Remember Me

May 20

Meg & Gary: Life After Loss

For our Season 12 finale, we’re bringing you a conversation especially close to home. Maria and Rachael sit down with Maria’s dad, Gary, and his wife, Meg, for a deeply personal conversation about caregiving, grief, and life after loss. After both losing their spouses to Frontotemporal Dementia, Gary and Meg found love again—showing us that heartbreak and hope can somehow coexist. This episode is tender, honest, and full of heart. A conversation about honoring the people we carry with us, making room for joy again, and the quiet reminder that even after unimaginable loss, life can quietly surprise us with beautiful things again. Thank you for spending Season 12 with us. What a gift it’s been. 🕊️ --- Worried you'll miss us during the break? Unlock A TON of bonus content on our Re-Members Only Patreon → ⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠ Today’s Sponsors — Progranulin Information Navigator Learn more about genetic testing, clinical trials, and FTD resources → ⁠⁠⁠www.progranulinnavigator.org⁠⁠⁠ Psilera → ⁠⁠⁠⁠⁠⁠Psilera is a biotechnology company developing next-generation neurotherapeutics .⁠⁠https://www.psilera.com⁠⁠ Follow along: Instagram → @remembermepodcast Website → ⁠⁠⁠www.remembermeftd.com⁠⁠⁠ Our Non-Profit — The Remember Me Foundation ⁠⁠⁠www.remembermefoundation.org⁠⁠⁠ — Remember Me Podcast + Community exists to offer hope, connection, and support for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.
May 13

Bob V.

Today’s episode is one of deep love, steadfast care, and the kind of devotion that quietly changes you. This week, we sit with Meg as she shares the story of her husband, Bob—a laid-back soul who knew what mattered most in life. Though they had known each other since childhood, life brought them back together years later at a high school reunion, where friendship turned into a love story. Bob’s journey with FTD—from diagnosis to his passing—was heartbreakingly short, lasting just two years. And through it all, Meg cared for him with extraordinary tenderness, strength, and grace. As we near the close of this season, we want to thank you for listening, sharing, and walking alongside these stories with us. This is our second-to-last episode of the season, and next week, we’ll close things out with a very special episode you won’t want to miss. Thank you for being here. Always, always accept the good. 🤍 — Support the show + unlock bonus content: Patreon → ⁠⁠www.patreon.com/remembermecommunity⁠⁠ Today’s Sponsors — Progranulin Information Navigator Learn more about genetic testing, clinical trials, and FTD resources → ⁠⁠www.progranulinnavigator.org⁠⁠ Psilera → ⁠⁠⁠⁠Psilera is a biotechnology company developing next-generation neurotherapeutics .⁠https://www.psilera.com⁠ Follow along: Instagram → @remembermepodcast Website → ⁠⁠www.remembermeftd.com⁠⁠ Our Non-Profit — The Remember Me Foundation ⁠⁠www.remembermefoundation.org⁠⁠ — Remember Me Podcast + Community exists to offer hope, connection, and support for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.
May 6

With love, from Seattle: Community Caregiver Tips

This episode is made up of your voices—listener-submitted advice, caregiving hacks, and the real-life tips that have helped you get through the days (and the nights). The small things, the practical things, the “why didn’t anyone tell me this sooner?” kind of things. From navigating behaviors, to finding moments of relief, to the ways you’ve learned to care—for them and for yourself—this is wisdom that only comes from lived experience. So whether you’re in it right now, or finding your footing on the other side, we hope something in here meets you where you are. Thank you for showing up, for sharing, and for continuing to build this community with us. --- FIRST - THE LINKS MENTIONED IN TODAY'S EPISODE: Searching for the Words Substack Expert Chat: How To Advocate For A Loved One Living In A Care Facility with Laurette Klier. Participate in our Ask A Genetic Counselor Episode Support the show + unlock bonus content (including a bonus episode with Amy): Patreon → ⁠⁠www.patreon.com/remembermecommunity⁠⁠ Today’s Sponsors — Progranulin Information Navigator Learn more about genetic testing, clinical trials, and FTD resources → ⁠⁠www.progranulinnavigator.org⁠⁠ Psilera → ⁠⁠⁠⁠Psilera is a biotechnology company developing next-generation neurotherapeutics .⁠https://www.psilera.com⁠ Follow along: Instagram → @remembermepodcast Website → ⁠⁠www.remembermeftd.com⁠⁠ Our Non-Profit — The Remember Me Foundation ⁠⁠www.remembermefoundation.org⁠⁠ — Remember Me Podcast + Community exists to offer hope, connection, and support for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.
Apr 29

