Narcolepsy Navigators Podcast

Kerly Bwoga

Narcolepsy Navigators isn't just another podcast; it's a lifeline, a space where every story shared is a step towards changing the narrative around narcolepsy, idiopathic hypersomnia and Klein-Levin syndrome.  Every episode is a peek into the lives of people navigating these conditions every single day. It's raw, it's real, and it’s about sharing stories that are way too important to miss.  Because when we share, we have the power to change narratives – that’s our mantra, "Share a story to change a story." Everyday life with these conditions is an unseen odyssey, an intricate dance of challenges that most can't fathom. But we're here to bring those stories into the light, to give a voice to the silent struggles and the victories that often go unnoticed.It's about time the world saw beyond the misconceptions and understood the full impact these conditions have on someone's life.

  1. 5d ago

    YouTube Hates Us and That's Exactly the Point

    Leave a review! What happens when you crack open the backend analytics of a podcast built for one of the rarest, most invisible patient communities on earth? In this special episode, we dig into the data behind Narcolepsy Navigators — the downloads, the device stats, the surprising cities driving our global audience, and the uncomfortable tension between chasing scale and staying true to the exhausted, isolated listener we built this show for in the first place. Turns out the algorithm doesn't understand our audience at all. Photophobia and brain fog make video a barrier instead of a bonus. Exhaustion means listeners hit play in a browser tab instead of switching apps. And a single doctor in Philadelphia or advocate in Lisbon can do more for our reach than any trending hashtag ever could. This is the story behind the numbers — and why we're choosing to stay a lighthouse instead of a billboard. About This Episode:  This is a special data-deep-dive episode: instead of a guest conversation, we're breaking down our own podcast analytics ,download geography, device behavior, YouTube performance, and Spotify growth from December 2023 through March 2026  to understand what the numbers actually reveal about how our community finds us and why they stay. If you're one of the listeners in this data  whether you found us through a link in a forum, a doctor's printout, or a friend in a support group  thank you for being part of the reason this show exists. Subscribe, leave a review, and share this episode with someone who needs to know they're not alone. Happy napping, everyone. Support the show Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences. Follow and support Narcolepsy Navigators: www.napsforlife.com Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/ Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/ LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast TikTok: https://www.tiktok.com/@narcolepsynavigators Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast  ***If you find these symptoms relatable, please seek medical advice.***

  2. 5d ago

    S5E1: The Night I Carried My Sleeping Son to the ER

    Leave a review! What happens when your teenage son stops closing doors, watches the same movie three times in one day without remembering, and disappears from his own life for weeks at a time? In this episode of Narcolepsy Navigators, hosts Kerly and Ross sit down with Jonathan Lyons — a father from Florida who's spent the last eight years advocating for his son, diagnosed with Kleine-Levin Syndrome (KLS) at just 14 years old. Jonathan shares the chaotic path to diagnosis, the ER visit that changed everything, the communities that showed up (and the ones that didn't), and what it really means to parent a child who's been robbed of years of his own life. This is a rare, honest look at chronic illness from the caregiver's side of the story. 00:00 Welcome to Season 5 of Narcolepsy Navigators 01:16 Meet Jonathan: father and caregiver to a son with KLS 03:30 "Maybe he shouldn't drive" — the doctor's first advice 06:28 Early signs mistaken for puberty 07:37 Behavioral changes: aggression, hyperphagia, and memory loss 13:54 Realizing this might be medical, not behavioral 18:32 The breaking point: carrying his son to the ER 23:21 Finding the "guardian angel" doctor and the grandmother brigade 31:03 The fog vs. the sleep: which is worse? 38:17 How the synagogue and scouting communities responded differently 45:49 Adult body, teenage mind: the emotional gaps KLS leaves behind 57:11 The grief no one talks about 1:02:51 KLS trajectory research and the changing "texture" of episodes 1:06:49 Advocacy: bringing an attorney to a school meeting 1:09:21 The Red Button Question Guest Bio  Jonathan Lyons is a father and caregiver based in Florida whose son was diagnosed with Kleine-Levin Syndrome in 2017 at the age of 14. Over the past eight years, Jonathan has become a fierce advocate for his son — navigating diagnosis, school accommodations, and a healthcare system with almost no answers for a disease this rare. He also keeps a blog documenting the family's journey at klsproject.org. Support the show Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences. Follow and support Narcolepsy Navigators: www.napsforlife.com Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/ Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/ LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast TikTok: https://www.tiktok.com/@narcolepsynavigators Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast  ***If you find these symptoms relatable, please seek medical advice.***

