Alzheimer's Speaks

Alzheimer's Speaks Radio gives voice to all, sharing resources, tools, and products. Through collaboration & education we are changing dementia care.

  1. How Do You Find Yourself Again After Identity Loss, Trauma, and Caregiving?

    1D AGO

    How Do You Find Yourself Again After Identity Loss, Trauma, and Caregiving?

    How Do You Find Yourself Again After Identity Loss, Trauma, and Caregiving? #Grief #Loss #LifeBalance #Selfcare Suzy McNamara is an author and speaker who gives a voice to various forms of grief and loss that so often go unnamed and are unaddressed. Suzy wrote the book, The Silkworm, the Magician, and the Sister Tree, a deeply personal and human exploration of caregiving, grief, enduring love, and health & wellness. In 2024, Suzy lost her husband of 37 years, Bob McNamara, to Posterior Cortical Atrophy, an aggressive form of early-onset Alzheimer’s, after caring for him at home for five years. Months earlier, her sister and lifelong best friend, Elizabeth Muslin, died from Idiopathic Pulmonary Fibrosis. These overlapping losses shape her perspective and inform her writing. Suzy’s work offers particular insight into early-onset Alzheimer’s, where illness dismantles identity during years when marriages, careers, friendships, and family life are often at their most active. She writes honestly about the daily realities of caregiving, including isolation, exhaustion, and the quiet labor of preserving dignity, countering shame, emotional wellness, and holding onto meaning amid uncertainty. Suzy believes grief is a lonely sport and survival depends on community, shared language, and the courage to name what is often left unsaid. Grounded in sustaining faith practices, she writes to walk alongside readers as they navigate their own losses. Suzy continues to find meaning through her lifelong love of books, movies, and music, interests she once shared with her husband and sister and now shares with her children and the wider community she has built. Learn: What identity loss actually feels. How can a person find themselves again after years of being in survival mode? Did writing The Silkworm, the Magician, and the Sister Tree help Suzy understand her own memory, grief, and healing? How can prolonged stress, caregiving, and unresolved grief affect a person’s sense of self over time? Get a couple of tips if you are caring for a loved one with Alzheimer’s or another condition, and you feel like you are disappearing on this caring journey.   Alzheimer’s Speaks Blog https://alzheimersspeaks.com/how-do-you-find-yourself-again-after-identity-loss-trauma-and-caregiving/   Watch the Video Interview Below https://youtu.be/1iGgNbYlbEY   Listen and Subscribe to Alzheimer’s Speaks on Apple Podcast https://podcasts.apple.com/us/podcast/how-do-you-find-yourself-again-after-identity-loss/id986940432?i=1000760360523   Listen and Subscribe to Alzheimer’s Speaks on Spotify https://open.spotify.com/episode/3gvhOd0O2mz3rOXOSFfCt7   Other Podcasts https://pod.link/986940432   Dementia Map https://dementiamap.com/events/#!event/2026/4/9/how-do-you-find-yourself-again-after-identity-loss-trauma-and-caregiving   Contact Suzy McNamara   Website    https://suzymcnamara.com LinkedIn    https://www.linkedin.com/in/suzymcnamara Facebook   https://www.facebook.com/suzy.mcnamara Instagram   https://www.facebook.com/suzy.mcnamara   Contact Lori La Bey of Alzheimer’s Speaks Contact Lori La Bey with questions or branding needs at https://www.alzheimersspeaks.com/ Alzheimer's Speaks shifts dementia care from crisis to comfort around the world, one episode at a time, by raising all voices and delivering sound news, not just sound bites, since 2011. Alzheimer's Speaks is part of the Senior Resource Podcast Network.                                                                                                                    Support this Show: https://alzheimersspeaks.com/donate-now/ See omnystudio.com/listener for privacy information.

