Living with Parkinson’s | Bryce Perry

Doing Life Today
Doing Life Today
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Living with Parkinson’s is real talk about the good, the bad, and the reality of life with Parkinson’s disease. Diagnosed at 40, Bryce Perry shares honest stories, practical ideas, and a little humour to help you navigate symptoms, relationships, care partnerships, and everyday challenges. Whether you’re newly diagnosed, years into your journey, or supporting someone you love, you’ll find understanding, encouragement, and a reminder that you’re not alone. Parkinson’s is part of your life. There’s still life to live.

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  1. 1d ago

    When “Hurry Up” Actually Makes Parkinson’s Worse

    There are five words that can make my Parkinson’s worse almost instantly: “Bryce, we have to hurry!” Suddenly my hands stop cooperating, my feet get slower, and my brain seems to forget what it was doing. And somehow, the harder I try to move faster, the slower everything gets! In this episode of Living with Parkinson’s: The Good, the Bad, and the Reality, I explain seven ways being rushed can make everyday life with Parkinson’s more difficult: • Movement becomes harder: Why adding pressure can interfere with movements that already require extra concentration. • Multitasking overload: How rushing while walking, talking, carrying things, or making decisions can increase hesitation and freezing. • Fine motor difficulties: Why buttons, zippers, phones, and credit cards suddenly become impossible when people are waiting. • Speech and thinking slow down: How time pressure can make finding words, answering questions, and making decisions harder. • The emotional toll: Why feeling responsible for making everyone late can create guilt, frustration, and anxiety. • When helping makes things worse: Why repeatedly saying "hurry up" may actually slow someone down further. • Planning ahead: How building extra time into your routine and reducing distractions can make everyday activities easier. And here's something I've learned: Sometimes nobody else is rushing me. I'm rushing myself. We remember how quickly we used to do things, and sometimes we forget to give ourselves the same patience we're asking others to give us. You'll also hear Carmen’s Care Partner Corner, where Carmen explains why helping someone with Parkinson’s sometimes means doing less, saying less, and giving them room to finish what they're doing. Instead of saying “Hurry up!”, try asking: “What do you need right now?” Because sometimes we need help. Sometimes we just need another minute. And those aren't the same thing. For more Parkinson’s tips, tools, and community support, visit:🌐 ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ You’ll find guides, community resources, and practical strategies to help you keep doing life today. 🚨 Newly Diagnosed with Parkinson’s? ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Start Here⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🏠 Join The Club by Doing Life Today for Parkinson's support, tools, and community:⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://club.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🔴Get information about the Inner Circle ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com/inner-circle⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🔔 Subscribe for weekly motivation and support ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/3262ymG⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ▶️ Video Podcast Playlist ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/4h27D3y⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🎧 Audio Podcast ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://podcast.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ “With Parkinson’s, medication is like coffee. It’s not about how strong it is. It’s about when you take it.” ⚠️ Important Note This is my personal Parkinson’s journey. What works for me may not work for everyone. Parkinson’s is different for each person, and medication plans should always be discussed with your doctor or healthcare provider. #Parkinsons #ParkinsonsDisease #ParkinsonsIsolation #LivingWithParkinsons #ParkinsonsPodcast #ParkinsonsSupport #ParkinsonsTips

