Caregivers SHARE, a St. Jude Podcast

St. Jude (SJCRH)
  • 5.0 (15)
  • Medicine

A child’s diagnosis of a serious illness can be difficult. Families, guardians, and loved ones feel a range of emotions and need support related to their child’s treatment. Caregivers SHARE, a St. Jude podcast, is a place for family caregivers to hear advice, reflection, encouragement, and real stories from families and hospital staff. SHARE stands for Support, Honor, Advise, Reflect, and Encourage. The podcast is brought to you by Patient Family-Centered Care and Psychosocial Services at St. Jude Children’s Research Hospital.

  1. Episode 12: Considering a Clinical Trial for a Child: A Caregiver's View

    May 21

    Episode 12: Considering a Clinical Trial for a Child: A Caregiver's View

    When a child is facing a serious illness, being asked to consider a clinical trial can feel overwhelming. This episode of Caregivers SHARE continues our 2-part series on clinical trials by focusing on the real questions, emotions, and decisions caregivers face.  Carina Richardson shares her family’s experience enrolling her son in a clinical trial. Seth Karol, MD, shares insights from a doctor’s perspective, on how he would approach a clinical trial as a caregiver. Clay Culp, LCSW, guides the conversation with thoughtful questions and key points. Together, they talk about how clinical trials may differ from standard treatment, what the consent process looks like, and why clear, ongoing communication is essential.  This episode explores:  How clinical trials can change over time and differ for each childWhat worries caregivers often have and how care teams can helpHow child life specialists and other support services can help familiesWhy asking questions and speaking up matters This episode offers reassurance, perspective, and empowerment for caregivers making decisions about their child’s care.  A special thank you to Clay Culp, social work manager at St. Jude; Seth Karol, MD, associate faculty member at St. Jude who specializes in leukemia and lymphoma; and parent Carina Richardson.    This episode was recorded on March 5, 2026.  For more background, listen to the previous episode: “What Is a Clinical Trial?”  Learn more about Carina’s son Nolan’s diagnosis of medulloblastoma on Together by St. Jude™ and St. Jude Care & Treatment.     Learn more about clinical trials on Together by St. Jude™ and St. Jude Care & Treatment.     The quote that Carina and Clay reference is, “The best laid schemes of mice and men go oft awry, and leave us nothing but grief and pain for promised joy,” written by poet Robert Burns in his poem “To a Mouse” in 1785.    This discussion is meant to provide a general overview. Information may vary depending on your child’s diagnosis, age, health history, and the type of clinical trial. Always talk with your child’s care team for details specific to your child.    St. Jude does not endorse any branded product or organization mentioned in this podcast.

    50 min
  2. Episode 11: What is a Clinical Trial?

    May 7

    Episode 11: What is a Clinical Trial?

    Clinical trials are research studies that look at ways to improve care for serious illnesses. For many families, the terms “clinical trial” or “clinical research” may be unfamiliar or overwhelming. In this episode of Caregivers SHARE, listeners will learn what clinical trials are, how they work, and how they differ from standard medical care. Host Clay Culp, LCSW, is joined by Seth Karol, MD, and caregiver Carina Richardson for a clear conversation about what families need to know when considering a clinical trial. Seth explains the different types and phases of clinical trials, what families can expect during the process, and the safety measures in place to protect children who participate. Clay addresses the emotional aspects of enrolling a child in a trial. Carina asks the questions many parents have as they work to make informed decisions about their child’s care. A special thank you to Clay Culp, social work manager at St. Jude; Seth Karol, a St. Jude doctor who specializes in leukemia and lymphoma; and parent Carina Richardson. This episode was recorded on March 5, 2026. Learn more about Carina’s son Nolan’s diagnosis of medulloblastoma on Together by St. Jude™ and St. Jude Care & Treatment. Find additional information about clinical trials on Together by St. Jude™ and St. Jude Care & Treatment. This discussion is meant to provide a general overview. Information may vary depending on your child’s diagnosis, age, health history, and the type of clinical trial. Always talk with your child’s care team for details specific to your child. St. Jude does not endorse any branded product or organization mentioned in this podcast.