    57 min
  2. Reflekta - Creating Lasting Legacies Through Intergenerational Storytelling

    3D AGO

    Reflekta - Creating Lasting Legacies Through Intergenerational Storytelling

    Lori La Bey talks with Dawn Delaloye, a grief specialist who has spent the last several years providing emotional and spiritual support for the terminally ill and their caregivers. Her latest project is serving on Reflekta’s Soul Team, preserving memories and providing lasting legacies through intergenerational storytelling for generations to come. Dawn has a Doctorate in Psychology with an emphasis in grief and bereavement counseling. Learn: How Reflekta and storytelling help a person living with dementia recall memories? The emotional benefits of storytelling for those living with dementia? How storytelling improves communication between caregivers and their loved ones. What role Reflekta can play in preserving legacy? How caregivers can benefit from Reflekta? Find out how storytelling activities enhance cognitive function.   Alzheimer’s Speaks Blog  https://alzheimersspeaks.com/reflekta-creating-lasting-legacies-through-storytelling/   Watch the Video Interview Below https://youtu.be/bcCVyaLZBHg?si=yqqxyOZpHKdsBqTi   Listen and Subscribe to Alzheimer’s Speaks on Apple Podcast https://podcasts.apple.com/us/podcast/reflekta-creating-lasting-legacies-through-intergenerational/id986940432?i=1000759908320   Listen and Subscribe to Alzheimer’s Speaks on Spotify https://open.spotify.com/episode/6FStezyybAs15xCpCbUdn6   Other Podcasts https://pod.link/986940432   Dementia Map https://dementiamap.com/events/#!event/2026/4/7/reflekta-creating-lasting-legacies-through-intergenerational-storytelling-160-160-160   Contact Reflekta Website   https://reflekta.ai/ Facebook   @reflekta https://www.facebook.com/profile.php?id=61577995201989 LinkedIn    https://www.linkedin.com/company/reflektaai/  Instagram    https://www.instagram.com/reflekta.ai    Contact Lori La Bey with questions or branding needs at https://www.alzheimersspeaks.com/ Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites, since 2011. Alzheimer's Speaks is part of the Senior Resource Podcast Network. Support this Show: https://alzheimersspeaks.com/donate-now/ See omnystudio.com/listener for privacy information.

    1 hr
  3. OPEN MIC ON ALZHEIMER'S SPEAKS - LEARN ABOUT TRIALS & STUDIES

    APR 2

    OPEN MIC ON ALZHEIMER'S SPEAKS - LEARN ABOUT TRIALS & STUDIES

    Today on OPEN MIC, we will be speaking with a variety of people about various trials and studies. #CaregiversStudies #DementiaTrials #AlzheimersStudies   Alzheimer’s Speaks Blog  https://alzheimersspeaks.com/dementia-trials-studies-supporting-the-journey-and-the-future/https://alzheimersspeaks.com/blog/ Watch the Video Interview Below https://youtu.be/ICXdibcDupQ Listen and Subscribe to Alzheimer’s Speaks on Apple Podcast https://podcasts.apple.com/us/podcast/open-mic-on-alzheimers-speaks-learn-about-trials-studies/id986940432?i=1000758813453 Listen and Subscribe to Alzheimer’s Speaks on Spotify https://open.spotify.com/episode/5dN8kkHBgRhDzTKmrJ88GC Other Podcasts https://pod.link/986940432 Dementia Map https://dementiamap.com/events/#!event/2026/3/31/open-mic-on-alzheimer-apos-s-speaks-learn-about-trials-studies     Caregivers TSCAN - Rice University in Houston, Texas Website   https://tscan.rice.edu Email    caregivers.tscan@gmail.com Phone   713-348-3528   MyHestia - University of Wisconsin, Milwaukee Dr. Priya Nambisan, PhD      Phone    414-251-5217 Website: http://myhestia.org   Nagadeepthi Doddaka Website: http://myhestia.org/waystousemyhestia.php Email    ndoddaka@uwm.edu Phone Number: 414-275-2475 Website    https://myhestia.org/callforparticipation.php      Facebook   https://www.facebook.com/SelfcareEcosystem   SHARE African American Care - Rose Institute on Aging Donna Salaam (216) 373-1747 Email   SHARE4AA@BenRose.org Website   https://www.benrose.org/   RealVision Project - Dartmouth College -  Vedant Tapiavala Email      vedant.n.tapiavala.26@dartmouth.edu Google Real Vision Study Dartmouth Website    https://realvision-web-reach.lovable.app/   Contact Lori La Bey with Alzheimer’s Speaks Website –  https://www.alzheimersspeaks.com/ Contact Lori La Bey with questions or branding needs through www.AlzheimersSpeaks.com   Alzheimer's Speaks - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites, since 2011. Alzheimer's Speaks is part of the Senior Resource Podcast Network. Support this Show: https://alzheimersspeaks.com/donate-now/ See omnystudio.com/listener for privacy information.