  2. 2d ago

    The Real Reason You Feel Dizzy With Parkinson’s

    Have you ever stood up and suddenly felt like something was wrong, but you couldn't quite explain it? Maybe your vision goes dark. Your legs feel weak. Your brain gets foggy. Or you suddenly need to grab the nearest chair. And here's what surprised me: Parkinson’s dizziness doesn't always feel like dizziness! Sometimes the room doesn't spin at all. In this episode of Living with Parkinson’s: The Good, the Bad, and the Reality, we explore seven ways dizziness and blood pressure problems can affect everyday life: • The stand-up whoosh: That sudden lightheaded feeling when you rise from a chair. • Weak legs: When your legs suddenly feel unreliable after standing. • Brain fog: Why a temporary drop in blood pressure may make thinking feel unusually difficult. • Vision changes: When your vision becomes blurry, dim, or briefly dark after standing. • Heat and dehydration: Why hot showers, warm weather, and insufficient fluids can make symptoms worse. • After-meal dizziness: Why some people feel weak or faint after eating. • Medication effects: How Parkinson’s medications, blood pressure medications, and other factors can contribute. One possible explanation is orthostatic hypotension, a drop in blood pressure when you stand. But not all dizziness is caused by blood pressure, and recognizing the difference matters. I also share a simple way to describe these episodes to your doctor: Position. Timing. Feeling. Instead of saying, "I got dizzy," explain what you were doing, when it happened, and exactly what you experienced. You'll also hear Carmen’s Care Partner Corner, where Carmen talks about recognizing these moments and why giving someone time to sit and recover can help prevent a fall. Because sometimes the smartest thing you can do when Parkinson’s challenges your balance is stop trying to prove you can beat gravity. For more Parkinson’s tips, tools, and community support, visit:🌐 ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ You’ll find guides, community resources, and practical strategies to help you keep doing life today. 🚨 Newly Diagnosed with Parkinson’s? ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Start Here⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🏠 Join The Club by Doing Life Today for Parkinson's support, tools, and community:⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://club.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🔴Get information about the Inner Circle ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com/inner-circle⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🔔 Subscribe for weekly motivation and support ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/3262ymG⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ▶️ Video Podcast Playlist ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/4h27D3y⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🎧 Audio Podcast ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://podcast.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ “With Parkinson’s, medication is like coffee. It’s not about how strong it is. It’s about when you take it.” ⚠️ Important Note This is my personal Parkinson’s journey. What works for me may not work for everyone. Parkinson’s is different for each person, and medication plans should always be discussed with your doctor or healthcare provider. #Parkinsons #ParkinsonsDisease #ParkinsonsIsolation #LivingWithParkinsons #ParkinsonsPodcast #ParkinsonsSupport #ParkinsonsTips

  3. 3d ago

    Parkinson’s Sweating? Here’s What’s Really Happening

    One minute you're sweating. The next minute you're freezing. And everyone around you seems perfectly comfortable. Meanwhile, Carmen is asking me to pick a temperature. Believe me, I'd love to. But apparently Parkinson’s has taken control of my body's thermostat! In this episode of Living with Parkinson’s: The Good, the Bad, and the Reality, we're talking about something many people don't realize Parkinson’s can affect: your body's ability to regulate temperature. We explore seven surprising things: • Excessive sweating: Why you might suddenly start sweating even when the room isn't hot. • Uneven sweating: How some parts of your body may sweat too much while others sweat too little. • Heat intolerance: Why warm weather can leave you exhausted, dizzy, or feeling completely drained. • Feeling unusually cold: Why your hands, feet, or entire body may feel freezing when everyone else is comfortable. • Medication-related sweating: How sweating can sometimes be connected to OFF periods or dyskinesia. • Night sweats: Why you might wake up soaked even when your bedroom isn't particularly warm. • When temperature problems become serious: Why severe overheating, dehydration, confusion, or sudden major changes require medical attention. And here's something that surprised me: Sometimes excessive sweating in one part of your body may happen because other areas aren't sweating properly! I also share a simple way to recognize patterns by tracking three things: time, medication cycle, and environment. You'll also hear Carmen’s Care Partner Corner, where Carmen explains why temperature problems can be frustrating for both people. Because apparently my internal thermostat is broken, and Carmen has become the customer service department. 😂 The biggest takeaway? You don't have to silently put up with temperature problems just because you have Parkinson’s. Recognizing patterns, making practical adjustments, and talking with your healthcare team can help you manage them. For more Parkinson’s tips, tools, and community support, visit:🌐 ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ You’ll find guides, community resources, and practical strategies to help you keep doing life today. 🚨 Newly Diagnosed with Parkinson’s? ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Start Here⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🏠 Join The Club by Doing Life Today for Parkinson's support, tools, and community:⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://club.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🔴Get information about the Inner Circle ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com/inner-circle⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🔔 Subscribe for weekly motivation and support ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/3262ymG⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ▶️ Video Podcast Playlist ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/4h27D3y⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🎧 Audio Podcast ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://podcast.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ “With Parkinson’s, medication is like coffee. It’s not about how strong it is. It’s about when you take it.” ⚠️ Important Note This is my personal Parkinson’s journey. What works for me may not work for everyone. Parkinson’s is different for each person, and medication plans should always be discussed with your doctor or healthcare provider. #Parkinsons #ParkinsonsDisease #ParkinsonsIsolation #LivingWithParkinsons #ParkinsonsPodcast #ParkinsonsSupport #ParkinsonsTips

