The Eye Believe Podcast

A Cure In Sight
  • 5.0 (16)
  • Medicine
  • Updated Biweekly

A Cure In Sight (ACIS) is a nonprofit organization committed to improving the lives of those affected by ocular melanoma. Through education, patient support programs, advocacy, and research funding, ACIS works to raise awareness and accelerate progress toward better treatments and outcomes. The Eye Believe Podcast, hosted by A Cure In Sight, brings together patients, caregivers, researchers, and medical professionals to share stories, discuss advances in ocular melanoma research, and highlight the strength of the community. The podcast’s mission is to inform, inspire, and give a voice to those impacted by ocular melanoma.

  1. 2d ago

    Protecting Your Eyes This Summer | The Eye Believe Podcast

    In this episode of the Eye Believe Podcast, we’re joined by Dr. Kristie Nguyen to talk about protecting your eyes and preparing for a safe, healthy summer season. ☀️🕶️ As National Sunglasses Day approaches on June 27th, Dr. Nguyen shares practical tips for maintaining eye health during the summer months and explains why protecting your eyes from UV exposure is so important. In this conversation, we discuss: The importance of wearing quality sunglasses How UV exposure can impact eye health Summer eye safety tips for everyday life What to look for when choosing sunglasses Simple habits that can help protect your vision long-term Whether you’re spending time outdoors, at the beach, on the water, or just enjoying the sunshine, this episode offers helpful reminders for keeping your eyes healthy and protected all summer long.   🔗 Learn more about Dr. Kristie Nguyen: https://www.drkristienguyen.com   https://www.instagram.com/dr.kristienguyen/?hl=en   https://www.kazokulunettes.com   🎧 Tune in for an informative and timely conversation about eye safety, prevention, and why awareness looks good on everyone. 💙

    21 min

  2. May 25

    The Mental Health Side of Cancer | The Eye Believe Podcast

    In this episode of the Eye Believe Podcast, we’re joined by Dr. Julia Brechbiel, Clinical Psychologist at Fred Hutch for an important conversation about mental health and cancer. Dr. Brechbiel shares practical, compassionate guidance for patients and caregivers navigating the emotional impact of serious illness. Together, we discuss where to start when seeking mental health support, how to recognize signs of PTSD and emotional distress, and the many benefits therapy can provide throughout the cancer journey. Whether you’re newly diagnosed, living in survivorship, or supporting a loved one, this conversation offers reassurance, validation, and actionable advice for taking care of your mental health along the way. 🎧 Tune in for a thoughtful and empowering discussion about healing, support, and the importance of caring for both mind and body. 💙

    46 min

  3. May 21

    My 15 Years | Episode 9: Summer After Radiation

    Episode 9: Summer After Radiation Summer looked very different after treatment. In Episode 9 of My 15 Years, Melody reflects on her first summer after plaque brachytherapy and what it was like adjusting to life just one month after radiation treatment. She talks about learning to embrace a “new normal,” navigating summer activities differently, and finding ways to still enjoy vacations, sunshine, and time with loved ones while adapting to changes in vision and recovery. This episode also highlights the importance of sun safety and awareness, including conversations around: 🕶️ Sunglasses Day 👁️ Eye Patch Day ☀️ Protecting your eyes while still living fully Melody shares practical tips, personal experiences, and encouragement for anyone learning how to move forward after treatment — especially during seasons that can feel emotionally or physically different than before diagnosis. This episode is a reminder that joy, adventure, and meaningful moments are still possible, even when life changes course. Rare Cancer. Resilient Hope. Revolutionary Research. 🔔 Subscribe to follow the full My 15 Years series 💙 Learn more about A Cure in Sight 🤝 Support ocular melanoma research and patient support: https://acureinsight.org/donate/

