Epilepsy Sparks Insights

Torie Robinson

Sparking interest and understanding in the epilepsies whilst bridging the communication gap between epilepsy patients, clinicians, scientists, geneticists – and the world. Hosted by Torie Robinson. **NOT FOR CLINICAL OR PATIENT DECISION-MAKING* Visit www.torierobinson.com & www.epilepsysparks.com.

  1. Why Epilepsy Is Still Being Ignored - Jay Price, Intellectual Disability Nurse

    MAR 26

    Why Epilepsy Is Still Being Ignored - Jay Price, Intellectual Disability Nurse

    Why does epilepsy still receive so little funding, attention and public understanding compared to other diseases? Intellectual disability nurse Jay Price discusses why epilepsy remains underfunded and badly marketed, alongside misdiagnosis, quality of life, and how co-produced training could improve epilepsy care! This episode is sponsored by EASEE® by Precisis GmbH and had no influence over the editorial content or discussion. Learn more about EASEE® here: https://precisis.de/en    🔗 More about episode (inc. transcription) 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights/epilepsy-ignored   🌐 More about Jay 👇🏻 https://www.epilepsysparks.com/guests/jay-price   📃 Paper "Epilepsy, it's just not sexy, is it?’: A qualitative exploration into health and social care professionals' perspectives of people with intellectual disabilities and epilepsy, in social care" 👇🏻 https://www.epilepsybehavior.com/article/S1525-5050(25)00437-8/fulltext   👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com   🌐 More Epilepsy Sparks Insights 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights   🎧 Listen to the Epilepsy Sparks Insights podcast on Apple, Spotify, or your favourite provider!   🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary   📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social

    18 min

Ratings & Reviews

5
out of 5
9 Ratings

About

Sparking interest and understanding in the epilepsies whilst bridging the communication gap between epilepsy patients, clinicians, scientists, geneticists – and the world. Hosted by Torie Robinson. **NOT FOR CLINICAL OR PATIENT DECISION-MAKING* Visit www.torierobinson.com & www.epilepsysparks.com.

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