314 episodes

Jon Strum cuts through all the jargon and breaks down the latest multiple sclerosis news. You’ll meet the scientists who are creating tomorrow’s MS treatments today. You’ll hear from the experts discussing how the latest tweaks and changes to our healthcare laws will impact your MS treatment. And we’ll be talking to the courageous MS warriors who are out there advocating on behalf of the MS community every day, as well as the men and women who are committed to living their best lives with MS and living their best lives as MS caregivers. If you're dealing with multiple sclerosis in your life -- as a patient, caregiver, family member, or friend -- join us each week for RealTalk MS.

RealTalk MS Jon Strum

    • Health & Fitness
    • 4.7 • 117 Ratings

Jon Strum cuts through all the jargon and breaks down the latest multiple sclerosis news. You’ll meet the scientists who are creating tomorrow’s MS treatments today. You’ll hear from the experts discussing how the latest tweaks and changes to our healthcare laws will impact your MS treatment. And we’ll be talking to the courageous MS warriors who are out there advocating on behalf of the MS community every day, as well as the men and women who are committed to living their best lives with MS and living their best lives as MS caregivers. If you're dealing with multiple sclerosis in your life -- as a patient, caregiver, family member, or friend -- join us each week for RealTalk MS.

    Creating Change Through MS Advocacy with Holly Pendell and Angel Hardy Heinz

    Creating Change Through MS Advocacy with Holly Pendell and Angel Hardy Heinz

    If you're a regular listener, you've heard me say that the things that people affected by MS want the most -- access to quality healthcare, affordable prescription medications, and funding for MS research -- are, to a large extent, functions of public policy. The people who decide whether we get these things are our elected officials at both the state and federal level. That's why advocacy should be a high priority for everyone affected by MS.
    Make no mistake. MS advocacy delivers real results. Joining me in exploring how advocacy drives changes that improve the lives of people living with MS, and why you may want to consider becoming an MS activist, are Holly Pendell, the National MS Society's Associate Vice-President of Advocacy and MS activist Angel Hardy Heinz.

    Ready to learn more about MS advocacy? You can take the next step from the comfort of your own home. We're sharing the details of next week's virtual MS Activist Rally. 
    We'll tell you about a study that found a Mediterranean Diet could have a positive impact on cognition among people living with MS
    You'll learn about a clinical trial that's currently underway to determine whether aerobic exercise can promote myelin repair.
    We're sharing the details about an upcoming International Progressive MS Alliance webcast that's focused on developing treatments for progressive MS.
    And we'll tell you how high school seniors or college graduates who are affected by MS can apply for an Oscar the MS Monkey academic scholarship.
    We have a lot to talk about! Are you ready for RealTalk MS??!

    This Week: We're all about MS advocacy  :22
    The virtual MS Activist Rally takes place March 28. Are you registered???  5:22
    STUDY RESULTS: Mediterranean Diet Is associated with cognition in MS   8:01
    A clinical trial is underway to determine whether aerobic exercise can promote myelin repair  9:43
    The International Progressive MS Alliance is hosting a webcast focused on developing treatments for progressive MS  11:01
    Oscar the MS Monkey is accepting academic scholarship applications from high school seniors and college graduates who are affected by MS  11:57
    Holly Pendell, the National MS Society's Associate Vice-President of Advocacy and MS activist Angel Hardy Heinz discuss how advocacy makes a real difference in the lives of people affected by MS, and how you can get involved    13:49
    Share this episode  27:12
    Have you downloaded the free RealTalk MS app?  27:32

    SHARE THIS EPISODE OF REALTALK MS
    Just copy this link & paste it into your text or email: https://realtalkms.com/290
    ADD YOUR VOICE TO THE CONVERSATION
    I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
    Email: jon@realtalkms.com
    Phone: (310) 526-2283
    And don't forget to join us in the RealTalk MS Facebook group!