Ike

This week, we sit with Kim as she shares the story of her life with Ike—the love at the center of it all, and the long, complicated road of FTD they’ve walked together. You can feel that love in every moment of this conversation—steady, enduring, and deeply human—as Kim speaks with honesty and courage about what it means to lose someone in pieces. This episode holds so much of what Remember Me is about: the quiet and not-so-quiet challenges of care, the complexity of loving someone through delusion and change, the financial weight so many families carry, and the layered grief that weaves through it all. Kim, thank you for trusting us—and this community—with your story. — Support the show + unlock bonus content (including a bonus episode with Amy): Patreon → ⁠www.patreon.com/remembermecommunity⁠ Today’s Sponsors — Progranulin Information Navigator Learn more about genetic testing, clinical trials, and FTD resources → ⁠www.progranulinnavigator.org⁠ Psilera → ⁠⁠Psilera is a biotechnology company developing next-generation neurotherapeutics .https://www.psilera.com Follow along: Instagram → @remembermepodcast Website → ⁠www.remembermeftd.com⁠ Our Non-Profit — The Remember Me Foundation ⁠www.remembermefoundation.org⁠ — Remember Me Podcast + Community exists to offer hope, connection, and support for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.
Apr 22

Jeff

This week, we sit with Amy as she shares the quiet, enduring love she built with Jeff—before, during, and beyond his diagnosis of Frontotemporal Dementia (FTD). It’s a story of tenderness and patience, of navigating subtle changes, and the long, often winding road to understanding what was really happening. Amy brings us into a life rooted in intention—a partnership marked by gentleness, humor, and deep presence—even as FTD slowly reshaped their world. This episode is a reflection on caregiving, early symptoms of FTD, the diagnostic journey, and what it means to hold onto love as everything shifts. Thank you, Amy, for trusting us with your story. — Support the show + unlock bonus content (including a bonus episode with Amy):Patreon → www.patreon.com/remembermecommunity Today’s Sponsor — Progranulin Information NavigatorLearn more about genetic testing, clinical trials, and FTD resources → www.progranulinnavigator.org Follow along:Instagram → @remembermepodcastWebsite → www.remembermeftd.com Our Non-Profit — The Remember Me Foundationwww.remembermefoundation.org — Remember Me Podcast + Community exists to offer hope, connection, and support for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD).Always, always accept the good.
Apr 15

Bob B.

We're back from our mid-season break with a story of a young couple - Erin and Bob. Erin shares the journey to an FTD diagnosis after many misdiagnosis including young-onset Parkinsons. Thank you Erin, for sharing your story with us. Support the show + get more bonus content including a bonus episode with Erin on PATREON: www.patreon.com/remembermecommunity Today's SPONSOR - PROGRANULIN INFORMATION NAVIGATOR: Learn more about genetic testing, clinical trials + more at www.progranulinnavigator.org ⁠⁠⁠⁠⁠⁠⁠⁠INSTAGRAM: @remembermepodcast WEBSITE: www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ OUR NON-PROFIT: www.remembermefoundation.org⁠⁠ ------ Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.
Mar 25

Faye

In our last episode before the mid-season break, Shane, takes to the mic , and both of us were eager to hear his story with his late wife, Faye. This episode was extremely powerful to listen to as the love and the pain are both present. It’s a beautiful love story of self preservation, of letting go, of listening to your gut and leaning in to that love… that sweet, sweet love. Thanks for being so vulnerable, Shane. Yours and Faye's story will stay with us forever. We'll be back April 14th to kick off the second half of Season 12. Be well. xx-R+M A big thank you to our listeners, our supporters, our Patreons and our guests. Want to support the podcast + get more content? Join us over on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Patreon⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠! You get exclusive content + a space to share and connect with others. ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ We'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram @remembermepodcast. For more general info about the podcast, please visit ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠. Before you go, we’d love for you to check out our new non profit foundation for the general neurodegenerative community of caregivers: ⁠www.remembermefoundation.org⁠ ------ Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.
Mar 18