    S5E1: The Night I Carried My Sleeping Son to the ER
  3. Jul 14

    S4E12: The Teacher Who Was Sent to Rehab for Being Sick

    Leave a review! Imagine falling asleep for two months straight — losing your memory, your personality, even your sense of time. That's life with Kleine-Levin Syndrome (KLS), one of the rarest sleep disorders in the world. In this episode of Narcolepsy Navigators, hosts Kerly and Sakhara sit down with Saphronia Young, a former elementary school teacher from Texas living with both KLS and Narcolepsy with Cataplexy. Saphronia opens up about her decade-long fight for a diagnosis, the school district that sent her to an alcohol treatment center instead of supporting her, the family nickname "Lola" for the person she becomes during an episode, and her honest, unfiltered answer to the Red Button Question: would she push the button to erase her diagnosis if she could? This is a conversation about resilience, faith, and what it costs to be misunderstood by the people who are supposed to help you. About The Guest Saphronia Young is a former elementary school teacher from Texas living with Kleine-Levin Syndrome (KLS) and Narcolepsy with Cataplexy. Diagnosed with KLS in 2016 after years of misdiagnosis, and with narcolepsy just three years ago, Saphronia now works as a virtual tutor from home, where she can manage her episodes on her own terms. She's a mom, a fighter, and an advocate for greater awareness of rare sleep disorders. Support the show Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences. Follow and support Narcolepsy Navigators: www.napsforlife.com Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/ Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/ LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast TikTok: https://www.tiktok.com/@narcolepsynavigators Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast  ***If you find these symptoms relatable, please seek medical advice.***

    S4E12: The Teacher Who Was Sent to Rehab for Being Sick
  4. Jun 30

    S1E5 - Advocacy Series: 27 Years of Narcolepsy: From Rock Bottom to Elite Trainer