    LINKS
    If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
    National MS Society MS Activist Rally registration
    https://p2a.co/Rally2023
    STUDY:  Mediterranean Diet is Associated with Cognition in Multiple Sclerosis
    https://aan.com/MSA/Public/Events/AbstractDetails/52954
    Webcast: Developing Treatments to End MS Progression registration
    https://msif.org/progressiveMSwebcast
    Oscar the MS Monkey Academic Scholarship Application
    http://mroscarmonkey.org/site/Scholarship%20Application%202023.pdf
    Join the RealTalk MS Facebook Group
    https://facebook.com/groups/realtalkms
    Download the RealTalk MS App for iOS Devices
    https://itunes.apple.com/us/app/realtalk-ms/id1436917200
    Download the RealTalk MS App for Android Devices
    https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk
    Give Rea

    • 28 min
    Living with the Uncertainty of MS with Sarah Wolfe and Dr. Laura Hancock

    Living with the Uncertainty of MS with Sarah Wolfe and Dr. Laura Hancock

    For many people, one of the most challenging aspects of living with MS is living with uncertainty. Living with unanswerable questions like, "Is today the day I experience a relapse?" "Will my disability worsen?" "Will I be able to continue working?" "Will I be able to take care of my family?"   
    These are all very real questions, and while there may not be answers for them today, there are steps you can take and strategies you can adopt to ensure that you're managing and minimizing the uncertainty of living with MS.

    Joining me to talk about her journey as a mom living with MS and to share how she's learned to cope with the uncertainty of MS is MS advocate Sarah Wolfe. Also joining our conversation with specific strategies for living your best life despite the uncertainties of MS is Dr. Laura Hancock, a neuropsychologist at the University of Wisconsin School of Medicine and Public Health.
    It's a big topic, and I'm devoting this entire MS Awareness Week episode of RealTalk MS to my conversation with Sarah Wolfe and Dr. Laura Hancock.
    We have a lot to talk about! Are you ready for RealTalk MS??!

    This Week: It's MS Awareness Week and we're talking about living with the uncertainty of MS  :22
    MS advocate Sarah Wolfe and Neuropsychologist Dr. Laura Hancock discuss the many different facets of successfully living with the uncertainty of MS    3:38
    Share this episode  39:55
    Have you downloaded the free RealTalk MS app?  40:15

    SHARE THIS EPISODE OF REALTALK MS
    Just copy this link & paste it into your text or email: https://realtalkms.com/289
    ADD YOUR VOICE TO THE CONVERSATION
    I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
    Email: jon@realtalkms.com
    Phone: (310) 526-2283
    And don't forget to join us in the RealTalk MS Facebook group!

    LINKS
    If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
    Join the RealTalk MS Facebook Group
    https://facebook.com/groups/realtalkms
    Download the RealTalk MS App for iOS Devices
    https://itunes.apple.com/us/app/realtalk-ms/id1436917200
    Download the RealTalk MS App for Android Devices
    https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk
    Give RealTalk MS a rating and review
    http://www.realtalkms.com/review

    Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.
    RealTalk MS Episode 289
    Guests: Sarah Wolfe and Dr. Laura Hancock
    Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS
    Privacy Policy

    • 41 min
    Oceans of Hope with Robert Munns

    Oceans of Hope with Robert Munns

    When you visit the Oceans of Hope U.K. website, it reads, "Oceans of Hope is for people with MS, led by people with MS." It goes on to say, "Our aim is to offer people from all over the world the opportunity to experience sailing as a way of learning new skills and restoring the self-confidence which can be stolen by MS."

    The folks at Oceans of Hope U.K. can make that claim with high confidence. My guest today is the founder of Oceans of Hope U.K., Robert Munns, who lives with MS himself. Robert had what he describes as a life-changing experience while serving as a member of the crew on what turned out to be an unforgettable sailing adventure. Robert's story is one you won't want to miss.
    Today, Oceans of Hope U.K. offers anyone living with MS the opportunity to experience that same personal transformation that Robert experienced.
    When you review your MRI scans with your neurologist, the focus is on those white matter lesions that characterize MS. However, study results announced at the 2023 ACTRIMS Forum show that white matter lesions are not the cause of severe MS disability. We're breaking down this game-changing research. 
    And speaking of game changers, we're sharing the details of a small, portable MRI device that can effectively image MS lesions. 
    We have a lot to talk about! Are you ready for RealTalk MS??!