    41 min
  4. Why Dementia Behaviors Make Sense Once You Understand the Brain

    MAR 29

    Why Dementia Behaviors Make Sense Once You Understand the Brain

    Why Dementia Behaviors Make Sense Once You Understand the Brain: How caregivers can interpret behavior and discover a better way to support the person living with dementia Lori La Bey talks with Carlyn Lenfestey, a physical therapist, Certified Dementia Practitioner, and caregiver coach who teaches families and care teams how understanding the dementia brain can change the way we support the person. She is the founder of A Better Way: Dementia Care Solutions. Learn: How personal experiences led Carlyn to support both family and professional caregivers. A simple breakdown of how the brain changes and how this affects the person living with it. Find out what a Certified Dementia Practitioner is and how to become one. Learning about what a caregiver coach can offer you. How to get your FREE Caregiver Quick-Start Guide   Alzheimer’s Speaks Blog Post https://alzheimersspeaks.com/why-dementia-behaviors-make-sense-once-you-understand-the-brain/ Watch the Video Interview Below https://youtu.be/DguPSfM_UxM Listen and Subscribe to Alzheimer’s Speaks on Apple Podcast https://podcasts.apple.com/us/podcast/why-dementia-behaviors-make-sense-once-you-understand/id986940432?i=1000758072008 Listen and Subscribe to Alzheimer’s Speaks on Spotify https://open.spotify.com/episode/7mGFyUFF6jgWt0bm15VPHB Other Podcasts https://pod.link/986940432  Dementia Map https://dementiamap.com/events/#!event/2026/3/26/why-dementia-behaviors-make-sense-once-you-understand-the-brain   Contact Lori La Bey with questions or branding needs at https://www.alzheimersspeaks.com/ Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites, since 2011. Alzheimer's Speaks is part of the Senior Resource Podcast Network. Support this Show: https://alzheimersspeaks.com/donate-now/ See omnystudio.com/listener for privacy information.

    1h 7m
  5. Caregiving Skills That Change Lives

    MAR 23

    Caregiving Skills That Change Lives

    Social Media - Caregiving Skills That Change Lives  Lori La Bey talks with Lydia White, co-owner of Comfort Keepers In-Home Care in southeastern Michigan. She started as a caregiver and is now completing her RN degree. Lydia brings a unique perspective on supporting both professional and family caregivers. Learn: What’s the difference between healthcare companies and categories? How another amazing leader in healthcare was touched by seniors and dementia throughout her life, creating her drive to improve care, especially for those living with dementia. Where do you start if you are thinking about getting support for your loved one? The importance of truly knowing who you care for and how to incorporate that knowledge to increase their comfort. The importance of staff training and the philosophy of a company. About additional support services   Alzheimer’s Speaks Blog  https://alzheimersspeaks.com/caregiving-skills-that-change-lives/ Watch the Video Interview Below https://youtu.be/To5yQylpZ_s Listen and Subscribe to Alzheimer’s Speaks on Apple Podcast https://podcasts.apple.com/us/podcast/caregiving-skills-that-change-lives/id986940432?i=1000756850369 Listen and Subscribe to Alzheimer’s Speaks on Spotify https://open.spotify.com/episode/4BSvp60o7MrvMBhmQUiACq Other Podcasts https://pod.link/986940432 Dementia Map https://dementiamap.com/events/#!event/2026/3/24/caregiving-skills-that-change-lives   Contact  Information Website https://www.comfortkeepers.com/offices/michigan/farmington-hills/ Facebook https://www.facebook.com/ComfortKeepersOaklandCounty Instagram @ckfarmingtonmi   Contact Lori La Bey with questions or branding needs at https://www.alzheimersspeaks.com/ Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites, since 2011. Alzheimer's Speaks is part of the Senior Resource Podcast Network. Support this Show: https://alzheimersspeaks.com/donate-now/ See omnystudio.com/listener for privacy information.