    Leave a review! What does it look like to build an extraordinary life with narcolepsy — without medication? Welcome to the Narcolepsy Navigators Advocacy Series, where lived experience meets powerful storytelling. This week, Kerly and Liz sit down with David Kuhn: a 27-year narcolepsy survivor, elite master fitness trainer, licensed massage therapist, and founder of the Facebook community Narcolepsy Naturally. David's journey is one of the most remarkable we've heard. Diagnosed in 1998 at around age 28, he went from being unable to work, experiencing up to 40 cataplexy episodes a day, and reaching a personal rock bottom — to becoming a therapist for the Ohio State University football team, working with over 62 NFL players, Olympic gold medalists, and hundreds of elite athletes. And he has done all of this since 2010 entirely without narcolepsy medication. In this honest, emotional, and deeply inspiring conversation, David shares what it actually took — the discipline, the baby steps, the mental frameworks, the dietary changes, the fitness routine, and the hard decision to remove toxic stress from his life — to get to where he is today. He is not here to tell anyone what to do. He is here to show what is possible. ━━━━━━━━━━━━━━━━━━━━━━━━━━━━━ WHAT YOU'LL HEAR IN THIS EPISODE ━━━━━━━━━━━━━━━━━━━━━━━━━━━━━ • The early symptoms David dismissed as tiredness from overwork • Falling asleep at the wheel — and the near-miss that finally sent him to a doctor • A devastating diagnosis with no hope offered by his first doctor • Medication overload, a mental health crisis, and the decision to walk out of a psych ward • Rock bottom, and the moment that changed everything • How he went back to school at 38 to become a massage therapist — medication-free • His daily routine: sleep tracking, gym before 7:30am, whole foods, strategic napping • Why he started the Narcolepsy Naturally Facebook group in 2015 • The mental strategies that keep him going: audiobooks, self-help, positive input • Book recommendations: Seven Habits of Highly Effective People, Let Them Theory (Mel Robbins), Think and Grow Rich (Napoleon Hill) • How he uses narcolepsy as a "shock factor" to inspire the athletes he works with • His powerful message: narcolepsy is your soccer field, not your prison • The Red Button Question — and his answer will not surprise you ⚠️ NOTE: This episode contains discussion of suicidal ideation and mental health crisis within David's personal story. Please take care of yourself first. ━━━━━━━━━━━━━━━━━━━━━━━━━━━━━ CONNECT WITH DAVID ━━━━━━━━━━━━━━━━━━━━━━━━━━━━━ 🌐 dkmotivations.com 📧 muscletherapypro@gmail.com 👥 Facebook: Narcolepsy Naturally (3,500+ members) ━━━━━━━━━━━━━━━━━━━━━━━━━━━━━ BOOKS RECOMMENDED IN THIS EPISODE ━━━━━━━━━━━━━━━━━━━━━━━━━━━━━ 📚 The 7 Habits of Highly Effective People — Stephen Covey 📚 The Let Them Theory — Mel Robbins 📚 Think and Grow Rich — Napoleon Hill 📚 The Power of Now — Eckhart Tolle (recommended by Liz) ━━━━━━━━━━━━━━━━━━━━━━━━━━━━━ SUPPORT NARCOLEPSY NAVIGATORS ━━━━━━━━━━━━━━━━━━━━━━━━━━━━━ 💜 Join our Patreon for bonus content & Discord community access 🛍️ Shop our merch at napsforlife.com 🌐 www.napsforlife.com 📩 narcolepsynavigators@gmail.com Have a sleep disorder story to share? We'd love to hear from you. Happy napping, everyone. ━━━━━━━━━━━━━━━━━━━━━━━━━━━━━ Support the show Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences. Follow and support Narcolepsy Navigators: www.napsforlife.com Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/ Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/ LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast TikTok: https://www.tiktok.com/@narcolepsynavigators Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast  ***If you find these symptoms relatable, please seek medical advice.***

    S1E5 - Advocacy Series: 27 Years of Narcolepsy: From Rock Bottom to Elite Trainer
  5. Jun 9

    S1 E4 Medical Series: Hot Flashes, Anxiety, Insomnia:The Menopause Sleep Crisis with Dr. Caitlin Chasser

