133 episodes

TSC TALKS 2.0. Inspired by the condition Tuberous Sclerosis Complex. Providing digital audio & video content and products designed to educate, illuminate, support and advocate "off the grid" alternative and holistic options for marginalized populations. Providing a forum for communication, collaboration, resources and opportunity. Drawing from lived and learned experience All with the goal of coming together to affect change, bridge gaps and empower as we come together to better understand each other's predicament and validate the need for access, affordability that often keep those with chronic, life threatening conditions from exploring options. Options that CAN open the doors of perception to understanding our exceptional variability as human beings and the “one size fits all” aspects of traditional medicine that are not conducive to bio-psycho-social health, stability and longevity. Come join us as we dig deep into issues and concepts that need to be given some thought and discussion in order to truly “walk a mile” in another’s shoes!

TSC Talks‪!‬ Jill Woodworth

    • Health & Fitness
    • 5.0 • 5 Ratings

TSC TALKS 2.0. Inspired by the condition Tuberous Sclerosis Complex. Providing digital audio & video content and products designed to educate, illuminate, support and advocate "off the grid" alternative and holistic options for marginalized populations. Providing a forum for communication, collaboration, resources and opportunity. Drawing from lived and learned experience All with the goal of coming together to affect change, bridge gaps and empower as we come together to better understand each other's predicament and validate the need for access, affordability that often keep those with chronic, life threatening conditions from exploring options. Options that CAN open the doors of perception to understanding our exceptional variability as human beings and the “one size fits all” aspects of traditional medicine that are not conducive to bio-psycho-social health, stability and longevity. Come join us as we dig deep into issues and concepts that need to be given some thought and discussion in order to truly “walk a mile” in another’s shoes!

    TSC Talks! Points of Light~Cannabis & Spirituality with Sherri Tutkus, RN, BSN

    TSC Talks! Points of Light~Cannabis & Spirituality with Sherri Tutkus, RN, BSN

    I recently heard some talk in spiritual communities about cannabis and how it possibly harshes our evolution. I’ll admit, I was a little bit triggered when I first heard this. I felt for a moment that what I’d come to understand as my truth, (using cannabis as medicine and as a portal to divine connection and expansion), was under the microscope. I think is there's a lot of misunderstanding of cannabis, cannabis as medicine, cannabis as an entheogen. What I was hearing from some within the spiritual community, didn't line up with what I had learned and experienced and it was confusing. Cannabis, in many ways, opened a portal so I could see how to save my own life.

    So, I did what has become a foundational transformational process for me and I took it to the podcast to ask the burning question I had on my mind about cannabis and spirituality. I thought, “why not interview somebody that I know that has some lived experience in that area?” I reached out to my friend Sherri Tutkus, RN, BSN, Green Nurse, former podcast guest, to see if she’d have this discussion with me. (I will continue interviewing individuals who are interested in sharing their “story” of how their lived experiences, of all shades, let them to stepping more fully into their soul’s purpose.)

    From a very young age, Sherri was connected and had some experiences with the divine. What followed from my initial query is a beautiful discussion with her just blowing my mind with the things she’s experienced and where she's gone and come back from to be a shining light and a heck of a guide for others. Through her combo of traditional medical education, deep lived experience as a patient, nurse, mother, medical cannabis patient, psychedelic explorer and guide, podcaster, businesswoman, and friend to many, her depth of insight is epic. I learned a lot and realized I had the answer within, which it always is, needing a little context & connection to spring it loose. Let’s hope you can find some valuable insight as well. Let it rip!

    Sherri Tutkus BSN- RN is a leading force in the burgeoning cannabis industry as a nurse, patient, advocate, and activist. All that she shares and teaches facilitates our own innate ability to step more fully into our authentic, divine selves. Sherri is the Founder of The Green Nurse and Chief Nursing Officer at Holistic Caring- a global community of health professionals who provide vetted products and services to support the utilization of plant medicine and other progressive therapies to nourish the endocannabinoid system (ECS). Sherri educates and implements holistic integrative healing modalities within her nursing practice at https://thegreennurse.com/team/sherri-tutkus/

    "And through all of that my discovery was this. We have beliefs, and beliefs are fed to us from the outside. And so, we have a choice to either believe it or not believe it. Right. But does a belief make it true? That's the question that people need to ask. So, truth.... what is truth? Truth is basically when someone has an experience, that can become their truth. All truth is truth. But all truth is not yours and mine at the same time."

