The Bloodline with Blood Cancer United Podcast

Blood Cancer United
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A Podcast for Patients and Caregivers

  1. 5D AGO

    Cutaneous T-Cell Lymphoma (CTCL): Illuminating a Brighter Path Forward

    Stefan Barta, MD, MS Cutaneous T‑cell lymphoma (CTCL) is a rare condition that often raises important questions for patients and families. In this episode, we sit down with Dr. Stefan Barta, of the University of Pennsylvania, to bring clarity to what CTCL is, how it’s diagnosed, and what patients can expect from staging and treatment. Dr. Barta breaks down the differences between CTCL subtypes, explains why diagnosing someone can take time, and shares the most up-to-date therapies, including skin directed treatments, immunotherapies, and emerging clinical trial options. Most importantly, he offers reassurance for those newly diagnosed: “The future is absolutely bright… there is a lot of hope for our patients with CTCL.” DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Cutaneous T-cell lymphoma Cutaneous Lymphoma Foundation Clinical Trial Support Center Additional Blood Cancer United Support Resources:  Free Nutrition Consultations Information Specialists  Financial support Online Chat Free telephone/web patient programs  Free booklets  Young Adult Resources Support groups  Caregiver support  Caregiver Workbook Survivorship Workbook Advocacy and Public Policy Patient Community Mental Health Resources Episode supported by Kyowa Kirin, Inc. and Cutaneous Lymphoma Foundation. The post Cutaneous T-Cell Lymphoma (CTCL): Illuminating a Brighter Path Forward first appeared on The Bloodline with Blood Cancer United Podcast.

    38 min

  2. JAN 29

    The Bloodline Live! Myelodysplastic Syndromes (MDS) Updates in Research

    Mikkael A. Sekeres, MD, MS Curious about what’s new in the world of myelodysplastic syndromes (MDS)? We’re bringing you the latest insights straight from one of the field’s leading experts. In this episode, we speak with Dr. Mikkael Sekeres, of the Sylvester Comprehensive Cancer Center at University of Miami Health. Recorded onsite at the 2025 ASH (American Society of Hematology) Annual Meeting and Exposition, this conversation explores what MDS is, how it’s treated today, and what researchers are learning about managing side effects. Dr. Sekeres also walks us through the most notable MDS updates presented at ASH, highlighting promising therapies and clinical trial data that may help shape future care. Whether you’re newly learning about MDS or following ongoing research, this episode offers an accessible look at where things stand and what’s on the horizon. *This is not an official program of the ASH annual meeting DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Myelodysplastic syndromes International Prognostic Scoring System for MDS American Society of Hematology Highlights from ASH vlog Blood cancer research 2026: Meeting patients where they want to be | blog post Additional Blood Cancer United Support Resources:  Free Nutrition Consultations Information Specialists  Financial support Clinical Trial Support Center Online Chat Free telephone/web patient programs  Free booklets  Young Adult Resources Support groups  Caregiver support  Caregiver Workbook Survivorship Workbook Advocacy and Public Policy Patient Community Mental Health Resources Episode supported by Geron Corporation and Taiho Oncology, Inc. The post The Bloodline Live! Myelodysplastic Syndromes (MDS) Updates in Research first appeared on The Bloodline with Blood Cancer United Podcast.

    18 min

  3. JAN 14

    Hope Meets Healing: Simple Practices for Stress Relief

    Ann Grace MacMullan, C-IAYT In this episode, we sit down with Ann Grace MacMullan, Director of Integrative Wellness at the International Waldenstrӧm’s Macroglobulinemia Foundation (IWMF), to explore how wellness can become a powerful part of life after a cancer diagnosis. Ann Grace shares practical, calming techniques, including breathing exercises, “Bee’s Breath”, and guided meditation, that you can do anywhere to reduce stress and feel more grounded. We’ll also dive into what integrative wellness really means, why it matters for blood cancer patients, and how concepts like the “self-care sandwich” can help you start and end your day with intention. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Integrative oncology Palliative care How Do I Use Breathing To Manage Anxiety? IWMF wellness videos Integrative Oncology podcast episode International Waldenstrom’s Macroglobulinemia Foundation (IWMF) Additional Blood Cancer United Support Resources:  Free Nutrition Consultations Information Specialists  Financial support Clinical Trial Support Center Online Chat Free telephone/web patient programs  Free booklets  Young Adult Resources Support groups  Caregiver support  Caregiver Workbook Survivorship Workbook Advocacy and Public Policy Patient Community Mental Health Resources The post Hope Meets Healing: Simple Practices for Stress Relief first appeared on The Bloodline with Blood Cancer United Podcast.

    46 min

  4. 12/22/2025

    The Big Picture on Non-Hodgkin Lymphoma: Treatments, Trends, and Tomorrow

    Jean Koff, MD, MSc Non-Hodgkin lymphoma (NHL) can sound overwhelming, but what does it really mean for patients and families? In this episode, we speak to Dr. Jean Koff of Winship Cancer Institute of Emory University, who breaks down the big picture of NHL: what it is, how it’s an umbrella term for multiple subtypes, and what today’s treatments and tomorrow’s innovations could mean for you. From understanding subtypes and staging to exploring options like watchful waiting, chemotherapy, and cutting-edge immunotherapies, we cover what matters most: knowledge, clarity, and hope. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Non-Hodgkin lymphoma The Lymphoma Guide Lugano staging system Immunotherapy fact sheet CAR T-cell therapy Allogeneic stem cell transplantation Clinical Trial Support Center Online NHL Chat Additional Blood Cancer United Support Resources:  Free Nutrition Consultations Information Specialists  Financial support Free telephone/web patient programs  Free booklets  Young Adult Resources Support groups  Caregiver support  Caregiver Workbook Survivorship Workbook Advocacy and Public Policy Patient Community Mental Health Resources Supported by AbbVie Inc. and Genentech, A Member of the Roche Group. The post The Big Picture on Non-Hodgkin Lymphoma: Treatments, Trends, and Tomorrow first appeared on The Bloodline with Blood Cancer United Podcast.

