169 episodes

Jon Strum cuts through all the jargon and breaks down the latest multiple sclerosis news. You’ll meet the scientists who are creating tomorrow’s MS treatments today. You’ll hear from the experts discussing how the latest tweaks and changes to our healthcare laws will impact your MS treatment. And we’ll be talking to the courageous MS warriors who are out there advocating on behalf of the MS community every day, as well as the men and women who are committed to living their best lives with MS and living their best lives as MS caregivers. If you're dealing with multiple sclerosis in your life -- as a patient, caregiver, family member, or friend -- join us each week for RealTalk MS.

RealTalk MS Jon Strum

    • Medicine
    • 4.7, 66 Ratings

Jon Strum cuts through all the jargon and breaks down the latest multiple sclerosis news. You’ll meet the scientists who are creating tomorrow’s MS treatments today. You’ll hear from the experts discussing how the latest tweaks and changes to our healthcare laws will impact your MS treatment. And we’ll be talking to the courageous MS warriors who are out there advocating on behalf of the MS community every day, as well as the men and women who are committed to living their best lives with MS and living their best lives as MS caregivers. If you're dealing with multiple sclerosis in your life -- as a patient, caregiver, family member, or friend -- join us each week for RealTalk MS.

    Improving Your Health Literacy with Dr. Kalina Sanders and Managing MS with Wellness Coach Kate Costello

    Improving Your Health Literacy with Dr. Kalina Sanders and Managing MS with Wellness Coach Kate Costello

    MS patients experience better treatment outcomes when they actively participate in their own care. And that requires high health literacy. One of my guests is health literacy expert Dr. Kalina Sanders and we're talking about how being an informed patient can have a significant impact on the healthcare you receive.
     

    A well-rounded MS treatment plan will include wellness practices like making smart food choices and adding exercise to your routine. But making changes to our health behaviors is challenging for everyone -- and maybe more challenging if you're already trying to manage a chronic illness like MS. My second guest is wellness coach Kate Costello and we're talking about how changing your health behaviors can be a lot easier when you have someone supporting you every step of the way. 

    We're also talking about the new guidelines for diagnosing and treating MS in Canada. We'll tell you about a 10-year study that shows that when motor skills decline, walking takes the first hit. Find out where to apply for the CAN-DO MS two-day Take Charge program for young adults and their support partners. And we'll tell you how (and why!) to share your voice about MS advocacy issues. 


     
    We have a lot to talk about! Are you ready for RealTalk MS??!

    Canadian MS Working Group issues new MS diagnosis & treatment guidelines  2:14
    When motor skills decline, walking takes the first hit  4:14
    The importance of health literacy with Dr. Kalina Sanders   6:33
    CAN-DO MS announces two-day Take Charge program for young adults living with MS and their support partners  17:10
    Add your voice to the National MS Society's public policy survey   19:16
    My Interview with wellness coach Kate Costello  20:55
    Share this episode  32:40
    Leave a rating & review for RealTalk MS  32:59
    Please Support the National MS Society COVID-19 Response Fund  33:15

    SHARE THIS EPISODE OF REALTALK MS
    Just copy this link & paste it into your text or email:  https://realtalkms.com/153

    ADD YOUR VOICE TO THE CONVERSATION
    I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
    Email: jon@realtalkms.com
    Phone: (310) 526-2283
    And don't forget to join us in the RealTalk MS Facebook group!

    LINKS
    If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
    Give RealTalk MS a Rating and Review
    National MS Society's Ask An MS Expert Video Replay
    What You Need to Know About Coronavirus (COVID-19)
    Kate Costello at Wildcrafted Wellness
    Treatment Optimization in Multiple Sclerosis: Canadian MS Working Group Recommendations
    STUDY: Ten Year Disease Progression in Multiple Sclerosis: Walking Declines More Rapidly than Arm and Hand Functioning
    CAN-DO MS Take Charge Program for Young Adults
    National MS Society Public Policy Survey
    National MS Society COVID-19 Response Fund
    Join the RealTalk MS Facebook Group
    Download the RealTalk MS App for iOS
    Download the RealTalk MS App for Android
    Give RealTalk MS a Rating and Review

    Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.
    RealTalk MS Episode 153
    Hosted By: Jon Strum
    Guests: Dr. Kalina Sanders, Kate Costello
    Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS
    Privacy Policy

    • 35 min
    Managing MS-Related Cognitive Issues and Depression with Dr. Meghan Beier

    Managing MS-Related Cognitive Issues and Depression with Dr. Meghan Beier

    Cognitive decline and depression are two of the more common invisible symptoms of multiple sclerosis, impacting at least half of all the people living with MS.

    My guest today is Rehabilitation Neuropsychologist, Dr. Meghan Beier. Dr. Beier specializes in cognitive rehabilitation and neuropsychological assessment and intervention, and she's going to share some specific strategies that you can use to best manage MS-related cognitive problems and depression.

    • 34 min
    Managing MS Pain and Fatigue with Dr. Heidi Maloni

    Managing MS Pain and Fatigue with Dr. Heidi Maloni

    Pain and fatigue are two of the most common and challenging symptoms of MS. My guest is Dr. Heidi Maloni, a nurse practitioner and the National Clinical Nursing Director for the Multiple Sclerosis Center of Excellence East at the Veterans Affairs Medical Center in Washington, DC. And Dr. Maloni is an expert on treating pain and fatigue in MS.

    Dr. Maloni will share some best practices for managing MS-related pain and fatigue, review the available medications, and discuss non-pharmaceutical interventions.