Barbara

Today you'll meet Susan and her late wife, Barbara. Susan joined us all the way from Mexico, where we saw her beautiful Milagro wall as she spoke so vulnerably about her love story with Barbara. Susan has a way of telling her story with so much tenderness and adoration that we could feel the beauty of their relationship across the miles. This story also so delicately discusses genetic FTD, and the incredible dedication Barbara and Susan had to research and clinical trials. Oh, and Ms. Susan has written a book about her experience and we HIGHLY recommend you sign up for her e-mail list + keep an eye out for the book in June here: https://www.susankoen.com Thank you, Susan, for sharing your love story with all of us. ---- A big thank you to our listeners, our supporters, our Patreons and our guests. A special thank you to ⁠⁠⁠Psilera⁠⁠⁠ for supporting this season of Remember Me. Ways to connect, get more resources + support RM: Patreon: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Instagram: www.instagram.com/remembermepodcast Website: www.remembermeftd.com Our non-profit created to support caregivers before and after their journey: www.remembermefoundation.org ⁠⁠⁠------ Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good. #spouse #dementia #grieving #grief #caregiving #frontotemporaldementia #ftd #podcast #marriage
Mar 11

Doug

Karen sits down with us for this week's episode and the conversation took right off. Karen spoke openly, albeit delicately, about the changes she noted in her husband, Doug and how the family roles have shifted and morphed alongside Doug’s disease. A beautiful love story that highlights love, resilience and strength. --- A big thank you to our listeners, our supporters, our Patreons and our guests. A special thank you to ⁠⁠⁠Psilera⁠⁠⁠ for supporting this season of Remember Me. Want to support the podcast + get more content? Join us over on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Patreon⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠! You get exclusive content + a space to share and connect with others. ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ We'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram @remembermepodcast. For more general info about the podcast, please visit ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠. Before you go, we’d love for you to check out our new non profit foundation for the general neurodegenerative community of caregivers: ⁠⁠⁠www.remembermefoundation.org⁠⁠⁠ ------ Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.
Mar 4

Maureen

Today we welcome Michael as he shares his journey with his wife Maureen. Maureen was diagnosed with FTD after a misdiagnosis of psychiatric disorders and Lewy body Dementia due to her symptoms of hallucinations. Michael walks us through his experiences navigating caring for his changing wife - and the grief and love woven throughout. Thank you, Michael for sharing your story with us. --- A big thank you to our listeners, our supporters, our Patreons and our guests. A special thank you to ⁠⁠Psilera⁠⁠ for supporting this season of Remember Me. Want to support the podcast + get more content? Join us over on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Patreon⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠! You get exclusive content + a space to share and connect with others. ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ We'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram @remembermepodcast. For more general info about the podcast, please visit ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠. Before you go, we’d love for you to check out our new non profit foundation for the general neurodegenerative community of caregivers: ⁠⁠www.remembermefoundation.org⁠⁠ ------ Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.
Feb 25

Larry

We are excited to share this weeks guest, Elin with all of you. During our conversation, Elin openly shared her feelings and her confusion as her husband, Larry’s, FTD began to set in. With a child at home, Elin shares the trials she encountered, the love that persists and the beautiful grief that remains. We loved chatting with Elin and we know you will enjoy hearing her perspective. Mentioned in this episode: ⁠ALS Scribes of Strength⁠ --- A big thank you to our listeners, our supporters, our Patreons and our guests. A special thank you to ⁠Psilera⁠ for supporting this season of Remember Me. Want to support the podcast + get more content? Join us over on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Patreon⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠! You get exclusive content + a space to share and connect with others. ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ We'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram @remembermepodcast. For more general info about the podcast, please visit ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠. Before you go, we’d love for you to check out our new non profit foundation for the general neurodegenerative community of caregivers: ⁠www.remembermefoundation.org⁠ ------ Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.
Feb 18

