208 episodes

Jon Strum cuts through all the jargon and breaks down the latest multiple sclerosis news. You’ll meet the scientists who are creating tomorrow’s MS treatments today. You’ll hear from the experts discussing how the latest tweaks and changes to our healthcare laws will impact your MS treatment. And we’ll be talking to the courageous MS warriors who are out there advocating on behalf of the MS community every day, as well as the men and women who are committed to living their best lives with MS and living their best lives as MS caregivers. If you're dealing with multiple sclerosis in your life -- as a patient, caregiver, family member, or friend -- join us each week for RealTalk MS.

RealTalk MS Jon Strum

    • Medicine
    • 4.8 • 91 Ratings

Jon Strum cuts through all the jargon and breaks down the latest multiple sclerosis news. You’ll meet the scientists who are creating tomorrow’s MS treatments today. You’ll hear from the experts discussing how the latest tweaks and changes to our healthcare laws will impact your MS treatment. And we’ll be talking to the courageous MS warriors who are out there advocating on behalf of the MS community every day, as well as the men and women who are committed to living their best lives with MS and living their best lives as MS caregivers. If you're dealing with multiple sclerosis in your life -- as a patient, caregiver, family member, or friend -- join us each week for RealTalk MS.

    MS Rehab in the Real World with Sally McAllister and Dr. Carol-Ann Nelson

    MS Rehab in the Real World with Sally McAllister and Dr. Carol-Ann Nelson

    Their website says that Destination Rehab takes an "innovative, out-of-the-box approach to physical therapy." This week, my guests are Sally McAllister and the founder of Destination Rehab, Dr. Carol-Ann Nelson. Sally is 70 years old and living with primary progressive MS. We're talking about how Sally's work with Dr. Nelson produced life-changing results.

    • 33 min
    Research on Sex Differences in MS Leads to Potential Treatment with Dr. Rhonda Voskuhl

    Research on Sex Differences in MS Leads to Potential Treatment with Dr. Rhonda Voskuhl

    MS affects almost 3 times as many women as men. Have you ever wondered why? When it comes to investigating sex differences in MS, my guest, Dr. Rhonda Voskuhl, has done more than just think about it. And her recent research may have uncovered an MS treatment for women undergoing menopause.

    Dr. Voskuhl is the President-elect of the International Organization for the Study of Sex Differences and the Director of the Multiple Sclerosis Program at UCLA.

    • 35 min
    Managing Your Cognitive Health in MS with Dr. Victoria Leavitt

    Managing Your Cognitive Health in MS with Dr. Victoria Leavitt

    More than half of all the people living with MS will develop problems with cognition. And while experiencing cognitive dysfunction can be challenging and frustrating, these kinds of changes can also be frightening.

    Joining me to talk about things you can do to better manage cognitive changes and preserve healthy cognition is neuroscientist and neuropsychologist, Dr. Victoria Leavitt.

    • 31 min
    Progressive MS Research, Treatment, and Rehabilitation with Dr. Kathy Zackowski and Dr. Daniel Ontaneda

    Progressive MS Research, Treatment, and Rehabilitation with Dr. Kathy Zackowski and Dr. Daniel Ontaneda

    Joining me with updates on progressive MS research, treatment, and rehabilitation are Dr. Kathy Zackowski and Dr. Daniel Ontaneda. Dr. Ontaneda is an associate professor of Neurology at the Cleveland Clinic Lerner College of Medicine of Case Western Reserve University and a staff member at the Cleveland Clinic Neurological Institute's Mellen Center for Multiple Sclerosis. And Dr. Zackowski is the Senior Director of Patient Management, Care and Rehabilitation Research at the National MS Society.

    • 39 min
    Building Your Resilience with Dr. Meghan Beier

    Building Your Resilience with Dr. Meghan Beier

    When you're living with the uncertainty of MS, you come to realize that resilience is one of the most important tools in your self-care toolbox. 

    Joining me to talk about building your resilience is Dr. Meghan Beier. Dr. Beier is a Rehabilitation Neuropsychologist and an Assistant Professor of Physical Medicine at the Johns Hopkins University School of Medicine, where she specializes in cognitive rehabilitation and neuropsychological assessment and intervention.