    1h 2m
  6. How Music Supports Healthy Aging and Cognitive Health

    MAR 19

    How Music Supports Healthy Aging and Cognitive Health

    How Music Supports Healthy Aging and Cognitive Health #Music  #ImprovingCognition  #Connectioins Today, Alzheimer’s Speaks host, Lori La Bey, talks with Andrea Leap, who is a MacPhail voice teacher, a key faculty member in MacPhail’s unique Music for Life program, designed for adults 55 and older. She has more than 20 years of experience providing music education to older adults. In addition, I will be talking with Ann Schrempp, the Dimensions Program Coordinator at Ebenezer Foundation, which runs homes for seniors in Minnesota, Iowa, Wisconsin, and Florida. Learn: How and why music is so powerful when caring for ourselves and others. Music, Connections, and Normality. Empowerment and Acceptance Benefits to those living with dementia, their care partners, and staff MacPhail Center for Music - Music for Life programs Ebenezer Foundation – Programs they offer About MacPhail Center for Music MacPhail Center for Music transforms lives and strengthens communities through the power of music. As the nation’s largest community music school, MacPhail serves more than 15,000 students each year, spanning all ages, abilities, and backgrounds, through individual lessons, group classes, ensembles, and innovative community partnerships. Guided by extraordinary faculty, programs encompass a wide range of musical genres and traditions, fostering creativity, connection, and lifelong learning in Minnesota and beyond.   Alzheimer’s Speaks Blog  https://alzheimersspeaks.com/how-music-supports-healthy-aging-and-cognitive-health/   Watch the Video Interview Below https://youtu.be/3Js5K9IKtWE   Listen and Subscribe to Alzheimer’s Speaks on Apple Podcast https://podcasts.apple.com/us/podcast/how-music-supports-healthy-aging-and-cognitive-health/id986940432?i=1000756075283   Listen and Subscribe to Alzheimer’s Speaks on Spotify https://open.spotify.com/episode/3PAOijAub21afmQlk5YsMF   Other Podcasts https://pod.link/986940432   Dementia Map https://dementiamap.com/events/#!event/2026/3/15/how-music-supports-healthy-aging-and-cognitive-health   Contact and Explore MacPhail's Music for Life Offerings Website  https://www.macphail.org/   Facebook    @macphailmusic https://www.facebook.com/macphailmusic Instagram    @macphailmusic https://www.instagram.com/macphailmusic LinkedIn      @macphail-center-for-music https://www.linkedin.com/company/macphail-center-for-music   Contact Ebenezer Website   https://www.ebenezercares.org   Contact Lori La Bey with questions or branding needs at https://www.alzheimersspeaks.com/ Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites, since 2011. Alzheimer's Speaks is part of the Senior Resource Podcast Network. Support this Show: https://alzheimersspeaks.com/donate-now/ See omnystudio.com/listener for privacy information.