    32 min
  3. Episode 10: Communicating with the Care Team During End-of-Life Care

    Apr 16

    Episode 10: Communicating with the Care Team During End-of-Life Care

    When a child’s condition changes or they are nearing the end of life, caregivers face hard choices. It can help to focus on comfort, quality of life, and what matters most to the child. In this episode, Tekeima Townsend‑Billups talks with parents Tasha and Dean Ives about caring for their daughter, Sydney, in her final months of life. They describe how their advocacy changed as Sydney’s health declined. They share what “quality of life” meant for their family, how they talked honestly with their children, and how they made day‑to‑day decisions based on Sydney’s well-being and wishes. Mike McNeil shares guidance on communicating with the care team during this time. He explains shared decision‑making and how trust supports better end‑of‑life care. He encourages caregivers to name their hopes and worries and to ask for the help they need. A special thank you to our host Tekeima Townsend‑Billups, senior staff chaplain at St. Jude; our expert Mike McNeil, pediatric oncologist and palliative care physician at St. Jude; and our guests Tasha and Dean Ives. This episode was recorded on December 5, 2025. Learn more about palliative care on St. Jude Care & Treatment and Together by St. Jude™. Listen to Tasha and Dean discuss communicating with the care team during treatment. St. Jude does not endorse any branded product or organization mentioned in this podcast.

    47 min
  4. Episode 9: Communicating with the Care Team During Treatment

    Mar 19

    Episode 9: Communicating with the Care Team During Treatment

    Communicating with the care team can feel overwhelming, especially when your child is going through a serious illness and you are facing big decisions. In this episode, Tekeima Townsend-Billups talks with caregivers Tasha and Dean Ives, as well as patient family-centered care expert Brittany Barnett, about how to ask questions and advocate for your child. Tekeima describes advocacy as a “sacred practice of love in action.” Advocacy moves caregivers to speak up during treatment. Tasha and Dean share how they learned how to advocate for their daughter, Sydney, during her treatment for astrocytoma. They explain what helped them find their voice, understand treatment options, and work with the medical team. They discuss balancing hope and reality, handling hard conversations, and trusting their instincts as parents. Brittany offers tips for joining in medical rounds, finding support, and making sure that your concerns are heard. A special thank you to our host, Tekeima Townsend-Billups, senior staff chaplain at St. Jude; our expert, Brittany Barnett, manager of the Patient Family-Centered Care Program at St. Jude; and to our guests, Tasha and Dean Ives. This episode was recorded on November 5, 2025.Learn more about Sydney’s diagnosis of astrocytoma on the Together by St. Jude™ online resource. Learn about brain and spine tumor treatment on St. Jude Care & Treatment. Learn more about patient family-centered care and shared decision-making on the Together Blog.

    1h 14m
  5. Episode 8: Relationships and Social Life During Treatment

    Feb 18

    Episode 8: Relationships and Social Life During Treatment

    A healthy social life and relationships are important when going through cancer or another serious illness. In this episode, Clay Culp and Elyse Heidelberg talk with caregiver Polly Fulford and her college-aged son Taze about friendships and dating while you have cancer. Polly and Taze share how he balanced spending time with friends and his girlfriend while listening to his care team’s advice. Elyse explores ways to choose which social events to attend, how to ask the medical team questions, and what to share on social media. Clay guides the conversation with questions about friendships, hardships, and the importance of support. A special thank you to our host, Clay Culp, senior social worker at St. Jude; our expert, Elyse Heidelberg, clinical psychologist at St. Jude; and to our guests, Polly Fulford and Taze Fulford. This episode was recorded on January 8, 2026. Learn more about Taze’s diagnosis of Hodgkin lymphoma on St. Jude Care & Treatment and Together by St. Jude™.For information on nurturing your relationship with your partner as a child goes through treatment, listen to “How to Keep Your Relationship Strong.” St. Jude does not endorse any branded product or organization mentioned in this podcast.

