Being diagnosed with an uncommon cancer like a neuroendocrine tumor (NET) can feel isolating or overwhelming. Listen in as the NET Research Foundation (NETRF) speaks with experts and patients who will help us to understand NET diagnosis, treatment, and everything in between. NETWise is for everyone, from newly diagnosed patients to longtime survivors as well as caregivers and family members. This is your guide to learning, listening, knowing, and being NETWise.
Episode 15: Supportive Care for the Mind, Body, and Soul
When you're fighting cancer, treating your tumors is only part of the care you need to continue living your best life. Caring for you as a person - mind, body, and spirit - is the focus of a dedicated team of interdisciplinary professionals who have a lot to offer people with neuroendocrine tumors. Just don't be scared of the "P" word!
Episode 14: Pheos and Paras — NETs Known as “the Great Mimic”
Pheochromocytomas and paragangliomas are rare neuroendocrine tumors that occur inside or outside the adrenal glands. Affecting approximately 1 in 3,000 people, pheochromocytomas and paragangliomas are unique tumors in that they can produce excessive amounts of “fight or flight” hormones that can cause over 100 different signs and symptoms. The symptoms can come and go and […]
Episode 13: NETs and Genetic Screening
What role do genetics play in neuroendocrine tumors? Is genetic screening right for you? In this episode of NETWise, we’ll explore the role DNA plays in NETS and why your genetic code might hold important implications for treatment strategies and the health of family members.
Episode 12: The Importance of Caregivers
Caregivers Share the Burden of a NET Diagnosis A diagnosis of neuroendocrine cancer impacts the person who receives the diagnosis, as well as those they love. A spouse, child, or friend may take on the role of caregiver—a partner to the patient on the NET journey and advocate for their loved one. It’s a job […]
Episode 11: AYA (Adolescents and Young Adults) and NETs
Unique challenges for young people with NETs Facing a diagnosis of neuroendocrine cancer, when you are a teenager or young adult, presents unique medical, social, financial, and even fertility challenges. How do you navigate the healthcare system? Who do you tell about your illness and when? Will you be able to have a career? Can […]
Episode 10: Pancreatic NETs
Did you know that there are more treatments for pancreatic NETs (PNETs) than for other types of NETs? While there are more options, treatment for PNETs needs to be individualized since these tumors can vary significantly in stage, grade, and their ability to cause hormonal symptoms. PNETs are complex because the pancreas plays an essential […]
Best I’ve heard
Excellent podcast! The explanations are some of the best I’ve heard in the 3 years I’ve been a NET patient!
Incredibly Helpful & Informative
This is an incredibly helpful podcast explaining Neuroendocrine Tumors / Carcinoid, PNets etc. in clear and easy to understand language. With 3 siblings affected by Nets (carcinoid) I found this very helpful and will share with others. Thank you!