    Timestamps with links:

    0:00-4:00~Introduction of topic and Sherri
    4-5:50~Where it all started…Church (Irish Catholic), early experiences, the angelic realm
    5:50-6:49~Beliefs and truth, What is Truth? “All truth is truth but not all truth is yours and mine at the same time”
    6:50-7:19~Perception, consciousness, processing
    7:20-8:00~ PTSD, trauma response…what happens inside someone is how they view the outside world. Go inside to heal.
    8:00-8:45~my teachers throughout the years, exploring modalities, college
    8:46-9:34~Sick as a child-Rhys Syndrome, almost died, sick in 2012, almost died~found cannabis
    9:35-10:24~Spiritual journey enriched by cannabis,...

    • 45 min
    TSC Talks! Nina Patry~Points of Light, From Primal Scream Therapy to Paradox Process, the Journey Home

    TSC Talks! Nina Patry~Points of Light, From Primal Scream Therapy to Paradox Process, the Journey Home

    Links:
    Paradox Process: https://www.paradoxprocess.org/
    Ziva Meditation: https://zivameditation.com/
    Thomas Jones on Luke Storey Podcast: https://youtu.be/cB5OT3vtpP8

    A demo of Paradox Process with Thomas Jones and Emily Fletcher: https://youtu.be/vkXdaGmKTtQ

    I can only say I’ve had one of the best times of my life getting to know Nina Patry. For all the negativity around Facebook, that’s where I met her. In a forum for Lorie Ladd, during the COVID madness. Our paths were destined to cross. Our connection and experience together, over the last 6 months, was enough to make me want to podcast again. You’ll hear the description of how I thought we met and then Nina’s description of how we met, which was far more accurate. Funny.
    What I want to note is how important it has been for Nina to solidify her inner voice and deep knowing, her authentic self, despite the external reality into which she was born is one in which often didn’t make sense in a way that allowed her to feel loved and at home with her own awesomeness and value.

    Born the oldest of 7, to a world-renowned, MD working in the field of Pharmacology~ in NYC, busy parents, whose hands were full, she internalized the message to stay out of the way and not draw attention to herself. did not follow any preconceived or single life path, like me, she’s been an avid student of life. Each experience led her further into asking the question, “Is this really all there is?”. From her earliest memories to today, she weaves a beautiful narrative based upon the inner and outer experience of each memory she shares. She states, “If I’d have had to plan a life for myself to get me to where I am today, I could not have planned it any better!”

    I am honored to get the chance to ask her questions and discuss pretty much freestyle, her navigation across the time-space continuum, the adventures she’s had along the way, what was gleaned, what was stored, and how each experience held a gift, like a scavenger hunt, leading her along the path of further stepping into her soul’s purpose. There’s so much within the episode, and I’ve noted the timestamps that I thought jumped out, below. Please also note the very important links Nina asked me to share on Emily Fletcher and Ziva Meditation as well as on Thomas Jones and The Paradox Process.

    “here's my mother picturing me living in the woods with an outhouse, etc, etc. And she had said to me, how can you be living such a Hard life. So one day I'm out there kicking the ice out of the buckets, thinking hard life. Wait a minute, when my mother was my age, she had five kids, the hardest thing I have to do is kick the frozen ice out of their buckets on these, you know, under zero-degree morning. That's the hardest thing that I do. What is she talking about? What is she talking about? Again, it's this whole relative reality, you know, the people look, five, just like me looking from the outside saying, I could never do that.”

    6:22-Story of her birth
    8:19-Moving around quite a bit, lessons of relative reality
    10:30-Germany. Going to Germany as an exchange student-meeting Mormons
    15:25-Nina’s boyfriend meets up with her dad at John’s Hopkins-dad did not face things emotionally
    16:55 -What attracted her to Mormonism-the gestalt…what life was about, father in heaven, etc
    18:55-Dad came home with a cat-couldn’t believe he had given her something so wonderful!
    21:00-Always had knowings
    22:01-Dream about the cat on the payphone
    24:04-What am I getting out of this life if I’m the creator?
    25:22-Living in East Village (NYC) during a tumultuous time
    30:20-Drawn to the book, “The Primal...

    • 1 hr 3 min
    TSC Talks! Finding A Cure?

    TSC Talks! Finding A Cure?

    Jill Woodworth, host of TSC Talks gives a commentary on the notion of "finding a cure", which is the tag line for about every chronic disease, and how this notion often clouds the less than loving motives behind the industry, corporations, non-profits, medical system and more that extract energy, like a battery, from those for whom they claim to serve. There is always information to which the masses, those affected, and their entire support collective are not privy, which would allow for more light, more ways of figuring out how to genuinely and wholistically find a cure and at least improved quality of life along the way. Hold onto your hearts people, don't judge another's path, no matter what and love yourself if you do. NO matter what.