Al

Welcome to Season 12. We are so happy you’re back and if you’re joining us for the first time, welcome in. This season, our stories are all being shared from the spouses perspective and we are so honored to welcome our first guest, Catherine. Listening to the story of Al, Catherine's late husband, we were able to explore aspects of aggravation, hard decisions, and vulnerable topics (we discuss what it feels like to grieve “lightly,” - powerful stuff!) This episode was told with a steady undercurrent of love and compassion. Take a listen! A big thank you to our listeners, our supporters, our Patreons and our guests. Want to support the podcast + get more content? Join us over on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Patreon⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠! You get exclusive content + a space to share and connect with others. ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Thank you to our friends at Psilera for their support this season! We'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram @remembermepodcast. For more general info about the podcast, please visit ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠. Before you go, we’d love for you to check out our new non profit foundation for the general neurodegenerative community of caregivers: ⁠www.remembermefoundation.org⁠
12/17/2025

"This is what it's all about"

Our season 11 finale - a chat with just us - reflecting on the season, our journey of building RM + our latest project: The Remember Me Foundation. We talk about the nitty gritty of building Remember Me - while grieving, and healing, and mothering.. and our realization that "this is what it's all about." Thank you to our incredible guests this season - our SPONSORS (!) Psilera, Progranulin Information Navigator & AviadoBio. Our amazing Patreon members that give us so much love + support + JOY. We love you all. Thank you for sticking with us - 2026 is going to great, we promise. And if the holiday season feels heavy - just know you are not alone. You are a part of a community who gets it. And we hope you find ways to let some light in + accept the good. xx-R+M A VERY special thank you to today’s sponsors ⁠⁠Progranulin Information Navigator⁠⁠ and ⁠⁠Psilera⁠⁠. Want to support the podcast + get more content? Join us on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Patreon⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠! You get exclusive content + a space to share and connect with others. ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ If you're curious about anything RM, we'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram, and visit ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, all the latest updates! Also checkout our new charity foundation for the FTD Community ⁠www.remembermefoundation.org⁠ ------ Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.
12/10/2025

FTD Real Talk with Kelsey Cook

Get ready—comedian Kelsey Cook joins us for a powerful Real Talk episode all about Frontotemporal Dementia (FTD), caregiving, grief, and finding a way forward when life feels impossibly heavy. Kelsey opens up about her mom’s FTD journey and shares honest, heartfelt insights on love, loss, resilience, and why humor matters even in the hardest moments. We adored connecting with Kelsey and hearing more about her incredible mom. Learn more about Kelsey at www.kelseycook.com or on Instagram @kelseycookcomedy.Let us know your thoughts after listening! xx R+M PS: Our Season 11 finale drops next week! Thank you to our Season 11 Sponsors: Progranulin Information NavigatorPsilera Join our community on Patreon for exclusive episodes, behind-the-scenes content, and a supportive space for anyone touched by FTD: www.patreon.com/remembermecommunity Stay connected with us on Instagram and catch updates, resources, and stories atremembermeftd.com Learn more about our nonprofit supporting families facing FTD at remembermefoundation.org The Remember Me Podcast + Community offers hope, resources, and human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD).Always, always accept the good.
12/03/2025

Managing FTD Behaviors & Caregiver Expectations with Allison Lindauer, PhD, APRN

Allison Lindauer, PhD, APRN joins us to tackle the challenges of navigating behavioral changes caused by Frontotemporal Degeneration (FTD). We talk about some behavior management strategies and the importance of seeking support early and prioritizing your own well-being as a caregiver. Let us know what you think when you listen. - R+M Allison Lindauer is a nationally certified nurse practitioner, researcher, and Associate Director at Oregon Health & Science University’s Aging and Alzheimer’s Disease Research Center, where she leads outreach and clinical care for families affected by dementia and FTD through her National Institute on Aging–funded STELLA-FTD study. Learn more about the STELLA FTD Study here. A VERY special thank you to today’s sponsors ⁠Progranulin Information Navigator⁠ and ⁠Psilera⁠. Want to support the podcast + get more content? Join us on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Patreon⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠! You get exclusive content + a space to share and connect with others. ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ If you're curious about anything RM, we'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram, and visit ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, all the latest updates! Also checkout our new charity foundation for the FTD Community www.remembermefoundation.org ------ Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.
11/19/2025

The Unexpected Journey with Emma Heming Willis

Emma Heming Willis is here! Powerhouse FTD advocate, loving wife and care partner to her husband Bruce, devoted mama to her two young daughters - entrepreneur and co-founder of Make Time Wellness and now a NYT bestselling author of the perfectly titled book The Unexpected Journey. Emma's here to real talk with us about this journey. Let us know what you think when you listen and a big thank you to Emma for the light she is shining on FTD. Check out all the amazing work she is doing here. xx A VERY special thank you to today’s sponsors ⁠Progranulin Information Navigator⁠ and ⁠Psilera⁠. If you're curious about anything RM, we'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram, and visit ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, all the latest updates! Want to support the podcast + get more content? Join us on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Patreon⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠! You get exclusive content + a space to share and connect with others. ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ------ Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.
11/05/2025

Should I get genetic testing?

