Hold the Moment

Dementia Australia

Hold the Moment is a podcast by people living with dementia and their families.

  1. 1d ago

    Community Support: Building Powerful Social Connections

    If you’re on North Wollongong Beach in New South Wales around sunrise, you’ll probably see David with his camera. After his daily morning swim, he likes to take photos of the sunrise – whenever he meets someone with young children, he offers to send them photos. “This is the sunrise on the first day of your life,” he tells them to write under the pictures. David was diagnosed with Alzheimer’s disease in 2023 and instead of withdrawing, he asked himself: How can this become a new way to help people connect? Amanda knows about isolation too. She’s been caring for her mum, who lives with Lewy body dementia, since she was just 17. For years, she hid it; embarrassed, exhausted, carrying the weight alone.   But eventually, she reached out for help. David and Amanda share how they’ve built and maintained connections after a diagnosis for their own sakes, but also so they can share what they’ve learned about dementia with their communities.      +++     Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios and hosted by Jim Rogers and Hamish Macdonald.     ABOUT THE GUESTS  Dr David Williams AM, lives in Wollongong and was diagnosed with Alzheimer’s disease in 2023 after a varied career spanning industrial chemistry, recruitment and consulting, alongside decades of community leadership. He continues to foster connection through daily swims, sunrise photography and his long-standing men’s group, believing openness about diagnosis is how you make a difference. Amanda is a digital and ICT leader who works across complex industries, alongside caring for her mother Petronella, who lives with Lewy body dementia. Through Dementia Australia, she found community, became an advocate, and now speaks openly about asking for help as an act of love, for others and yourself.     NEED SUPPORT?   Contact the National Dementia Helpline: 1800 100 500. Available 24 hours a day, 7 days a week - funded by the Australian Government.     SERVICES & RESOURCES   Find links, services and information from this episode → https://www.dementia.org.au/episode-community-support    EPISODE CREDITS  Produced by Liam Riordan | Sound design by Slade Gibson | Executive producers: Sarah Dabro and Kellie Riordan | Production manager: Ann Chesterman     FOLLOW DEMENTIA AUSTRALIA   Instagram | Facebook | LinkedIn     Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples today.   Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.

    Community Support: Building Powerful Social Connections
  2. 1d ago ·  Bonus

    Ask Us Anything: Where can I connect with people going through what I am?

    Community can make all the difference when dementia enters a family. From practical help to emotional support, there are so many ways that people can stay connected. In our Ask Us Anything episodes, you send us your questions about living with dementia and we’ll answer them as honestly as we can. Nothing is off limits here!  We give advice on supporting people with dementia in public spaces, and ways to connect with other people in your community going through a similar experience.      +++      ABOUT THIS EPISODE  This ‘Ask Us Anything’ episode was hosted by Jim Rogers with advice from Rose, a Policy Advisor at Dementia Australia.      NEED SUPPORT?   Contact the National Dementia Helpline: 1800 100 500. Available 24 hours a day, 7 days a week - funded by the Australian Government.     SERVICES & RESOURCES   Find links, services and information from this episode → https://www.dementia.org.au/episode-community-support    EPISODE CREDITS  Produced by Liam Riordan | Sound design by Slade Gibson | Executive producers: Sarah Dabro and Kellie Riordan | Production manager: Ann Chesterman     FOLLOW DEMENTIA AUSTRALIA   Instagram | Facebook | LinkedIn     Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples today. Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.

    Ask Us Anything: Where can I connect with people going through what I am?
  3. Jul 14