  4. 4d ago

    7 Parkinson’s Swallowing Signs That Are Easy to Overlook

    When you think of swallowing problems with Parkinson’s, you probably think of choking. But what if the warning signs start long before that? Maybe meals are taking longer. Pills feel like they're getting stuck. You're clearing your throat more often, or you've noticed something strange happening with your voice after eating. And here's the scary part: some swallowing problems can happen without you even realizing it. In this episode of Living with Parkinson’s: The Good, the Bad, and the Reality, I share seven swallowing changes worth paying attention to: • Meals taking longer: When chewing, eating, and finishing a meal require more effort. • Food or pills feeling stuck: When swallowing medication or certain foods becomes difficult. • Coughing or throat clearing: Especially when it repeatedly happens during or after meals. • Food remaining in your mouth: When your tongue and mouth aren't moving food as efficiently. • A wet or gurgly voice: When your voice sounds different after eating or drinking. • Drooling: Why it may be caused by swallowing less frequently rather than producing too much saliva. • Silent aspiration: When food or liquid enters the airway without the coughing response you'd normally expect. And that last one is especially important. Not choking doesn't automatically mean your swallowing is working normally. We also talk about why speech-language pathologists can help assess swallowing difficulties and why noticing patterns early matters. You'll hear Carmen’s Care Partner Corner, where Carmen explains how care partners can recognize changes without turning every meal into an examination. Her advice? “Observation, not accusation.” Because Parkinson’s may change something as automatic as swallowing, but recognizing the signs gives us an opportunity to ask questions, seek help, and protect our health. For more Parkinson’s tips, tools, and community support, visit:🌐 ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ You’ll find guides, community resources, and practical strategies to help you keep doing life today. 🚨 Newly Diagnosed with Parkinson’s? ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Start Here⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🏠 Join The Club by Doing Life Today for Parkinson's support, tools, and community:⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://club.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🔴Get information about the Inner Circle ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com/inner-circle⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🔔 Subscribe for weekly motivation and support ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/3262ymG⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ▶️ Video Podcast Playlist ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/4h27D3y⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🎧 Audio Podcast ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://podcast.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ “With Parkinson’s, medication is like coffee. It’s not about how strong it is. It’s about when you take it.” ⚠️ Important Note This is my personal Parkinson’s journey. What works for me may not work for everyone. Parkinson’s is different for each person, and medication plans should always be discussed with your doctor or healthcare provider. #Parkinsons #ParkinsonsDisease #ParkinsonsIsolation #LivingWithParkinsons #ParkinsonsPodcast #ParkinsonsSupport #ParkinsonsTips

  5. 5d ago

    Why Busy Places Make Parkinson’s Symptoms Worse (And Why You Crash Afterwards)

    Have you ever walked into a busy restaurant, shopping mall, or family gathering and suddenly felt your Parkinson’s symptoms get worse? Your walking becomes harder. Your voice gets quieter. Your brain slows down. And suddenly, all you want to do is leave. People may think you're tired, anxious, or antisocial. But something else may be happening. Your brain is trying to do too many things at once. In this episode of Living with Parkinson’s: The Good, the Bad, and the Reality, I explain six reasons busy environments can become overwhelming: • Walking requires more concentration: Movement that used to be automatic now demands attention. • Sensory overload: Noise, lights, movement, and competing conversations can overwhelm your brain's ability to filter information. • Conversations become exhausting: Following discussions, finding words, and responding can become difficult when everything is happening at once. • Stress amplifies symptoms: Crowds and unfamiliar environments may increase stiffness, freezing, anxiety, and other symptoms. • Visual clutter makes movement harder: Crowded aisles, patterned floors, obstacles, and sudden movements can make walking more challenging. • The crash comes afterward: You may hold everything together while you're out, only to feel completely exhausted once you get home. And that last one is something many people don't understand. You looked fine while you were out. But looking fine may have required every ounce of concentration you had. You'll also hear Carmen’s Care Partner Corner, where Carmen explains why asking too many questions when someone is overwhelmed can make things even harder. Sometimes the most helpful question is simply: “Would you like to sit or leave?” Because managing Parkinson’s in busy places isn't always about avoiding them. Sometimes it's about choosing quieter times, planning breaks, reducing distractions, and giving yourself permission to leave early. Leaving early doesn't mean the outing failed. It means you recognized what your brain and body needed. For more Parkinson’s tips, tools, and community support, visit:🌐 ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ You’ll find guides, community resources, and practical strategies to help you keep doing life today. 🚨 Newly Diagnosed with Parkinson’s? ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Start Here⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🏠 Join The Club by Doing Life Today for Parkinson's support, tools, and community:⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://club.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🔴Get information about the Inner Circle ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com/inner-circle⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🔔 Subscribe for weekly motivation and support ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/3262ymG⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ▶️ Video Podcast Playlist ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/4h27D3y⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🎧 Audio Podcast ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://podcast.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ “With Parkinson’s, medication is like coffee. It’s not about how strong it is. It’s about when you take it.” ⚠️ Important Note This is my personal Parkinson’s journey. What works for me may not work for everyone. Parkinson’s is different for each person, and medication plans should always be discussed with your doctor or healthcare provider. #Parkinsons #ParkinsonsDisease #ParkinsonsIsolation #LivingWithParkinsons #ParkinsonsPodcast #ParkinsonsSupport #ParkinsonsTips

