Extraordinary Conversations

Hi, I’m Dr. Toby Campbell—a palliative care physician and communication researcher at the University of Wisconsin-Madison. For the past twenty years, I’ve studied how doctors and patients navigate tough conversations, especially when facing life-changing decisions. But nothing could have prepared me for one of the most unique and profound discussions in medicine: the request for organ donation. What makes this conversation so extraordinary? It’s the only time in healthcare where the decision doesn’t directly help the patient but instead gives someone else a second chance at life. These difficult conversations sparked my interest in learning about the nuances of organ donation and the lived experiences of everyone touched by this process. How, where, and when do these discussions happen? How do healthcare professionals prepare for such a massive task, and what language do they use? How do families respond to such requests and make an extremely difficult decision on behalf of their loved ones? Is organ procurement just like any surgery? What do recipients think about organ donors? How do recipients find living donors? And what struggles do they endure before and after receiving an organ? To explore these questions, I’ve sat down with donor families, transplant surgeons, medical doctors, organ recipients, recovery specialists, and many others who’ve been touched by this journey. Their stories are powerful, surprising, and profoundly moving. I hope you’ll join me as we uncover the heart, the science, and the humanity behind organ donation.