    Staying in Control: Managing Money and Finances

    Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios and hosted by Jim Rogers and Hamish Macdonald.   ABOUT THE GUESTS Deanne is a carer and advocate who supported both her parents through complex health challenges, including her father’s Lewy body dementia. With nearly 25 years in banking, she has seen the impact of delayed estate planning and is passionate about encouraging early, proactive decision-making following a dementia diagnosis. Age Discrimination Commissioner Robert Fitzgerald AM is a respected lawyer and advocate with extensive experience across government and community sectors. He champions the rights of older people, and is working to reduce ageism, prevent abuse and strengthen protections through policy leadership and cross-sector collaboration.   NEED SUPPORT?   Contact the National Dementia Helpline: 1800 100 500. Available 24 hours a day, 7 days a week - funded by the Australian Government.   SERVICES & RESOURCES   Find links, services and information from this episode → https://www.dementia.org.au/episode-staying-control   EPISODE CREDITS  Produced by Liam Riordan | Sound design by Slade Gibson Executive producers: Sarah Dabro and Kellie Riordan | Production manager: Ann Chesterman   FOLLOW DEMENTIA AUSTRALIA   Instagram | Facebook | LinkedIn    Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples today. Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.

    Staying in Control: Managing Money and Finances
  4. Jul 14 ·  Bonus

    Ask Us Anything: How Do I Future-Proof My Finances?

    Managing money is tricky for anyone, and dementia can make it even harder. So what are the best ways to keep control and make informed choices around our finances? In our Ask Us Anything episodes, you send us your questions about living with dementia and we’ll answer them as honestly as we can. Nothing is off limits here! We discuss putting the right supports in place, and what to do if you’re worried someone might be taking advantage of a person living with dementia.    +++     ABOUT THIS EPISODE  This ‘Ask Us Anything’ episode was hosted by Jim Rogers with advice from Rose, a Policy Advisor at Dementia Australia.   NEED SUPPORT? Contact the National Dementia Helpline: 1800 100 500. Available 24 hours a day, 7 days a week — funded by the Australian Government.   SERVICES & RESOURCES Find links, services and information from this episode → https://www.dementia.org.au/episode-staying-control    EPISODE CREDITS Produced by Liam Riordan | Sound design by Slade Gibson Executive producers: Sarah Dabro and Kellie Riordan | Production manager: Ann Chesterman    FOLLOW DEMENTIA AUSTRALIA   Instagram | Facebook | LinkedIn     Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples today.   Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.

  5. Jul 7

    Residential Care: Understanding Changing Needs

    When Louise’s husband was diagnosed with young onset Alzheimer’s disease, she knew the day would come. What she didn’t expect was how hard it would be to find a place that could actually take him. For Susan, the challenge was different. Her Italian-born father rarely spoke about his wartime childhood. But in residential care, something as simple as a uniform could transport him back decades in an instant. Moving into residential care is one of the toughest decisions for many people living with dementia and their families. When is the right time to move, how do you find an appropriate place, and how do you even start the conversation? Co-hosts Jim and Hamish talk with Louise and Susan about the reality of transitioning into residential care, the hard parts, the unexpected ones, and the small, peaceful moments that made it worthwhile.    +++    Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios and hosted by Jim Rogers and Hamish Macdonald.     ABOUT THE GUESTS  Former carer Louise’s husband Craig was diagnosed with young onset Alzheimer’s disease at 46. Navigating a system not designed for younger people, Louise founded the Think Again campaign and now raises awareness while sharing her experience supporting Craig through care. Susan cared for her father Tony, a gentle and hardworking man who experienced moments of great distress as his dementia progressed. Drawing on her experience navigating residential care, she now advocates for greater awareness, understanding and more personalised support for people living with dementia.   NEED SUPPORT?   Contact the National Dementia Helpline: 1800 100 500. Available 24 hours a day, 7 days a week - funded by the Australian Government.   SERVICES & RESOURCES   Find links, services and information from this episode → https://www.dementia.org.au/episode-residential-care   EPISODE CREDITS  Produced by Liam Riordan | Sound design by Slade Gibson | Executive producers: Sarah Dabro and Kellie Riordan | Production manager: Ann Chesterman   FOLLOW DEMENTIA AUSTRALIA   Instagram | Facebook | LinkedIn     Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples today. Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.

  6. Jul 7 ·  Bonus

    Ask Us Anything: How Do You Find the Right Care for Someone With Dementia?