    Leave a review! Narcolepsy Navigators launches its Medical Series focused on the medical side of narcolepsy and common comorbidities. Host Fred (currently undiagnosed sleep disorder) and co-host Bernadette (narcolepsy type 1) interview Dr. Caitlin Chasser, a family doctor turned sleep and menopause specialist, who describes her own insomnia linked to premature menopause and the lack of sleep education in medical training. The discussion covers how menopause and perimenopause commonly disrupt sleep (estimated 60–80% experience sleep disturbance), and how sleep affects appetite, hormones, weight, repair, memory, mood, and daily functioning. Dr. Caitlin explains the role of stress and the sympathetic nervous system in blocking sleep, and emphasizes holistic and behavioral approaches including wind-down routines, meditation alternatives (coloring, knitting), breathwork, and body-scan techniques. She outlines practical sleep strategies for menopause-related insomnia: optimizing the sleep environment (darkness, quiet/white noise), regular exercise (with resistance training noted as beneficial with age), reducing alcohol, limiting naps (with a note that narcolepsy may require naps), and going to bed only when truly sleepy to build sleep pressure. Melatonin use is discussed as not a simple solution; it may help for jet lag, shift work, some children with ADHD/autism, and older adults, but should follow sleep basics and professional guidance, with caution about unregulated supplement dosing. Physical sleep disruptors are addressed, including hot flushes/night sweats, restless leg syndrome (often linked to iron deficiency from heavy periods), and obstructive sleep apnea (more common and underdiagnosed after menopause); she advises formal evaluation and targeted treatments, including iron supplementation when low. The episode also addresses libido changes during menopause, vaginal dryness and pain, topical estrogen or lubricants, the impact of poor sleep on desire and mood, and options such as HRT or testosterone therapy when appropriate, alongside emotional connection. Dr. Caitlin highlights cognitive behavioral therapy for insomnia (CBTI) as the gold-standard treatment, describes hyperarousal and normal sleep cycles, and notes significant improvements can be achieved. She introduces The Sleep Project, a group of clinicians formed after COVID to address rising sleep problems, offering online resources, consultations, and CBTI programs at www.thesleepproject.life. The episode closes with Narcolepsy Navigators announcements about Patreon, merch, Discord access, a shout-out to first patron Jane Powell, and information about Naps for Life CIC, ways to donate, and how to share stories via narcolepsynavigators@gmail.com. About The Guest Dr Caitlin Chasser is a GP and Sleep Consultant with a special interest in women’s health, particularly how sleep is affected by menopause. She is a co-founder of The Sleep Project, a doctor-led organisation helping people of all ages improve their sleep through practical, science-backed programmes. Caitlin has over 20 years of experience supporting women to feel better, sleep better and take back control of their health. She specialises in Cognitive Behavioural Therapy for Insomnia (CBT-I), the most effective treatment for long-term sleep difficulties, and takes a holistic, compassionate approach to sleep and wellbeing. Caitlin is passionate about making good sleep accessible to all — especially during life stages like menopause when sleep can often suffer.  Support the show Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences. Follow and support Narcolepsy Navigators: www.napsforlife.com Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/ Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/ LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast TikTok: https://www.tiktok.com/@narcolepsynavigators Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast  ***If you find these symptoms relatable, please seek medical advice.***

    S1 E4 Medical Series: Hot Flashes, Anxiety, Insomnia:The Menopause Sleep Crisis with Dr. Caitlin Chasser
  6. May 14

    S4E11: Blood Is Not Thicker: Boundaries, Trauma, and Narcolepsy

    Leave a review! ⚠️ Content note: This episode includes discussion of childhood sexual abuse, suicidal ideation, and mental health crisis. Please take care of yourself first. 🎙️ EPISODE GUEST: Alejandro Bruner Solas — Program Manager, PWN for PWN | Narcolepsy Type 1 Warrior | Psychedelic Health Advocate | Colorado In one of our most powerful episodes to date, Kerly and Liz sit down with Alejandro Bruner Solas — a half Puerto Rican, Colorado-based program manager, Freemason, martial artist, and passionate narcolepsy advocate — who lived with undiagnosed narcolepsy type 1 from the age of five until he was 38. Alejandro's story is raw, honest, and deeply human. He walks us through childhood sleep paralysis he couldn't name, a silent burden shaped by trauma and abuse that taught him to keep quiet, misdiagnosis as a learning disability throughout school, a high-pressure corporate career that pushed him to breaking point, a mental health crisis that led to a life-changing ER visit, and an unconventional treatment path including microdosing LSD that he says gave him his life back. This episode also carries an important message for men in the narcolepsy community: your story matters, your voice is needed, and macho culture is not serving anyone. WHAT YOU'LL HEAR IN THIS EPISODE ━━━━━━━━━━━━━━━━━━━━━━━━━━━━━ • How sleep paralysis started at age 5 and went unnamed for over 30 years • The role childhood trauma played in Alejandro's silence around his symptoms • Being placed in special education despite no learning disability • The toxic workplace that drove him to sleep deprivation and crisis • The medication journey: Adderall, Modafinil, Xyrem, and Xywav • DMT, neuroplasticity, and the new frontier of psychedelic medicine • The power of mentors, small wins, and setting core values as anchors • His message to men in the narcolepsy and sleep disorder community CONNECT WITH ALEJANDRO & PWN FOR PWN 📧 alejandro@pwnforpwn.org 🌐 pwnforpwn.org 💬 Join the PWN for PWN digital community via the website RESOURCES MENTIONED If Alejandro's story resonated with you and you're navigating your own chronic illness journey, CareTrack was built for moments exactly like this — when you need to track what's happening in your body, document your path to diagnosis, and advocate for yourself in a system that doesn't always listen. Built by a spoonie, for spoonies.Free to use at steadycaretrack.com If you or someone you know has a sleep disorder and would like to share your story, please reach out — we'd love to have you on the show. Support the show Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences. Follow and support Narcolepsy Navigators: www.napsforlife.com Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/ Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/ LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast TikTok: https://www.tiktok.com/@narcolepsynavigators Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast  ***If you find these symptoms relatable, please seek medical advice.***