    This Week: News from the 2023 ACTRIMS Forum and a story that I hope you find as compelling as I did  :22
    Study results show that white matter lesions are not the cause of severe MS disability 2:22
    A portable less invasive MRI device capable of imaging MS lesions  6:33
    Meet Robert Munns, the founder of Oceans of Hope UK    9:25
    Share this episode  37:20
    Have you downloaded the free RealTalk MS app?  37:41

    SHARE THIS EPISODE OF REALTALK MS
    Just copy this link & paste it into your text or email: https://realtalkms.com/288
    ADD YOUR VOICE TO THE CONVERSATION
    I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
    Email: jon@realtalkms.com
    Phone: (310) 526-2283
    And don't forget to join us in the RealTalk MS Facebook group!

    LINKS
    If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
    Oceans of Hope U.K.
    https://oceansofhope.co.uk
    Join the RealTalk MS Facebook Group
    https://facebook.com/groups/realtalkms
    Download the RealTalk MS App for iOS Devices
    https://itunes.apple.com/us/app/realtalk-ms/id1436917200
    Download the RealTalk MS App for Android Devices
    https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk
    Give RealTalk MS a rating and review
    http://www.realtalkms.com/review

    Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.
    RealTalk MS Episode 288
    Guest: Robert Munns
    Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS
    Privacy Policy

    • 38 min
    Meet the Winner of the 2023 Barancik Prize for Innovation in MS Research with Dr. Ruth Ann Marrie

    Meet the Winner of the 2023 Barancik Prize for Innovation in MS Research with Dr. Ruth Ann Marrie

    Last week in San Diego, the Americas Committee for Treatment and Research in Multiple Sclerosis convened their annual meeting, the ACTRIMS Forum. One of the highlights of this meeting is the presentation of the Barancik Prize, awarded in recognition of exceptional innovation in MS research.

    This year's winner of the Barancik Prize is Dr. Ruth Ann Marrie, a clinician scientist at the University of Manitoba. The Barancik Prize is administered by the National MS Society, and this year's award recognizes Dr. Marrie's landmark discoveries that deepen our understanding of how and when MS evolves. 
    During the ACTRIMS Forum, Dr. Marrie joined me to discuss her groundbreaking research and the impact it's had on MS care.

    If you're a regular listener, you've probably heard me say that the things that people affected by MS want most -- access to quality healthcare, affordable prescription medications, and funding for MS research are, to a large extent, all functions of public policy. The people who decide whether we get these things are our elected officials at the state and federal level.  That's why advocacy is a high priority for people affected by MS.
    The National MS Society's Public Policy Conference takes place next week, March 6-8, in Washington, D.C. Joining me to discuss how advocacy makes a real difference in influencing pending legislation, while giving us a preview of what we can expect to see and hear at this year's conference, is the National MS Society's Executive Vice-President for Advocacy and Healthcare Access, Bari Talente.
    We have a lot to talk about! Are you ready for RealTalk MS??!

    This Week: We're back from the ACTRIMS Forum and a conversation with this year's winner of the Barancik Prize for innovation in MS research  :22
    Dr. Ruth Ann Marrie discusses some of her groundbreaking research and its impact on MS care  1:57
    We are one week away from the National MS Society's Public Policy Conference in Washington, D.C.  17:18
    Bari Talente, the National MS Society's Executive Vice-President of Advocacy and Healthcare Access, discusses the importance of advocacy, while sharing a preview of the legislative issues that MS activists will be advocating for next week on Capitol Hill    18:18
    Share this episode  32:25
    Have you downloaded the free RealTalk MS app?  32:45

    SHARE THIS EPISODE OF REALTALK MS
    Just copy this link & paste it into your text or email: https://realtalkms.com/287
    ADD YOUR VOICE TO THE CONVERSATION
    I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
    Email: jon@realtalkms.com
    Phone: (310) 526-2283
    And don't forget to join us in the RealTalk MS Facebook group!

