The North of Scotland Parkinson’s Research Podcast Series The North of Scotland Parkinson’s Research Interest Group
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- Health & Fitness
The North of Scotland Parkinson’s Research Interest Group (NoSPRIG) is part of a nationwide network of research groups supporting Parkinson’s UK by increasing awareness and involvement in research at a regional level. We comprise of people with Parkinson’s Disease, carers, health professionals, scientists, and interested volunteers.
The aim of our podcast series is to focus on Parkinson’s research from a Scottish perspective and highlight some of the work being done here to find out more about the mechanisms of this complex disease and ways of making life better for those living with it.
We hope you find our episodes entertaining and informative. Any feedback would be much appreciated - email: nosprig@gmail.com. Thank you for listening!
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Richelle Flanagan, Dietitian with Young Onset Parkinson's Disease, Diet and Parkinson's
In this episode we are delighted to have the opportunity to discuss the latest thinking on Diet and Parkinson's with someone uniquely placed to do so from both a professional and a personal perspective. Richelle Flanagan is not only a leading dietician in Ireland with nearly two decades of experience, but she also lives with Parkinson's Disease having been diagnosed seven years ago when she was expecting her second child.
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Dr Kathryn Bowles, Gene Researcher, UK Dementia Research Institute, Edinburgh and leader of the Bowles Lab.
Dr Kathryn Bowles explains her fascinating research into a little known gene that is thought to help protect the brain. It is hoped that discovering how this process works will provide vital new knowledge as to why some people develop Parkinson’s and others don’t. Kat also talks Julie and Helga through the complex world of genetic research, how it has developed over recent years, and why it can take so long to see progress.
www.bowleslab.co.uk
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9284779/pdf/13024_2022_Article_551.pdf -
Richelle Flanagan, Co-Founder of the worldwide Women’s Parkinson’s Project and digital health app ‘mymovesmatter.com.’
In this special episode of the North of Scotland Parkinson’s Research Interest Group podcast series to mark International Women’s Day 2024, we are delighted to have with us Richelle Flanagan from Ireland. Since attending the World Parkinson’s Congress in 2019 following her own diagnosis of Young Onset disease seven years ago, she has worked tirelessly to raise the profile of women with Parkinson’s. Now a leading advocate for females with the disease across the globe, her pioneering work is driving forward long overdue research into how Parkinson’s and its medications specifically affect women of all ages. She is co-founder of the worldwide Women’s Parkinson’s Project and also ‘mymovesmatter.com’ – a digital health app allowing users to track every aspect of their health and wellbeing to help them live the best life possible with Parkinson’s.
Related links:
https://www.mymovesmatter.com/uccpilotstudy
https://www.mymovesmatter.com/get-the-app
https://movementdisorders.onlinelibrary.wiley.com/doi/abs/10.1002/mds.28921#:~:text=PD%20and%20physicians.-,Women%20with%20PD%20need%20to%20be%20educated%20and%20empowered%20on,psychological%20and%20social%20support%20needs.
https://www.womensparkinsonsproject.com/
https://pregspark.com/
https://www.yopdwomen.com/resourcees
https://www.womensbrainproject.com/2024/01/21/parkinsonsreport/ -
Dr David Breen, Hon. Consultant Neurologist & Sen. Clinical Research Fellow, University of Edinburgh.
Sleep issues are one of the most widely reported non-motor symptoms of Parkinson's In this episode Dr David Breen explains the mechanism of sleep, talks us through some of the theories surrounding sleep as a possible predictor of disease or indicator of prognosis, and the challenges & of researching the science behind it.
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Clare Johnson, Parkinson’s Specialist Occupational Therapist, University Hospitals of Derby and Burton NHS Foundation Trust
As a member of the Parkinson's Disease guideline committee of the National Institute for Health and Care Excellence, Clare Johnson explains the vast number of ways Occupational Therapists help patients and their families cope with the everyday motor and non-motor challenges of living with Parkinsons. We hear about the benefits of multi-disciplinary clinics and why standard measurement scales can fall short compared to individualised evaluation.
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Dr Anja Lowit, Professor of Speech & Language Therapy, University of Strathclyde
Speech and language issues can affect many people with Parkinson's at any stage of the disease. In this episode Dr Anja Lowit, Professor of Speech and Language Therapy at the University of Strathclyde talks Julie Jones and Helga Macfarlane through the various interventions that can help, the challenges of carrying out and analysing research into speech and language and how technology is developing to help.