  6. Oct 30

    6 Things Parkinson’s Takes From You That Nobody Warns You About

    Nobody warned me Parkinson’s would take these things. They warned me about tremors, stiffness, and balance problems. But nobody sat me down and explained how Parkinson’s could slowly take my confidence, spontaneity, privacy, independence, and even pieces of who I thought I was. And sometimes those invisible losses hurt more than the symptoms people can see. In this episode of Living with Parkinson’s: The Good, the Bad, and the Reality, I talk honestly about six things Parkinson’s can quietly take from our lives: • Spontaneity: When a simple dinner invitation becomes a planning exercise involving medication, bathrooms, walking, and energy. • Confidence: When everyday activities become moments of uncertainty, embarrassment, or fear. • Privacy: When symptoms, medication schedules, and personal struggles become things other people suddenly know about. • Independence: When needing help begins changing decisions you used to make entirely on your own. • The size of your world: When restaurants, friendships, travel, hobbies, and outings gradually disappear from your routine. • Your sense of identity: When Parkinson’s changes the roles you've always had and leaves you wondering, “Am I still the same person?” And that final one is deeply personal. Because Parkinson’s doesn't just change what we can do. Sometimes it changes how we see ourselves. But I've learned something important after living with Parkinson’s for more than 15 years: My identity didn't disappear. It had to expand. You'll also hear Carmen’s Care Partner Corner, where Carmen talks about balancing safety and independence without accidentally taking away someone's choices. Her reminder? “Love is not doing everything for somebody. Sometimes love is helping without taking them away from themselves.” Because Parkinson’s may change the way we live. But it doesn't get to decide what our lives are worth. For more Parkinson’s tips, tools, and community support, visit:🌐 ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ You’ll find guides, community resources, and practical strategies to help you keep doing life today. 🚨 Newly Diagnosed with Parkinson’s? ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Start Here⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🏠 Join The Club by Doing Life Today for Parkinson's support, tools, and community:⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://club.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🔴Get information about the Inner Circle ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com/inner-circle⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🔔 Subscribe for weekly motivation and support ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/3262ymG⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ▶️ Video Podcast Playlist ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/4h27D3y⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🎧 Audio Podcast ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://podcast.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ “With Parkinson’s, medication is like coffee. It’s not about how strong it is. It’s about when you take it.” ⚠️ Important Note This is my personal Parkinson’s journey. What works for me may not work for everyone. Parkinson’s is different for each person, and medication plans should always be discussed with your doctor or healthcare provider. #Parkinsons #ParkinsonsDisease #ParkinsonsIsolation #LivingWithParkinsons #ParkinsonsPodcast #ParkinsonsSupport #ParkinsonsTips

  7. Oct 29

    5 Reasons Your Parkinson’s Medication Suddenly Seems Less Effective

    Have you ever taken your Parkinson’s medication, waited for it to kick in, and wondered, “Why isn't this working anymore?” You're still stiff. Your feet aren't cooperating. Your brain feels foggy, and suddenly you're wondering whether your Parkinson’s has gotten worse. But sometimes the medication hasn't stopped working. Something else has changed. In this episode of Living with Parkinson’s: The Good, the Bad, and the Reality, I share five reasons your medication may suddenly seem less effective: • Delayed ON time: Your medication may still be working, just taking longer to kick in. • Food and protein timing: Why meals, particularly protein-rich foods, can affect levodopa response for some people. • Constipation and slow digestion: How your digestive system can interfere with medication absorption and make doses unpredictable. • Sleep, stress, dehydration, or illness: Why a difficult day doesn't always mean your medication has failed. • Symptoms that don't respond well to levodopa: Why increasing medication isn't necessarily the answer to fatigue, balance problems, brain fog, or other symptoms. And here's the question I now ask before assuming my medication has stopped working: “What else changed?” Did I sleep poorly? Eat differently? Take my medication later? Am I constipated, dehydrated, or under more stress? Sometimes asking that question turns panic into useful information. You'll also hear Carmen’s Care Partner Corner, where Carmen talks about supporting someone through difficult medication days without constantly asking: “Are you ON yet?” Her reminder is simple: “You don't have to solve the whole disease. Sometimes you just help make the next hour easier.” Because one bad medication day doesn't automatically mean your Parkinson’s has progressed. Sometimes the pill didn't fail. Parkinson’s just changed the rules. For more Parkinson’s tips, tools, and community support, visit:🌐 ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ You’ll find guides, community resources, and practical strategies to help you keep doing life today. 🚨 Newly Diagnosed with Parkinson’s? ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Start Here⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🏠 Join The Club by Doing Life Today for Parkinson's support, tools, and community:⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://club.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🔴Get information about the Inner Circle ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com/inner-circle⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🔔 Subscribe for weekly motivation and support ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/3262ymG⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ▶️ Video Podcast Playlist ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/4h27D3y⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🎧 Audio Podcast ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://podcast.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ “With Parkinson’s, medication is like coffee. It’s not about how strong it is. It’s about when you take it.” ⚠️ Important Note This is my personal Parkinson’s journey. What works for me may not work for everyone. Parkinson’s is different for each person, and medication plans should always be discussed with your doctor or healthcare provider. #Parkinsons #ParkinsonsDisease #ParkinsonsIsolation #LivingWithParkinsons #ParkinsonsPodcast #ParkinsonsSupport #ParkinsonsTips