    LINKS
    If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
    Join the RealTalk MS Facebook Group
    https://facebook.com/groups/realtalkms
    Download the RealTalk MS App for iOS Devices
    https://itunes.apple.com/us/app/realtalk-ms/id1436917200
    Download the RealTalk MS App for Android Devices
    https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk
    Give RealTalk MS a rating and review
    http://www.realtalkms.com/review

    Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.
    RealTalk MS Episode 287
    Guests: Dr. Ruth Ann Marrie and Bari Talente
    Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS
    Privacy Policy

    • 33 min
    Embedding Diversity, Equity, and Inclusion Into the MS Movement with Neisha Fredericks

    Embedding Diversity, Equity, and Inclusion Into the MS Movement with Neisha Fredericks

    Two years ago, the National MS Society made a public commitment to do more to ensure that the MS movement was open to and reflective of everyone affected by MS.
    When you stop to consider issues like access to healthcare or MS clinical research, it quickly becomes apparent that diversity, equity, and inclusion aren't only organizational goals for the MS Society. They also address some of the systemic barriers that directly impact the quality of MS care for members of historically marginalized communities who are living with MS. 
    Joining me in exploring how the MS Society is embedding the principles of diversity, equity, and inclusion into every aspect of the MS movement is the National MS Society's Vice-President of Diversity, Equity, and Inclusion, Neisha Fredericks.

    We're also sharing the details of research conducted at the University of Virginia that identified a specific contributor to the autoimmune response and neuroinflammation that characterize MS.
    And we'll give you an up-close and personal illustration of how artificial intelligence (AI) will impact MS research and treatment.
    We have a lot to talk about! Are you ready for RealTalk MS??!

    This Week: Embedding diversity, equity, and inclusion into the MS movement  :22
    Researchers identify a neuroinflammation "regulator" lurking in the gut microbiome  1:28
    Artificial intelligence will have an impact on virtually every aspect of MS research and care  4:45
    Neisha Fredericks, the National MS Society's Vice-President of Diversity, Equity, and Inclusion, discusses the work that's taken place and the work still to be done to ensure that the MS movement is open to and reflective of everyone affected by MS    9:38
    Share this episode  32:13
    Have you downloaded the free RealTalk MS app?  32:34

    SHARE THIS EPISODE OF REALTALK MS
    Just copy this link & paste it into your text or email: https://realtalkms.com/286
    ADD YOUR VOICE TO THE CONVERSATION
    I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
    Email: jon@realtalkms.com
    Phone: (310) 526-2283
    And don't forget to join us in the RealTalk MS Facebook group!

    LINKS
    If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
    STUDY:  The Activity of the Aryl Hydrocarbon Receptor in T Cells Tunes the Gut Microenvironment to Sustain Autoimmunity and Neuroinflammation
    https://journals.plos.org/plosbiology/article?id=10.1371/journal.pbio.3002000
    ChatGPT
    https://openai.com/blog/chatgpt
    Join the RealTalk MS Facebook Group
    https://facebook.com/groups/realtalkms
    Download the RealTalk MS App for iOS Devices
    https://itunes.apple.com/us/app/realtalk-ms/id1436917200
    Download the RealTalk MS App for Android Devices
    https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk
    Give RealTalk MS a rating and review
    http://www.realtalkms.com/review

    Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.
    RealTalk MS Episode 286
    Guest: Neisha Fredericks
    Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS
    Privacy Policy

    • 33 min
    Episode 285: MS in Kids and Teens with Dr. Brenda Banwell

    Episode 285: MS in Kids and Teens with Dr. Brenda Banwell

    Between 3 and 5% of the people living with MS are diagnosed before their sixteenth birthday. In many respects, pediatric MS is just like MS in adults. But it carries with it a distinct set of what I call social complications that can feel even more challenging to navigate than MS itself.
    Just think back to the awkwardness of your pre-teen and teenage years. The pressures of school, friends, and dating are a lot for any kid to contend with. And that's without having to think about living with a chronic disease like multiple sclerosis.
    Joining me for what I consider to be a masterclass in pediatric MS is Dr. Brenda Banwell. Dr. Banwell is Chief of the Division of Neurology and Co-Director of the Neuroscience Center at Children's Hospital of Philadelphia, and one of the foremost experts on pediatric MS in the world.