    27 min

  4. May 18

    Are We in a Clinical Trial Drought? | The Eye Believe Podcast

    In this episode of the Eye Believe Podcast, we’re joined by Dr. Marlana Orloff for an important conversation: Are We in a Clinical Trial Drought? Dr. Orloff discusses the current landscape of uveal melanoma clinical trials, including which studies have recently closed, why those closures happened, and what it means for patients searching for treatment options today. But this conversation isn’t just about what’s ending—it’s also about what may be coming next. In this episode, Dr. Orloff shares: Which trials have recently closed and the reasoning behind them How current treatment options are shaping patient care right now Her recommendations for navigating today’s landscape Why there is still reason for optimism about future therapies and research As Dr. Orloff explains, while it may feel like a drought right now… it’s about to rain. Whether you are a patient, caregiver, advocate, or clinician, this episode offers thoughtful insight into the evolving future of uveal melanoma treatment and research. 🔗 Watch Dr. Orloff’s Previous Episodes: Why Liver-Directed Therapy? https://youtu.be/YDZl6MiYtGg?si=dJ1V4DX2r6b9_mfD What to Know About Uveal Melanoma https://youtu.be/7gWM0-K9tUk?si=1cPLk0p6J0WMunXr Eye on Research https://youtu.be/YRm2kFH3Jus?si=PBE9EZRtI1Emj9Up 🎧 Tune in for a timely and hopeful discussion about where the field stands today—and where it may be headed next. 💙

    36 min

  5. May 11

    Through a Patient’s Experience | The Eye Believe Podcast

    In this episode of the Eye Believe Podcast, we’re joined by Wendy Carpenter, a metastatic ocular melanoma patient who is currently NED (No Evidence of Disease). Wendy shares her personal experience using ctDNA (circulating tumor DNA) testing as part of her ongoing surveillance and care. She discusses how this blood-based testing helps monitor disease activity, informs conversations with her medical team, and provides another tool for navigating life after treatment. In this conversation, Wendy opens up about: What ctDNA testing is and how it works How she incorporates ctDNA into her surveillance plan The emotional realities of monitoring after metastatic disease Living with hope, uncertainty, and gratitude as an NED survivor Register for Eye on ctDNA Webinar on May 22! https://events.zoom.us/ev/AvuhW89ZCjUP5wdMLqfUIHZv66yDDvXNS4Cws4X9M9okF1pnf-ax~AsOT8AphEb5PJVQjLmAyI6LsBZCgLhHe0tWYJREvI-AbmKVVmO-VUGyvCA   Hear more of Wendy's story:    Enucleation 101 Panel: https://youtu.be/fmzI_QeB5mM   Eye on Mental Health 2026 - patient panel participant (omit this if you can't find the recording or its not up)    Information on Signatera: https://www.natera.com/info/monitor-cancer/?utm_source=goog_na_sem&utm_medium=cpc&utm_campaign=4440280632&utm_keyword=bladder-cancer-check&utm_content=natesign_ubr_bladder_na&utm_id=natesign86421&gclsrc=aw.ds&gad_source=1&gad_campaignid=23805042236&gclid=Cj0KCQjwh-HPBhCIARIsAC0p3cdRcVraC3zQMJmLaetu_jgIX2Bt12wY5vs5I6sd8YB13rK8GI-VBnMaAuDVEALw_wcB   This episode offers a patient-centered perspective on an evolving area of cancer care and highlights how new technologies are helping empower patients in their journeys. 🎧 Tune in for an honest and hopeful conversation about survivorship, monitoring, and living beyond metastatic ocular melanoma. 💙