We’re tackling the question - Should I get genetic testing? We have the incredible return guest - Erynn Gordon, CGC, program manager at Progranulin Information Navigator. We also brought on some incredible advocates in the FTD Community - Annika from Cure MAPT FTD, Jackie & Wanda from CureGRN and Michael from End the Legacy to share their personal experiences and thought processes around genetic testing. Let us know what you think when you listen. - R+M A VERY special thank you to today’s sponsors Progranulin Information Navigator and Psilera. FTD Genetic Resources: Progranulin Information Navigator Cure MAPT FTD CureGRN End The Legacy - ALS & FTD FTD Disorders Registry The Penn FTD Center Genetics Resources The AFTD Genetics Overview The National Society of Genetic Counselors UCSF Memory Familial FTD Page Want to support the podcast + get more content? Join us on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Patreon⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠! You get exclusive content + a space to share and connect with others. ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ If you're curious about anything RM, we'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram, and visit ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, all the latest updates! ------ Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.
10/29/2025

The end isn't always scary

Today we talk about 'the end' - our experiences, our fears + how peaceful it ended up being. We call in our friend Katie Duncan, nurse practitioner, educator and founder of Death Care Coach. and she so gently explains what happens to the body in the final days, hours + minutes. And above all letting us know that the body knows exactly what to do. Help us de-stigmatize the conversation around death and dying by sharing this episode. Let us know what you think when you listen. xx-r+m You can now watch us on ⁠⁠YOUTUBE⁠⁠! Special thanks to our sponsors: Psilera⁠ + Progranulin Information Navigator Want to support the podcast + get more content? Join us on ⁠⁠⁠⁠⁠⁠⁠⁠⁠Patreon⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠! You get exclusive content + a space to share and connect with others. ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ If you're curious about anything RM, we'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram, and visit ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, all the latest updates! ------ Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.
10/22/2025

Anticipatory grief is brutal

We talk about the type of grief we feel like people don't understand: Anticipatory Grief. Losing someone bit by bit, and always waiting for the next change, the next disappointment - and the 'end'...Let us know what you think when you listen. xx-r+m You can now watch us on ⁠YOUTUBE⁠! Special thanks to Psilera for supporting our work at RM! Want to support the podcast + get more content? Join us on ⁠⁠⁠⁠⁠⁠⁠⁠Patreon⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠! You get exclusive content + a space to share and connect with others. ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ If you're curious about anything RM, we'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram, and visit ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, all the latest updates! ------ Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.
10/15/2025

FTD changed my family

One of the hardest parts of the wreckage that FTD leaves in its wake is the effect it has on families. In today's episode, we open up about the dynamics that have shifted and changed in our families and friendships - and what we've learned through it all. Listen with an open heart + mind as we dive in. Let us know what you think when you listen, and if you'd like you can now WATCH US ON ⁠YOUTUBE⁠ Want to support the podcast + get more content? Join us on ⁠⁠⁠⁠⁠⁠⁠⁠Patreon⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠! You get exclusive content + a space to share and connect with others. ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ If you're curious about anything RM, we'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram, and visit ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, all the latest updates! ------ Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.
10/08/2025

Losing A Parent While Becoming A Parent

We got robbed. And we want to talk about it. The ways we coped - the ways we didn't. Where we found joy, and where we didn't. The awkwardness of trying to relate to others. And in the end, Rach gives us the perfect Rachaelism related to sandwich caregiving. Let us know what you think when you listen, and if you'd like you can now WATCH US ON YOUTUBE! Want to support the podcast + get more content? Join us on ⁠⁠⁠⁠⁠⁠⁠Patreon⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠! You get exclusive content + a space to share and connect with others. ⁠⁠⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ If you're curious about anything RM, we'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram, and visit ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, all the latest updates! ------ Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.
10/01/2025

Real Talk - 5 Years of Reflections...