    Stay tuned for more content! https://tsctalks.com

    • 16 min
    TSC Talks! Exceptional Circumstances, Making it Work When Systems Don't~Nikki Lawley, TBI & Cannabis Advocate

    TSC Talks! Exceptional Circumstances, Making it Work When Systems Don't~Nikki Lawley, TBI & Cannabis Advocate

    TSC Talks guest Nikki Lawley is a former pediatric nurse, former blackjack dealer, and much more, who went from full active life to chronic daily pain and other debilitating symptoms after suffering a traumatic brain injury on the job in 2016. This is the story of how it happened, what happened and how she’s been able to move from existing in survival mode to having a life filled with hope despite ongoing challenges. In her own words; “since my (TBI) injury, one of the things that I’ve learned more than anything is about living in the moment. my life changed a second and I can’t go back and write a new ending, but I sure can start now and I just have really become more human with this injury. ”

    Here are a few relevant quotes from the transcript~full transcript linked below:

    “So I began the search for a diagnosis. It was hell, I was always a respected colleague in the medical field. And every doctor I went to was like, we don't understand why your symptoms are so long. We don't understand why you’re not better yet. We don't understand this headache that never goes away. How can you have a headache 24 /7. I'm like, I have a headache. 24/7. I have a headache that never goes away. And they basically told me that it was psychological at one point, and it was so de-humanizing for a person that's never had mental health challenges and extreme situations, to be told, like, this is all in your head. Really nothing wrong with you. And it was like, Whoa, is it really in my head? No, and I mean, chill. When I say I was upbeat and happy, you know, I was different than I was before. I was really quick, really witty really able to, you know, snapback and had a really fun life. I'm a different Nikki and I'm differently-abled, but I feel that patients are the experts, and they are not heard. We are not heard from a patient perspective. When I tell the doctor, this medicine isn't working. Why do I have to be in question?”

    She goes on to say,

    “It wasn't like a panacea that like one day I just opened my eyes and oh, cannabis is here. Oh, I'm all better. That's not how it works. Yeah, the universe has allowed me to explore. Honestly, it's allowed me to be able to understand my injury, it's been able to help me help others. I was able to see that cannabis isn't so bad. It's given me hope when I had none. and removing the stigma of this plant is honestly what's in my heart that I really want to help do.”

    On the state of Cannabis legislation,

    “But I've learned so much about this plant, and there's so much more to learn. And right. We're just at the beginning, really any of us. Exactly. And New York State is looking at legalization. Yes. I keep seeing that. Is that gonna happen? Well, I was part of it for the last two years and nothing happened. And it was incredibly disappointing. Incredibly. They all got a position so they can make the most money off of it, I think there's so much of that behind it. I don't know all of it. But oh, no, you're 100%. And I really didn't understand that. Like I always just heard people say that, but let me assure you, that's it. I've never seen a more corrupt system literally starting at the very, very top of how it all works together.”

    “So I had to fight to just see the right providers, I spent so much money out of pocket. Workers' compensation pays for next to nothing. Yeah, unless you have specific doctors that they are willing to pay for, you can't get care, right. Everything was a struggle from medical massage, physical therapy, to cognitive therapy, you name it, they fought you on it. And then to have independent medical exams that are paid for by the insurance company, and they spend literally three and a half minutes with me. They look at all the medical records and say alright, she can return to work in six weeks, and she has no problems.”

    For the full transcript: a...

    • 49 min
    TSC Talks! Exceptional Circumstances, Making it Work When Systems Don't Episode 1~Lisa Consolidates

    TSC Talks! Exceptional Circumstances, Making it Work When Systems Don't Episode 1~Lisa Consolidates

    Lisa Larson is a mother, daughter, Senior Care Advocate, Learning Assistant, Co-Owner of TSC Talks, LLC and all-around awesome human being. Lisa started working on the podcast in 2018 after hearing the resilience, intensity complicated nature of the challenges people with Tuberous Sclerosis Complex were dealing with and offered to help me edit. The rest is history. We’ve evolved considerably since our early days and expanded the breadth and depth of our content, from purely TSC related to the broader “special needs” umbrella, then cannabis, cannabinoid medicine, and alternative health to where we are today, highlighting the cracks in the system, hoping to shed some light, inspiration and provide resources and information on practical ways to buck the system. Well….not buck it, but bolster, integrate and enrich our lives with stories of others who have found ways to improve quality of life without increasing dependence. Lisa’s story is the start of this content thread.