    We're also sharing the details of very encouraging research that sheds new light, as well as provides new evidence, about primary progressive MS, suggesting a new pathway for future treatments.
    We'll tell you about Healthy Aging in MS, the new clinical and research initiative at the University of Texas at Austin Dell Medical School.
    And we'll share what the latest research is telling us when it comes to answering the question, "Should you discontinue your disease-modifying therapy once you turn 60?"
    We have a lot to talk about! Are you ready for RealTalk MS??!

    This Week: It's a masterclass in pediatric MS  :22
    Researchers take a major step forward in understanding and potentially treating primary progressive MS  2:01
    University of Texas at Austin Dell Medical School launches Healthy Aging in MS initiative  6:49
    Is it safe to stop your disease-modifying therapy as you age? Here's what the latest research is telling us  8:58
    Dr. Brenda Banwell takes us on a deep dive into pediatric-onset MS  13:05
    Share this episode  37:05
    Have you downloaded the free RealTalk MS app?  37:25

    SHARE THIS EPISODE OF REALTALK MS
    Just copy this link & paste it into your text or email: https://realtalkms.com/285
    ADD YOUR VOICE TO THE CONVERSATION
    I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
    Email: jon@realtalkms.com
    Phone: (310) 526-2283
    And don't forget to join us in the RealTalk MS Facebook group!

    LINKS
    If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
    STUDY:  Cerebrospinal Fluid Immunoglobulins in Primary Progressive Multiple Sclerosis are Pathogenic
    https://academic.oup.com/brain/advance-article/doi/10.1093/brain/awad031/7024973
    STUDY: Discontinuation of Disease-Modifying Therapy in MS Patients Over 60 Years Old and Its Impact on Relapse Rate and Disease Progression
    https://sciencedirect.com/science/article/abs/pii/S0303846723000288
    RealTalk MS Episode 255: Aging with MS with Dr. John Corboy
    https://realtalkms.com/255

    PEDIATRIC MS RESOURCES:
    National MS Society Information and Resources on Pediatric MS
    https://nationalmssociety.org/pediatricms
    Oscar the MS Monkey In-Person Camp and Retreats for Kids with MS and Their Families
    https://mroscarmonkey.org
    Network of Pediatric Multiple Sclerosis Centers
    https://usnpmsc.org
    iConquer MS Kids & Teens
    https://kidsandteens.iconquerms.org/kidsandteens
    Join the RealTalk MS Facebook Group
    https://facebook.com/groups/realtalkms
    Download the RealTalk MS App for iOS Devices
    https://itunes.apple.com/us/app/realtalk-ms/id1436917200
    Download the RealTalk MS App for Android Devices
    https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk
    Give RealTalk MS a rating and review
    http://www.realtalkms.com/review

    Follow RealTalk MS on Twitter, @Re

    • 38 min

Customer Reviews

4.7 out of 5
117 Ratings

117 Ratings

AIRiel Kara ,

Thank you

I’m grateful this podcast exists, it’s the main way that I educate myself about MS. John is awesome and makes sure that all the details are communicated clearly. The guests are always great. Thank you!

DefJuan ,

Outstanding resource

As someone with a family member living with MS, trying to understand all of the facets of the condition can be daunting. This podcast goes above and beyond to explain and relate the sometimes difficult concepts into digestible and actionable bits of information. Other members of my family also listen to the show, and it has sparked conversation leading to greater understanding amongst all of us. An absolute service and very much appreciated.

Farmer188 ,

PBA please

Real Talk, please- please- please, address PBA. If I have missed it, please reply. I am on a mission.

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