9 episodes

Being diagnosed with an uncommon cancer like a neuroendocrine tumor (NET) can feel isolating or overwhelming. Listen in as the NET Research Foundation (NETRF) speaks with experts and patients who will help us to understand NET diagnosis, treatment, and everything in between. NETWise is for everyone, from newly diagnosed patients to longtime survivors as well as caregivers and family members. This is your guide to learning, listening, knowing, and being NETWise.

NETWise Neuroendocrine Tumor Research Foundation (NETRF)

    • Medicine
    • 5.0, 23 Ratings

Being diagnosed with an uncommon cancer like a neuroendocrine tumor (NET) can feel isolating or overwhelming. Listen in as the NET Research Foundation (NETRF) speaks with experts and patients who will help us to understand NET diagnosis, treatment, and everything in between. NETWise is for everyone, from newly diagnosed patients to longtime survivors as well as caregivers and family members. This is your guide to learning, listening, knowing, and being NETWise.

    Episode 7: Clinical Trials

    Episode 7: Clinical Trials

    In this episode of NETWise, discover how new ideas in NET detection and treatment are moving from the laboratory to the bedside. You’ll learn about the different stages of research and how promising drug compounds progress through them. You will also learn how clinical trials determine whether new or improved treatments are safe and effective and work better than current therapies.

    • 46 min
    Special Episode: COVID-19 and the Rise of Telemedicine

    Special Episode: COVID-19 and the Rise of Telemedicine

    This is a not to be missed episode!

    In this special episode of NETWise, we learn how COVID-19 is forcing our health care systems to make sweeping operational changes. Amid lockdown and stay-at-home orders, NET specialists are switching to telemedicine visits as a new option.

    The increased use of telemedicine over the past few months is creating new opportunities for NET patients. We recognize that not all NET patients have access to a NET specialist or traveling to faraway appointments may not be an option. But virtual appointments via telemedicine are now helping NET patients across the country reach out to NET specialists.

    Listen as we talk with Dr. Heloisa Soares and her NET care team at the Huntsman Cancer Institute at the University of Utah to learn more about how telemedicine works and its benefits to NET care. We also talk to a NET patient about her positive experiences using telemedicine and how to prepare for a successful virtual visit.

    After listening to this episode, you will know more about how telemedicine can help you access the best possible care for your NET.

    • 24 min
    Episode 6: Managing Symptoms of NETs

    Episode 6: Managing Symptoms of NETs

    This episode is about managing the symptoms of functional NETs. To understand these symptoms, we start by talking about hormones. What role do hormones play in the human body? And what do they have to do with NETs?

    We’ll help you understand the differences between functional and non-functional NETs. You’ll also learn why their shared characteristics make it hard to tell them apart.

    • 41 min
    Episode 5: Medical Management of NETs

    Episode 5: Medical Management of NETs

    What treatments do oncologists use to slow or stop neuroendocrine tumor growth? What role do newer approaches like targeted therapy or immunotherapy play in treating neuroendocrine cancer? And what drugs can be used to alleviate symptoms caused by hormone-producing tumors?

    In this episode of NETWise, we explore multiple medical treatments for neuroendocrine tumors. We’ll look at the different roles chemotherapy, targeted therapy, and hormone therapy play in managing the spread of disease…and in managing the disruptive symptoms caused by some NETs.

    You’ll gain insight into the sequencing of treatments as we discuss how medical treatments are integrated with other modalities of care, such as surgery and nuclear medicine. And when you’ve finished listening to this important discussion, you will be more informed for the next conversation you have with your care team about treatment planning.

    • 35 min
    Special Episode: COVID-19 and NETs – What You Need to Know

    Special Episode: COVID-19 and NETs – What You Need to Know

    In this special episode of NETWise, listen as we talk about the COVID-19 virus. As a NET patient, you may have additional risk for serious illness from COVID 19, so we share some tips for avoiding infection, managing your NET treatment, and staying mentally healthy during this challenging time.



    NETRF CEO, Elyse Gellerman, chatted with Dr. Mark Lewis, NET patient and the Director of Gastrointestinal Oncology at Intermountain Healthcare, about the ten things patients and caregivers want to know about NETs and COVID-19. Portions of that interview are included in this podcast. Watch the entire interview on NETRF’s YouTube page.



    Stay up to date with your local and national health authorities and your NETs care team for the latest information. The NET Research Foundation has an entire section of our website dedicated to up to date COVID-19 information as well as NET-specific resources.



    This podcast and the information it contains is current as of its recording date on April 7.

    • 23 min
    Episode 4: Nuclear Medicine for NETs: What is PRRT?

    Episode 4: Nuclear Medicine for NETs: What is PRRT?

    Listen in as NET experts like Josh Mailman, Drs. George Fisher, Thor Halfdanarson, Ed Wolin, Richard Baum, and others explain what it is, how it works, and who is most likely to benefit from PRRT. This therapy relies on a tumor’s expression of somatostatin receptors. We explain what they are and how to know if you have them.



    Then, we’ll take an objective look at the success rates for this therapy. What does research, like the NETTER-1 study, tell us about outcomes for this form of treatment? To give you information about both the pros and cons of PRRT, we will also discuss the potential side effects, from mild to serious. To give you a sense of what it is like to undergo PRRT, we’ll talk with multiple patients about their experience with the procedure itself, as well as the radiation safety precautions patients should take immediately following treatment. Finally, we look to the future asking Drs. Rod Hicks and Tom Hope to explain some of the new therapeutic directions PRRT is taking.

    • 34 min

Customer Reviews

5.0 out of 5
23 Ratings

23 Ratings

Terrace st guy ,

Worthwhile

Best I’ve heard

Ljcall ,

NETWise

Excellent podcast! The explanations are some of the best I’ve heard in the 3 years I’ve been a NET patient!

Kgbendor ,

Incredibly Helpful & Informative

This is an incredibly helpful podcast explaining Neuroendocrine Tumors / Carcinoid, PNets etc. in clear and easy to understand language. With 3 siblings affected by Nets (carcinoid) I found this very helpful and will share with others. Thank you!

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