    Here’s a few lines from the podcast transcript to give you a bit of a teaser…
    “Lisa, in the last year, actually in 2020, has transitioned members of her family that are older, into her living space, and I've just kind of watched it from outside. And it's been quite informative witnessing the challenges and the rewards. We thought it would be great for Lisa to come on. And just talk a little bit about, what made her decide to do this, how it happened, and, shed light on her process. I think this is a common theme for a lot of people is what do we do when our parents get older…”

    Here is a link to the full transcript of the podcast: https://otter.ai/u/OpicltOInNrjw4bb31gSRck6oIo

    Lisa’s links:
    Facebook: https://www.facebook.com/lisa.o.larson
    Instagram: https://www.instagram.com/lisalarson7/

    • 31 min
    TSC Talks! Special Broadcast: The Tower of Babel Part 2 ~ Group Homes, Alternative Health and Coping

    TSC Talks! Special Broadcast: The Tower of Babel Part 2 ~ Group Homes, Alternative Health and Coping

    They also discuss alternative medicine options that they each have utilized and for which they feel strongly can be useful for those living with TSC and other chronic life-threatening conditions. Long term polypharmacy issues are incredible and waiting for pharmaceutical formulations of cannabis is not an option. We are witnessing suffering and mental/physical health issues that can be addressed in part through other modalities. Jill is a strong advocate for affordable access to cannabinoid medicine for those living with TSC.

    Brooke has had huge success utilizing Thrive-THRIVE Experience is an 8-week premium lifestyle plan, to help individuals experience and reach peak physical and mental levels. Brooke is a mom, TSC advocate, Adult Regional Coordinator for the TS Alliance, and also Hairstylist. Check out her Facebook here: https://www.facebook.com/brookey21

    Jill Woodworth. (Human being. Writer,) Podcaster. Chronicler of being human. Parent of 5, 3 of whom have Tuberous Sclerosis Complex, each with varying effect Committed to giving voice to the underdog, the oppressed, those for whom being heard is crucial to survival and quality of life. If you are part of my world, which is everyone willing to take an honest look at their lives and discuss how the direst and desperate of situations often led to the most understanding and personal growth and compassion plus an inner motivation to work toward social good, then join my network! Let me know if you have a story to tell or if you need help to connect with this growing market. Contact me on linked in or drop me a note on https://tsctalks.com/ or pjlacy6@gmail.com. Offering podcast sponsorship, advertising, consulting, research, speaking and more.

    Here is an excerpt from the transcript, click link for full transcript: https://otter.ai/u/Y6Z9mem7vmGFueMlLMBQnPsaV34

    “we've done our best to advocate and support our daughters, we've had to make tough decisions, lean on mental health services to keep them safe, preserve our own safety. And sometimes these choices are sorely inadequate. Sometimes our resources run out before we can get our loved ones into a situation where they can take advantage of supports and services and start to forge their own lives. Sometimes group homes are a good option, and ideally should be a good option for more. But again, we are dependent, or they're dependent on funding and disconnects between providers and often not able to implement and implement enough surrounding support services that would enable individuals to be more successful learn from the group home living situation and move into a less restrictive environment. So, you know, I think my point is that I think they can work. I think there's a lot of challenges. So Brooke, why don't you go ahead and give me a little bit of your background and talk about your experience.

    Okay, I know this is part two. So if you watch part one, you can hear a lot. I mean, we could reshare that somewhere. So speaking on that I was diagnosed at 18 with TSC. And I had kidney tumors, basically was dealing with a lot of kidney stones, urinary tract infections, that type of thing at the age of like, 17 ish, probably a little bit after my hormones got to use, you know, used to my body, and were like, Hey, we're not gonna let you do life anymore. I was a cheerleader I skater, singer traveling singing group for a Christian. It was called Youth for Christ, stuff like that. I was very, very involved in a lot of things. So for me to be told at 18 I be in the wheelchair by the age of 30 was very detrimental to my mental health. Being told I could never have children. If I did, my body would fight the fetus off. So I just gave up and like,...

    • 1 hr 1 min

Customer Reviews

5.0 out of 5
5 Ratings

5 Ratings

charlie739574 ,

Great host

The host of this podcast makes difficult subjects easy to understand. Such a range of topics! The mental health aspect, seizures, autism it’s all here.

Luckyl7 ,

So much information!

This is an amazing podcast! So much information that is applicable across a wide spectrum. Information on TSC, autism, seizures, special education, therapies just so much information. The podcasts are well done and Jill is a great interviewer. Highly recommend!

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