    Moving into residential care is never an easy decision, but it's about finding support, safety and dignity along the way. In our Ask Us Anything episodes, you send us your questions about living with dementia and we’ll answer them as honestly as we can. Nothing is off limits here! We discuss how to navigate daily routines when your loved one stops wanting to shower, and residential care for people with young onset dementia.   +++    ABOUT THIS EPISODE  This ‘Ask Us Anything’ episode was hosted by Jim Rogers with advice from Jane, a Senior Family Engagement Counsellor at Dementia Australia.     NEED SUPPORT?   Contact the National Dementia Helpline: 1800 100 500. Available 24 hours a day, 7 days a week - funded by the Australian Government.     SERVICES & RESOURCES   Find links, services and information from this episode → https://www.dementia.org.au/episode-residential-care    EPISODE CREDITS  Produced by Liam Riordan | Sound design by Slade Gibson | Executive producers: Sarah Dabro and Kellie Riordan | Production manager: Ann Chesterman    FOLLOW DEMENTIA AUSTRALIA Instagram | Facebook | LinkedIn     Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples today. Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.

    Ask Us Anything: How Do You Find the Right Care for Someone With Dementia?
  7. Jun 30 ·  Bonus

    Ask Us Anything: How Do I Balance Life While Caring for My Parent with Dementia?

    Caring for a parent with dementia in your teens,  20s or 30s brings challenges most people don’t see. In our Ask Us Anything episodes, you send us your questions about living with dementia and we’ll answer them as honestly as we can. Nothing is off limits here! We examine the pressures young carers face and share advice on managing the juggle.   +++   ABOUT THIS EPISODE This ‘Ask Us Anything’ episode was hosted by Jim Rogers with advice from Jane, a Senior Family Counsellor at Dementia Australia.   NEED SUPPORT? Contact the National Dementia Helpline: 1800 100 500. Available 24 hours a day, 7 days a week - funded by the Australian Government.   SERVICES & RESOURCES Find links, services and information from this episode → https://www.dementia.org.au/episode-big-responsibilities   EPISODE CREDITS Produced by Liam Riordan | Sound design by Slade Gibson | Executive producers: Sarah Dabro and Kellie Riordan | Production manager: Ann Chesterman   FOLLOW DEMENTIA AUSTRALIA Instagram | Facebook | LinkedIn   Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples today. Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.

  8. Jun 30

    Big Responsibilities: Navigating Life as a Young Carer

    Tully was only 15 when her mother was diagnosed with young onset dementia. She figured nobody at school would understand. John’s experience has, thankfully, been quite different. He’s 25 now, and cares for his grandmother who lives with dementia. Caring for her has been so rewarding for him that he’s now a professional support worker and studying to be a counsellor. Caring for a loved one living with dementia always has its challenges, and a sense of isolation is a common one. But for younger carers, that isolation can be even more profound. So few people in their teens or early twenties have done it, so it can feel like nobody around you understands the struggle.   +++   Hold the Moment is a podcast from Dementia Australia, produced by Deadset Studios and hosted by Jim Rogers and Hamish Macdonald.   ABOUT THE GUESTS Tully Smyth is a writer, content creator and Dementia Australia Ambassador who was just 15 when her mother was diagnosed with young onset dementia, an experience she now shares as an advocate for other young carers. John has been caring for loved ones since the age of five and is now a professional support worker studying to become a counsellor. John cares for his Mum as well as his Nonna, who lives with Parkinson’s disease and dementia.   NEED SUPPORT? Contact the National Dementia Helpline: 1800 100 500. Available 24 hours a day, 7 days a week - funded by the Australian Government.   SERVICES & RESOURCES Find links, services and information from this episode → https://www.dementia.org.au/episode-big-responsibilities   EPISODE CREDITS Produced by Liam Riordan | Sound design by Slade Gibson | Executive producers: Sarah Dabro and Kellie Riordan | Production manager: Ann Chesterman   FOLLOW DEMENTIA AUSTRALIA Instagram | Facebook | LinkedIn   Dementia Australia and Deadset Studios acknowledge the Traditional Owners of Country throughout Australia and recognise their continuing connection to lands, waters and communities. We pay our respect to their Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples today. Dementia Australia acknowledges and appreciates the support of the Australian Government for this initiative.

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Hold the Moment is a podcast by people living with dementia and their families.

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