    44 min

  5. 12/12/2025

    Nutrition Made Simple: Helping Kids Thrive During Cancer Treatment

    Michell Fullmer, RDN, LDN, CSP, CNSC Nutrition plays a powerful role in supporting children through cancer treatment, but it’s not always easy for caregivers to know what’s best, especially when there are taste changes, appetite shifts, and treatment side effects. In this episode, we sit down with Michell Fullmer, a registered dietitian at Nemours Children’s Hospital, to share practical insights that simplify nutrition during cancer care, reduce mealtime stress, and empower caregivers to make choices that help their child feel better every day. Join us for myth-busting, actionable tips, and reassurance from an expert who has guided countless families through this important part of care. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Free Nutrition Consultations Nemours Children’s Health Blood Cancer United Dare To Dream Project Navigating Cancer for Children and Teens HealthyWeight.gov Additional Blood Cancer United Support Resources:  Information Specialists  Free telephone/web patient programs  Clinical Trial Support Center Advocacy and Public Policy Free booklets  Financial support Young Adult Resources Support groups  Survivorship Workbook Community Caregiver support  Caregiver Workbook Mental Health Resources Supported by Nemours Children’s Health. The post Nutrition Made Simple: Helping Kids Thrive During Cancer Treatment first appeared on The Bloodline with Blood Cancer United Podcast.

    39 min

  6. 11/26/2025

    After Diagnosis: Finding Hope with Myeloproliferative Neoplasms

    Abdulraheem Yacoub, MD In this episode, we are joined by Dr. Abdulraheem Yacoub of The University of Kansas Cancer Center to discuss myeloproliferative neoplasms (MPN), a group of rare blood cancers that affect how blood cells are produced. We explore what MPNs are, the most common types, and the signs and symptoms that lead to diagnosis. We also answer real questions from members of our MPN online chat community, covering topics like life expectancy, genetic mutations, and managing side effects. Finally, we discuss current treatment options, emerging therapies, and share a message of hope for patients and their loved ones. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Myeloproliferative neoplasms (MPN) MPN Online Chat MPN-SAF Symptom Assessment Form MPN Research Consortium Tissue Bank Bispecific antibody/immunotherapy fact sheet CAR T-cell therapy Additional LLS Support Resources:  Free Nutrition Consultations Information Specialists  Free telephone/web patient programs  Clinical Trial Support Center Advocacy and Public Policy Free booklets  Financial support Young Adult Resources Support groups  Survivorship Workbook Community Caregiver support  Caregiver Workbook Mental Health Resources Supported by PharmaEssentia USA Corporation. The post After Diagnosis: Finding Hope with Myeloproliferative Neoplasms first appeared on The Bloodline with Blood Cancer United Podcast.

    55 min

  7. 11/04/2025

    Supporting the Supporter: Real Talk for Caregivers

    When cancer enters a family, it changes everything – routines, roles, and relationships. In this episode, we talk with Lindsey and Thomas Kealey about what it means to navigate cancer together as a care partner and patient. From unexpected diagnoses to months spent living in a hospital room, Lindsey shares how she balanced caregiving, work, and self-care while learning to hold space for difficult emotions. Together, they offer practical tips for caregivers, like creating healing spaces, communicating with care teams, and finding small moments of gratitude amid uncertainty. This heartfelt conversation is a reminder that behind every patient is someone quietly carrying so much and they deserve to be seen too. DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Caregiver support  Caregiver Workbook Additional LLS Support Resources:  Free Nutrition Consultations Information Specialists  Free telephone/web patient programs  Clinical Trial Support Center Write it Out Journal Advocacy and Public Policy Free booklets  Financial support Young Adult Resources Support groups  Survivorship Workbook Community Mental Health Resources The post Supporting the Supporter: Real Talk for Caregivers first appeared on The Bloodline with Blood Cancer United Podcast.

    51 min

  8. 10/28/2025

    MRD Explained: What it Means for You and Your Care

    John Burke, MD MRD (minimal/measurable residual disease) testing is changing the way doctors understand and monitor blood cancers.  In this episode, we talk with Dr. John Burke of the Rocky Mountain Cancer Center about how MRD testing works, what the results mean to patients and their care teams, and how ongoing clinical research is helping shape more personalized and hopeful approaches to treatment.  DOWNLOAD TRANSCRIPT CLICK HERE to participate in our episode survey. Mentioned on this episode:  Minimal/Measurable Residual Disease (MRD) fact sheet Minimal/Measurable Residual Disease (MRD) chart CAR T-cell therapy Additional LLS Support Resources:  Free Nutrition Consultations Information Specialists  Free telephone/web patient programs  Clinical Trial Support Center Advocacy and Public Policy Free booklets  Financial support Young Adult Resources Support groups  Survivorship Workbook Community Caregiver support  Caregiver Workbook Mental Health Resources Supported by Adaptive Biotechnologies Corporation and Allogene Therapeutics. The post MRD Explained: What it Means for You and Your Care first appeared on The Bloodline with Blood Cancer United Podcast.

    36 min
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A Podcast for Patients and Caregivers

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