    48 min
  6. Episode 7: Self-Compassion and Seeking Support

    Jan 15

    Episode 7: Self-Compassion and Seeking Support

    When a child is diagnosed with cancer or another serious illness, caregivers focus so much on their child’s needs that they may forget to care for themselves. Practicing self-compassion and seeking support are essential parts of the journey. In this episode, host Erica Sirrine talks with parent Stacie Eirich and social worker Anna Shelley Johnson about the challenges caregivers face and the importance of showing kindness to oneself. Stacie shares her family’s story, reflecting on the small acts of self-care and creativity that helped her cope while supporting her daughter Sadie through brain tumor treatment. Anna offers insights and practical tips for caregivers to nurture their own wellbeing and build resilience. The episode closes with Stacie reading her original poem that celebrates hope, love, and courage. A special thank you to our host, Erica Sirrine, director of Social Work at St. Jude; our expert Anna Shelley Johnson, social worker at St. Jude; and our parent guest Stacie Eirich. This episode was recorded on September 12, 2025.Learn more about Sadie’s diagnosis of medulloblastoma on St. Jude Care & Treatment and Together by St. Jude™. Listen to the Caregivers SHARE episode on Supporting Siblings for more insights into caring for the whole family while a child is in treatment. St. Jude does not endorse any branded product or organization mentioned in this podcast.

    35 min
  7. Episode 6: Glimpses of Light in the Darkness

    12/18/2025

    Episode 6: Glimpses of Light in the Darkness

    When a child is diagnosed with a serious illness, families are faced with emotions, daily changes, and the challenge of finding light in the midst of darkness. In this episode, subject matter expert Erica Sirrine talks with Shane and Ashley Timmons about their daughter Ophie’s journey with a brain tumor and the realities of caregiving through uncertainty.  Shane and Ashley share what it was like to navigate the early days of diagnosis, the ongoing medical complexities, and the daily process of holding both grief and hope. They discuss how their family learned to recognize and celebrate small victories, the importance of community support, and the intentional steps they take to seek out moments of joy—even on the hardest days. Erica offers insights into coping with loss, balancing family and sibling needs, and finding light through connection and vulnerability.   A special thank you to our host and expert, Erica Sirrine, director of Social Work at St. Jude, and to our guests, parents Shane and Ashley Timmons.  This episode was recorded September 23, 2025.   Learn more about Ophie’s diagnosis of anaplastic PFA ependymoma on St. Jude Care & Treatment and Together by St. Jude™.  Learn more about Avastin®, feeding tubes, and radiation therapy on Together by St. Jude™.  St. Jude does not endorse any branded product or organization mentioned in this podcast.

    37 min
  8. Episode 5: Emotional Wellbeing

    11/20/2025

    Episode 5: Emotional Wellbeing

    Emotional wellbeing involves being present, having courage, and focusing on what’s important—even in tough times. But emotional health may look different when a child has a serious illness, especially if emotional health needs were there before diagnosis.    In this episode, Clay Culp and Kendra Parris talk with caregiver Patricia LeBlanc and her daughter Sophie about emotional health while Sophie was going through treatment. Sophie was diagnosed with Ewing sarcoma at age 12. Kendra talks about the importance of taking care of yourself before you can take care of your child. Patricia discusses how her vision for Sophie’s life had to shift and explains how they embraced times to play and have fun together. Sophie talks about how her confidence grew and how she learned to manage her anxiety. The group explores the importance of sharing your burdens and getting support.     A special thank you to our host, Clay Culp, senior social worker at St. Jude; our expert Kendra Parris, associate member of the St. Jude faculty in Psychology and Biobehavioral Sciences; and Patricia and Sophie LeBlanc.    This episode was recorded August 1, 2025.    Learn more about Sophie’s diagnosis of Ewing sarcoma on St. Jude Care & Treatment and Together by St. Jude™.    Learn more about Psychology and Mental Health Services and wound vac therapy on Together by St. Jude™.    A halo brace (or halo vest), mentioned in this episode, is a brace used to keep the spine and neck from moving and protect them after surgery.   If you’re feeling hopeless, contact the 988 Suicide & Crisis Lifeline by calling or texting 988, or chatting online for support.     St. Jude does not endorse any branded product or organization mentioned in this podcast.

    35 min
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Ratings & Reviews

5
out of 5
15 Ratings

About

A child’s diagnosis of a serious illness can be difficult. Families, guardians, and loved ones feel a range of emotions and need support related to their child’s treatment. Caregivers SHARE, a St. Jude podcast, is a place for family caregivers to hear advice, reflection, encouragement, and real stories from families and hospital staff. SHARE stands for Support, Honor, Advise, Reflect, and Encourage. The podcast is brought to you by Patient Family-Centered Care and Psychosocial Services at St. Jude Children’s Research Hospital.

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