61 episodes

Epilepsy affects more than 50 million people. Every day. Sharp Waves brings you stories about people with epilepsy, physicians treating epilepsy, and researchers studying the condition. We'll cover the latest research, challenges to diagnosis and treatment, and issues from around the world.

Sharp Waves: ILAE's epilepsy podcast ILAE

    • Health & Fitness
    • 5.0 • 6 Ratings

Epilepsy affects more than 50 million people. Every day. Sharp Waves brings you stories about people with epilepsy, physicians treating epilepsy, and researchers studying the condition. We'll cover the latest research, challenges to diagnosis and treatment, and issues from around the world.

    The bumpy road from pediatric to adult epilepsy care: Dr. Danielle Andrade

    The bumpy road from pediatric to adult epilepsy care: Dr. Danielle Andrade

    When a child with epilepsy ages out of pediatric healthcare, the shift to adult epilepsy care can be complex. Planning this transition and coordinating care can prevent gaps that can affect quality of life and possibly lead to health crises. A recent survey of people with epilepsy treated inside and outside of academic medical centers found that transition care was lacking. One-fourth of young adults with epilepsy were still followed by their pediatric neurologists and only 4% said they ...

    • 20 min
    Investigating pediatric epilepsy in Nigeria: Dr. Edwin Trevathan

    Investigating pediatric epilepsy in Nigeria: Dr. Edwin Trevathan

    In northern Nigeria, as in many other low- and middle-income countries, more people need epilepsy treatment than traditional medical care can support. Dr. Edwin Trevathan discusses projects in that region aimed at identifying children with undiagnosed epilepsy and improving access to care, as well as research to better understand the risks and prognosis of pediatric status epilepticus.Dr. Trevathan heads the BRIDGE project (Bridging the Childhood Epilepsy Treatment Gap in Africa) and the SEED...

    • 25 min
    Consensus recommendations for epilepsy with eyelid myoclonia (Jeavons syndrome): Dr. Kelsey Smith

    Consensus recommendations for epilepsy with eyelid myoclonia (Jeavons syndrome): Dr. Kelsey Smith

    A recent publication outlined areas of consensus on the recommended management, treatment options, and prognosis for epilepsy with eyelid myoclonia, also known as Jeavons syndrome. Dr. Alina Ivaniuk interviewed Dr. Kelsey Smith about the results and how consensus was reached.They discuss which medications are recommended as first-line treatment, possible non-pharmacologic treatment options, and what is known about the safety of driving in this population. The publication appears in Epile...

    • 23 min
    Developmental and epileptic encephalopathies: Managing more than seizures - Dr. Scott Demarest

    Developmental and epileptic encephalopathies: Managing more than seizures - Dr. Scott Demarest

    Besides seizures, people with developmental and epileptic encephalopathies experience a wide variety of symptoms, including sleep problems, vision problems, and behavioral issues. Dr. Scott Demarest discusses how neurologists may be able to address some of these, improving outcomes and quality of life. Subscribe to the ILAE Academy's Level 1 program and gain access to a portfolio of courses covering the basic principles in clinical epileptology. You’ll learn to manage the most common forms of...

    • 30 min
    Seizure action plans as educational tools: Dr. Lucretia Long

    Seizure action plans as educational tools: Dr. Lucretia Long

    Seizure action plans can help people with epilepsy manage their seizures and address emergencies. They often are aimed at a subset of people with epilepsy, particularly children. Dr. Lucretia Long discusses how seizure action plans can be used to engage and educate all people with epilepsy, as well as their families and the larger community.Seizure action plan examples: English, Spanish, Simplified Chinese, Korean, Tagalog, Ukrainian, VietnameseOnline fillable seizure action plan - English (P...

    • 21 min
    The Human Intracerebral EEG Platform and the power of big data: Dr. Philippe Ryvlin

    The Human Intracerebral EEG Platform and the power of big data: Dr. Philippe Ryvlin

    What is the Human Brain Project and how might it advance epilepsy research? Dr. Maryam Nouri speaks with Dr. Philippe Ryvlin about the project in terms of the Human Intracerebral EEG Platform and how compiling these unique data from around the world could lead to new breakthroughs and understanding of epilepsy.The Human Intracerebral EEG Platform is an open-source platform designed for collecting, managing, analyzing, and sharing iEEG data at an international level. Its primary mission is to ...

    • 27 min

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