  8. Oct 28

    7 Signs Your Parkinson’s May Be Changing Before You Realize It

    What if your Parkinson’s is changing, but you've been adapting so gradually that you haven't even noticed? Maybe your medication doesn't last quite as long. Maybe walking requires more concentration. Or maybe the same activities you did six months ago now leave you completely exhausted. Parkinson’s doesn't always announce change with a dramatic new symptom. Sometimes the biggest clue is how much harder ordinary life has become. In this episode of Living with Parkinson’s: The Good, the Bad, and the Reality, I share seven signs worth paying attention to: • Automatic movements require more thought: Getting out of a chair, turning, or walking takes more concentration. • Medication windows change: Your medication takes longer to work or seems to wear OFF sooner. • Walking requires more planning: Doorways, crowds, turns, and uneven surfaces demand more attention. • Your voice changes: People ask you to repeat yourself more often, or your speech becomes softer. • Non-motor symptoms become more noticeable: Sleep, constipation, fatigue, anxiety, or brain fog begin affecting your day differently. • Multitasking becomes harder: Doing two things at once requires more effort than it used to. • The same activities cost more energy: You can still do things, but the recovery afterward takes longer. And that final one might be the most important. Stop asking only, “Can I still do it?” Start asking, “What does it cost me now?” I also share a recent experience at the Canada-U.S. border where I suddenly froze while trying to turn away from a customs officer. It was a reminder of how Parkinson’s can make something as automatic as turning around unexpectedly complicated. You'll also hear Carmen’s Care Partner Corner, where Carmen talks about noticing small changes before I do, without making me feel like I'm constantly being monitored. Her advice? “Notice the change. Don't become the change police.” Because noticing changes isn't about assuming the worst. It's about recognizing patterns, having better conversations with your neurologist, and adapting so you can keep doing the things that matter. For more Parkinson’s tips, tools, and community support, visit:🌐 ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ You’ll find guides, community resources, and practical strategies to help you keep doing life today. 🚨 Newly Diagnosed with Parkinson’s? ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Start Here⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🏠 Join The Club by Doing Life Today for Parkinson's support, tools, and community:⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://club.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🔴Get information about the Inner Circle ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com/inner-circle⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🔔 Subscribe for weekly motivation and support ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/3262ymG⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ▶️ Video Podcast Playlist ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/4h27D3y⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 🎧 Audio Podcast ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://podcast.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ “With Parkinson’s, medication is like coffee. It’s not about how strong it is. It’s about when you take it.” ⚠️ Important Note This is my personal Parkinson’s journey. What works for me may not work for everyone. Parkinson’s is different for each person, and medication plans should always be discussed with your doctor or healthcare provider. #Parkinsons #ParkinsonsDisease #ParkinsonsIsolation #LivingWithParkinsons #ParkinsonsPodcast #ParkinsonsSupport #ParkinsonsTips

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4.8
out of 5
9 Ratings

About

Living with Parkinson’s is real talk about the good, the bad, and the reality of life with Parkinson’s disease. Diagnosed at 40, Bryce Perry shares honest stories, practical ideas, and a little humour to help you navigate symptoms, relationships, care partnerships, and everyday challenges. Whether you’re newly diagnosed, years into your journey, or supporting someone you love, you’ll find understanding, encouragement, and a reminder that you’re not alone. Parkinson’s is part of your life. There’s still life to live.

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