    • 45 min
    The Cost of MS Medications, Drug Development, and More: My Conversation with Genentech CEO Alexander Hardy

    The Cost of MS Medications, Drug Development, and More: My Conversation with Genentech CEO Alexander Hardy

    Joining me this week is the CEO of Genentech, Alexander Hardy. Genentech is a biotech company that many of you may know as the manufacturer of Ocrevus, the first MS disease-modifying therapy to be approved for treating both relapsing-remitting MS and primary progressive MS.

    During our conversation, Alexander and I get into the cost of MS prescription medications, the real costs of bringing a new drug to market, racial disparities in clinical trials, inequities in our healthcare system, and more.

    • 32 min
    A Biomarker to Predict MS Progression with Dr. Robert Fox and Caroline Sincock

    A Biomarker to Predict MS Progression with Dr. Robert Fox and Caroline Sincock

    The International Progressive MS Alliance is about to publish a paper that recommends advancing research on a specific biomarker to predict MS progression, and we're getting a pre-publication preview of what that paper is all about.

    My guests are Dr. Robert Fox, a neurologist and Vice-Chair for Research at the Cleveland Clinic Neurological Institute, and Caroline Sincock, who lives with progressive MS. Both Doctor Fox and Caroline are among the authors of the paper that we're going to preview. 

    • 45 min
    New Guidance for MS Disease-Modifying Therapies with Dr. Aaron Miller

    New Guidance for MS Disease-Modifying Therapies with Dr. Aaron Miller

    The guidance for using MS disease-modifying therapies during the COVID-19 pandemic has been updated. My guest is Dr. Aaron Miller, the Chair of the National MS Society’s National Medical Advisory Committee, the Medical Director of the Corinne Goldsmith Dickinson Center for Multiple Sclerosis, and a Professor of Neurology at the Icahn School of Medicine at Mount Sinai, and we're talking about the new guidance for each and every MS disease-modifying therapy that's currently available.
     

     
    Last week, in the middle of the night, protections for people with pre-existing health conditions came under attack. We'll let you know what it all means and what's at stake for every person in the U.S. living with MS.
     
    We're also talking about the results of a study that show more people than ever are exploring alternative medicine in managing their MS symptoms. And we'll tell you about a new online MS Treatment Adherence Resource Center.
     
    In last week's International Progressive MS Alliance global webcast, 3 top MS experts shared very encouraging news about the development of new life-changing treatments for progressive MS. We'll let you know where to find the video replay of the webcast. And while you're checking online video replays, we'll let you know where you can find a replay of the Consortium of Multiple Sclerosis Centers' virtual Patient Education Program.
     
    We have a lot to talk about! Are you ready for RealTalk MS??!

    In a late-night brief, the Trump administration asks the Supreme Court to invalidate Obamacare and eliminate protections for people with pre-existing health conditions  1:24
    Catch the video replay of the International Progressive MS Alliance global webcast  6:04
    Catch the video replay of the CMSC Patient Education Program    7:34
    Survey says...Alternative medicine is widespread among people living with MS  8:19
    MS Treatment Adherence Resource Center is launched  11:03
    My Interview with Dr. Aaron Miller  13:06
    Share this episode  23:26
    Please Support the National MS Society COVID-19 Response Fund  23:45

    SHARE THIS EPISODE OF REALTALK MS
    Just copy this link & paste it into your text or email: https://realtalkms.com/148

    ADD YOUR VOICE TO THE CONVERSATION
    I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
    Email: jon@realtalkms.com
    Phone: (310) 526-2283
    And don't forget to join us in the RealTalk MS Facebook group!

    LINKS
    If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
    National MS Society's Ask An MS Expert Video Replay
    What You Need to Know About Coronavirus (COVID-19)
    National MS Society COVID-19 Response Fund
    Video Replay: International Progressive MS Alliance Webcast
    Video Replay: Consortium of MS Centers Patient Education Program
    STUDY: Cross-Sectional Survey of Complementary and Alternative Medicine Used in Oregon and Southwest Washington to Treat Multiple Sclerosis: A 17-Year Update
    MS Treatment Adherence Resource Center
    Join the RealTalk MS Facebook Group
    Download the RealTalk MS App for iOS
    Download the RealTalk MS App for Android
    Give RealTalk MS a Rating and Review

    Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.
    RealTalk MS Episode 148
    Hosted By: Jon Strum
    Guests: Dr. Aaron Miller
    Tags: MS, MultipleSclerosis, MSResearch, MSSociety, COVID19, RealTalkMS
    Privacy Policy

    • 26 min

Customer Reviews

4.7 out of 5
66 Ratings

66 Ratings

Je45986 ,

REAL Talk!

This is a wonderful resource for the MS community—informative, well-researched, thoughtful, and does not skirt around tough issues. I really appreciate Jon’s straightforward way of talking and how he addresses the issues head-on, especially when it comes to things like public policy, which impact our lives so profoundly and that we have the power to influence.

Jwillie034 ,

Not really helpful

Was hoping for an ms podcast that actually had some meat to it instead of just a lot of filler talk. I’ll keep searching

JW, Esquire ,

Powerful and Always Informative for All Listeners

The RealTalk MS podcast provides information for all types of listeners, including those who are neither people diagnosed with MS nor caregivers. As one who knows a few people with MS, I regularly listen to learn more about their conditions and to stay aware of current developments.

Jon Strum’s approach to the podcast is sensitive, thoughtful, and powerful. Thanks, Jon!

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