    42 min
  7. Echo's Insights -Time: A New Perspective

    MAR 16

    Echo's Insights -Time: A New Perspective

    Echo's Insights -Time: A New Perspective Today on Alzheimer's Speaks, our host Lori La Bey talks with Echo Bodine, who was recently diagnosed with a form of dementia. This is our second episode of a new series called Echo's Insights. In this episode, Echo shares her thoughts on time, how and why she organizes her days, and what her thoughts are on bucket list items. Dementia Exposed and Embraced Echo Insights: Echo's Journey Examples Of Dementia Symptoms The Impact Of Telling People You Have A Form of Dementia Dementia Care Has Changed - Get Educated Setting Boundaries For Yourself When Living With Dementia Evaluating How You Spend Your Time & How You Want To Move Forward Living Alone With Dementia When They Forget Your Name - How To Not Take It Personally Focus On The Now - Enjoy Their Abilities & Times Of Engagement Leveraging Your Intuition   Alzheimer’s Speaks Blog Post https://alzheimersspeaks.com/time-a-new-perspective-when-dementia-knocks-on-your-door/   Watch the Video Interview Below https://youtu.be/opqw4mp3JfA   Listen and Subscribe to Alzheimer’s Speaks on Apple Podcast https://podcasts.apple.com/us/podcast/echos-insights-time-a-new-perspective/id986940432?i=1000755667563   Listen and Subscribe to Alzheimer’s Speaks on Spotify https://open.spotify.com/episode/46VPv2ngNdeXiFn7VuvhMS    Other Podcasts https://pod.link/986940432   Dementia Map https://dementiamap.com/events/#!event/2026/3/17/echo-apos-s-insights-time-a-new-perspective    Contact Lori La Bey with questions or branding needs at https://www.alzheimersspeaks.com/ Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites, since 2011. Alzheimer's Speaks is part of the Senior Resource Podcast Network. Support this Show: https://alzheimersspeaks.com/donate-now/ See omnystudio.com/listener for privacy information.

    53 min
  8. What Caregiving Taught Me About Dementia, Why the System is Broken, & How blueBell Intends To Improve It

    MAR 12

    What Caregiving Taught Me About Dementia, Why the System is Broken, & How blueBell Intends To Improve It

    What Caregiving Taught Me About Dementia, Why the System is Broken, & How blueBell Intends To Improve It Lori La Bey talks with Andrew Karesa, who is a member of the Muskeg Lake Cree Nation and a proud husband and father of two young sons. After witnessing how his family coped to support his grandmother with her Alzheimer's diagnosis, Andrew realized he needed to take action. This inspired the creation of blueBell Village, aimed at restoring the Personhood and Independence of those living with dementia™. With blueBell, Andrew has seen lives transformed for both individuals living with dementia and their caregivers, and he is passionate about fostering a world where care is tailored to each individual’s needs. Additionally, he is pursuing his doctorate at the University of Calgary, where his research explores Indigenous entrepreneurship in the health sector, with a particular focus on the role of data in new venture creation. Andrew also holds an MBA from the University of Alberta. Before founding blueBell Village, he worked as a practicing engineer in the energy sector. Learn About: blueBell Village blue Bell Connect The Dementia Collective Podcast Indigenous Dementia Needs   Alzheimer’s Speaks Blog  https://alzheimersspeaks.com/what-caregiving-taught-me-about-dementia-how-and-why-the-system-is-broken-how-to-improve-it/   Watch the Video Interview Below https://youtu.be/PcJEe6ykBIM   Listen and Subscribe to Alzheimer’s Speaks on Apple Podcast https://podcasts.apple.com/us/podcast/what-caregiving-taught-me-about-dementia-why-the/id986940432?i=1000754789159   Listen and Subscribe to Alzheimer’s Speaks on Spotify https://open.spotify.com/episode/6GcTRczRGZXyI4VtBnCXs7   Dementia Map  https://dementiamap.com/events/#!event/2026/3/12/what-caregiving-taught-me-about-dementia-why-the-system-is-broken-how-bluebell-intends-to-improve-it   Other Podcasts https://pod.link/986940432   Contact blueBell Website   https://blueBellConnect.ca/ Andrew Karesa LinkedIn   https://www.linkedin.com/in/andykaresa/ blueBell Village LinkedIn https://www.linkedin.com/company/bluebellvillage/ blueBell Village Instagram https://www.instagram.com/bluebell_village/ blueBell Village Facebook https://www.facebook.com/bluebellvillage blueBell Village X (Twitter) https://twitter.com/blueBellVillage blueBell Village YouTube https://www.youtube.com/@Bluebellvillage   Contact Lori La Bey with questions or branding needs at https://www.alzheimersspeaks.com/ Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world, one episode at a time by raising all voices and delivering sound news, not just sound bites, since 2011. Alzheimer's Speaks is part of the Senior Resource Podcast Network. Support this Show: https://alzheimersspeaks.com/donate-now/ See omnystudio.com/listener for privacy information.

    1h 1m
4.4
out of 5
12 Ratings

About

Alzheimer's Speaks Radio gives voice to all, sharing resources, tools, and products. Through collaboration & education we are changing dementia care.

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