    27 min

  6. May 7

    My 15 Years | Episode 8: Grief, Survivor’s Guilt & Finding Joy Again

    Episode 8: Grief, Survivor’s Guilt & Finding Joy Again   Grief after cancer isn’t always visible.   In Episode 8 of My 15 Years, Melody opens up about the many forms of grief that followed her ocular melanoma diagnosis — the loss of who she was before cancer, the loss of certainty about the future, and the loss of relationships that changed along the way.   She also speaks honestly about survivor’s guilt and the emotional complexity of moving forward while watching others in the cancer community face difficult outcomes.   Through reflection and lived experience, Melody shares how she has learned to cope with these feelings over the past 15 years, and the perspective that has helped her continue healing.   But this episode also ends with hope.   Melody reflects on what brings her joy today — the connections, friendships, and support she has found within the ocular melanoma community. What once began in isolation eventually became a source of deep purpose, belonging, and love.   This episode is for anyone carrying grief, navigating survivorship, or searching for light after loss.   Rare Cancer. Resilient Hope. Revolutionary Research. 🔔 Subscribe to follow the full My 15 Years series 💙 Learn more about A Cure in Sight 🤝 Support ocular melanoma research and patient support: https://acureinsight.org/donate/

    36 min

  7. May 4

    Transforming Patient Care in the West | The Eye Believe Podcast

    In this episode of the Eye Believe Podcast, Transforming Patient Care in the West, we’re joined by Dr. Inderjit Mehmi from The Angeles Clinic. Dr. Mehmi shares insight into how care for ocular melanoma patients is evolving, including both standard of care treatments and the clinical trials currently available at his institution. He discusses how these options can provide patients with access to emerging therapies while continuing to deliver high-quality, individualized care.   📍 Contact Information for Dr. Mehmi 📧 imehmi@theangelesclinic.org 📞 310-231-2176   This episode offers valuable perspective for patients and caregivers looking to better understand their options and the future of ocular melanoma care. 🎧 Tune in to learn how innovation and access are helping shape treatment pathways in the western United States. 💙

    27 min

  8. Apr 27

    Outliving the Statistics: A Story About Survivor’s Gratitude | The Eye Believe Podcast

    In this episode of Living in the Long Middle, part of the Eye Believe Podcast, we share Outliving the Statistics: A Story About Survivor’s Gratitude with Katie Doble.   Katie is a metastatic ocular melanoma patient who is now NED (No Evidence of Disease) following TIL (Tumor-Infiltrating Lymphocyte) therapy—a reality that brings both hope and complexity. In this deeply honest conversation, Katie opens up about what it means to live in the “long middle” after outliving expectations.   She shares her experience with: Survivor’s gratitude and the weight it can carry Survivor’s grief for others in the OM community The emotional complexity of doing well while others are not How her perspective on life, hope, and uncertainty has evolved   This episode reflects the heart of Living in the Long Middle—holding space for both joy and grief, hope and heartbreak, all at the same time.   Article from Huffpost: https://www.huffpost.com/entry/doctor-cancer-clinical-trials-advocacy_n_646515dbe4b0bfd6447f88df Katie's Blog: https://futurehappyself.com/ UPMC Blog post: https://hillman.upmc.com/cancer-care/melanoma-skin/patient-stories/katie-doble Katie's Instagram: https://www.instagram.com/ceortman/   🎧 Tune in for a powerful and moving conversation about resilience, perspective, and what it truly means to outlive the statistics. 💙

    44 min
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Trailer

5
out of 5
16 Ratings

About

A Cure In Sight (ACIS) is a nonprofit organization committed to improving the lives of those affected by ocular melanoma. Through education, patient support programs, advocacy, and research funding, ACIS works to raise awareness and accelerate progress toward better treatments and outcomes. The Eye Believe Podcast, hosted by A Cure In Sight, brings together patients, caregivers, researchers, and medical professionals to share stories, discuss advances in ocular melanoma research, and highlight the strength of the community. The podcast’s mission is to inform, inspire, and give a voice to those impacted by ocular melanoma.

Information

  • Creator
    A Cure In Sight
  • Years Active
    2021 - 2026
  • Episodes
    257
  • Rating
    Clean
  • Copyright
    © Copyright 2022 All rights reserved.
  • Show Website
    The Eye Believe Podcast

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