    S4E11: Blood Is Not Thicker: Boundaries, Trauma, and Narcolepsy
  7. May 6 ·  Bonus

    Advocacy Series S1E4: The App Built From a Father's Love: Nabu AI's Origin Story

    Leave a review! Episode Summary: What happens when a brand strategist — someone who's built campaigns for Aerosmith, Lenny Kravitz, Samsung, and Levi's — suddenly finds himself standing in front of a wall of machines keeping his newborn daughter alive? For Steve Lewis, it became the beginning of the most important work of his life. In this episode of the Narcolepsy Navigators Advocacy Series, hosts Kerly and Iris sit down with Steve Lewis, founder of Nabu AI and director of Emotions.org, to talk about how a single sentence from his daughter Bowie — "Dad, I want to go to my own appointments" — sparked a mission to put patients back in control of their own health story. What We Cover: How Steve's career in entertainment and brand strategy came to a screeching halt when his daughter Bowie was born with complex, lifelong health challengesThe painful reality of transitioning from pediatric to adult care — and why retelling your medical story over and over is a form of traumaWhat Nabu AI actually is (hint: it's not a tracker — it's an advocate) and how it works as a single source of truth for your entire health journeyThe "Three Columns" framework Steve uses to understand human, social, and cultural needs in healthcareWhy Steve believes the patient is the biggest unsolved problem in health — and how to fix it with the right information at the right timeThe safety, encryption, and compliance features built into Nabu AI, including background checks for support workersWhat the UAE's "Al Nor Center" gets right that most of us don't — referring to disabled people as "determined people"Why invisible and rare conditions are superpowers — and how society loses when it excludes difference from the conversationWhat gives Steve hope: the passionate frontline workers he keeps meeting all over the worldAbout Steve Lewis: Steve Lewis is a seasoned brand strategist and product designer with 30+ years across music, film, fashion, and food. In 2007, the birth of his daughter Bowie changed everything. Now the founder of Nabu AI and Director of Emotions.org, Steve is on a mission to ensure patients are better informed, better supported, and achieve better outcomes. Find out more at [nabu.ai] (coming soon to iOS & Android). Resources & Links Mentioned: 🌐 Narcolepsy Navigators Hub: www.napsforlife.com💌 Share your story: narcolepsynavigators@gmail.com❤️ Support the podcast: www.napsforlife.com💬 Join the community: Narcolepsy Navigators Discord & PatreonQuote of the Episode: "Your true calling is where your great gladness and the world's deepest needs meet." — Frederick Buchner, shared by Steve Lewis Support the show Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences. Follow and support Narcolepsy Navigators: www.napsforlife.com Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/ Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/ LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast TikTok: https://www.tiktok.com/@narcolepsynavigators Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast  ***If you find these symptoms relatable, please seek medical advice.***

