The Starry-Eyed Podcast®

Williams Syndrome Association
  • 4.8 (18)
  • SOCIETY & CULTURE
  • UPDATED WEEKLY

Presented by the Williams Syndrome Association, the Starry Eyed Podcast® will explore the joys and challenges of living with Williams syndrome, a rare genetic disability. Each episode will feature interviews with adults with WS and professionals and caregivers who are dedicated to raising awareness and resources.

  1. 4D AGO

    Ep 84 - It's Okay to Not be Okay with Martha Maier and Jeff Isensee

    There’s no easy way to begin this episode. Over the past few weeks, the Williams syndrome community has experienced several losses, and regardless of the circumstances, it has left many of us feeling shaken. This episode is the first in a small series focused on death and grief. We welcome back Martha Maier and Jeff Isensee. Martha reached out to the WSA to share some of the tools she’s using to help Jeff navigate his fears and anxiety around death. Together, they talk honestly about where they are right now and what it looks like to keep moving forward. Whether it’s something you hear in this episode or in those to come, we hope you find a small piece you can hold onto when things feel especially heavy. This is not an easy conversation, but it’s one we need to start having. To honor and remember those we’ve lost, please visit the WSA In Loving Memory page. As always, this episode is sponsored by Innersense Organic Beauty. Click on THIS LINK and complete your purchase and 25% of your purchase will go back to the WSA! Also use promo code MORGAN15 to get 15% off your first purchase!

    43 min

  2. FEB 3

    Ep 83 - Passion Meets Purpose with Paola Martinez

    This week Paola Martinez joins the Two-Timers Club! She recently became the WSA’s new Development Manager, and she joins Brendan and Jen to talk about turning personal connection into powerful fundraising. From the Walk for Williams Syndrome to creative DIY fundraisers, Paola shares how volunteers can make a real impact and have fun doing it. As always, this episode is sponsored by Innersense Organic Beauty. Click on THIS LINK and complete your purchase and 25% of your purchase will go back to the WSA! Also use promo code MORGAN15 to get 15% off your first purchase!

    28 min

  3. JAN 27

    Ep 82 - It Keeps You Runnin' with Holden Cammarata

    This episode's guest did not just jog into the Williams syndrome community. He kept going. And going. And going. Holden Cammarata is a Georgia Tech student studying rocket science, because apparently running 100 miles in just over 24 hours was not ambitious enough. Fueled by friendship with the Cloer family, Holden turned one very long run into awareness for Williams syndrome. Get ready for some grit, purpose, and a finish line measured in miles, blisters, and heart. Lace up. Hydrate. Listen. As always, this episode is sponsored by Innersense Organic Beauty. Click on THIS LINK and complete your purchase and 25% of your purchase will go back to the WSA! Also use promo code MORGAN15 to get 15% off your first purchase!

    32 min

  4. JAN 20

    Ep 81 - Totally Birchin with the Birch Sisters

    This week the fabulous Birch Sisters (Victoria and Alexandra) return to join the "2-timers Club!" Amongst the silly chaos of friends catching up, Brendan and Joel flip on Jen and interview her and the Birch's about their collaboration on a fundraising fashion show for the Arc of Colorado! It's pretty evident that putting the 5 of us together (even virtually) is a recipe for laughter. This episode is sponsored by Innersense Organic Beauty. Click on THIS LINK and complete your purchase and 25% of your purchase will go back to the WSA! Also use promo code MORGAN15 to get 15% off your first purchase!

    43 min

  5. JAN 13

    Ep 80 - Signing the Times with Kylie Stenger

    Ep 80 - Signing the Times with Kylie Stenger This week we celebrate episode 80 with Kylie Stenger, a young woman with a lovely gift of gab - with her hands! Having started signing at an early age, she's taught herself enough to earn her ASL certification and now she's working her way toward becoming a full time ASL interpreter. It was an absolute delight getting to spend a little time with her and learning a little ASL ourselves. This episode is sponsored by Innersense Organic Beauty. Click on THIS LINK and complete your purchase and 25% of your purchase will go back to the WSA! Also use promo code MORGAN15 to get 15% off your first purchase!

    24 min

  6. JAN 6

    Ep 79 - Making a Home with Martha Maier, Jeff Isensee, and Phil Isensee

    Happy New Year from your favorite pod fam! While Jen is getting an internet upgrade, Producer Joel joins Brendan to hear about the challenges that come with trying to find proper living arrangements for an adult with WS. While it took some time and trials and errors to find what works for Jeff Isensee, the end result seems to be a great fit for him, Martha Maier and Phil Isensee. It's a great reminder that a housing search for a person with WS isn't just about finding 4 walls, it's about creating a home.   This episode is sponsored by Innersense Organic Beauty. Click on THIS LINK and complete your purchase and 25% of your purchase will go back to the WSA! Also use promo code MORGAN15 to get 15% off your first purchase!

    43 min

  7. 12/30/2025

    Ep 78 - Closing it out with Sophia Napoli

    Queen Crouton herself has returned! This week we're joined by our good friend Sophia Napoli. If you think she's become more tame since her last appearance - not a chance! Her passion and desire to impact change on the world is the perfect way to close out 2025 and get excited for 2026! This episode is brought to you by Innersense Organic Beauty. Shop Innersense using this link https://tidd.ly/47mWg4F and when you complete a purchase after clicking, WSA earns 35% commission during the holidays through 1/2/2026. Plus if you haven't purchased from Innersense before, use code WSA15 to save 15% on first purchases. New episodes every Tuesday. Video available on the WSA page on YouTube and The Starry-Eyed Podcast page on Facebook. Audio version available on a podcast platforms.

    39 min

  8. 12/23/2025

    Ep 77 - All In & No Pay with Darcie Wolfe

    This week the pod is joined by volunteer extraordinaire Darcie Wolfe. She took a chance on volunteering at Camp Blue Skies with her husband's cousin and has become a fixture of our adult community. Hear just how easy it is to step up and volunteer and maybe you can join her (and many other volunteers) at future WSA events! This episode is brought to you by Innersense Organic Beauty. Shop Innersense using this link https://tidd.ly/47mWg4F and when you complete a purchase after clicking, WSA earns 35% commission during the holidays through 1/2/2026. Plus if you haven't purchased from Innersense before, use code WSA15 to save 15% on first purchases. New episodes every Tuesday. Video available on the WSA page on YouTube and The Starry-Eyed Podcast page on Facebook. Audio version available on a podcast platforms.

    39 min
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4.8
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About

Presented by the Williams Syndrome Association, the Starry Eyed Podcast® will explore the joys and challenges of living with Williams syndrome, a rare genetic disability. Each episode will feature interviews with adults with WS and professionals and caregivers who are dedicated to raising awareness and resources.

Information

  • Creator
    Williams Syndrome Association
  • Years Active
    2023 - 2026
  • Episodes
    87
  • Rating
    Clean
  • Copyright
    © Copyright 2023 All rights reserved.
  • Show Website
    The Starry-Eyed Podcast®