia [6:47]


    High risk pregnancy [8:35]


    Elective C-section [9:40]


    Advocate for yourself [11:34]


    Alex’s personal gaslighting story [12:05]


    Idiopathic Intracranial Hypertension (IIH) [12:20]


    Ocular Migraine [13:15]


    Lumbar puncture [13:40]


    Thank you, Merry-Jennifer! [15:20]


    Cerebral Spinal Fluid  [15:48]


    Vulvar Cancer Network [19:04]


    ER doc’s perspective needed [20:03]


    Opioid crisis [22:50]


    High pain threshold [23:03]


    Mary’s colonoscopy follow-up [23:43]


    Only apology[25:25]


    Ingrid Bergman & Angela Lansbury [28:33]


    Medical gaslighting [30:22]


    Thanks for listening! [31:20]



    Summary Keywords Podcast, Spotify, Anchor, research, advocacy, cancer, gaslighting, IIH, CSF, ocular migraine, lumbar puncture, shoulder dystocia


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    • 32 min

Customer Reviews

5.0 out of 5
13 Ratings

13 Ratings

Libby H2020 ,

Great podcast on women’s health and patient advocacy!

I think this is a great podcast for all women (and men) to listen to and become more aware of your body and become a better patient advocate for yourself. I’m a Registered Nurse and I enjoy listening to this podcast every week. Thank you, Alex for sharing your cancer story and journey with us. I appreciate you and your mom talking about all the tough topics and making the “taboo” topics less taboo. I hope more people will become “more down there aware” after listening to your podcast.

Update 2021- Love listening to Season 2 and all the new topics. I’m learning something new each episode. This podcast has helped me become a better advocate for my health. Thanks Alex and Mary for sharing your health journeys. Can’t wait for Season 3!

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