    • 26 min
    MS Advocacy and the 2021 Virtual Public Policy Conference with Bari Talente

    MS Advocacy and the 2021 Virtual Public Policy Conference with Bari Talente

    We're less than one week away from the National MS Society's Public Policy Conference. This year, the Public Policy Conference is virtual, which means that you have an opportunity to attend and learn how you can advocate for change on important policy issues affecting the MS community.
     

     
     
    Joining me to talk about the Public Policy Conference and the issues that MS Activists will be discussing with our congressional representatives in the days following the conference is the Executive Vice-President of Advocacy and Healthcare Access for the National MS Society, Bari Talente.
    This is Episode #185 of RealTalk MS, which means our 200th episode will be here before you know it. We're inviting you to help us figure out how to celebrate that milestone!
    Developing breakthrough treatments for progressive MS? We'll share the info about a video replay of an International Progressive MS Alliance global webcast that you won't want to miss.
    We're also talking with a biopharmaceutical company that's conducting clinical trials to investigate a solid gold nanomedicine treatment for remyelination.
    And we'll tell you about a study that shows how an adaptive video game that you can play on your tablet provides a reliable measure of cognitive function for people living with MS.
    We have a lot to talk about! Are you ready for RealTalk MS??!

    Episode 200 of RealTalk MS is coming...what should we do???  :22
    Thank you, Dave Bexfield and ActiveMSers!  1:14
    You can support the RealTalk MS RealWalkers WalkMS Team   3:41
    The Progressive MS Alliance Webcast Replay  6:45
    Nanotechnology to solve remyelination?  8:20
    My interview with Clene Nanomedicine's Chief Medical Officer, Dr. Robert Glanzman  9:45
    Can video game technology make MS cognitive assessment easier, faster, and more accessible?  23:44
    My interview with the National MS Society's Executive Vice-President of Advocacy and Healthcare Access, Bari Talente  26:46
    Share this episode  38:11
    Take the RealTalk MS Listener Survey and you could win a $100 Amazon Gift Card  38:32

    SHARE THIS EPISODE OF REALTALK MS
    Just copy this link & paste it into your text or email:  https://realtalkms.com/185

    ADD YOUR VOICE TO THE CONVERSATION
    I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
    Email: jon@realtalkms.com
    Phone: (310) 526-2283
    And don't forget to join us in the RealTalk MS Facebook group!

    LINKS
    If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
    RealTalk MS Listener Survey (You'll be entered to win a $100 Amazon Gift Card!)
    National MS Society COVID-19 Vaccine Guidance for People Living with MS
    National MS Society: Timing MS Medications with COVID-19 mRNA Vaccines
    Register for the 2021 National MS Society Public Policy Conference
    ActiveMSers
    Webcast Video Replay: Accelerating Breakthrough Treatments in Progressive MS
    STUDY: Application of an Adaptive, Digital, Game-Based Approach for Cognitive Assessment in Multiple Sclerosis: Observational Study
     
    Support the WalkMS RealTalk MS RealWalkers Team
    Join the RealTalk MS Facebook Group
    Download the RealTalk MS App for iOS
    Download the RealTalk MS App for Android
    Give RealTalk MS a Rating and Review

    Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.
    RealTalk MS Episode 185
    Guests: Dr. Robert Glanzman, Bari Talente
    Tags: MS, MultipleSclerosis, MSResearch, MSSociety, MSActivist, PPC2021, Nanotechnology, RealTalkMS
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    • 39 min

Customer Reviews

4.8 out of 5
91 Ratings

91 Ratings

Swarled ,

Fantastic and Informative

I got diagnosed with MS on February 3 and this was the first podcast that I turned to for resources on how to handle everything that was happening to me and to learn more about MS. It has been an invaluable resource because I previously had almost zero knowledge of MS. Thank you for everything you do.

skdfir ,

Very informative

The host asks great questions of his top-notch guests and the topics are wide ranging. An invaluable resource to those with MS and their caregivers.

AgentSteph ,

Helpful and informative

Jon does a great job with this pod. I appreciate his work.

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