    Advocacy Series S1E4: The App Built From a Father's Love: Nabu AI's Origin Story
  8. Apr 1

    S4E10:Brain Fog and Blurry Words: The Invisible Symptoms Nobody Talks About

    Leave a review! In this powerful episode of Narcolepsy Navigators Season 4, we sit down with Amelia, a 28-year-old from London who discovered she had narcolepsy while playing cards on a skiing holiday. What started as uncontrollable laughter turned into a life-changing realization when her hands and neck kept dropping—classic cataplexy symptoms. Amelia shares her raw and honest journey from being dismissed by doctors who told her "you exercise and eat meat, so nothing will show up" to finally receiving her diagnosis on New Year's Eve 2020. Her story takes us through the struggles of sixth form, the relief of university's flexible schedule, and the grueling challenge of completing a PhD while battling extreme fatigue. What You'll Learn: How narcolepsy symptoms can be dismissed as "normal tiredness" for years The relief and validation that comes with a diagnosis Why spoon theory and battery theory help loved ones understand your limits The hidden symptoms beyond the "big four"—brain fog, concentration issues, and memory problems How work environments can make or break narcolepsy management The complicated relationship between family skepticism and chronic illness Why self-compassion is a work in progress, even after diagnosis Standout Moments: Amelia's creative napping solutions—from under-desk nests to prison classroom floors The unexpected benefit of working in high-energy environments How moving from PhD research to prison rehabilitation work improved her symptoms The bittersweet reality of avoiding conversations about narcolepsy with family members Why she'd press the red button (and why that answer deserves grace) Amelia's candid discussion about the mental health impact, the ongoing medication trials, and learning to advocate for herself in work environments makes this episode essential listening for anyone navigating life with narcolepsy or supporting someone who is. Episode Highlights: 00:00 - Welcome and Introductions  00:55 - Amelia's Weekend and Choir  06:11 - Early Symptoms and Medical Dismissal  09:25 - Coping Through School and University  12:46 - Would Early Diagnosis Have Changed Choices?  13:55 - Relief and Accommodations After Diagnosis  17:05 - Naps and Medication Journey  19:42 - Managing Symptoms Without Strong Medication  22:04 - Self-Compassion: A Work in Progress  23:32 - Friends, Family, and Hidden Pressure  25:15 - Speaking Up and Setting Boundaries  27:44 - Advocating at Work  29:32 - Dating and Cataplexy 31:02 - Family Skepticism and Hurt  33:08 - Coping with Unsupportive Family  36:38 - Beyond the Main Symptoms  39:22 - Mental Health and Low Mood  41:29 - Finding Joy and Balance  43:58 - The Red Button Question  45:23 - What Narcolepsy Has Taught Me Support the show Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences. Follow and support Narcolepsy Navigators: www.napsforlife.com Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/ Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/ LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast TikTok: https://www.tiktok.com/@narcolepsynavigators Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast  ***If you find these symptoms relatable, please seek medical advice.***

    S4E10:Brain Fog and Blurry Words: The Invisible Symptoms Nobody Talks About

Ratings & Reviews

5
out of 5
3 Ratings

About

Narcolepsy Navigators isn't just another podcast; it's a lifeline, a space where every story shared is a step towards changing the narrative around narcolepsy, idiopathic hypersomnia and Klein-Levin syndrome.  Every episode is a peek into the lives of people navigating these conditions every single day. It's raw, it's real, and it’s about sharing stories that are way too important to miss.  Because when we share, we have the power to change narratives – that’s our mantra, "Share a story to change a story." Everyday life with these conditions is an unseen odyssey, an intricate dance of challenges that most can't fathom. But we're here to bring those stories into the light, to give a voice to the silent struggles and the victories that often go unnoticed.It's about time the world saw beyond the misconceptions and understood the full impact these conditions have on someone's life.

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