Welcome to Season 11 - we're reflecting on 5 years of this crazy journey -- meeting by chance, losing our parents, building Remember Me, learning about FTD, healing, research, hope and resilience from amazing people in our community, experts + more. We'll share some of the key themes of the last 5 years, but in a deeper way...and with our own personal stories. We're calling it "Real talk"... Here we go! You can now watch us on YOUTUBE! Want to support the podcast + get more content? Join us on ⁠⁠⁠⁠⁠⁠Patreon⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠! You get exclusive content + a space to share and connect with others. ⁠⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ If you're curious about anything RM, we'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram, and visit ⁠⁠⁠⁠⁠⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, all the latest updates! ------ Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.
09/24/2025 · Bonus

World FTD Awareness Week Special | FTD Research Updates with Dr. Darby of Vanderbilt

Surprise! Coming to you a few weeks before our Season 11 launch with a BONUS episode to celebrate World FTD Awareness Week. We chatted with Dr. Ryan Darby, director of the Frontotemporal Dementia Clinic in the Department of Neurology at Vanderbilt University Medical Center. He gave us on updates in FTD research - how to get involved & how our advocacy moves research forward. A VERY special thank you to today's sponsor ⁠⁠⁠⁠AVIADOBIO⁠⁠⁠⁠ for making this episode possible! Want more Remember Me? Join us on Patreon⁠⁠⁠⁠⁠⁠ You get exclusive content and it's a great way to support the show! ⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠ ---------- If you're curious about anything RM, we'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram, and visit ⁠⁠⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠, all the latest updates! ------ Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.
07/01/2025

Tommy

In our Season 10 finale, Alyssa describes the FTD journey with her father, Tommy - starting from her perspective at 11 years-old. She weaves us through her memories of her father's strange behavior - and the long road to finding answers. This story covers so much about family dynamics - but also what a healing journey can look like. And the unbelievable things that happen in life that we just can't explain. Thank you, Alyssa for sharing your story with us. You are an incredible woman. Keep fighting. ---------- A VERY SPECIAL THANK YOU TO TODAY'S SPONSORS: ⁠⁠PROGRANULIN INFORMATION NAVIGATOR⁠⁠ & ⁠⁠AVIADOBIO⁠⁠⁠⁠⁠. Mentioned in this episode: Season 9, Episode 15: Grief & Genetic Testing which you can listen to ⁠⁠here⁠⁠. Gonna miss us on the break? Support our podcast and join us on ⁠⁠⁠⁠⁠Patreon⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ - You get exclusive content + a space to share and connect with others. ⁠⁠⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠⁠⁠ If you're curious about anything RM, we'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram, and visit ⁠⁠⁠⁠⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, all the latest updates! ------ Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.
06/24/2025

Family Dynamics 101 with Dr. Adam, Professor of Interpersonal & Family Communication

Dr. Adam a professor of Interpersonal & Family Communication (and host of one of Maria's favorite podcasts The Sister Wives Professor) is here for what may be our favorite expert chat of all time. An open + honest conversation about life, family + grief. We talk a lot about family estrangement, family roles, what it means for someone to "be the glue" and so much more. Thank you, Thank you, Thank you to Adam for all of his love and attention to our community + thank you for coming on to share your insight with us. You can learn more about Dr. Adam's Patreon he mentioned in today's episode here: https://www.patreon.com/thesisterwivesprofessor ---------- A VERY SPECIAL THANK YOU TO TODAY'S SPONSORS: ⁠PROGRANULIN INFORMATION NAVIGATOR⁠ & ⁠AVIADOBIO⁠⁠⁠⁠. Mentioned in this episode: Season 9, Episode 15: Grief & Genetic Testing which you can listen to ⁠here⁠. Support our podcast and join us on ⁠⁠⁠⁠Patreon⁠⁠⁠⁠⁠⁠⁠⁠⁠ - You get exclusive content + a space to share and connect with others. ⁠⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠⁠ If you're curious about anything RM, we'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram, and visit ⁠⁠⁠⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, all the latest updates! ------ Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.